39 recherche sur le mot-clé 'family functioning and support'

Leisure time and family functioning in families living with autism spectrum disorder / Katherine M. WALTON in Autism, 23-6 (August 2019)  

Public ISBD [article]  inAutism > 23-6 (August 2019) . - p.1384-1397 Titre : Leisure time and family functioning in families living with autism spectrum disorder Type de document : texte imprimé Auteurs : Katherine M. WALTON, Auteur Article en page(s) : p.1384-1397 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  family functioning and support  leisure Index. décimale : PER Périodiques Résumé : Family leisure can provide opportunities for both enjoyment and family growth. However, families of children with autism spectrum disorder experience multiple barriers to engaging in satisfying family leisure activities. This study surveyed parents of children with autism spectrum disorder (n = 112) and parents of children with typical development (n = 123) to examine relationships among family leisure involvement, leisure satisfaction, family functioning, and satisfaction with family life. Parents of children with autism spectrum disorder reported a similar amount of leisure involvement as families of typically developing children. However, they reported lower leisure satisfaction, poorer family functioning, and less satisfaction with family life. Mediation models suggested that low leisure satisfaction was related to less effective family communication, which in turn led to poorer family functioning and less satisfaction with family life. Amount of time spent in leisure made relatively small contributions to predicting other family variables. These results suggest that leisure-focused interventions for families of children with autism spectrum disorder should focus on improving quality, rather than quantity, of family leisure time. En ligne : http://dx.doi.org/10.1177/1362361318812434 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403 [article] Leisure time and family functioning in families living with autism spectrum disorder [texte imprimé] / Katherine M. WALTON, Auteur . - p.1384-1397. Langues : Anglais (eng) in Autism > 23-6 (August 2019) . - p.1384-1397 Mots-clés : autism spectrum disorders  family functioning and support  leisure Index. décimale : PER Périodiques Résumé : Family leisure can provide opportunities for both enjoyment and family growth. However, families of children with autism spectrum disorder experience multiple barriers to engaging in satisfying family leisure activities. This study surveyed parents of children with autism spectrum disorder (n = 112) and parents of children with typical development (n = 123) to examine relationships among family leisure involvement, leisure satisfaction, family functioning, and satisfaction with family life. Parents of children with autism spectrum disorder reported a similar amount of leisure involvement as families of typically developing children. However, they reported lower leisure satisfaction, poorer family functioning, and less satisfaction with family life. Mediation models suggested that low leisure satisfaction was related to less effective family communication, which in turn led to poorer family functioning and less satisfaction with family life. Amount of time spent in leisure made relatively small contributions to predicting other family variables. These results suggest that leisure-focused interventions for families of children with autism spectrum disorder should focus on improving quality, rather than quantity, of family leisure time. En ligne : http://dx.doi.org/10.1177/1362361318812434 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403

Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder / Noa NAVOT in Autism, 20-5 (July 2016)  

