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Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals' Experiences / Martina MICAI in Journal of Autism and Developmental Disorders, 52-4 (April 2022)
[article]
Titre : Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals' Experiences Type de document : Texte imprimé et/ou numérique Auteurs : Martina MICAI, Auteur ; Antonio CIARAMELLA, Auteur ; Tommaso SALVITTI, Auteur ; Francesca FULCERI, Auteur ; Laura Maria FATTA, Auteur ; Luise POUSTKA, Auteur ; Robert DIEHM, Auteur ; Georgi ISKROV, Auteur ; Rumen STEFANOV, Auteur ; Quentin GUILLON, Auteur ; Bernadette ROGE, Auteur ; Anthony STAINES, Auteur ; Mary Rose SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Thóra LEOSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Irma MOILANEN, Auteur ; Hanna EBELING, Auteur ; Anneli YLIHERVA, Auteur ; Mika GISSLER, Auteur ; Tarja PARVIAINEN, Auteur ; Pekka TANI, Auteur ; Rafal KAWA, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Magdalena BUDISTEANU, Auteur ; Ian DALE, Auteur ; Carol POVEY, Auteur ; Noelia FLORES, Auteur ; Cristina JENARO, Auteur ; Maria Luisa MONROY, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Tony CHARMAN, Auteur ; Susanne CRAMER, Auteur ; Christine KLOSTER WARBERG, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Manuel POSADA, Auteur ; Maria Luisa SCATTONI, Auteur ; Diana SCHENDEL, Auteur Article en page(s) : p.1623-1639 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/psychology/therapy Autistic Disorder/psychology Caregivers European Union Humans Surveys and Questionnaires Adults Autism Spectrum Disorder Interventions Services Index. décimale : PER Périodiques Résumé : The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services' use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and implementation. Psychosocial interventions were the most commonly experienced interventions, while pharmacological interventions NOT recommended for core autistic symptoms were reported by fairly large proportions of participants. Family interventions were experienced slightly more commonly by carers than adults or professionals. Less than the 26% of autistic adult responders who had experienced challenging behaviors reported receiving an intervention to change them. These results provide insights for improving gaps in service provision of interventions among autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05038-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475
in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1623-1639[article] Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals' Experiences [Texte imprimé et/ou numérique] / Martina MICAI, Auteur ; Antonio CIARAMELLA, Auteur ; Tommaso SALVITTI, Auteur ; Francesca FULCERI, Auteur ; Laura Maria FATTA, Auteur ; Luise POUSTKA, Auteur ; Robert DIEHM, Auteur ; Georgi ISKROV, Auteur ; Rumen STEFANOV, Auteur ; Quentin GUILLON, Auteur ; Bernadette ROGE, Auteur ; Anthony STAINES, Auteur ; Mary Rose SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Thóra LEOSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Irma MOILANEN, Auteur ; Hanna EBELING, Auteur ; Anneli YLIHERVA, Auteur ; Mika GISSLER, Auteur ; Tarja PARVIAINEN, Auteur ; Pekka TANI, Auteur ; Rafal KAWA, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Magdalena BUDISTEANU, Auteur ; Ian DALE, Auteur ; Carol POVEY, Auteur ; Noelia FLORES, Auteur ; Cristina JENARO, Auteur ; Maria Luisa MONROY, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Tony CHARMAN, Auteur ; Susanne CRAMER, Auteur ; Christine KLOSTER WARBERG, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Manuel POSADA, Auteur ; Maria Luisa SCATTONI, Auteur ; Diana SCHENDEL, Auteur . - p.1623-1639.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1623-1639
