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On Scales of Measurement in Autism Spectrum Disorders (ASD) and Beyond: Where Smitty Went Wrong / Domenic V. CICCHETTI in Journal of Autism and Developmental Disorders, 44-2 (February 2014)
[article]
Titre : On Scales of Measurement in Autism Spectrum Disorders (ASD) and Beyond: Where Smitty Went Wrong Type de document : Texte imprimé et/ou numérique Auteurs : Domenic V. CICCHETTI, Auteur Article en page(s) : p.303-309 Langues : Anglais (eng) Mots-clés : Scales Measurement ASD Index. décimale : PER Périodiques Résumé : The author examined critically three beliefs of S.S. Stevens pertaining to his quadripartite system of scales of measurement: (1) There are four scales of measurement in common usage (2) These scales and the scientific disciplines that use them can be incrementally graded for levels of reliability and validity or accuracy such that: Nominal scale variables produce the lowest levels of reliability and accuracy; with successively improving levels for Ordinal, Equal Interval, and Equal Ratio scales; and (3) The scale upon which a variable is measured determines the type of statistical test that one is permitted to apply. It was shown that each of the three beliefs is fundamentally flawed. En ligne : http://dx.doi.org/10.1007/s10803-012-1486-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=223
in Journal of Autism and Developmental Disorders > 44-2 (February 2014) . - p.303-309[article] On Scales of Measurement in Autism Spectrum Disorders (ASD) and Beyond: Where Smitty Went Wrong [Texte imprimé et/ou numérique] / Domenic V. CICCHETTI, Auteur . - p.303-309.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 44-2 (February 2014) . - p.303-309
Mots-clés : Scales Measurement ASD Index. décimale : PER Périodiques Résumé : The author examined critically three beliefs of S.S. Stevens pertaining to his quadripartite system of scales of measurement: (1) There are four scales of measurement in common usage (2) These scales and the scientific disciplines that use them can be incrementally graded for levels of reliability and validity or accuracy such that: Nominal scale variables produce the lowest levels of reliability and accuracy; with successively improving levels for Ordinal, Equal Interval, and Equal Ratio scales; and (3) The scale upon which a variable is measured determines the type of statistical test that one is permitted to apply. It was shown that each of the three beliefs is fundamentally flawed. En ligne : http://dx.doi.org/10.1007/s10803-012-1486-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=223 Stigma and knowledge about autism in Brazil: A psychometric and intervention study / Mônia Aparecida DA SILVA ; Paulo Felipe Ribeiro BANDEIRA ; Kristen GILLESPIE-LYNCH ; Regina Basso ZANON in Autism, 28-1 (January 2024)
[article]
Titre : Stigma and knowledge about autism in Brazil: A psychometric and intervention study Type de document : Texte imprimé et/ou numérique Auteurs : Mônia Aparecida DA SILVA, Auteur ; Paulo Felipe Ribeiro BANDEIRA, Auteur ; Kristen GILLESPIE-LYNCH, Auteur ; Regina Basso ZANON, Auteur Article en page(s) : p.215?228 Mots-clés : autism knowledge network analysis stigma scales Index. décimale : PER Périodiques Résumé : Researchers from Brazil reached out to a researcher in the United States to co-develop and evaluate the psychometric properties of a Brazilian version of an autism stigma (social distance) scale and a Participatory Autism Knowledge-Measure (Study 1) and to assess the impact of an online training on autism stigma and knowledge in a Brazilian sample (Study 2). In a psychometric study, 532 Brazilians completed the stigma (EARPA) while 510 completed the knowledge scale (ECAT). In Study 2, 79 Brazilians (mostly white, female university students) participated in a quasi-experimental training evaluation. Exploratory graph analysis revealed one cluster on the EARPA and four clusters on the ECAT (intervention, diagnosis and etiology; autism in adulthood; repetitive behaviors and restricted interests; and socio-communicative development). The training evaluation revealed improvements across most EARPA and ECAT items, as well as changes in all centrality indicators assessed through the network analysis, suggesting that autism stigma and knowledge improved with training. Both scales are promising instruments and may be useful in future Brazilian and cross-cultural studies. The training