34 recherche sur le mot-clé 'Services'

Access to services for autistic people across Europe / Siti Nurnadhirah BINTE MOHD IKHSAN in Molecular Autism, 16 (2025)  

Public ISBD [article]  inMolecular Autism > 16 (2025) . - 35 Titre : Access to services for autistic people across Europe Type de document : texte imprimé Auteurs : Siti Nurnadhirah BINTE MOHD IKHSAN, Auteur ; Rosemary J. HOLT, Auteur ; Joyce MAN, Auteur ; Tracey PARSONS, Auteur ; Rik SCHALBROECK, Auteur ; Amber N.V. RUIGROK, Auteur ; Aurélie BARANGER, Auteur ; Carrie ALLISON, Auteur ; Mary DOHERTY, Auteur ; Katrien VAN DEN BOSCH, Auteur ; Jerneja TERČON, Auteur ; Pierre VIOLLAND, Auteur ; Anjuli GHOSH, Auteur ; James CUSACK, Auteur ; Simon BARON-COHEN, Auteur ; Siti Nurnadhirah BINTE MOHD IKHSAN, Auteur ; Rosemary J. HOLT, Auteur ; Joyce MAN, Auteur ; Tracey PARSONS, Auteur ; Rik SCHALBROECK, Auteur ; Amber N.V. RUIGROK, Auteur ; Aurélie BARANGER, Auteur ; Carrie ALLISON, Auteur ; Mary DOHERTY, Auteur ; Katrien VAN DEN BOSCH, Auteur ; Jerneja TERČON, Auteur ; Pierre VIOLLAND, Auteur ; Anjuli GHOSH, Auteur ; James CUSACK, Auteur ; Simon BARON-COHEN, Auteur Article en page(s) : 35 Langues : Anglais (eng) Mots-clés : Humans  Male  Health Services Accessibility/statistics & numerical data  Female  Adult  Autistic Disorder/therapy/epidemiology/diagnosis  Europe/epidemiology  Adolescent  Middle Aged  Child  Young Adult  Surveys and Questionnaires  United Kingdom  Autism  Europe  Policy  Service access  Service barriers  Services  Survey  conducted in accordance with the principles outlined in the Declaration of  Helsinki. All participants gave written informed consent in the ACCESS-EU study,  which was approved by the Cambridge Psychology Research Ethics Committee  (reference number PRE.2019.088). As this research involved an online survey, it  adhered to ethical standards for informed consent, participant confidentiality,  and data protection. All participants were provided with a clear informed consent  form and assured that their participation was voluntary, anonymous, and  confidential. Consent for publication: Not applicable. Competing interests: Simon  Baron-Cohen is the previous Editor-in-Chief of Molecular Autism. Index. décimale : PER Périodiques Résumé : BACKGROUND: Autistic communities in Europe continue to face difficulties accessing services despite increasing rates of autism diagnosis in recent years. METHODS: To investigate autistic people's access to services in Europe and reasons for unsuccessful access, we conducted the ACCESS-EU survey comprising of 2322 formally diagnosed autistic people and family carers living within the European Union (EU) and the United Kingdom (UK). The survey also examined age group (adult vs. child) and gender (male vs. female) differences in results. RESULTS: Overall, autistic people reported access to therapy (33.38%), mental health (29.89%), educational (27.05%), medical (34.28%), financial (26.66%), needs assessment (14.90%), information/referral (14.73%), social care (14.43%), employment (7.54%), housing (6.80%), legal (3.96%), helpline (3.40%) and other services (0.26%), and most (≥ 57.61%) had waited up to 6 months from referral to access most services. Several respondents were also unable to access therapeutic (13.53%), mental health (11.90%), autism diagnostic (5.92%), needs assessment (8.32%), financial (9.62%), educational (8.10%), social care (7.39%), information/referral (6.14%), medical (7.28%), housing (5.92%), employment (5.43%), legal (3.42%), and helpline services (2.34%). Reasons cited by respondents for their unsuccessful service access included service unavailability (23.08%), service unsuitability or participant ineligibility (20.04%), long waitlists (17.42%), service unaffordability (11.80%), and rejection from service due to autism diagnosis (9.87%), along with other reasons not listed in the survey (18.42%). Significant age group and gender differences were observed for successful access to services, waiting time, unsuccessful access and reasons for unsuccessful access. Among the five most represented countries in the survey-the UK (33.33%), Spain (14.04%), Poland (13.87%), France (11.07%) and Germany (6.03%)-overall service access was most inconsistent in Poland and the UK, highest in Germany and Spain but poorest in France. LIMITATIONS: Issues related to survey presentation such as the languages in which the survey was conducted and the phrasing of some questions should be considered, as well as issues regarding subjectivity and ambiguity of data analysis such as translation of non-English responses into English. CONCLUSIONS: Our findings suggest that service access among autistic people