Mots-clés : Adult Autism Spectrum Disorder/psychology/therapy Autistic Disorder/psychology Caregivers European Union Humans Surveys and Questionnaires Adults Autism Spectrum Disorder Interventions Services Index. décimale : PER Périodiques Résumé : The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services' use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and implementation. Psychosocial interventions were the most commonly experienced interventions, while pharmacological interventions NOT recommended for core autistic symptoms were reported by fairly large proportions of participants. Family interventions were experienced slightly more commonly by carers than adults or professionals. Less than the 26% of autistic adult responders who had experienced challenging behaviors reported receiving an intervention to change them. These results provide insights for improving gaps in service provision of interventions among autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05038-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 Longitudinal change in the use of services in autism spectrum disorder: Understanding the role of child characteristics, family demographics, and parent cognitions / Michael SILLER in Autism, 18-4 (May 2014)
[article]
Titre : Longitudinal change in the use of services in autism spectrum disorder: Understanding the role of child characteristics, family demographics, and parent cognitions Type de document : Texte imprimé et/ou numérique Auteurs : Michael SILLER, Auteur ; Nuri REYES, Auteur ; Emily HOTEZ, Auteur ; Ted HUTMAN, Auteur ; Marian SIGMAN, Auteur Article en page(s) : p.433-446 Langues : Anglais (eng) Mots-clés : autism children family interventions parent school services Index. décimale : PER Périodiques Résumé : The aim of this study was to identify child characteristics, family demographics, and parent cognitions that may affect access to early intervention, special education, and related services. The sample included 70 families of young children with autism spectrum disorders. All parents were enrolled in a short education program, providing them with basic information and resources on advocating for a young child with autism spectrum disorders (Parent Advocacy Coaching). Longitudinal change in children’s intervention program in the community was evaluated over a period of about 27 months, starting 12 months prior to enrollment in Parent Advocacy Coaching. Results revealed large individual differences in the intensity of children’s individual and school-based services. Despite this variability, only two child characteristics (age, gender) emerged as independent predictors. In contrast, the intensity of children’s intervention programs was independently predicted by a broad range of demographic characteristics, including parental education, child ethnicity and race, and family composition. Finally, even after child characteristics and family demographics were statistically controlled, results revealed associations between specific parental cognitions (parenting efficacy, understanding of child development) and the subsequent rate of change in the intensity of children’s intervention programs. Implications for improving educational programs that aim to enhance parent advocacy are discussed. En ligne : http://dx.doi.org/10.1177/1362361313476766 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=232
in Autism > 18-4 (May 2014) . - p.433-446[article] Longitudinal change in the use of services in autism spectrum disorder: Understanding the role of child characteristics, family demographics, and parent cognitions [Texte imprimé et/ou numérique] / Michael SILLER, Auteur ; Nuri REYES, Auteur ; Emily HOTEZ, Auteur ; Ted HUTMAN, Auteur ; Marian SIGMAN, Auteur . - p.433-446.
Langues : Anglais (eng)
in Autism > 18-4 (May 2014) . - p.433-446
Mots-clés : autism children family interventions parent school services Index. décimale : PER Périodiques Résumé : The aim of this study was to identify child characteristics, family demographics, and parent cognitions that may affect access to early intervention, special education, and related services. The sample included 70 families of young children with autism spectrum disorders. All parents were enrolled in a short education program, providing them with basic information and resources on advocating for a young child with autism spectrum disorders (Parent Advocacy Coaching). Longitudinal change in children’s intervention program in the community was evaluated over a period of about 27 months, starting 12 months prior to enrollment in Parent Advocacy Coaching. Results revealed large individual differences