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Service Delivery Experiences and Intervention Needs of Military Families with Children with ASD / Jennifer M. DAVIS in Journal of Autism and Developmental Disorders, 46-5 (May 2016)
[article]
Titre : Service Delivery Experiences and Intervention Needs of Military Families with Children with ASD Type de document : Texte imprimé et/ou numérique Auteurs : Jennifer M. DAVIS, Auteur ; Erinn FINKE, Auteur ; Benjamin HICKERSON, Auteur Article en page(s) : p.1748-1761 Langues : Anglais (eng) Mots-clés : Autism Military families Service delivery Survey Index. décimale : PER Périodiques Résumé : The purpose of this study was to describe the experiences of military families with children with autism spectrum disorder (ASD) specifically as it relates to relocation. Online survey methodology was used to gather information from military spouses with children with ASD. The finalized dataset included 189 cases. Descriptive statistics and frequency analyses were used to examine participant demographics and service delivery questions. Results indicated the larger sample of military spouses largely confirmed the experiences reported qualitatively in previous studies and contributed information that was previously unknown about variables associated with the access, availability, quality, and frequency of intervention services for military families with children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-016-2706-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288
in Journal of Autism and Developmental Disorders > 46-5 (May 2016) . - p.1748-1761[article] Service Delivery Experiences and Intervention Needs of Military Families with Children with ASD [Texte imprimé et/ou numérique] / Jennifer M. DAVIS, Auteur ; Erinn FINKE, Auteur ; Benjamin HICKERSON, Auteur . - p.1748-1761.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 46-5 (May 2016) . - p.1748-1761
Mots-clés : Autism Military families Service delivery Survey Index. décimale : PER Périodiques Résumé : The purpose of this study was to describe the experiences of military families with children with autism spectrum disorder (ASD) specifically as it relates to relocation. Online survey methodology was used to gather information from military spouses with children with ASD. The finalized dataset included 189 cases. Descriptive statistics and frequency analyses were used to examine participant demographics and service delivery questions. Results indicated the larger sample of military spouses largely confirmed the experiences reported qualitatively in previous studies and contributed information that was previously unknown about variables associated with the access, availability, quality, and frequency of intervention services for military families with children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-016-2706-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288 Brief Report: Perceptions of Family-Centered Care Across Service Delivery Systems and Types of Caregiver Concerns About Their Toddlers' Development / Catherine C. DICK in Journal of Autism and Developmental Disorders, 52-9 (September 2022)
[article]
Titre : Brief Report: Perceptions of Family-Centered Care Across Service Delivery Systems and Types of Caregiver Concerns About Their Toddlers' Development Type de document : Texte imprimé et/ou numérique Auteurs : Catherine C. DICK, Auteur ; Lisa V. IBAÑEZ, Auteur ; Trent D. DESCHAMPS, Auteur ; Shana M. ATTAR, Auteur ; Wendy L. STONE, Auteur Article en page(s) : p.4181-4190 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Caregivers Child, Preschool Early Intervention, Educational Family Humans Patient-Centered Care Autism concerns Autism spectrum disorder Caregiver experiences Early intervention Family-centered care Primary care Service delivery Index. décimale : PER Périodiques Résumé : Family-centered care represents a collaborative partnership between caregivers and service providers, and is associated with positive caregiver and child outcomes. This approach may be especially important for caregivers with early concerns about autism, as service providers are often the gateway to appropriately-specialized intervention. Perceptions of family-centered care received from primary care providers (PCPs) and Part C Early Intervention (EI) providers were rated by two groups of caregivers: those concerned about autism (n=37) and those concerned about another developmental problem (n=22), using the Measure of Processes of Care (MPOC-20). Ratings did not differ across caregiver groups, but both groups rated EI providers significantly higher than PCPs, which may reflect systems-level differences between primary care and EI. En ligne : http://dx.doi.org/10.1007/s10803-021-05248-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486
in Journal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4181-4190[article] Brief Report: Perceptions of Family-Centered Care Across Service Delivery Systems and Types of Caregiver Concerns About Their Toddlers' Development [Texte imprimé et/ou numérique] / Catherine C. DICK, Auteur ; Lisa V. IBAÑEZ, Auteur ; Trent D. DESCHAMPS, Auteur ; Shana M. ATTAR, Auteur ; Wendy L. STONE, Auteur . - p.4181-4190.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4181-4190
