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31 recherche sur le mot-clé 'family functioning and support'
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Leisure time and family functioning in families living with autism spectrum disorder / Katherine M. WALTON in Autism, 23-6 (August 2019)
[article]
Titre : Leisure time and family functioning in families living with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Katherine M. WALTON, Auteur Article en page(s) : p.1384-1397 Langues : Anglais (eng) Mots-clés : autism spectrum disorders family functioning and support leisure Index. décimale : PER Périodiques Résumé : Family leisure can provide opportunities for both enjoyment and family growth. However, families of children with autism spectrum disorder experience multiple barriers to engaging in satisfying family leisure activities. This study surveyed parents of children with autism spectrum disorder (n = 112) and parents of children with typical development (n = 123) to examine relationships among family leisure involvement, leisure satisfaction, family functioning, and satisfaction with family life. Parents of children with autism spectrum disorder reported a similar amount of leisure involvement as families of typically developing children. However, they reported lower leisure satisfaction, poorer family functioning, and less satisfaction with family life. Mediation models suggested that low leisure satisfaction was related to less effective family communication, which in turn led to poorer family functioning and less satisfaction with family life. Amount of time spent in leisure made relatively small contributions to predicting other family variables. These results suggest that leisure-focused interventions for families of children with autism spectrum disorder should focus on improving quality, rather than quantity, of family leisure time. En ligne : http://dx.doi.org/10.1177/1362361318812434 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403
in Autism > 23-6 (August 2019) . - p.1384-1397[article] Leisure time and family functioning in families living with autism spectrum disorder [Texte imprimé et/ou numérique] / Katherine M. WALTON, Auteur . - p.1384-1397.
Langues : Anglais (eng)
in Autism > 23-6 (August 2019) . - p.1384-1397
Mots-clés : autism spectrum disorders family functioning and support leisure Index. décimale : PER Périodiques Résumé : Family leisure can provide opportunities for both enjoyment and family growth. However, families of children with autism spectrum disorder experience multiple barriers to engaging in satisfying family leisure activities. This study surveyed parents of children with autism spectrum disorder (n = 112) and parents of children with typical development (n = 123) to examine relationships among family leisure involvement, leisure satisfaction, family functioning, and satisfaction with family life. Parents of children with autism spectrum disorder reported a similar amount of leisure involvement as families of typically developing children. However, they reported lower leisure satisfaction, poorer family functioning, and less satisfaction with family life. Mediation models suggested that low leisure satisfaction was related to less effective family communication, which in turn led to poorer family functioning and less satisfaction with family life. Amount of time spent in leisure made relatively small contributions to predicting other family variables. These results suggest that leisure-focused interventions for families of children with autism spectrum disorder should focus on improving quality, rather than quantity, of family leisure time. En ligne : http://dx.doi.org/10.1177/1362361318812434 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403 Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder / Noa NAVOT in Autism, 20-5 (July 2016)
[article]
Titre : Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Noa NAVOT, Auteur ; Alicia Grattan JORGENSON, Auteur ; Ann VANDER STOEP, Auteur ; Karen TOTH, Auteur ; Sara Jane WEBB, Auteur Article en page(s) : p.605-615 Langues : Anglais (eng) Mots-clés : autism diagnosis family functioning and support family planning family vision Index. décimale : PER Périodiques Résumé : The diagnosis of a child with autism has short- and long-term impacts on family functioning. With early diagnosis, the diagnostic process is likely to co-occur with family planning decisions, yet little is known about how parents navigate this process. This study explores family planning decision making process among mothers of young children with autism spectrum disorder in the United States, by understanding the transformation in family vision before and after the diagnosis. A total of 22 mothers of first born children, diagnosed with autism between 2 and 4?years of age, were interviewed about family vision prior to and after their child’s diagnosis. Grounded Theory method was used for data analysis. Findings indicated that coherence of early family vision, maternal cognitive flexibility, and maternal responses to diagnosis were highly influential in future family planning decisions. The decision to have additional children reflected a high level of adaptability built upon a solid internalized family model and a flexible approach to life. Decision to stop childrearing reflected a relatively less coherent family model and more rigid cognitive style followed by ongoing hardship managing life after the diagnosis. This report may be useful for health-care providers in enhancing therapeutic alliance and guiding family planning counseling. En ligne : http://dx.doi.org/10.1177/1362361315602134 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290
in Autism > 20-5 (July 2016) . - p.605-615[article] Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder [Texte imprimé et/ou numérique] / Noa NAVOT, Auteur ; Alicia Grattan JORGENSON, Auteur ; Ann VANDER STOEP, Auteur ; Karen TOTH, Auteur ; Sara Jane WEBB, Auteur . - p.605-615.
