4 recherche sur le mot-clé 'Racial Groups'

Are Developmental Monitoring and Screening Better Together for Early Autism Identification Across Race and Ethnic Groups? / Brian D. BARGER in Journal of Autism and Developmental Disorders, 52-1 (January 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-1 (January 2022) . - p.203-218 Titre : Are Developmental Monitoring and Screening Better Together for Early Autism Identification Across Race and Ethnic Groups? Type de document : texte imprimé Auteurs : Brian D. BARGER, Auteur ; Catherine E. RICE, Auteur ; Teal W. BENEVIDES, Auteur ; Ashley SALMON, Auteur ; Sonia SANCHEZ-ALVAREZ, Auteur ; Daniel CRIMMINS, Auteur Article en page(s) : p.203-218 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Child  Ethnicity  Humans  Prevalence  Racial Groups  Autism  Developmental Monitoring  Developmental Screening  Early Identification  Race Index. décimale : PER Périodiques Résumé : National Surveys of Children's Health (NSCH, 2016-2018) data were analyzed to determine if conjoint monitoring and screening showed stronger associations with children under 5 identified with ASD compared to monitoring alone, screening alone or no monitoring or screening; and investigate relationships between monitoring and screening across racial/ethnic subgroups. 86 of 332 children with ASD received their diagnosis in a timeframe suggesting potential monitoring and screening for identification purposes. Analyses showed that conjoint monitoring and screening and monitoring alone, but not screening alone, was associated with early identified ASD cases across race groups. Caution is warranted as interpreting NSCH monitoring and screening items solely for identification purposes is inaccurate in many cases. More research on monitoring with screening is needed. En ligne : http://dx.doi.org/10.1007/s10803-021-04943-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454 [article] Are Developmental Monitoring and Screening Better Together for Early Autism Identification Across Race and Ethnic Groups? [texte imprimé] / Brian D. BARGER, Auteur ; Catherine E. RICE, Auteur ; Teal W. BENEVIDES, Auteur ; Ashley SALMON, Auteur ; Sonia SANCHEZ-ALVAREZ, Auteur ; Daniel CRIMMINS, Auteur . - p.203-218. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-1 (January 2022) . - p.203-218 Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Child  Ethnicity  Humans  Prevalence  Racial Groups  Autism  Developmental Monitoring  Developmental Screening  Early Identification  Race Index. décimale : PER Périodiques Résumé : National Surveys of Children's Health (NSCH, 2016-2018) data were analyzed to determine if conjoint monitoring and screening showed stronger associations with children under 5 identified with ASD compared to monitoring alone, screening alone or no monitoring or screening; and investigate relationships between monitoring and screening across racial/ethnic subgroups. 86 of 332 children with ASD received their diagnosis in a timeframe suggesting potential monitoring and screening for identification purposes. Analyses showed that conjoint monitoring and screening and monitoring alone, but not screening alone, was associated with early identified ASD cases across race groups. Caution is warranted as interpreting NSCH monitoring and screening items solely for identification purposes is inaccurate in many cases. More research on monitoring with screening is needed. En ligne : http://dx.doi.org/10.1007/s10803-021-04943-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454

Autism presentation in female and Black populations: Examining the roles of identity, theory, and systemic inequalities / Maire Claire DIEMER in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.1931-1946 Titre : Autism presentation in female and Black populations: Examining the roles of identity, theory, and systemic inequalities Type de document : texte imprimé Auteurs : Maire Claire DIEMER, Auteur ; Emily D. GERSTEIN, Auteur ; April REGESTER, Auteur Article en page(s) : p.1931-1946 Langues : Anglais (eng) Mots-clés : Child  Humans  United States  Female  Child, Preschool  Autistic Disorder/diagnosis  Autism Spectrum Disorder/epidemiology  Intellectual Disability  Ethnicity  Racial Groups  African American  autism spectrum disorders  diagnosis  diversity  gender  health disparity  intellectual disability  intersectional  race  systemic inequality Index. décimale : PER Périodiques Résumé : Although the prevalence of autism has been rising in recent years, disparities in diagnosis still remain. Female and Black populations in the United States are diagnosed later, are more likely to have an intellectual disability, and are excluded from research as well as services designed for autistic individuals. Autistic Black girls are effectively invisible in the current scientific literature. Intersectional theory, which looks at a person as a whole, examines models that are inclusive toward diverse gender, ability, and racial/ethnic backgrounds. This theory may be a useful approach to clinical and research