in Europe is inconsistent. Significant improvement to current policies is required to enhance access to services across Europe. En ligne : https://dx.doi.org/10.1186/s13229-025-00664-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=569 [article] Access to services for autistic people across Europe [texte imprimé] / Siti Nurnadhirah BINTE MOHD IKHSAN, Auteur ; Rosemary J. HOLT, Auteur ; Joyce MAN, Auteur ; Tracey PARSONS, Auteur ; Rik SCHALBROECK, Auteur ; Amber N.V. RUIGROK, Auteur ; Aurélie BARANGER, Auteur ; Carrie ALLISON, Auteur ; Mary DOHERTY, Auteur ; Katrien VAN DEN BOSCH, Auteur ; Jerneja TERČON, Auteur ; Pierre VIOLLAND, Auteur ; Anjuli GHOSH, Auteur ; James CUSACK, Auteur ; Simon BARON-COHEN, Auteur ; Siti Nurnadhirah BINTE MOHD IKHSAN, Auteur ; Rosemary J. HOLT, Auteur ; Joyce MAN, Auteur ; Tracey PARSONS, Auteur ; Rik SCHALBROECK, Auteur ; Amber N.V. RUIGROK, Auteur ; Aurélie BARANGER, Auteur ; Carrie ALLISON, Auteur ; Mary DOHERTY, Auteur ; Katrien VAN DEN BOSCH, Auteur ; Jerneja TERČON, Auteur ; Pierre VIOLLAND, Auteur ; Anjuli GHOSH, Auteur ; James CUSACK, Auteur ; Simon BARON-COHEN, Auteur . - 35. Langues : Anglais (eng) in Molecular Autism > 16 (2025) . - 35 Mots-clés : Humans  Male  Health Services Accessibility/statistics & numerical data  Female  Adult  Autistic Disorder/therapy/epidemiology/diagnosis  Europe/epidemiology  Adolescent  Middle Aged  Child  Young Adult  Surveys and Questionnaires  United Kingdom  Autism  Europe  Policy  Service access  Service barriers  Services  Survey  conducted in accordance with the principles outlined in the Declaration of  Helsinki. All participants gave written informed consent in the ACCESS-EU study,  which was approved by the Cambridge Psychology Research Ethics Committee  (reference number PRE.2019.088). As this research involved an online survey, it  adhered to ethical standards for informed consent, participant confidentiality,  and data protection. All participants were provided with a clear informed consent  form and assured that their participation was voluntary, anonymous, and  confidential. Consent for publication: Not applicable. Competing interests: Simon  Baron-Cohen is the previous Editor-in-Chief of Molecular Autism. Index. décimale : PER Périodiques Résumé : BACKGROUND: Autistic communities in Europe continue to face difficulties accessing services despite increasing rates of autism diagnosis in recent years. METHODS: To investigate autistic people's access to services in Europe and reasons for unsuccessful access, we conducted the ACCESS-EU survey comprising of 2322 formally diagnosed autistic people and family carers living within the European Union (EU) and the United Kingdom (UK). The survey also examined age group (adult vs. child) and gender (male vs. female) differences in results. RESULTS: Overall, autistic people reported access to therapy (33.38%), mental health (29.89%), educational (27.05%), medical (34.28%), financial (26.66%), needs assessment (14.90%), information/referral (14.73%), social care (14.43%), employment (7.54%), housing (6.80%), legal (3.96%), helpline (3.40%) and other services (0.26%), and most (≥ 57.61%) had waited up to 6 months from referral to access most services. Several respondents were also unable to access therapeutic (13.53%), mental health (11.90%), autism diagnostic (5.92%), needs assessment (8.32%), financial (9.62%), educational (8.10%), social care (7.39%), information/referral (6.14%), medical (7.28%), housing (5.92%), employment (5.43%), legal (3.42%), and helpline services (2.34%). Reasons cited by respondents for their unsuccessful service access included service unavailability (23.08%), service unsuitability or participant ineligibility (20.04%), long waitlists (17.42%), service unaffordability (11.80%), and rejection from service due to autism diagnosis (9.87%), along with other reasons not listed in the survey (18.42%). Significant age group and gender differences were observed for successful access to services, waiting time, unsuccessful access and reasons for unsuccessful access. Among the five most represented countries in the survey-the UK (33.33%), Spain (14.04%), Poland (13.87%), France (11.07%) and Germany (6.03%)-overall service access was most inconsistent in Poland and the UK, highest in Germany and Spain but poorest in France. LIMITATIONS: Issues related to survey presentation such as the languages in which the survey was conducted and the phrasing of some questions should be considered, as well as issues regarding subjectivity and ambiguity of data analysis such as translation of non-English responses into English. CONCLUSIONS: Our findings suggest that service access among autistic people in Europe is inconsistent. Significant improvement to current policies is required to enhance access to services across Europe. En ligne : https://dx.doi.org/10.1186/s13229-025-00664-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=569

Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals' Experiences / Martina MICAI in Journal of Autism and Developmental Disorders, 52-4 (April 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1623-1639 Titre : Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals' Experiences Type de document : texte imprimé Auteurs : Martina MICAI, Auteur ; Antonio CIARAMELLA, Auteur ; Tommaso SALVITTI, Auteur ; Francesca FULCERI, Auteur ; Laura Maria FATTA, Auteur ; Luise POUSTKA, Auteur ; Robert DIEHM, Auteur ; Georgi ISKROV, Auteur ; Rumen STEFANOV, Auteur ; Quentin GUILLON, Auteur ; Bernadette ROGE, Auteur ; Anthony STAINES, Auteur ; Mary Rose SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Thóra LEOSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Irma MOILANEN, Auteur ; Hanna EBELING, Auteur ; Anneli YLIHERVA, Auteur ; Mika GISSLER, Auteur ; Tarja PARVIAINEN, Auteur ; Pekka TANI, Auteur ; Rafal KAWA, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Magdalena BUDISTEANU, Auteur ; Ian DALE, Auteur ; Carol POVEY, Auteur ; Noelia FLORES, Auteur ; Cristina JENARO, Auteur ; Maria Luisa MONROY, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Tony CHARMAN, Auteur ; Susanne CRAMER, Auteur ; Christine Kloster WARBERG, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Manuel POSADA, Auteur ; Maria Luisa SCATTONI, Auteur ; Diana SCHENDEL, Auteur Article en page(s) : p.1623-1639 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/psychology/therapy  Autistic Disorder/psychology  Caregivers  European Union  Humans  Surveys and Questionnaires  Adults  Autism Spectrum Disorder  Interventions  Services Index. décimale : PER Périodiques Résumé : The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services' use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and implementation. Psychosocial interventions were the most commonly experienced interventions, while pharmacological interventions NOT recommended for core autistic symptoms were reported by fairly large proportions of participants. Family interventions were experienced slightly more commonly by carers than adults or professionals. Less than the 26% of autistic adult responders who had experienced challenging behaviors reported receiving an intervention to change them. These results provide insights for improving gaps in service provision of interventions among autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05038-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals' Experiences [texte imprimé] / Martina MICAI, Auteur ; Antonio CIARAMELLA, Auteur ; Tommaso SALVITTI, Auteur ; Francesca FULCERI, Auteur ; Laura Maria FATTA, Auteur ; Luise POUSTKA, Auteur ; Robert DIEHM, Auteur ; Georgi ISKROV, Auteur ; Rumen STEFANOV, Auteur ; Quentin GUILLON, Auteur ; Bernadette ROGE, Auteur ; Anthony STAINES, Auteur ; Mary Rose SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Thóra LEOSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Irma MOILANEN, Auteur ; Hanna EBELING, Auteur ; Anneli YLIHERVA, Auteur ; Mika GISSLER, Auteur ; Tarja PARVIAINEN, Auteur ; Pekka TANI, Auteur ; Rafal KAWA, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Magdalena BUDISTEANU, Auteur ; Ian DALE, Auteur ; Carol POVEY, Auteur ; Noelia FLORES, Auteur ; Cristina JENARO, Auteur ; Maria Luisa MONROY, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Tony CHARMAN, Auteur ; Susanne CRAMER, Auteur ; Christine Kloster WARBERG, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Manuel POSADA, Auteur ; Maria Luisa SCATTONI, Auteur ; Diana SCHENDEL, Auteur . - p.1623-1639. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1623-1639 Mots-clés : Adult  Autism Spectrum Disorder/psychology/therapy  Autistic Disorder/psychology  Caregivers  European Union  Humans  Surveys and Questionnaires  Adults  Autism Spectrum Disorder  Interventions  Services Index. décimale : PER Périodiques Résumé : The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services' use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and implementation. Psychosocial interventions were the most commonly experienced interventions, while pharmacological interventions NOT recommended for core autistic symptoms were reported by fairly large proportions of participants. Family interventions were experienced slightly more commonly by carers than adults or professionals. Less than the 26% of autistic adult responders who had experienced challenging behaviors reported receiving an intervention to change them. These results provide insights for improving gaps in service provision of interventions among autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05038-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Longitudinal change in the use of services in autism spectrum disorder: Understanding the role of child characteristics, family demographics, and parent cognitions / Michael SILLER in Autism, 18-4 (May 2014)  