Mots-clés : Autism Spectrum Disorder Caregivers Child, Preschool Early Intervention, Educational Family Humans Patient-Centered Care Autism concerns Autism spectrum disorder Caregiver experiences Early intervention Family-centered care Primary care Service delivery Index. décimale : PER Périodiques Résumé : Family-centered care represents a collaborative partnership between caregivers and service providers, and is associated with positive caregiver and child outcomes. This approach may be especially important for caregivers with early concerns about autism, as service providers are often the gateway to appropriately-specialized intervention. Perceptions of family-centered care received from primary care providers (PCPs) and Part C Early Intervention (EI) providers were rated by two groups of caregivers: those concerned about autism (n=37) and those concerned about another developmental problem (n=22), using the Measure of Processes of Care (MPOC-20). Ratings did not differ across caregiver groups, but both groups rated EI providers significantly higher than PCPs, which may reflect systems-level differences between primary care and EI. En ligne : http://dx.doi.org/10.1007/s10803-021-05248-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486 "The key to this is not so much the technology. It's the individual who is using the technology": Perspectives on telehealth delivery for autistic adults during the COVID-19 pandemic / Dorota ALI in Autism, 27-2 (February 2023)
[article]
Titre : "The key to this is not so much the technology. It's the individual who is using the technology": Perspectives on telehealth delivery for autistic adults during the COVID-19 pandemic Type de document : Texte imprimé et/ou numérique Auteurs : Dorota ALI, Auteur ; Sarah O’BRIEN, Auteur ; Laura HULL, Auteur ; Lorcan KENNY, Auteur ; Will MANDY, Auteur Année de publication : 2023 Article en page(s) : p.552-564 Langues : Anglais (eng) Mots-clés : autism mental health physical health service delivery telehealth Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic prompted a large-scale move to remote delivery of healthcare services. However, little research has directly explored telehealth experiences of autistic adults, a population strongly affected by health inequalities and care access barriers. This study sought telehealth experiences of 11 autistic adults (aged 27 “67 years), seven family members/carers (aged 44 “75) reporting about autistic people and six service providers. In-depth qualitative interviews were conducted with all participants, which were then thematically analysed. Two over-arching themes identified were technology aids communication and access “ except when it doesn’t, and in/flexibility, with a number of sub-themes. The themes, on one hand, highlighted positives of telehealth delivery, including easing some aspects of communication and decreased stress and, on the other hand, negatives, such as increased rigidity of the healthcare system, amplifying pre-existing barriers. Considering autistic people experience barriers to accessing healthcare, this study highlights such barriers could be, in some instances, addressed via remote delivery, as well as possible limitations of telehealth for some autistic adults. En ligne : http://dx.doi.org/10.1177/13623613221108010 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493
in Autism > 27-2 (February 2023) . - p.552-564[article] "The key to this is not so much the technology. It's the individual who is using the technology": Perspectives on telehealth delivery for autistic adults during the COVID-19 pandemic [Texte imprimé et/ou numérique] / Dorota ALI, Auteur ; Sarah O’BRIEN, Auteur ; Laura HULL, Auteur ; Lorcan KENNY, Auteur ; Will MANDY, Auteur . - 2023 . - p.552-564.
Langues : Anglais (eng)
in Autism > 27-2 (February 2023) . - p.552-564
Mots-clés : autism mental health physical health service delivery telehealth Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic prompted a large-scale move to remote delivery of healthcare services. However, little research has directly explored telehealth experiences of autistic adults, a population strongly affected by health inequalities and care access barriers. This study sought telehealth experiences of 11 autistic adults (aged 27 “67 years), seven family members/carers (aged 44 “75) reporting about autistic people and six service providers. In-depth qualitative interviews were conducted with all participants, which were then thematically analysed. Two over-arching themes identified were technology aids communication and access “ except when it doesn’t, and in/flexibility, with a number of sub-themes. The themes, on one hand, highlighted positives of telehealth delivery, including easing some aspects of communication and decreased stress and, on the other hand, negatives, such as increased rigidity of the healthcare system, amplifying pre-existing barriers. Considering autistic people experience barriers to accessing healthcare, this study highlights such barriers could be, in some instances, addressed via remote delivery, as well as possible limitations of telehealth for some autistic adults. En ligne : http://dx.doi.org/10.1177/13623613221108010 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 Autism severity, co-occurring psychopathology, and intellectual functioning predict supportive school services for youth with autism spectrum disorder / T. E. ROSEN in Autism, 23-7 (October 2019)
[article]
