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Support Needs of Fathers and Mothers of Children and Adolescents with Autism Spectrum Disorder / Sigan L. HARTLEY in Journal of Autism and Developmental Disorders, 45-6 (June 2015)
[article]
Titre : Support Needs of Fathers and Mothers of Children and Adolescents with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Sigan L. HARTLEY, Auteur ; Haley M. SCHULTZ, Auteur Article en page(s) : p.1636-1648 Langues : Anglais (eng) Mots-clés : Autism Support Services Parent Father Index. décimale : PER Périodiques Résumé : Little research has examined the support needs of mothers versus fathers of children and adolescents with autism spectrum disorder (ASD). We identified and compared the important and unmet support needs of mothers and fathers, and evaluated their association with family and child factors, within 73 married couples who had a child or adolescent with ASD. Mothers had a higher number of important support needs and higher proportion of important support needs that are unmet than fathers. Multilevel modeling indicated that child age, co-occurring behavior problems, presence of intellectual disability, parent education, and household income were related to support needs. Findings offer insight into the overlapping and unique support needs of mothers and fathers of children and adolescents with ASD. En ligne : http://dx.doi.org/10.1007/s10803-014-2318-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=259
in Journal of Autism and Developmental Disorders > 45-6 (June 2015) . - p.1636-1648[article] Support Needs of Fathers and Mothers of Children and Adolescents with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Sigan L. HARTLEY, Auteur ; Haley M. SCHULTZ, Auteur . - p.1636-1648.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 45-6 (June 2015) . - p.1636-1648
Mots-clés : Autism Support Services Parent Father Index. décimale : PER Périodiques Résumé : Little research has examined the support needs of mothers versus fathers of children and adolescents with autism spectrum disorder (ASD). We identified and compared the important and unmet support needs of mothers and fathers, and evaluated their association with family and child factors, within 73 married couples who had a child or adolescent with ASD. Mothers had a higher number of important support needs and higher proportion of important support needs that are unmet than fathers. Multilevel modeling indicated that child age, co-occurring behavior problems, presence of intellectual disability, parent education, and household income were related to support needs. Findings offer insight into the overlapping and unique support needs of mothers and fathers of children and adolescents with ASD. En ligne : http://dx.doi.org/10.1007/s10803-014-2318-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=259 Blindness and Autism: Parents' Perspectives on Diagnostic Challenges, Support Needs and Support Provision / Kim DE VERDIER in Journal of Autism and Developmental Disorders, 50-6 (June 2020)
[article]
Titre : Blindness and Autism: Parents' Perspectives on Diagnostic Challenges, Support Needs and Support Provision Type de document : Texte imprimé et/ou numérique Auteurs : Kim DE VERDIER, Auteur ; Elisabeth FERNELL, Auteur ; Ulla EK, Auteur Article en page(s) : p.1921-1930 Langues : Anglais (eng) Mots-clés : Assessments Autism Blindness Children Parents’ experiences Support Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD), with or without intellectual disability (ID), is common in children with congenital blindness. This complex combination of disabilities often involves many challenges for the family. This study explored parents' experiences of having a child with blindness and ASD (with or without ID), their support needs and experiences of the support provided. Interviews with eight parents, representing six families, were performed. The parents emphasized that assessment and diagnostic procedures must be performed by professionals with expertise in blind children's development, and ASD. The support was often perceived as fragmented and did not correspond to the families' needs. The results suggest that national guidelines should be produced, to ensure a more coordinated and tailored support to these families. En ligne : http://dx.doi.org/10.1007/s10803-019-03944-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425
in Journal of Autism and Developmental Disorders > 50-6 (June 2020) . - p.1921-1930[article] Blindness and Autism: Parents' Perspectives on Diagnostic Challenges, Support Needs and Support Provision [Texte imprimé et/ou numérique] / Kim DE VERDIER, Auteur ; Elisabeth FERNELL, Auteur ; Ulla EK, Auteur . - p.1921-1930.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-6 (June 2020) . - p.1921-1930
Mots-clés : Assessments Autism Blindness Children Parents’ experiences Support Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD), with or without intellectual disability (ID), is common in children with congenital blindness. This complex combination of disabilities often involves many challenges for the family. This study explored parents' experiences of having a child with blindness and ASD (with or without ID), their support needs and experiences of the support provided. Interviews with eight parents, representing six families, were performed. The parents emphasized that assessment and diagnostic procedures must be performed by professionals with expertise in blind children's development, and ASD. The support was often perceived as fragmented and did not correspond to the families' needs. The results suggest that national guidelines should be produced, to ensure a more coordinated and tailored support to these families. En ligne : http://dx.doi.org/10.1007/s10803-019-03944-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425 Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults / R. HERREMA in Journal of Autism and Developmental Disorders, 47-11 (November 2017)
