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Clinician Perspectives on Telehealth Assessment of Autism Spectrum Disorder During the COVID-19 Pandemic / Elizabeth M. KRYSZAK in Journal of Autism and Developmental Disorders, 52-12 (December 2022)
[article]
Titre : Clinician Perspectives on Telehealth Assessment of Autism Spectrum Disorder During the COVID-19 Pandemic Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth M. KRYSZAK, Auteur ; Charles M. ALBRIGHT, Auteur ; Lucy A. FELL, Auteur ; Eric M. BUTTER, Auteur ; Karen A. KUHLTHAU, Auteur Année de publication : 2022 Article en page(s) : p.5083-5098 Langues : Anglais (eng) Mots-clés : Child Humans Autism Spectrum Disorder/diagnosis/epidemiology covid-19 Pandemics Telemedicine Autistic Disorder Asd Assessment Covid-19 Diagnosis Disparities Telehealth content of this article. Index. décimale : PER Périodiques Résumé : This study examined clinician insights into telehealth assessment services for autism spectrum disorder implemented during the COVID-19 pandemic. 35 clinicians from multiple disciplines across 17 sites in the Autism Care Network were interviewed. Themes identified through qualitative analyses included factors related to confidence in diagnosis (impressions of in-home observation; child and family factors that affected diagnostic confidence; changes in rapport); patient and family factors related to telehealth (perceived family benefits of and barriers to telehealth; factors related to healthcare disparities; factors specific to non-native English speakers); and institutional and workplace factors related to transitioning to telehealth (institutional support; changes to efficacy, attendance, and work satisfaction). Results suggest that telehealth has potential to be an effective tool in autism assessment practice. En ligne : http://dx.doi.org/10.1007/s10803-022-05435-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5083-5098[article] Clinician Perspectives on Telehealth Assessment of Autism Spectrum Disorder During the COVID-19 Pandemic [Texte imprimé et/ou numérique] / Elizabeth M. KRYSZAK, Auteur ; Charles M. ALBRIGHT, Auteur ; Lucy A. FELL, Auteur ; Eric M. BUTTER, Auteur ; Karen A. KUHLTHAU, Auteur . - 2022 . - p.5083-5098.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5083-5098
Mots-clés : Child Humans Autism Spectrum Disorder/diagnosis/epidemiology covid-19 Pandemics Telemedicine Autistic Disorder Asd Assessment Covid-19 Diagnosis Disparities Telehealth content of this article. Index. décimale : PER Périodiques Résumé : This study examined clinician insights into telehealth assessment services for autism spectrum disorder implemented during the COVID-19 pandemic. 35 clinicians from multiple disciplines across 17 sites in the Autism Care Network were interviewed. Themes identified through qualitative analyses included factors related to confidence in diagnosis (impressions of in-home observation; child and family factors that affected diagnostic confidence; changes in rapport); patient and family factors related to telehealth (perceived family benefits of and barriers to telehealth; factors related to healthcare disparities; factors specific to non-native English speakers); and institutional and workplace factors related to transitioning to telehealth (institutional support; changes to efficacy, attendance, and work satisfaction). Results suggest that telehealth has potential to be an effective tool in autism assessment practice. En ligne : http://dx.doi.org/10.1007/s10803-022-05435-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies / Claudine JACQUES in Journal of Autism and Developmental Disorders, 52-8 (August 2022)
[article]
Titre : Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies Type de document : Texte imprimé et/ou numérique Auteurs : Claudine JACQUES, Auteur ; Geneviève SAULNIER, Auteur ; Agnès ETHIER, Auteur ; Isabelle SOULIERES, Auteur Article en page(s) : p.3626-3638 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological Autism Spectrum Disorder Autistic Disorder Child Humans Pandemics Parents Autism Covid-19 Children Family Social isolation Special interests content of this article. Index. décimale : PER Périodiques Résumé : To understand the perspectives and needs of autistic children and their families in the context of an emergency, 109 parents and 56 autistic children (5.75-18Â years) from Canada completed an online survey about needs, barriers and facilitators to coping with the pandemic. Parents' concerns about