Public ISBD [article]  inAutism > 20-5 (July 2016) . - p.605-615 Titre : Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder Type de document : texte imprimé Auteurs : Noa NAVOT, Auteur ; Alicia Grattan JORGENSON, Auteur ; Ann VANDER STOEP, Auteur ; Karen TOTH, Auteur ; Sara Jane WEBB, Auteur Article en page(s) : p.605-615 Langues : Anglais (eng) Mots-clés : autism  diagnosis  family functioning and support  family planning  family vision Index. décimale : PER Périodiques Résumé : The diagnosis of a child with autism has short- and long-term impacts on family functioning. With early diagnosis, the diagnostic process is likely to co-occur with family planning decisions, yet little is known about how parents navigate this process. This study explores family planning decision making process among mothers of young children with autism spectrum disorder in the United States, by understanding the transformation in family vision before and after the diagnosis. A total of 22 mothers of first born children, diagnosed with autism between 2 and 4 years of age, were interviewed about family vision prior to and after their child’s diagnosis. Grounded Theory method was used for data analysis. Findings indicated that coherence of early family vision, maternal cognitive flexibility, and maternal responses to diagnosis were highly influential in future family planning decisions. The decision to have additional children reflected a high level of adaptability built upon a solid internalized family model and a flexible approach to life. Decision to stop childrearing reflected a relatively less coherent family model and more rigid cognitive style followed by ongoing hardship managing life after the diagnosis. This report may be useful for health-care providers in enhancing therapeutic alliance and guiding family planning counseling. En ligne : http://dx.doi.org/10.1177/1362361315602134 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290 [article] Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder [texte imprimé] / Noa NAVOT, Auteur ; Alicia Grattan JORGENSON, Auteur ; Ann VANDER STOEP, Auteur ; Karen TOTH, Auteur ; Sara Jane WEBB, Auteur . - p.605-615. Langues : Anglais (eng) in Autism > 20-5 (July 2016) . - p.605-615 Mots-clés : autism  diagnosis  family functioning and support  family planning  family vision Index. décimale : PER Périodiques Résumé : The diagnosis of a child with autism has short- and long-term impacts on family functioning. With early diagnosis, the diagnostic process is likely to co-occur with family planning decisions, yet little is known about how parents navigate this process. This study explores family planning decision making process among mothers of young children with autism spectrum disorder in the United States, by understanding the transformation in family vision before and after the diagnosis. A total of 22 mothers of first born children, diagnosed with autism between 2 and 4 years of age, were interviewed about family vision prior to and after their child’s diagnosis. Grounded Theory method was used for data analysis. Findings indicated that coherence of early family vision, maternal cognitive flexibility, and maternal responses to diagnosis were highly influential in future family planning decisions. The decision to have additional children reflected a high level of adaptability built upon a solid internalized family model and a flexible approach to life. Decision to stop childrearing reflected a relatively less coherent family model and more rigid cognitive style followed by ongoing hardship managing life after the diagnosis. This report may be useful for health-care providers in enhancing therapeutic alliance and guiding family planning counseling. En ligne : http://dx.doi.org/10.1177/1362361315602134 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290

Impact of adverse childhood experiences and family resilience on sleep duration in autistic children / Eleonora SADIKOVA in Autism, 28-10 (October 2024)  