could be used more widely to improve autism understanding in Brazil. Further cultural adaptations will likely be needed to make the training well-suited to the myriad cultural contexts present within Brazil. Lay abstract To promote the full inclusion of autistic people, we must change the knowledge and attitudes of non-autistic individuals. Unfortunately, access to autism information and support remains limited in Brazil, and stigma is also common. Brazilian researchers reached out to a researcher in the United States to co-develop Brazilian surveys to measure autism stigma and knowledge. Together, they made Brazilian versions of stigma and knowledge surveys which autistic people in the United States had helped make. They also adapted an online autism training used in other countries with help from three Brazilian autistic people and the mother of an autistic child. They used the new measures to see if the autism training improved autism stigma and knowledge among Brazilians. The surveys, called EARPA and ECAT in Brazil, were translated into Portuguese in a previous study. In the first study in this article, 532 Brazilians completed the stigma measure and 510 completed the knowledge measure. The researchers used exploratory graph analysis, which uses the connections between items in a survey to understand which items belong together. Seventy-nine Brazilians participated in the training. They were mostly white, female university students. The EGA showed that the stigma survey measured one big idea while the knowledge survey measured four ideas: diagnosis/cause; socio-communicative development; stimming and special interests; and autism in adulthood. Both scales are promising and may be helpful in future Brazilian and cross-cultural studies about autism. Participants reported more knowledge and less stigma after the autism training, which has been found in other countries too. En ligne : https://dx.doi.org/10.1177/13623613231168917 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519
in Autism > 28-1 (January 2024) . - p.215?228[article] Stigma and knowledge about autism in Brazil: A psychometric and intervention study [Texte imprimé et/ou numérique] / Mônia Aparecida DA SILVA, Auteur ; Paulo Felipe Ribeiro BANDEIRA, Auteur ; Kristen GILLESPIE-LYNCH, Auteur ; Regina Basso ZANON, Auteur . - p.215?228.
in Autism > 28-1 (January 2024) . - p.215?228
Mots-clés : autism knowledge network analysis stigma scales Index. décimale : PER Périodiques Résumé : Researchers from Brazil reached out to a researcher in the United States to co-develop and evaluate the psychometric properties of a Brazilian version of an autism stigma (social distance) scale and a Participatory Autism Knowledge-Measure (Study 1) and to assess the impact of an online training on autism stigma and knowledge in a Brazilian sample (Study 2). In a psychometric study, 532 Brazilians completed the stigma (EARPA) while 510 completed the knowledge scale (ECAT). In Study 2, 79 Brazilians (mostly white, female university students) participated in a quasi-experimental training evaluation. Exploratory graph analysis revealed one cluster on the EARPA and four clusters on the ECAT (intervention, diagnosis and etiology; autism in adulthood; repetitive behaviors and restricted interests; and socio-communicative development). The training evaluation revealed improvements across most EARPA and ECAT items, as well as changes in all centrality indicators assessed through the network analysis, suggesting that autism stigma and knowledge improved with training. Both scales are promising instruments and may be useful in future Brazilian and cross-cultural studies. The training could be used more widely to improve autism understanding in Brazil. Further cultural adaptations will likely be needed to make the training well-suited to the myriad cultural contexts present within Brazil. Lay abstract To promote the full inclusion of autistic people, we must change the knowledge and attitudes of non-autistic individuals. Unfortunately, access to autism information and support remains limited in Brazil, and stigma is also common. Brazilian researchers reached out to a researcher in the United States to co-develop Brazilian surveys to measure autism stigma and knowledge. Together, they made Brazilian versions of stigma and knowledge surveys which autistic people in the United States had helped make. They also adapted an online autism training used in