Titre : Autism severity, co-occurring psychopathology, and intellectual functioning predict supportive school services for youth with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : T. E. ROSEN, Auteur ; C. J. SPAULDING, Auteur ; J. A. GATES, Auteur ; M. D. LERNER, Auteur Article en page(s) : p.1805-1816 Langues : Anglais (eng) Mots-clés : autism spectrum disorder comorbidity informant service delivery special education Index. décimale : PER Périodiques Résumé : Supportive school services are a primary service modality for youth with autism spectrum disorder. Autism spectrum disorder, as well as co-occurring psychiatric symptoms and low intellectual abilities, interfere with academic achievement and therefore influence decisions about school services. Therefore, we examined the association of parent, teacher, and clinician ratings of autism spectrum disorder and co-occurring psychiatric symptom severity and intellectual functioning with school services. In total, 283 youth with autism spectrum disorder were assessed with clinical evaluation via the Autism Diagnostic Observation Schedule and parent and teacher versions of the CASI-4R (Child and Adolescent Symptom Inventory). Full Scale Intelligence Quotient scores were obtained from case records. Clinical and teacher evaluations of autism spectrum disorder severity predicted services and were more strongly associated with school services than parent ratings. Teacher ratings were only associated with common school services (e.g. speech/language therapy, occupational therapy, and/or social skills training) frequency at medium and high levels of clinician-rated autism spectrum disorder severity. Higher IQ and parent-rated externalizing symptoms predicted lower likelihood of receiving school services, whereas internalizing symptoms were not predictive of school services. Autism spectrum disorder symptoms may overshadow externalizing and internalizing symptoms when considering school service supports. Results highlight the importance of evaluating autism spectrum disorder severity via multiple sources, especially in cases of unclear symptom presentation, when examining correlates of school services for youth with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361318809690 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=406
in Autism > 23-7 (October 2019) . - p.1805-1816[article] Autism severity, co-occurring psychopathology, and intellectual functioning predict supportive school services for youth with autism spectrum disorder [Texte imprimé et/ou numérique] / T. E. ROSEN, Auteur ; C. J. SPAULDING, Auteur ; J. A. GATES, Auteur ; M. D. LERNER, Auteur . - p.1805-1816.
Langues : Anglais (eng)
in Autism > 23-7 (October 2019) . - p.1805-1816
Mots-clés : autism spectrum disorder comorbidity informant service delivery special education Index. décimale : PER Périodiques Résumé : Supportive school services are a primary service modality for youth with autism spectrum disorder. Autism spectrum disorder, as well as co-occurring psychiatric symptoms and low intellectual abilities, interfere with academic achievement and therefore influence decisions about school services. Therefore, we examined the association of parent, teacher, and clinician ratings of autism spectrum disorder and co-occurring psychiatric symptom severity and intellectual functioning with school services. In total, 283 youth with autism spectrum disorder were assessed with clinical evaluation via the Autism Diagnostic Observation Schedule and parent and teacher versions of the CASI-4R (Child and Adolescent Symptom Inventory). Full Scale Intelligence Quotient scores were obtained from case records. Clinical and teacher evaluations of autism spectrum disorder severity predicted services and were more strongly associated with school services than parent ratings. Teacher ratings were only associated with common school services (e.g. speech/language therapy, occupational therapy, and/or social skills training) frequency at medium and high levels of clinician-rated autism spectrum disorder severity. Higher IQ and parent-rated externalizing symptoms predicted lower likelihood of receiving school services, whereas internalizing symptoms were not predictive of school services. Autism spectrum disorder symptoms may overshadow externalizing and internalizing symptoms when considering school service supports. Results highlight the importance of evaluating autism spectrum disorder severity via multiple sources, especially in cases of unclear symptom presentation, when examining correlates of school services for youth with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361318809690 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=406 ?We are doing damage control?: Government stakeholder perspectives of educational and other services for children with autism spectrum disorder in South Africa / Madeleine DUNCAN ; Petrus J. DE VRIES in Autism, 28-1 (January 2024)
[article]
Titre : ?We are doing damage control?: Government stakeholder perspectives of educational and other services for children with autism spectrum disorder in South Africa Type de document : Texte imprimé et/ou numérique Auteurs : Madeleine DUNCAN, Auteur ; Petrus J. DE VRIES, Auteur Article en page(s) : p.73?83 Mots-clés : autism spectrum disorder education government stakeholder perspectives low- and middle-income countries qualitative research service delivery Index. décimale : PER Périodiques Résumé : Autism spectrum disorder is a growing public health concern in low-and middle-income countries that has prompted a World Health Organization resolution on ?comprehensive and coordinated efforts for management of autism spectrum disorder?. Despite being a signatory of the resolution, South Africa does not have any national policies to guide the management of autism spectrum disorder services. This study explored the perspectives of key government stakeholders on educational and other services for children with autism spectrum disorder in the Western Cape Province of South Africa and their proposed solutions to meet the needs of autistic children and their families. The overarching theme that emerged was ?We are doing damage control?. Government stakeholders acknowledged that autism spectrum disorder services were falling between the ?cracks? caused by competing societal demands on government resources. Participants shared perspectives about autism spectrum disorder services in three categories: a cracked society, siloed service systems and gap-filling