in the intensity of children’s individual and school-based services. Despite this variability, only two child characteristics (age, gender) emerged as independent predictors. In contrast, the intensity of children’s intervention programs was independently predicted by a broad range of demographic characteristics, including parental education, child ethnicity and race, and family composition. Finally, even after child characteristics and family demographics were statistically controlled, results revealed associations between specific parental cognitions (parenting efficacy, understanding of child development) and the subsequent rate of change in the intensity of children’s intervention programs. Implications for improving educational programs that aim to enhance parent advocacy are discussed. En ligne : http://dx.doi.org/10.1177/1362361313476766 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=232 Loss in services precedes high school exit for teens with autism spectrum disorder: A longitudinal study / D. J. LAXMAN in Autism Research, 12-6 (June 2019)
[article]
Titre : Loss in services precedes high school exit for teens with autism spectrum disorder: A longitudinal study Type de document : Texte imprimé et/ou numérique Auteurs : D. J. LAXMAN, Auteur ; Julie LOUNDS TAYLOR, Auteur ; Leann S. DAWALT, Auteur ; J. S. GREENBERG, Auteur ; M. R. MAILICK, Auteur Année de publication : 2019 Article en page(s) : p.911-921 Langues : Anglais (eng) Mots-clés : adolescence adulthood autism intellectual disability services transition Index. décimale : PER Périodiques Résumé : The present longitudinal study investigated changes in service receipt and unmet service needs spanning 14 years before and after high school exit in a large community-based sample of individuals with autism spectrum disorder (ASD) (n = 204), of whom 59% had co-occurring intellectual disability (ID). Using multilevel models, potential discontinuity of service patterns at the point of high school exit was examined, as well as the rate of change in services received and needed during the high school years and into the post-high school period. Differences between those with and without ID were probed. Study findings indicated that overall, sample members experienced a reduction in receipt of services during high school, particularly for those without co-occurring ID. After high school exit, sample members experienced a decline in services received; for those without ID, there was a continuous rate of loss of services after leaving high school but for those with ID, there was a sharp decline in services received. Unmet service needs increased right after high school exit for both those with and without ID. These patterns reflect loss of entitlement for services that accompanies high school exit, and the limited availability of adult services for individuals with ASD. This study documented not only the post-high school service cliff that has been the subject of much concern, but also that the loss of services begins long before high school exit and that subgroups of the population with ASD are particularly vulnerable. Autism Res 2019, 12: 911-921. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: In this research, we studied changes in the number of services received before and after high school exit in a large sample of individuals with autism spectrum disorder (ASD). With each passing year during high school, individuals with ASD received fewer services. At the time of high school exit, there was a sharp drop in the number of services received, particularly for those with co-occurring intellectual disability. This study found not only that there is a post-high school service cliff, but also that the loss of services begins long before high school exit. En ligne : https://dx.doi.org/10.1002/aur.2113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400
in Autism Research > 12-6 (June 2019) . - p.911-921[article] Loss in services precedes high school exit for teens with autism spectrum disorder: A longitudinal study [Texte imprimé et/ou numérique] / D. J. LAXMAN, Auteur ; Julie LOUNDS TAYLOR, Auteur ; Leann S. DAWALT, Auteur ; J. S. GREENBERG, Auteur ; M. R. MAILICK, Auteur . - 2019 . - p.911-921.