[article]
Titre : Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults Type de document : Texte imprimé et/ou numérique Auteurs : R. HERREMA, Auteur ; D. GARLAND, Auteur ; M. OSBORNE, Auteur ; M. FREESTON, Auteur ; E. HONEY, Auteur ; J. RODGERS, Auteur Article en page(s) : p.3659-3668 Langues : Anglais (eng) Mots-clés : Adults Autism Family members Future Support Worry Index. décimale : PER Périodiques Résumé : Very little is known about autism and adulthood. Family members are often the primary support for autistic adults and frequently express concerns about what the future will hold and what support will be available for their relative. 120 family members of autistic adults completed an online survey exploring concerns about the future for their relative. The most endorsed concerns were "their needs won't be met" (77% worried weekly), "whether they will be happy" (72% worried weekly) and "who will care for them" (58% worried weekly). The results highlight the importance of implementing structured and timely support through collaboration with governmental policy, local commissioning and communication with charities to help prepare family members and their autistic relative for the future. En ligne : http://dx.doi.org/10.1007/s10803-017-3254-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325
in Journal of Autism and Developmental Disorders > 47-11 (November 2017) . - p.3659-3668[article] Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults [Texte imprimé et/ou numérique] / R. HERREMA, Auteur ; D. GARLAND, Auteur ; M. OSBORNE, Auteur ; M. FREESTON, Auteur ; E. HONEY, Auteur ; J. RODGERS, Auteur . - p.3659-3668.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-11 (November 2017) . - p.3659-3668
Mots-clés : Adults Autism Family members Future Support Worry Index. décimale : PER Périodiques Résumé : Very little is known about autism and adulthood. Family members are often the primary support for autistic adults and frequently express concerns about what the future will hold and what support will be available for their relative. 120 family members of autistic adults completed an online survey exploring concerns about the future for their relative. The most endorsed concerns were "their needs won't be met" (77% worried weekly), "whether they will be happy" (72% worried weekly) and "who will care for them" (58% worried weekly). The results highlight the importance of implementing structured and timely support through collaboration with governmental policy, local commissioning and communication with charities to help prepare family members and their autistic relative for the future. En ligne : http://dx.doi.org/10.1007/s10803-017-3254-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325 ‘I have more control over my life’: A qualitative exploration of challenges, opportunities, and support needs among autistic university students / Matthew SCOTT in Autism & Developmental Language Impairments, 6 (January-December 2021)
[article]
Titre : ‘I have more control over my life’: A qualitative exploration of challenges, opportunities, and support needs among autistic university students Type de document : Texte imprimé et/ou numérique Auteurs : Matthew SCOTT, Auteur ; Felicity SEDGEWICK, Auteur Article en page(s) : 23969415211010419 Langues : Anglais (eng) Mots-clés : Autism higher education mental health support Index. décimale : PER Périodiques Résumé : BackgroundAutistic people are known to experience more mental health issues than non-autistic people, and the same is true among university students. These difficulties can have long-term consequences, such as dropping out of university and unemployment. Understanding the challenges autistic students face can help institutions to better support this group, while allowing celebration of the opportunities higher education offers.Methods12 autistic university students took part in semi-structured interviews about their mental health, the impact of university on their mental health, and their experiences of support while in higher education. Interviews were subject to thematic analysis.ResultsThree key themes were identified from autistic student accounts: Relationships, Independence, and Support. While each of these encompassed positive and negative elements, Relationships were described as tying everything together – when these were supportive, things went well, but when they were characterized by stigmatizing attitudes, students experienced much greater difficulties at university.ConclusionsAutistic students can and do thrive at university, as shown by many of our participants. However, all faced significant challenges with their mental health at times, and experienced varying levels of support. Improving autism knowledge among staff, with emphasis on enabling better relationships, would make a significant difference to the autistic student experience. En ligne : http://dx.doi.org/10.1177/23969415211010419 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=459
in Autism & Developmental Language Impairments > 6 (January-December 2021) . - 23969415211010419[article] ‘I have more control over my life’: A qualitative exploration of challenges, opportunities, and support needs among autistic university students [Texte imprimé et/ou numérique] / Matthew SCOTT, Auteur ; Felicity SEDGEWICK, Auteur . - 23969415211010419.