Public ISBD [article]  inAutism > 28-10 (October 2024) . - p.2612-2622 Titre : Impact of adverse childhood experiences and family resilience on sleep duration in autistic children Type de document : texte imprimé Auteurs : Eleonora SADIKOVA, Auteur ; Jim SOLAND, Auteur ; Michelle MENEZES, Auteur ; Micah O. MAZUREK, Auteur Article en page(s) : p.2612-2622 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  family functioning and support  sleep Index. décimale : PER Périodiques Résumé : Autistic children are at higher risk of experiencing adverse childhood experiences, which lead to negative health outcomes such as sleep difficulties. In the general population, family resilience can help reduce the negative impact of adverse childhood experiences on child functioning. The aim of this study was to examine the impact of adverse childhood experiences on sleep duration, and whether family resilience moderates this impact in autistic children. With data from 2882 caregivers of children with autism from the National Survey of Children s Health, we examined the role of family resilience on the relationship between adverse childhood experiences and sleep duration. As shown in previous findings, there was a main effect of adverse childhood experiences on sleep duration. There was no significant main effect of family resilience on sleep duration. Results also show that family resilience moderates the relationship between adverse childhood experiences and sleep duration, possibly serving as a protective factor. Lay abstract Autistic children are more likely to have sleep difficulties and to experience adverse childhood experiences. Adverse childhood experiences can include parental divorce, bullying, or witnessing violence. We also know that children in families who are resilient (e.g. families who are connected, work together, and help each other) are less impacted by adverse childhood experiences. Our study examined whether there was a relationship between adverse childhood experiences and sleep duration in autistic children. We also wanted to find out whether family resilience protects from the negative impact of adverse childhood experiences on sleep duration. We used data from 3247 parent surveys about their children that we got from the National Survey of Children s Health. We found that children with adverse childhood experiences are more likely to get less sleep. We also found that children with resilient families were more likely to get more sleep. Our results show that family resilience helps weaken the relationship between adverse childhood experiences and sleep, so it is important to help families build resilience. En ligne : https://dx.doi.org/10.1177/13623613241235880 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=536 [article] Impact of adverse childhood experiences and family resilience on sleep duration in autistic children [texte imprimé] / Eleonora SADIKOVA, Auteur ; Jim SOLAND, Auteur ; Michelle MENEZES, Auteur ; Micah O. MAZUREK, Auteur . - p.2612-2622. Langues : Anglais (eng) in Autism > 28-10 (October 2024) . - p.2612-2622 Mots-clés : autism spectrum disorders  family functioning and support  sleep Index. décimale : PER Périodiques Résumé : Autistic children are at higher risk of experiencing adverse childhood experiences, which lead to negative health outcomes such as sleep difficulties. In the general population, family resilience can help reduce the negative impact of adverse childhood experiences on child functioning. The aim of this study was to examine the impact of adverse childhood experiences on sleep duration, and whether family resilience moderates this impact in autistic children. With data from 2882 caregivers of children with autism from the National Survey of Children s Health, we examined the role of family resilience on the relationship between adverse childhood experiences and sleep duration. As shown in previous findings, there was a main effect of adverse childhood experiences on sleep duration. There was no significant main effect of family resilience on sleep duration. Results also show that family resilience moderates the relationship between adverse childhood experiences and sleep duration, possibly serving as a protective factor. Lay abstract Autistic children are more likely to have sleep difficulties and to experience adverse childhood experiences. Adverse childhood experiences can include parental divorce, bullying, or witnessing violence. We also know that children in families who are resilient (e.g. families who are connected, work together, and help each other) are less impacted by adverse childhood experiences. Our study examined whether there was a relationship between adverse childhood experiences and sleep duration in autistic children. We also wanted to find out whether family resilience protects from the negative impact of adverse childhood experiences on sleep duration. We used data from 3247 parent surveys about their children that we got from the National Survey of Children s Health. We found that children with adverse childhood experiences are more likely to get less sleep. We also found that children with resilient families were more likely to get more sleep. Our results show that family resilience helps weaken the relationship between adverse childhood experiences and sleep, so it is important to help families build resilience. En ligne : https://dx.doi.org/10.1177/13623613241235880 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=536

Made to feel different: Families perspectives on external responses to autism and the impacts on family well-being and relationships / Sebastian TREW in Autism, 28-8 (August 2024)  