Langues : Anglais (eng)
in Autism > 20-5 (July 2016) . - p.605-615
Mots-clés : autism diagnosis family functioning and support family planning family vision Index. décimale : PER Périodiques Résumé : The diagnosis of a child with autism has short- and long-term impacts on family functioning. With early diagnosis, the diagnostic process is likely to co-occur with family planning decisions, yet little is known about how parents navigate this process. This study explores family planning decision making process among mothers of young children with autism spectrum disorder in the United States, by understanding the transformation in family vision before and after the diagnosis. A total of 22 mothers of first born children, diagnosed with autism between 2 and 4?years of age, were interviewed about family vision prior to and after their child’s diagnosis. Grounded Theory method was used for data analysis. Findings indicated that coherence of early family vision, maternal cognitive flexibility, and maternal responses to diagnosis were highly influential in future family planning decisions. The decision to have additional children reflected a high level of adaptability built upon a solid internalized family model and a flexible approach to life. Decision to stop childrearing reflected a relatively less coherent family model and more rigid cognitive style followed by ongoing hardship managing life after the diagnosis. This report may be useful for health-care providers in enhancing therapeutic alliance and guiding family planning counseling. En ligne : http://dx.doi.org/10.1177/1362361315602134 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290 Characterization of Family-Directed Care Coordination and Involvement in Behavioral Treatments in an Autism-Specific Medicaid Waiver / Gregory S. CHASSON in Journal of Autism and Developmental Disorders, 51-2 (February 2021)
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Titre : Characterization of Family-Directed Care Coordination and Involvement in Behavioral Treatments in an Autism-Specific Medicaid Waiver Type de document : Texte imprimé et/ou numérique Auteurs : Gregory S. CHASSON, Auteur ; Karen Goldrich ESKOW, Auteur ; Jean Ann SUMMERS, Auteur ; Taylor M. DREHER, Auteur Article en page(s) : p.715-724 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Care coordination Case management Family functioning and support Interventions—psychosocial/behavioral Index. décimale : PER Périodiques Résumé : Services for children with autism spectrum disorder (ASD) and their families have evolved with the advent of the Medicaid waiver, leading to more family-based coordination of care. Evaluating family involvement, the current investigation compared 230 families of children with ASD receiving Medicaid waiver services to a propensity-score matched group of 230 families who were waiting for such services (i.e., registry families). Compared to the registry, waiver families reported more involvement in service planning tasks, but not activities related to future-planning, managing crisis situations, or searching for and securing funding. Additional analyses characterize waiver families as engaging in high levels of coordinating and delivering behavioral interventions for their child. Implications for family burden and future programming for waiver programs are discussed. En ligne : http://dx.doi.org/10.1007/s10803-020-04583-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=440
in Journal of Autism and Developmental Disorders > 51-2 (February 2021) . - p.715-724[article] Characterization of Family-Directed Care Coordination and Involvement in Behavioral Treatments in an Autism-Specific Medicaid Waiver [Texte imprimé et/ou numérique] / Gregory S. CHASSON, Auteur ; Karen Goldrich ESKOW, Auteur ; Jean Ann SUMMERS, Auteur ; Taylor M. DREHER, Auteur . - p.715-724.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-2 (February 2021) . - p.715-724