their child's development and difficulties managing their child's behaviors before and during pandemic were significantly associated. Parents identified maintaining social relationships and implementing appropriate interventions to their child's characteristics as facilitators during the pandemic. Both children and parents identified lack of socialization as a main difficulty. Among children, 92.9% associated electronic devices with their well-being. This study highlighted the need to consider the child's autistic characteristics and interests to implement emergency accommodations and services. En ligne : http://dx.doi.org/10.1007/s10803-021-05233-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3626-3638[article] Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies [Texte imprimé et/ou numérique] / Claudine JACQUES, Auteur ; Geneviève SAULNIER, Auteur ; Agnès ETHIER, Auteur ; Isabelle SOULIERES, Auteur . - p.3626-3638.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3626-3638
Mots-clés : Adaptation, Psychological Autism Spectrum Disorder Autistic Disorder Child Humans Pandemics Parents Autism Covid-19 Children Family Social isolation Special interests content of this article. Index. décimale : PER Périodiques Résumé : To understand the perspectives and needs of autistic children and their families in the context of an emergency, 109 parents and 56 autistic children (5.75-18Â years) from Canada completed an online survey about needs, barriers and facilitators to coping with the pandemic. Parents' concerns about their child's development and difficulties managing their child's behaviors before and during pandemic were significantly associated. Parents identified maintaining social relationships and implementing appropriate interventions to their child's characteristics as facilitators during the pandemic. Both children and parents identified lack of socialization as a main difficulty. Among children, 92.9% associated electronic devices with their well-being. This study highlighted the need to consider the child's autistic characteristics and interests to implement emergency accommodations and services. En ligne : http://dx.doi.org/10.1007/s10803-021-05233-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 In Our Own Words: The Complex Sensory Experiences of Autistic Adults / K. MACLENNAN in Journal of Autism and Developmental Disorders, 52-7 (July 2022)
[article]
Titre : In Our Own Words: The Complex Sensory Experiences of Autistic Adults Type de document : Texte imprimé et/ou numérique Auteurs : K. MACLENNAN, Auteur ; S. O'BRIEN, Auteur ; Teresa TAVASSOLI, Auteur Article en page(s) : p.3061-3075 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/complications Autistic Disorder/complications Humans Quality of Life Surveys and Questionnaires Autism Autistic Participatory Qualitative Sensory content of this article. Index. décimale : PER Périodiques Résumé : Autistic adults commonly experience sensory reactivity differences. Sensory hyperreactivity is frequently researched, whilst hyporeactivity and seeking, and experiences across domains, e.g., vision, are often neglected. Therefore, we aimed to understand more about the sensory experiences of autistic adults. We conducted a mixed-methods study, co-produced with stakeholders; recruiting 49 autistic adults who completed an online survey. Firstly, quantitative results and content analysis enhanced our understanding of sensory input/contexts associated with sensory hyperreactivity, hyporeactivity, and seeking across modalities. Secondly, thematic analysis developed themes relating to 'Outcomes', 'Control', 'Tolerance and management', and 'The role of other people', informing a theoretical model of sensory reactivity differences in autistic adults. These findings have implications for support services and improving quality of life for autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05186-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.3061-3075[article] In Our Own Words: The Complex Sensory Experiences of Autistic Adults [Texte imprimé et/ou numérique] / K. MACLENNAN, Auteur ; S. O'BRIEN, Auteur ; Teresa TAVASSOLI, Auteur . - p.3061-3075.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.3061-3075