work with autism so that practitioners may be most effective for the whole population of autistic people. The authors recommend research focusing on inclusion of autistic populations with intellectual disability and research studies that include evaluations as part of the procedure. Clinically, the authors recommend a focus on screening all young children for autism and improving provider knowledge in working with diverse autistic populations. En ligne : http://dx.doi.org/10.1177/13623613221113501 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Autism presentation in female and Black populations: Examining the roles of identity, theory, and systemic inequalities [texte imprimé] / Maire Claire DIEMER, Auteur ; Emily D. GERSTEIN, Auteur ; April REGESTER, Auteur . - p.1931-1946. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.1931-1946 Mots-clés : Child  Humans  United States  Female  Child, Preschool  Autistic Disorder/diagnosis  Autism Spectrum Disorder/epidemiology  Intellectual Disability  Ethnicity  Racial Groups  African American  autism spectrum disorders  diagnosis  diversity  gender  health disparity  intellectual disability  intersectional  race  systemic inequality Index. décimale : PER Périodiques Résumé : Although the prevalence of autism has been rising in recent years, disparities in diagnosis still remain. Female and Black populations in the United States are diagnosed later, are more likely to have an intellectual disability, and are excluded from research as well as services designed for autistic individuals. Autistic Black girls are effectively invisible in the current scientific literature. Intersectional theory, which looks at a person as a whole, examines models that are inclusive toward diverse gender, ability, and racial/ethnic backgrounds. This theory may be a useful approach to clinical and research work with autism so that practitioners may be most effective for the whole population of autistic people. The authors recommend research focusing on inclusion of autistic populations with intellectual disability and research studies that include evaluations as part of the procedure. Clinically, the authors recommend a focus on screening all young children for autism and improving provider knowledge in working with diverse autistic populations. En ligne : http://dx.doi.org/10.1177/13623613221113501 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Still Left Behind: Fewer Black School-Aged Youth Receive ASD Diagnoses Compared to White Youth / Serene HABAYEB in Journal of Autism and Developmental Disorders, 52-5 (May 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-5 (May 2022) . - p.2274-2283 Titre : Still Left Behind: Fewer Black School-Aged Youth Receive ASD Diagnoses Compared to White Youth Type de document : texte imprimé Auteurs : Serene HABAYEB, Auteur ; Lauren KENWORTHY, Auteur ; Andrea DE LA TORRE, Auteur ; Allison B. RATTO, Auteur Article en page(s) : p.2274-2283 Langues : Anglais (eng) Mots-clés : Adolescent  Autism Spectrum Disorder/diagnosis  Blacks  Child  Humans  Population Surveillance  Prevalence  Racial Groups  Autism Spectrum Disorder  Diagnosis Delay  First Diagnosis  Race Index. décimale : PER Périodiques Résumé : Prior research suggests that Black children are at risk for delays in diagnosis of autism, but factors that influence diagnostic timing across races remain unclear. This study analyzed data from Black and White children who received a first-time autism diagnosis at a specialty clinic. Black youth were under-represented in the group who received a first diagnosis in middle/late childhood (i.e., after age six). Receiving a diagnosis later in childhood was related to higher IQ (trend level) and more internalizing problems for White children whereas it was related to lower IQ (trend level) and higher ASD symptom intensity for Black children. Findings suggest racial disparities in early identification of autism may be diminishing but persist among those diagnosed later in childhood.. En ligne : http://dx.doi.org/10.1007/s10803-021-05118-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476 [article] Still Left Behind: Fewer Black School-Aged Youth Receive ASD Diagnoses Compared to White Youth [texte imprimé] / Serene HABAYEB, Auteur ; Lauren KENWORTHY, Auteur ; Andrea DE LA TORRE, Auteur ; Allison B. RATTO, Auteur . - p.2274-2283. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-5 (May 2022) . - p.2274-2283 Mots-clés : Adolescent  Autism Spectrum Disorder/diagnosis  Blacks  Child  Humans  Population Surveillance  Prevalence  Racial Groups  Autism Spectrum Disorder  Diagnosis Delay  First Diagnosis  Race Index. décimale : PER Périodiques Résumé : Prior research suggests that Black children are at risk for delays in diagnosis of autism, but factors that influence diagnostic timing across races remain unclear. This study analyzed data from Black and White children who received a first-time autism diagnosis at a specialty clinic. Black youth were under-represented in the group who received a first diagnosis in middle/late childhood (i.e., after age six). Receiving a diagnosis later in childhood was related to higher IQ (trend level) and more internalizing problems for White children whereas it was related to lower IQ (trend level) and higher ASD symptom intensity for Black children. Findings suggest racial disparities in early identification of autism may be diminishing but persist among those diagnosed later in childhood.. En ligne : http://dx.doi.org/10.1007/s10803-021-05118-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476