other countries with help from three Brazilian autistic people and the mother of an autistic child. They used the new measures to see if the autism training improved autism stigma and knowledge among Brazilians. The surveys, called EARPA and ECAT in Brazil, were translated into Portuguese in a previous study. In the first study in this article, 532 Brazilians completed the stigma measure and 510 completed the knowledge measure. The researchers used exploratory graph analysis, which uses the connections between items in a survey to understand which items belong together. Seventy-nine Brazilians participated in the training. They were mostly white, female university students. The EGA showed that the stigma survey measured one big idea while the knowledge survey measured four ideas: diagnosis/cause; socio-communicative development; stimming and special interests; and autism in adulthood. Both scales are promising and may be helpful in future Brazilian and cross-cultural studies about autism. Participants reported more knowledge and less stigma after the autism training, which has been found in other countries too. En ligne : https://dx.doi.org/10.1177/13623613231168917 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519 Understanding the Experience of Stigma for Parents of Children with Autism Spectrum Disorder and the Role Stigma Plays in Families’ Lives / Sydney H. KINNEAR in Journal of Autism and Developmental Disorders, 46-3 (March 2016)
[article]
Titre : Understanding the Experience of Stigma for Parents of Children with Autism Spectrum Disorder and the Role Stigma Plays in Families’ Lives Type de document : Texte imprimé et/ou numérique Auteurs : Sydney H. KINNEAR, Auteur ; Bruce G. LINK, Auteur ; Michelle S. BALLAN, Auteur ; Ruth L. FISCHBACH, Auteur Article en page(s) : p.942-953 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Stigma Stereotyping Rejection Exclusion Discrimination Scales Regression analysis Index. décimale : PER Périodiques Résumé : Stigma is widely perceived in the lives of families with autism spectrum disorder (ASD) yet large, systematic studies have not been undertaken. Following Link and Phelan’s (Ann Rev Sociol 27:363–385, 2001) model, this study of 502 Simons Simplex Collection families details how different factors contribute to stigma and how each appears to increase the overall difficulty of raising a child with ASD. The model begins with the child’s behavioral symptoms and then specifies stigma processes of stereotyping, rejection, and exclusion. Autism behaviors contribute both to the difficulty families experience raising a child with autism and to the stigma processes associated with those behaviors. Stigma also plays a significant role (.282, p < .001) in predicting how difficult life is overall for parents. En ligne : http://dx.doi.org/10.1007/s10803-015-2637-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=281
in Journal of Autism and Developmental Disorders > 46-3 (March 2016) . - p.942-953[article] Understanding the Experience of Stigma for Parents of Children with Autism Spectrum Disorder and the Role Stigma Plays in Families’ Lives [Texte imprimé et/ou numérique] / Sydney H. KINNEAR, Auteur ; Bruce G. LINK, Auteur ; Michelle S. BALLAN, Auteur ; Ruth L. FISCHBACH, Auteur . - p.942-953.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 46-3 (March 2016) . - p.942-953
Mots-clés : Autism spectrum disorder Stigma Stereotyping Rejection Exclusion Discrimination Scales Regression analysis Index. décimale : PER Périodiques Résumé : Stigma is widely perceived in the lives of families with autism spectrum disorder (ASD) yet large, systematic studies have not been undertaken. Following Link and Phelan’s (Ann Rev Sociol 27:363–385, 2001) model, this study of 502 Simons Simplex Collection families details how different factors contribute to stigma and how each appears to increase the overall difficulty of raising a child with ASD. The model begins with the child’s behavioral symptoms and then specifies stigma processes of stereotyping, rejection, and exclusion. Autism behaviors contribute both to the difficulty families experience raising a child with autism and to the stigma processes associated with those behaviors. Stigma also plays a significant role (.282, p < .001) in predicting how difficult life is overall for parents. En ligne : http://dx.doi.org/10.1007/s10803-015-2637-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=281