Public ISBD [article]  inAutism > 18-4 (May 2014) . - p.433-446 Titre : Longitudinal change in the use of services in autism spectrum disorder: Understanding the role of child characteristics, family demographics, and parent cognitions Type de document : texte imprimé Auteurs : Michael SILLER, Auteur ; Nuri M. REYES, Auteur ; Emily HOTEZ, Auteur ; Ted HUTMAN, Auteur ; Marian SIGMAN, Auteur Article en page(s) : p.433-446 Langues : Anglais (eng) Mots-clés : autism  children  family  interventions  parent  school  services Index. décimale : PER Périodiques Résumé : The aim of this study was to identify child characteristics, family demographics, and parent cognitions that may affect access to early intervention, special education, and related services. The sample included 70 families of young children with autism spectrum disorders. All parents were enrolled in a short education program, providing them with basic information and resources on advocating for a young child with autism spectrum disorders (Parent Advocacy Coaching). Longitudinal change in children’s intervention program in the community was evaluated over a period of about 27 months, starting 12 months prior to enrollment in Parent Advocacy Coaching. Results revealed large individual differences in the intensity of children’s individual and school-based services. Despite this variability, only two child characteristics (age, gender) emerged as independent predictors. In contrast, the intensity of children’s intervention programs was independently predicted by a broad range of demographic characteristics, including parental education, child ethnicity and race, and family composition. Finally, even after child characteristics and family demographics were statistically controlled, results revealed associations between specific parental cognitions (parenting efficacy, understanding of child development) and the subsequent rate of change in the intensity of children’s intervention programs. Implications for improving educational programs that aim to enhance parent advocacy are discussed. En ligne : http://dx.doi.org/10.1177/1362361313476766 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=232 [article] Longitudinal change in the use of services in autism spectrum disorder: Understanding the role of child characteristics, family demographics, and parent cognitions [texte imprimé] / Michael SILLER, Auteur ; Nuri M. REYES, Auteur ; Emily HOTEZ, Auteur ; Ted HUTMAN, Auteur ; Marian SIGMAN, Auteur . - p.433-446. Langues : Anglais (eng) in Autism > 18-4 (May 2014) . - p.433-446 Mots-clés : autism  children  family  interventions  parent  school  services Index. décimale : PER Périodiques Résumé : The aim of this study was to identify child characteristics, family demographics, and parent cognitions that may affect access to early intervention, special education, and related services. The sample included 70 families of young children with autism spectrum disorders. All parents were enrolled in a short education program, providing them with basic information and resources on advocating for a young child with autism spectrum disorders (Parent Advocacy Coaching). Longitudinal change in children’s intervention program in the community was evaluated over a period of about 27 months, starting 12 months prior to enrollment in Parent Advocacy Coaching. Results revealed large individual differences in the intensity of children’s individual and school-based services. Despite this variability, only two child characteristics (age, gender) emerged as independent predictors. In contrast, the intensity of children’s intervention programs was independently predicted by a broad range of demographic characteristics, including parental education, child ethnicity and race, and family composition. Finally, even after child characteristics and family demographics were statistically controlled, results revealed associations between specific parental cognitions (parenting efficacy, understanding of child development) and the subsequent rate of change in the intensity of children’s intervention programs. Implications for improving educational programs that aim to enhance parent advocacy are discussed. En ligne : http://dx.doi.org/10.1177/1362361313476766 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=232