Public ISBD [article]  inAutism > 28-8 (August 2024) . - p.2120-2139 Titre : Made to feel different: Families perspectives on external responses to autism and the impacts on family well-being and relationships Type de document : texte imprimé Auteurs : Sebastian TREW, Auteur Article en page(s) : p.2120-2139 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  environmental factors  family functioning and support  health services  school-age children  social services Index. décimale : PER Périodiques Résumé : This study aimed to investigate the impact of external factors on the experiences and family relationships of autistic adolescents and their families. A qualitative approach was used, with in-depth interviews conducted with 30 participants, including autistic adolescents, siblings and parents from within families with an autistic adolescent family member. The findings suggest that external factors significantly influence the well-being of autistic adolescents and their families. The school environment was identified as a significant factor, with sensory overload, bullying and adverse interactions with teachers having a negative impact on the mental health and quality of family relationships for participants. In addition, the study highlighted that isolation and stigma were major concerns for families, suggesting a need for public efforts to raise awareness and understanding of autism. The lack of appropriate support and services was also identified as a significant challenge that families face. The study highlights the need for person-centred approaches to service provision, which involves including autistic adolescents and their families in the design and delivery of support and services. The study recommends collaboration among schools, service providers, and families, as well as efforts to promote autism-friendly environments in schools and the broader community. Lay abstract The influence of the environment on different groups of people with disabilities has rarely been studied in the context of neurodevelopmental disabilities, such as autism, in adolescence. This study explored how external responses to autism affect the experiences, outcomes and family relationships of autistic adolescents and their family members, including siblings and parents. This study adds to the knowledge of factors that contribute to the social disadvantage and exclusion autistic adolescents and their families face in their communities. Interviews with 30 participants from families with an autistic adolescent show that external factors greatly impact the well-being of autistic adolescents and their families. The school environment, including sensory overload, bullying and negative interactions with teachers, was found to be a key factor that negatively influenced mental health and family relationships. The study also revealed that isolation and stigma are major concerns for families, indicating the importance of public awareness campaigns to increase understanding of autism. In addition, the lack of adequate support and services presented significant challenges for families. The study emphasises the importance of person-centred approaches to providing services, which involve including autistic individuals and their families in designing and delivering support. En ligne : https://dx.doi.org/10.1177/13623613231221684 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534 [article] Made to feel different: Families perspectives on external responses to autism and the impacts on family well-being and relationships [texte imprimé] / Sebastian TREW, Auteur . - p.2120-2139. Langues : Anglais (eng) in Autism > 28-8 (August 2024) . - p.2120-2139 Mots-clés : autism spectrum disorders  environmental factors  family functioning and support  health services  school-age children  social services Index. décimale : PER Périodiques Résumé : This study aimed to investigate the impact of external factors on the experiences and family relationships of autistic adolescents and their families. A qualitative approach was used, with in-depth interviews conducted with 30 participants, including autistic adolescents, siblings and parents from within families with an autistic adolescent family member. The findings suggest that external factors significantly influence the well-being of autistic adolescents and their families. The school environment was identified as a significant factor, with sensory overload, bullying and adverse interactions with teachers having a negative impact on the mental health and quality of family relationships for participants. In addition, the study highlighted that isolation and stigma were major concerns for families, suggesting a need for public efforts to raise awareness and understanding of autism. The lack of appropriate support and services was also identified as a significant challenge that families face. The study highlights the need for person-centred approaches to service provision, which involves including autistic adolescents and their families in the design and delivery of support and services. The study recommends collaboration among schools, service providers, and families, as well as efforts to promote autism-friendly environments in schools and the broader community. Lay abstract The influence of the environment on different groups of people with disabilities has rarely been studied in the context of neurodevelopmental disabilities, such as autism, in adolescence. This study explored how external responses to autism affect the experiences, outcomes and family relationships of autistic adolescents and their family members, including siblings and parents. This study adds to the knowledge of factors that contribute to the social disadvantage and exclusion autistic adolescents and their families face in their communities. Interviews with 30 participants from families with an autistic adolescent show that external factors greatly impact the well-being of autistic adolescents and their families. The school environment, including sensory overload, bullying and negative interactions with teachers, was found to be a key factor that negatively influenced mental health and family relationships. The study also revealed that isolation and stigma are major concerns for families, indicating the importance of public awareness campaigns to increase understanding of autism. In addition, the lack of adequate support and services presented significant challenges for families. The study emphasises the importance of person-centred approaches to providing services, which involve including autistic individuals and their families in designing and delivering support. En ligne : https://dx.doi.org/10.1177/13623613231221684 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534

Comparing eating and mealtime experiences in families of children with autism, attention deficit hyperactivity disorder and dual diagnosis / Zoe MATTHEWS ; Donna PIGDEN-BENNETT ; Teresa TAVASSOLI ; Sarah SNUGGS in Autism, 29-2 (February 2025)  