Mots-clés : Adult Autism Spectrum Disorder/complications Autistic Disorder/complications Humans Quality of Life Surveys and Questionnaires Autism Autistic Participatory Qualitative Sensory content of this article. Index. décimale : PER Périodiques Résumé : Autistic adults commonly experience sensory reactivity differences. Sensory hyperreactivity is frequently researched, whilst hyporeactivity and seeking, and experiences across domains, e.g., vision, are often neglected. Therefore, we aimed to understand more about the sensory experiences of autistic adults. We conducted a mixed-methods study, co-produced with stakeholders; recruiting 49 autistic adults who completed an online survey. Firstly, quantitative results and content analysis enhanced our understanding of sensory input/contexts associated with sensory hyperreactivity, hyporeactivity, and seeking across modalities. Secondly, thematic analysis developed themes relating to 'Outcomes', 'Control', 'Tolerance and management', and 'The role of other people', informing a theoretical model of sensory reactivity differences in autistic adults. These findings have implications for support services and improving quality of life for autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05186-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477 The Effect of Mindfulness-Based and Acceptance Commitment Therapy-Based Interventions to Improve the Mental Well-Being Among Parents of Children with Developmental Disabilities: A Systematic Review and Meta-Analysis / Joelle Yan Xin CHUA in Journal of Autism and Developmental Disorders, 52-6 (June 2022)
[article]
Titre : The Effect of Mindfulness-Based and Acceptance Commitment Therapy-Based Interventions to Improve the Mental Well-Being Among Parents of Children with Developmental Disabilities: A Systematic Review and Meta-Analysis Type de document : Texte imprimé et/ou numérique Auteurs : Joelle Yan Xin CHUA, Auteur ; Shefaly SHOREY, Auteur Article en page(s) : p.2770-2783 Langues : Anglais (eng) Mots-clés : Act Children Developmental disabilities Mindfulness Parent content of this article. Index. décimale : PER Périodiques Résumé : Parents of children with developmental disabilities are susceptible to mental health problems. Mindfulness-based and acceptance and commitment therapy (ACT)-based interventions can improve their mental well-being. This review examined the effectiveness of mindfulness-based and ACT-based interventions in improving mental well-being and mindfulness among parents of children with developmental disabilities. Six electronic databases were searched, resulting in the inclusion of ten studies published between 2014 and 2020. Meta-analysis was conducted using the random-effect model. The results suggest that mindfulness-based and ACT-based interventions were effective in decreasing parental stress, anxiety and depression, however, the effectiveness of these interventions in increasing parental mindfulness was inconclusive. Based on these findings, we discussed considerations for implementing interventions and identified areas which warrant further research. En ligne : http://dx.doi.org/10.1007/s10803-021-04893-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474
in Journal of Autism and Developmental Disorders > 52-6 (June 2022) . - p.2770-2783[article] The Effect of Mindfulness-Based and Acceptance Commitment Therapy-Based Interventions to Improve the Mental Well-Being Among Parents of Children with Developmental Disabilities: A Systematic Review and Meta-Analysis [Texte imprimé et/ou numérique] / Joelle Yan Xin CHUA, Auteur ; Shefaly SHOREY, Auteur . - p.2770-2783.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-6 (June 2022) . - p.2770-2783
Mots-clés : Act Children Developmental disabilities Mindfulness Parent content of this article. Index. décimale : PER Périodiques Résumé : Parents of children with developmental disabilities are susceptible to mental health problems. Mindfulness-based and acceptance and commitment therapy (ACT)-based interventions can improve their mental well-being. This review examined the effectiveness of mindfulness-based and ACT-based interventions in improving mental well-being and mindfulness among parents of children with developmental disabilities. Six electronic databases were searched, resulting in the inclusion of ten studies published between 2014 and 2020. Meta-analysis was conducted using the random-effect model. The results suggest that mindfulness-based and ACT-based interventions were effective in decreasing parental stress, anxiety and depression, however, the effectiveness of these interventions in increasing parental mindfulness was inconclusive. Based on these findings, we discussed considerations for implementing interventions and identified areas which warrant further research. En ligne : http://dx.doi.org/10.1007/s10803-021-04893-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474 Family-Based Cohort Association Study of PRKCB1, CBLN1 and KCNMB4 Gene Polymorphisms and Autism in Polish Population / Tomasz IWANICKI in Journal of Autism and Developmental Disorders, 52-10 (October 2022)