Loss in services precedes high school exit for teens with autism spectrum disorder: A longitudinal study / Daniel J. LAXMAN in Autism Research, 12-6 (June 2019)  

Public ISBD [article]  inAutism Research > 12-6 (June 2019) . - p.911-921 Titre : Loss in services precedes high school exit for teens with autism spectrum disorder: A longitudinal study Type de document : texte imprimé Auteurs : Daniel J. LAXMAN, Auteur ; Julie LOUNDS TAYLOR, Auteur ; Leann S. DAWALT, Auteur ; Jan S. GREENBERG, Auteur ; Marsha R. MAILICK, Auteur Année de publication : 2019 Article en page(s) : p.911-921 Langues : Anglais (eng) Mots-clés : adolescence  adulthood  autism  intellectual disability  services  transition Index. décimale : PER Périodiques Résumé : The present longitudinal study investigated changes in service receipt and unmet service needs spanning 14 years before and after high school exit in a large community-based sample of individuals with autism spectrum disorder (ASD) (n = 204), of whom 59% had co-occurring intellectual disability (ID). Using multilevel models, potential discontinuity of service patterns at the point of high school exit was examined, as well as the rate of change in services received and needed during the high school years and into the post-high school period. Differences between those with and without ID were probed. Study findings indicated that overall, sample members experienced a reduction in receipt of services during high school, particularly for those without co-occurring ID. After high school exit, sample members experienced a decline in services received; for those without ID, there was a continuous rate of loss of services after leaving high school but for those with ID, there was a sharp decline in services received. Unmet service needs increased right after high school exit for both those with and without ID. These patterns reflect loss of entitlement for services that accompanies high school exit, and the limited availability of adult services for individuals with ASD. This study documented not only the post-high school service cliff that has been the subject of much concern, but also that the loss of services begins long before high school exit and that subgroups of the population with ASD are particularly vulnerable. Autism Res 2019, 12: 911-921. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: In this research, we studied changes in the number of services received before and after high school exit in a large sample of individuals with autism spectrum disorder (ASD). With each passing year during high school, individuals with ASD received fewer services. At the time of high school exit, there was a sharp drop in the number of services received, particularly for those with co-occurring intellectual disability. This study found not only that there is a post-high school service cliff, but also that the loss of services begins long before high school exit. En ligne : https://dx.doi.org/10.1002/aur.2113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400 [article] Loss in services precedes high school exit for teens with autism spectrum disorder: A longitudinal study [texte imprimé] / Daniel J. LAXMAN, Auteur ; Julie LOUNDS TAYLOR, Auteur ; Leann S. DAWALT, Auteur ; Jan S. GREENBERG, Auteur ; Marsha R. MAILICK, Auteur . - 2019 . - p.911-921. Langues : Anglais (eng) in Autism Research > 12-6 (June 2019) . - p.911-921 Mots-clés : adolescence  adulthood  autism  intellectual disability  services  transition Index. décimale : PER Périodiques Résumé : The present longitudinal study investigated changes in service receipt and unmet service needs spanning 14 years before and after high school exit in a large community-based sample of individuals with autism spectrum disorder (ASD) (n = 204), of whom 59% had co-occurring intellectual disability (ID). Using multilevel models, potential discontinuity of service patterns at the point of high school exit was examined, as well as the rate of change in services received and needed during the high school years and into the post-high school period. Differences between those with and without ID were probed. Study findings indicated that overall, sample members experienced a reduction in receipt of services during high school, particularly for those without co-occurring ID. After high school exit, sample members experienced a decline in services received; for those without ID, there was a continuous rate of loss of services after leaving high school but for those with ID, there was a sharp decline in services received. Unmet service needs increased right after high school exit for both those with and without ID. These patterns reflect loss of entitlement for services that accompanies high school exit, and the limited availability of adult services for individuals with ASD. This study documented not only the post-high school service cliff that has been the subject of much concern, but also that the loss of services begins long before high school exit and that subgroups of the population with ASD are particularly vulnerable. Autism Res 2019, 12: 911-921. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: In this research, we studied changes in the number of services received before and after high school exit in a large sample of individuals with autism spectrum disorder (ASD). With each passing year during high school, individuals with ASD received fewer services. At the time of high school exit, there was a sharp drop in the number of services received, particularly for those with co-occurring intellectual disability. This study found not only that there is a post-high school service cliff, but also that the loss of services begins long before high school exit. En ligne : https://dx.doi.org/10.1002/aur.2113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400

Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study / Maria Luisa SCATTONI in Journal of Autism and Developmental Disorders, 51-11 (November 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.4129-4146 Titre : Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study Type de document : texte imprimé Auteurs : Maria Luisa SCATTONI, Auteur ; Martina MICAI, Auteur ; Antonio CIARAMELLA, Auteur ; Tommaso SALVITTI, Auteur ; Francesca FULCERI, Auteur ; Laura Maria FATTA, Auteur ; Luise POUSTKA, Auteur ; Robert DIEHM, Auteur ; Georgi ISKROV, Auteur ; Rumen STEFANOV, Auteur ; Quentin GUILLON, Auteur ; Bernadette ROGE, Auteur ; Anthony STAINES, Auteur ; Mary Rose SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Thóra LEOSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Irma MOILANEN, Auteur ; Hanna EBELING, Auteur ; Anneli YLIHERVA, Auteur ; Mika GISSLER, Auteur ; Tarja PARVIAINEN, Auteur ; Pekka TANI, Auteur ; Rafal KAWA, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Magdalena BUDISTEANU, Auteur ; Ian DALE, Auteur ; Carol POVEY, Auteur ; Noelia FLORES, Auteur ; Cristina JENARO, Auteur ; Maria Luisa MONROY, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Tony CHARMAN, Auteur ; Susanne CRAMER, Auteur ; Christine Kloster WARBERG, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Manuel POSADA, Auteur ; Diana SCHENDEL, Auteur Article en page(s) : p.4129-4146 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Diagnostic Services  European Union  Humans  Surveys and Questionnaires  Adults  Autism spectrum disorder  Diagnosis  Services Index. décimale : PER Périodiques Résumé : Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals. En ligne : http://dx.doi.org/10.1007/s10803-021-04873-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454 [article] Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study [texte imprimé] / Maria Luisa SCATTONI, Auteur ; Martina MICAI, Auteur ; Antonio CIARAMELLA, Auteur ; Tommaso SALVITTI, Auteur ; Francesca FULCERI, Auteur ; Laura Maria FATTA, Auteur ; Luise POUSTKA, Auteur ; Robert DIEHM, Auteur ; Georgi ISKROV, Auteur ; Rumen STEFANOV, Auteur ; Quentin GUILLON, Auteur ; Bernadette ROGE, Auteur ; Anthony STAINES, Auteur ; Mary Rose SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Thóra LEOSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Irma MOILANEN, Auteur ; Hanna EBELING, Auteur ; Anneli YLIHERVA, Auteur ; Mika GISSLER, Auteur ; Tarja PARVIAINEN, Auteur ; Pekka TANI, Auteur ; Rafal KAWA, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Magdalena BUDISTEANU, Auteur ; Ian DALE, Auteur ; Carol POVEY, Auteur ; Noelia FLORES, Auteur ; Cristina JENARO, Auteur ; Maria Luisa MONROY, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Tony CHARMAN, Auteur ; Susanne CRAMER, Auteur ; Christine Kloster WARBERG, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Manuel POSADA, Auteur ; Diana SCHENDEL, Auteur . - p.4129-4146. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.4129-4146 Mots-clés : Adult  Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Diagnostic Services  European Union  Humans  Surveys and Questionnaires  Adults  Autism spectrum disorder  Diagnosis  Services Index. décimale : PER Périodiques Résumé : Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals. En ligne : http://dx.doi.org/10.1007/s10803-021-04873-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454

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