Langues : Anglais (eng)
in Autism & Developmental Language Impairments > 6 (January-December 2021) . - 23969415211010419
Mots-clés : Autism higher education mental health support Index. décimale : PER Périodiques Résumé : BackgroundAutistic people are known to experience more mental health issues than non-autistic people, and the same is true among university students. These difficulties can have long-term consequences, such as dropping out of university and unemployment. Understanding the challenges autistic students face can help institutions to better support this group, while allowing celebration of the opportunities higher education offers.Methods12 autistic university students took part in semi-structured interviews about their mental health, the impact of university on their mental health, and their experiences of support while in higher education. Interviews were subject to thematic analysis.ResultsThree key themes were identified from autistic student accounts: Relationships, Independence, and Support. While each of these encompassed positive and negative elements, Relationships were described as tying everything together – when these were supportive, things went well, but when they were characterized by stigmatizing attitudes, students experienced much greater difficulties at university.ConclusionsAutistic students can and do thrive at university, as shown by many of our participants. However, all faced significant challenges with their mental health at times, and experienced varying levels of support. Improving autism knowledge among staff, with emphasis on enabling better relationships, would make a significant difference to the autistic student experience. En ligne : http://dx.doi.org/10.1177/23969415211010419 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=459 Information, Advocacy and Signposting as a Low-Level Support for Adults with High-Functioning Autism Spectrum Disorder: An Example from the UK / K. SOUTHBY in Journal of Autism and Developmental Disorders, 48-2 (February 2018)
[article]
Titre : Information, Advocacy and Signposting as a Low-Level Support for Adults with High-Functioning Autism Spectrum Disorder: An Example from the UK Type de document : Texte imprimé et/ou numérique Auteurs : K. SOUTHBY, Auteur ; O. ROBINSON, Auteur Article en page(s) : p.511-519 Langues : Anglais (eng) Mots-clés : Adults Autism spectrum disorder Health and social care High functioning Support Index. décimale : PER Périodiques Résumé : 'Low-level' support is championed to support adults with high functioning autism spectrum disorder (HFASD) to achieve good quality health and social care, yet research in the area is sparse. Drawing on semi-structured interview data, this paper considers the efficacy of an intervention to provide low-level support to adults with HFASD with little or no funded support. The intervention led to a number of perceived positive outcomes for adults with HFASD, their families, and service providers in the city, including increased access to education, volunteering, support and information, socialising, improved health and wellbeing, and managing day-to-day. Although many of life's difficulties still persisted, the intervention helped service users overcome barriers to availing further support, possibly leading to beneficial outcomes down the line. En ligne : https://doi.org/10.1007/s10803-017-3331-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=337
in Journal of Autism and Developmental Disorders > 48-2 (February 2018) . - p.511-519[article] Information, Advocacy and Signposting as a Low-Level Support for Adults with High-Functioning Autism Spectrum Disorder: An Example from the UK [Texte imprimé et/ou numérique] / K. SOUTHBY, Auteur ; O. ROBINSON, Auteur . - p.511-519.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-2 (February 2018) . - p.511-519
Mots-clés : Adults Autism spectrum disorder Health and social care High functioning Support Index. décimale : PER Périodiques Résumé : 'Low-level' support is championed to support adults with high functioning autism spectrum disorder (HFASD) to achieve good quality health and social care, yet research in the area is sparse. Drawing on semi-structured interview data, this paper considers the efficacy of an intervention to provide low-level support to adults with HFASD with little or no funded support. The intervention led to a number of perceived positive outcomes for adults with HFASD, their families, and service providers in the city, including increased access to education, volunteering, support and information, socialising, improved health and wellbeing, and managing day-to-day. Although many of life's difficulties still persisted, the intervention helped service users overcome barriers to availing further support, possibly leading to beneficial outcomes down the line. En ligne : https://doi.org/10.1007/s10803-017-3331-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=337 'People like me don't get support': Autistic adults' experiences of support and treatment for mental health difficulties, self-injury and suicidality / L. CAMM-CROSBIE in Autism, 23-6 (August 2019)
Permalink'The dots just don't join up': Understanding the support needs of families of children on the autism spectrum / J. GALPIN in Autism, 22-5 (July 2018)
PermalinkThe Sisters' Advantage? Broader Autism Phenotype Characteristics and Young Adults' Sibling Support / A. C. JENSEN in Journal of Autism and Developmental Disorders, 49-10 (October 2019)
PermalinkAnnual Research Review: Child and adolescent mental health interventions: a review of progress in economic studies across different disorders / Jennifer BEECHAM in Journal of Child Psychology and Psychiatry, 55-6 (June 2014)
PermalinkAutism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals / L. CRANE in Journal of Autism and Developmental Disorders, 48-11 (November 2018)
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