Langues : Anglais (eng)
in Autism Research > 12-6 (June 2019) . - p.911-921
Mots-clés : adolescence adulthood autism intellectual disability services transition Index. décimale : PER Périodiques Résumé : The present longitudinal study investigated changes in service receipt and unmet service needs spanning 14 years before and after high school exit in a large community-based sample of individuals with autism spectrum disorder (ASD) (n = 204), of whom 59% had co-occurring intellectual disability (ID). Using multilevel models, potential discontinuity of service patterns at the point of high school exit was examined, as well as the rate of change in services received and needed during the high school years and into the post-high school period. Differences between those with and without ID were probed. Study findings indicated that overall, sample members experienced a reduction in receipt of services during high school, particularly for those without co-occurring ID. After high school exit, sample members experienced a decline in services received; for those without ID, there was a continuous rate of loss of services after leaving high school but for those with ID, there was a sharp decline in services received. Unmet service needs increased right after high school exit for both those with and without ID. These patterns reflect loss of entitlement for services that accompanies high school exit, and the limited availability of adult services for individuals with ASD. This study documented not only the post-high school service cliff that has been the subject of much concern, but also that the loss of services begins long before high school exit and that subgroups of the population with ASD are particularly vulnerable. Autism Res 2019, 12: 911-921. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: In this research, we studied changes in the number of services received before and after high school exit in a large sample of individuals with autism spectrum disorder (ASD). With each passing year during high school, individuals with ASD received fewer services. At the time of high school exit, there was a sharp drop in the number of services received, particularly for those with co-occurring intellectual disability. This study found not only that there is a post-high school service cliff, but also that the loss of services begins long before high school exit. En ligne : https://dx.doi.org/10.1002/aur.2113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400 Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study / M. L. SCATTONI in Journal of Autism and Developmental Disorders, 51-11 (November 2021)
[article]
Titre : Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study Type de document : Texte imprimé et/ou numérique Auteurs : M. L. SCATTONI, Auteur ; M. MICAI, Auteur ; A. CIARAMELLA, Auteur ; T. SALVITTI, Auteur ; F. FULCERI, Auteur ; L. M. FATTA, Auteur ; L. POUSTKA, Auteur ; R. DIEHM, Auteur ; G. ISKROV, Auteur ; R. STEFANOV, Auteur ; Q. GUILLON, Auteur ; Bernadette ROGE, Auteur ; A. STAINES, Auteur ; M. R. SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; T. LEÓSDÓTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; I. MOILANEN, Auteur ; H. EBELING, Auteur ; A. YLIHERVA, Auteur ; M. GISSLER, Auteur ; T. PARVIAINEN, Auteur ; P. TANI, Auteur ; R. KAWA, Auteur ; A. VICENTE, Auteur ; C. RASGA, Auteur ; Magdalena BUDISTEANU, Auteur ; I. DALE, Auteur ; C. POVEY, Auteur ; N. FLORES, Auteur ; C. JENARO, Auteur ; M. L. MONROY, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Tony CHARMAN, Auteur ; S. CRAMER, Auteur ; C. K. WARBERG, Auteur ; Ricardo CANAL-BEDIA, Auteur ; M. POSADA, Auteur ; Diana SCHENDEL, Auteur Article en page(s) : p.4129-4146 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/diagnosis Autistic Disorder/diagnosis Diagnostic Services European Union Humans Surveys and Questionnaires Adults Autism spectrum disorder Diagnosis Services Index. décimale : PER Périodiques Résumé : Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast,?2% of adults or carers, and?21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals. En ligne : http://dx.doi.org/10.1007/s10803-021-04873-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454
in Journal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.4129-4146[article] Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study [Texte imprimé et/ou numérique] / M. L. SCATTONI, Auteur ; M. MICAI, Auteur ; A. CIARAMELLA, Auteur ; T. SALVITTI, Auteur ; F. FULCERI, Auteur ; L. M. FATTA, Auteur ; L. POUSTKA, Auteur ; R. DIEHM, Auteur ; G. ISKROV, Auteur ; R. STEFANOV, Auteur ; Q. GUILLON, Auteur ; Bernadette ROGE, Auteur ; A. STAINES, Auteur ; M. R. SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; T. LEÓSDÓTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; I. MOILANEN, Auteur ; H. EBELING, Auteur ; A. YLIHERVA, Auteur ; M. GISSLER, Auteur ; T. PARVIAINEN, Auteur ; P. TANI, Auteur ; R. KAWA, Auteur ; A. VICENTE, Auteur ; C. RASGA, Auteur ; Magdalena BUDISTEANU, Auteur ; I. DALE, Auteur ; C. POVEY, Auteur ; N. FLORES, Auteur ; C. JENARO, Auteur ; M. L. MONROY, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Tony CHARMAN, Auteur ; S. CRAMER, Auteur ; C. K. WARBERG, Auteur ; Ricardo CANAL-BEDIA, Auteur ; M. POSADA, Auteur ; Diana SCHENDEL, Auteur . - p.4129-4146.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.4129-4146