Mots-clés : Autism spectrum disorder Care coordination Case management Family functioning and support Interventions—psychosocial/behavioral Index. décimale : PER Périodiques Résumé : Services for children with autism spectrum disorder (ASD) and their families have evolved with the advent of the Medicaid waiver, leading to more family-based coordination of care. Evaluating family involvement, the current investigation compared 230 families of children with ASD receiving Medicaid waiver services to a propensity-score matched group of 230 families who were waiting for such services (i.e., registry families). Compared to the registry, waiver families reported more involvement in service planning tasks, but not activities related to future-planning, managing crisis situations, or searching for and securing funding. Additional analyses characterize waiver families as engaging in high levels of coordinating and delivering behavioral interventions for their child. Implications for family burden and future programming for waiver programs are discussed. En ligne : http://dx.doi.org/10.1007/s10803-020-04583-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=440 Development and utility of the Family-Centered Autism Navigation interview / Kris PIZUR-BARNEKOW in Autism, 25-4 (May 2021)
[article]
Titre : Development and utility of the Family-Centered Autism Navigation interview Type de document : Texte imprimé et/ou numérique Auteurs : Kris PIZUR-BARNEKOW, Auteur ; Amy C. LANG, Auteur ; Brian D. BARGER, Auteur Article en page(s) : p.1154-1160 Langues : Anglais (eng) Mots-clés : autism spectrum disorders family functioning and support health services Index. décimale : PER Périodiques Résumé : When a parent learns of their child's autism diagnosis, they may be overwhelmed, confused, and frustrated. Family navigation services are designed to improve access to care. While these services are a promising intervention to enhance well-being and developmental outcomes, there are limited tools that can systematically facilitate the development of a shared navigation plan that prioritizes the concerns of the family. The Family-Centered Autism Navigation semi-structured interview guide is designed for family navigators to triage and prioritize caregiver's needs to coordinate and navigate systems of care after learning of their child's autism spectrum disorder diagnosis. The goals of the Family-Centered Autism Navigation interview are to (1) identify family and child strengths; (2) identify family/caregiver concerns regarding navigation of services and systems following their child's diagnosis of autism; (3) measure change in caregiver knowledge, ability and skill as it relates to understanding, remembering, and evaluating information they receive; and (4) assist with the development of a shared navigation plan. When using the Family-Centered Autism Navigation guide, family navigators and caregivers co-create a family-centered, prioritized action plan that supports and prepares caregivers as they navigate systems of care. This short report describes the development process of the Family-Centered Autism Navigation semi-structured interview guide. We utilized brief interviews (n?=?42), expert feedback (n?=?13), and quality improvement strategies (n?=?2 family navigators) to develop the questions and determine the usability of the Family-Centered Autism Navigation interview in practice. En ligne : http://dx.doi.org/10.1177/1362361320972890 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444
in Autism > 25-4 (May 2021) . - p.1154-1160[article] Development and utility of the Family-Centered Autism Navigation interview [Texte imprimé et/ou numérique] / Kris PIZUR-BARNEKOW, Auteur ; Amy C. LANG, Auteur ; Brian D. BARGER, Auteur . - p.1154-1160.