[article]
Titre : Family-Based Cohort Association Study of PRKCB1, CBLN1 and KCNMB4 Gene Polymorphisms and Autism in Polish Population Type de document : Texte imprimé et/ou numérique Auteurs : Tomasz IWANICKI, Auteur ; Anna BALCERZYK, Auteur ; Beata KAZEK, Auteur ; Ewa EMICH-WIDERA, Auteur ; Wirginia LIKUS, Auteur ; Joanna IWANICKA, Auteur ; Agnieszka KAPINOS-GORCZYCA, Auteur ; Maciej KAPINOS, Auteur ; Alicja JAROSZ, Auteur ; WÅ‚adysÅ‚aw GRZESZCZAK, Auteur ; Sylwia GORCZYÅ?SKA-KOSIORZ, Auteur ; PaweÅ‚ NIEMIEC, Auteur Article en page(s) : p.4213-4218 Langues : Anglais (eng) Mots-clés : Genetic testing Protein kinase C beta 1 subunit gene Single nucleotide polymorphism Transmission-disequilibrium test content of this article. Index. décimale : PER Périodiques Résumé : The aim of the study was to perform family-based association analysis of PRKCB1, CBLN1 and KCNMB4 gene polymorphisms and autism disorder. We comprised 206 Caucasian children with autistic spectrum disorder (ASD) and their biological parents. In transmission/disequilibrium test we observed that T-allele of the rs198198 polymorphism of the PRKCB1 gene was more often transmitted to affected children in the male subgroup (p=0.010). Additionally, the T carrier state was significantly associated with hypotonia (p=0.048). In the female subgroup, the T-allele carriers more often showed more mobile/vital behavior (p=0.046). In conclusion, our study showed that the rs198198 of the PRKCB1 gene may be associated with ASD in men and with some features characteristic for the disorder. En ligne : http://dx.doi.org/10.1007/s10803-021-05291-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486
in Journal of Autism and Developmental Disorders > 52-10 (October 2022) . - p.4213-4218[article] Family-Based Cohort Association Study of PRKCB1, CBLN1 and KCNMB4 Gene Polymorphisms and Autism in Polish Population [Texte imprimé et/ou numérique] / Tomasz IWANICKI, Auteur ; Anna BALCERZYK, Auteur ; Beata KAZEK, Auteur ; Ewa EMICH-WIDERA, Auteur ; Wirginia LIKUS, Auteur ; Joanna IWANICKA, Auteur ; Agnieszka KAPINOS-GORCZYCA, Auteur ; Maciej KAPINOS, Auteur ; Alicja JAROSZ, Auteur ; WÅ‚adysÅ‚aw GRZESZCZAK, Auteur ; Sylwia GORCZYÅ?SKA-KOSIORZ, Auteur ; PaweÅ‚ NIEMIEC, Auteur . - p.4213-4218.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-10 (October 2022) . - p.4213-4218
Mots-clés : Genetic testing Protein kinase C beta 1 subunit gene Single nucleotide polymorphism Transmission-disequilibrium test content of this article. Index. décimale : PER Périodiques Résumé : The aim of the study was to perform family-based association analysis of PRKCB1, CBLN1 and KCNMB4 gene polymorphisms and autism disorder. We comprised 206 Caucasian children with autistic spectrum disorder (ASD) and their biological parents. In transmission/disequilibrium test we observed that T-allele of the rs198198 polymorphism of the PRKCB1 gene was more often transmitted to affected children in the male subgroup (p=0.010). Additionally, the T carrier state was significantly associated with hypotonia (p=0.048). In the female subgroup, the T-allele carriers more often showed more mobile/vital behavior (p=0.046). In conclusion, our study showed that the rs198198 of the PRKCB1 gene may be associated with ASD in men and with some features characteristic for the disorder. En ligne : http://dx.doi.org/10.1007/s10803-021-05291-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486 Is it Possible to Assess the Two-Domain Definition of the Broad Autism Phenotype Using the Available Measurement Tools? / M. GODOY-GIMENEZ in Journal of Autism and Developmental Disorders, 52-7 (July 2022)
PermalinkWeight Management Outcomes of Youth with Autism Spectrum Disorder Seeking Treatment from a Multidisciplinary Team / H. J. KILLIAN in Journal of Autism and Developmental Disorders, 52-2 (February 2022)
Permalink"I was Confused ? and Still am" Barriers Impacting the Help-Seeking Pathway for an Autism Diagnosis in Urban North India: A Mixed Methods Study / Supriya BHAVNANI in Journal of Autism and Developmental Disorders, 52-4 (April 2022)
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