Black and White caregivers' experiences with the autism diagnostic process / James D. LYNCH ; Kayva KANDARPA ; Suma KOLLA ; Maggie MICHAEL ; Waleia LARKIN ; Lisa L. HUNTER in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202598 Titre : Black and White caregivers' experiences with the autism diagnostic process Type de document : texte imprimé Auteurs : James D. LYNCH, Auteur ; Kayva KANDARPA, Auteur ; Suma KOLLA, Auteur ; Maggie MICHAEL, Auteur ; Waleia LARKIN, Auteur ; Lisa L. HUNTER, Auteur Article en page(s) : 202598 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Qualitative research  Patient satisfaction  Cultural competency  Parents  Racial groups  Diagnosis Index. décimale : PER Périodiques Résumé : Introduction Families commonly report dissatisfaction with the autism diagnostic process, including long waits and lack of follow-up care. Dissatisfaction may be amplified for Black families, who experience racism in the healthcare system and have less access to culturally responsive care. Methods We assessed open text box responses to a survey about caregivers' satisfaction with the diagnostic process of autism spectrum disorder. We recruited Black and White caregivers of children with autism who participated in a developmental evaluation in 2018 at a large midwestern hospital. Out of 174 who completed the satisfaction survey, 71 (46.6 %) caregivers gave one or more qualitative responses in open text boxes (17 [34.0 %] Black families, 54 [43.5 %] White families). Researchers analyzed themes using inductive methods for Black and White families. Results Families who expanded on their Likert responses in open text boxes were less satisfied with the diagnostic process than those who did not. Caregivers described mixed feedback about wait times, their providers, and the information they received. Black families specifically described a power differential between providers and themselves. Discussion Though not representative of all families' experiences, caregivers' qualitative feedback sheds light on important changes that could be implemented to improve families' experiences with the diagnostic process. We highlight several recommendations including family navigation, training in culturally responsive care, and shared decision making. En ligne : https://doi.org/10.1016/j.reia.2025.202598 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Black and White caregivers' experiences with the autism diagnostic process [texte imprimé] / James D. LYNCH, Auteur ; Kayva KANDARPA, Auteur ; Suma KOLLA, Auteur ; Maggie MICHAEL, Auteur ; Waleia LARKIN, Auteur ; Lisa L. HUNTER, Auteur . - 202598. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202598 Mots-clés : Autism spectrum disorders  Qualitative research  Patient satisfaction  Cultural competency  Parents  Racial groups  Diagnosis Index. décimale : PER Périodiques Résumé : Introduction Families commonly report dissatisfaction with the autism diagnostic process, including long waits and lack of follow-up care. Dissatisfaction may be amplified for Black families, who experience racism in the healthcare system and have less access to culturally responsive care. Methods We assessed open text box responses to a survey about caregivers' satisfaction with the diagnostic process of autism spectrum disorder. We recruited Black and White caregivers of children with autism who participated in a developmental evaluation in 2018 at a large midwestern hospital. Out of 174 who completed the satisfaction survey, 71 (46.6 %) caregivers gave one or more qualitative responses in open text boxes (17 [34.0 %] Black families, 54 [43.5 %] White families). Researchers analyzed themes using inductive methods for Black and White families. Results Families who expanded on their Likert responses in open text boxes were less satisfied with the diagnostic process than those who did not. Caregivers described mixed feedback about wait times, their providers, and the information they received. Black families specifically described a power differential between providers and themselves. Discussion Though not representative of all families' experiences, caregivers' qualitative feedback sheds light on important changes that could be implemented to improve families' experiences with the diagnostic process. We highlight several recommendations including family navigation, training in culturally responsive care, and shared decision making. En ligne : https://doi.org/10.1016/j.reia.2025.202598 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556