Mots-clés : Adult Autism Spectrum Disorder/diagnosis Autistic Disorder/diagnosis Diagnostic Services European Union Humans Surveys and Questionnaires Adults Autism spectrum disorder Diagnosis Services Index. décimale : PER Périodiques Résumé : Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast,?2% of adults or carers, and?21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals. En ligne : http://dx.doi.org/10.1007/s10803-021-04873-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454 Student Perceptions of College-Readiness, College Services and Supports, and Family Involvement in College: An Exploratory Study / G. L. FRANCIS in Journal of Autism and Developmental Disorders, 48-10 (October 2018)
[article]
Titre : Student Perceptions of College-Readiness, College Services and Supports, and Family Involvement in College: An Exploratory Study Type de document : Texte imprimé et/ou numérique Auteurs : G. L. FRANCIS, Auteur ; J. DUKE, Auteur ; F. J. BRIGHAM, Auteur ; K. DEMETRO, Auteur Article en page(s) : p.3573-3585 Langues : Anglais (eng) Mots-clés : College Disability Family Services Transition Index. décimale : PER Périodiques Résumé : Although increasing numbers of students with disabilities are attending college, they graduate at lower rates compared to students without disabilities. In order to understand how to effectively prepare students with disabilities and provide meaningful support to college students with disabilities, we investigated the experiences of students registered with the disability service office at a public university located in the eastern region of the U.S. to learn about (a) the degree to which they felt prepared to enter college, (b) the disability-related services they received in college, (c) their perspectives of services received, (d) suggestions for improving services, and (e) their perspectives family involvement in college. We report mixed-methods findings from participants and provide implications for policy and practice. En ligne : http://dx.doi.org/10.1007/s10803-018-3622-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369
in Journal of Autism and Developmental Disorders > 48-10 (October 2018) . - p.3573-3585[article] Student Perceptions of College-Readiness, College Services and Supports, and Family Involvement in College: An Exploratory Study [Texte imprimé et/ou numérique] / G. L. FRANCIS, Auteur ; J. DUKE, Auteur ; F. J. BRIGHAM, Auteur ; K. DEMETRO, Auteur . - p.3573-3585.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-10 (October 2018) . - p.3573-3585
Mots-clés : College Disability Family Services Transition Index. décimale : PER Périodiques Résumé : Although increasing numbers of students with disabilities are attending college, they graduate at lower rates compared to students without disabilities. In order to understand how to effectively prepare students with disabilities and provide meaningful support to college students with disabilities, we investigated the experiences of students registered with the disability service office at a public university located in the eastern region of the U.S. to learn about (a) the degree to which they felt prepared to enter college, (b) the disability-related services they received in college, (c) their perspectives of services received, (d) suggestions for improving services, and (e) their perspectives family involvement in college. We report mixed-methods findings from participants and provide implications for policy and practice. En ligne : http://dx.doi.org/10.1007/s10803-018-3622-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369 Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial / Julie LOUNDS TAYLOR in Journal of Autism and Developmental Disorders, 47-3 (March 2017)
PermalinkYoung Adults on the Autism Spectrum: The Struggle for Appropriate Services / C. ANDERSON in Journal of Autism and Developmental Disorders, 48-11 (November 2018)
PermalinkBrief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort / L. C. WHITE in Journal of Autism and Developmental Disorders, 51-10 (October 2021)
PermalinkChild and Family Characteristics Influencing Intervention Choices in Autism Spectrum Disorders / Elena PATTEN in Focus on Autism and Other Developmental Disabilities, 28-3 (September 2013)
PermalinkComparing the autism service needs and priorities of Indigenous and newcomer families in Canada: Qualitative insights / Janet MCLAUGHLIN ; Margaret SCHNEIDER ; Grant BRUNO in Research in Autism Spectrum Disorders, 111 (March 2024)
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