Langues : Anglais (eng)
in Autism > 25-4 (May 2021) . - p.1154-1160
Mots-clés : autism spectrum disorders family functioning and support health services Index. décimale : PER Périodiques Résumé : When a parent learns of their child's autism diagnosis, they may be overwhelmed, confused, and frustrated. Family navigation services are designed to improve access to care. While these services are a promising intervention to enhance well-being and developmental outcomes, there are limited tools that can systematically facilitate the development of a shared navigation plan that prioritizes the concerns of the family. The Family-Centered Autism Navigation semi-structured interview guide is designed for family navigators to triage and prioritize caregiver's needs to coordinate and navigate systems of care after learning of their child's autism spectrum disorder diagnosis. The goals of the Family-Centered Autism Navigation interview are to (1) identify family and child strengths; (2) identify family/caregiver concerns regarding navigation of services and systems following their child's diagnosis of autism; (3) measure change in caregiver knowledge, ability and skill as it relates to understanding, remembering, and evaluating information they receive; and (4) assist with the development of a shared navigation plan. When using the Family-Centered Autism Navigation guide, family navigators and caregivers co-create a family-centered, prioritized action plan that supports and prepares caregivers as they navigate systems of care. This short report describes the development process of the Family-Centered Autism Navigation semi-structured interview guide. We utilized brief interviews (n?=?42), expert feedback (n?=?13), and quality improvement strategies (n?=?2 family navigators) to develop the questions and determine the usability of the Family-Centered Autism Navigation interview in practice. En ligne : http://dx.doi.org/10.1177/1362361320972890 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 Distilling innovative US autism care programs that address widely perceived unmet patient and family needs / V. WONG in Autism, 26-1 (January 2022)
[article]
Titre : Distilling innovative US autism care programs that address widely perceived unmet patient and family needs Type de document : Texte imprimé et/ou numérique Auteurs : V. WONG, Auteur ; M. PHAM, Auteur ; K. GODFREY, Auteur ; A. MILSTEIN, Auteur Article en page(s) : p.281-286 Langues : Anglais (eng) Mots-clés : autism spectrum disorders family functioning and support health services Index. décimale : PER Périodiques Résumé : Currently, the quality of care for autistic individuals is not good. Many care services for autistic individuals are not well coordinated, nor are they tailored. We wanted to find out a better model for autism care and believed that the autism community knows where these programs are. So, we had conversations with and surveyed 55 autistic adults, family members, clinicians, and researchers. They shared 90 innovative autism care programs that had been collaboratively designed with patients and families and that are likely to improve the quality of life of autistic individuals and their families. We then narrowed down the 90 nominated programs to 15 programs across the United States by applying researcher-selected criteria, such as providing services actively and having data on program effectiveness. We compiled a list of these innovative, quality autism care programs. En ligne : http://dx.doi.org/10.1177/13623613211027999 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451
in Autism > 26-1 (January 2022) . - p.281-286[article] Distilling innovative US autism care programs that address widely perceived unmet patient and family needs [Texte imprimé et/ou numérique] / V. WONG, Auteur ; M. PHAM, Auteur ; K. GODFREY, Auteur ; A. MILSTEIN, Auteur . - p.281-286.
Langues : Anglais (eng)
in Autism > 26-1 (January 2022) . - p.281-286
Mots-clés : autism spectrum disorders family functioning and support health services Index. décimale : PER Périodiques Résumé : Currently, the quality of care for autistic individuals is not good. Many care services for autistic individuals are not well coordinated, nor are they tailored. We wanted to find out a better model for autism care and believed that the autism community knows where these programs are. So, we had conversations with and surveyed 55 autistic adults, family members, clinicians, and researchers. They shared 90 innovative autism care programs that had been collaboratively designed with patients and families and that are likely to improve the quality of life of autistic individuals and their families. We then narrowed down the 90 nominated programs to 15 programs across the United States by applying researcher-selected criteria, such as providing services actively and having data on program effectiveness. We compiled a list of these innovative, quality autism care programs. En ligne : http://dx.doi.org/10.1177/13623613211027999 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 Challenges and contributors to self-efficacy for caregivers of toddlers with autism / Hannah H. SCHERTZ in Autism, 24-5 (July 2020)
PermalinkA community-engaged approach to examining barriers and facilitators to accessing autism services in Korean immigrant families / V. C. FONG in Autism, 26-2 (February 2022)
PermalinkMeeting the needs of autistic adults in Qatar: Stakeholder perspectives on gaps in services and priorities for future programming / Serene HABAYEB in Autism, 26-1 (January 2022)
PermalinkParental relationship status and age at autism spectrum disorder diagnosis of their child / L. G. KALB in Autism, 25-8 (November 2021)
PermalinkProfile and predictors of service needs for families of children with autism spectrum disorders / Sandra HODGETTS in Autism, 19-6 (August 2015)
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