strategies. Findings from this study highlighted the need for collaborative efforts between government departments and civil society to develop a strategy for autism spectrum disorder in line with the World Health Organization resolution. Multistakeholder engagement to break down barriers, strengthen systems and develop innovative solutions to improving services for children with autism spectrum disorder and their families is recommended. Lay abstract Autism spectrum disorder is a growing public health concern in low- and middle-income countries like South Africa where there are no plans or policies in place for autism spectrum disorder management. Many children with autism spectrum disorder in South Africa are out of schools and waiting for school placement to become available. This study explored the perspectives of key government stakeholders on educational and other services for children with autism spectrum disorder in the Western Cape Province of South Africa and their suggestion for improving services for these children and their families. Semi-structured interviews were conducted with government stakeholders from the Western Cape Department of Education, Department of Health and the Department of Social development. The main theme that emerged was ?We are doing damage control?. Government stakeholders acknowledged that autism spectrum disorder services were being overlooked because of other demands on government resources. Finding from this study highlighted the need for government departments to work together to develop a strategy for autism spectrum disorder management. Engagement between government and civil society to break down barriers, strengthen systems and develop solutions to improving access to services for children with autism spectrum disorder and their families is recommended. En ligne : https://dx.doi.org/10.1177/13623613221142111 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519
in Autism > 28-1 (January 2024) . - p.73?83[article] ?We are doing damage control?: Government stakeholder perspectives of educational and other services for children with autism spectrum disorder in South Africa [Texte imprimé et/ou numérique] / Madeleine DUNCAN, Auteur ; Petrus J. DE VRIES, Auteur . - p.73?83.
in Autism > 28-1 (January 2024) . - p.73?83
Mots-clés : autism spectrum disorder education government stakeholder perspectives low- and middle-income countries qualitative research service delivery Index. décimale : PER Périodiques Résumé : Autism spectrum disorder is a growing public health concern in low-and middle-income countries that has prompted a World Health Organization resolution on ?comprehensive and coordinated efforts for management of autism spectrum disorder?. Despite being a signatory of the resolution, South Africa does not have any national policies to guide the management of autism spectrum disorder services. This study explored the perspectives of key government stakeholders on educational and other services for children with autism spectrum disorder in the Western Cape Province of South Africa and their proposed solutions to meet the needs of autistic children and their families. The overarching theme that emerged was ?We are doing damage control?. Government stakeholders acknowledged that autism spectrum disorder services were falling between the ?cracks? caused by competing societal demands on government resources. Participants shared perspectives about autism spectrum disorder services in three categories: a cracked society, siloed service systems and gap-filling strategies. Findings from this study highlighted the need for collaborative efforts between government departments and civil society to develop a strategy for autism spectrum disorder in line with the World Health Organization resolution. Multistakeholder engagement to break down barriers, strengthen systems and develop innovative solutions to improving services for children with autism spectrum disorder and their families is recommended. Lay abstract Autism spectrum disorder is a growing public health concern in low- and middle-income countries like South Africa where there are no plans or policies in place for autism spectrum disorder management. Many children with autism spectrum disorder in South Africa are out of schools and waiting for school placement to become available. This study explored the perspectives of key government stakeholders on educational and other services for children with autism spectrum disorder in the Western Cape Province of South Africa and their suggestion for improving services for these children and their families. Semi-structured interviews were conducted with government stakeholders from the Western Cape Department of Education, Department of Health and the Department of Social development. The main theme that emerged was ?We are doing damage control?. Government stakeholders acknowledged that autism spectrum disorder services were being overlooked because of other demands on government resources. Finding from this study highlighted the need for government departments to work together to develop a strategy for autism spectrum disorder management. Engagement between government and civil society to break down barriers, strengthen systems and develop solutions to improving access to services for children with autism spectrum disorder and their families is recommended. En ligne : https://dx.doi.org/10.1177/13623613221142111 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519 Family-centered care practices in a multidisciplinary sample of pediatric professionals providing autism spectrum disorder services in the United States / Lillian M. CHRISTON in Research in Autism Spectrum Disorders, 20 (December 2015)
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