Public ISBD [article]  inAutism > 29-2 (February 2025) . - p.518-535 Titre : Comparing eating and mealtime experiences in families of children with autism, attention deficit hyperactivity disorder and dual diagnosis : Autism Type de document : texte imprimé Auteurs : Zoe MATTHEWS, Auteur ; Donna PIGDEN-BENNETT, Auteur ; Teresa TAVASSOLI, Auteur ; Sarah SNUGGS, Auteur Article en page(s) : p.518-535 Langues : Anglais (eng) Mots-clés : ADHD  autism spectrum disorders  family functioning and support  school-age children Index. décimale : PER Périodiques Résumé : Shared family meals are associated with family functioning and thought to protect against disordered eating in families with neurotypical children. Limited research, however, has examined the mealtime structure or experience in families with children with autism (Autism spectrum condition) and/or attention deficit hyperactivity disorder, despite eating behaviour differences in these populations. This study sought to compare children s eating behaviours and caregivers' mealtime experiences between families with neurotypical children and those with Autism spectrum condition, attention deficit hyperactivity disorder and dual diagnosis (Autism spectrum condition+attention deficit hyperactivity disorder). Think-Aloud methods established validity for the Children s Eating Behaviour Questionnaire, Meals in our Household and Perceived Stress Scale measures (N = 9), prior to administering these to caregivers of children aged 3-15 (N = 351). Neurodevelopmental condition groups (Autism spectrum condition, n = 80; Attention deficit hyperactivity disorder, n = 88; Autism spectrum condition+attention deficit hyperactivity disorder, n = 65) reported higher food fussiness, emotional undereating, problematic child mealtime behaviours, dietary concerns, caregiver and spousal stress, and less conventionally structured mealtimes than neurotypical families (n = 118). Attention deficit hyperactivity disorder and Autism spectrum condition+attention deficit hyperactivity disorder groups reported higher food responsiveness, problematic behaviour and caregiver stress than the Autism spectrum condition group. Conversely, Autism spectrum condition and Autism spectrum condition+attention deficit hyperactivity disorder groups reported lower food enjoyment and mealtime structure than the attention deficit hyperactivity disorder group. Distinct eating and mealtime patterns in neurodevelopmental condition families may adversely impact family functioning, emphasising the need for bio-psychosocial approaches and transdiagnostic mealtime support. Lay abstract Children with neurodevelopmental conditions like autism and attention deficit hyperactivity disorder may experience eating difficulties and related health issues later in life. Sharing family meals can help prevent these issues developing, but most studies have looked at families with neurotypical children. Our goal was to learn more about how families of children with autism, attention deficit hyperactivity disorder and both conditions (autism+attention deficit hyperactivity disorder) experience mealtimes. We developed an online survey asking caregivers about their child?s eating, mealtime experience and if they experienced stress. We tested it with nine caregivers and made improvements based on their feedback before recruiting 351 caregivers to complete the main survey. We found that families of children with neurodevelopmental conditions experienced greater food fussiness, emotional undereating, 'problematic' child mealtime behaviours, dietary concerns, higher stress for caregivers and spouses and less frequent conventionally structured mealtimes compared to those without these conditions. Families of children with attention deficit hyperactivity disorder and autism+attention deficit hyperactivity disorder reported greater appetite, 'problematic' mealtime behaviours and increased stress for caregivers and spouses compared to families of children with autism. Meanwhile, families of children with autism and autism+attention deficit hyperactivity disorder reported less enjoyment of food and less structured mealtimes compared to those with attention deficit hyperactivity disorder. Our findings highlight that families of children with neurodevelopmental conditions, particularly those with autism+attention deficit hyperactivity disorder, have different mealtime experiences and eating behaviours compared to those with neurotypical children. These families may benefit from support at mealtimes. Learning why people o or do not participate in shared family meals will be crucial to developing improved mealtime support in the future. En ligne : https://dx.doi.org/10.1177/13623613241277605 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547 [article] Comparing eating and mealtime experiences in families of children with autism, attention deficit hyperactivity disorder and dual diagnosis : Autism [texte imprimé] / Zoe MATTHEWS, Auteur ; Donna PIGDEN-BENNETT, Auteur ; Teresa TAVASSOLI, Auteur ; Sarah SNUGGS, Auteur . - p.518-535. Langues : Anglais (eng) in Autism > 29-2 (February 2025) . - p.518-535 Mots-clés : ADHD  autism spectrum disorders  family functioning and support  school-age children Index. décimale : PER Périodiques Résumé : Shared family meals are associated with family functioning and thought to protect against disordered eating in families with neurotypical children. Limited research, however, has examined the mealtime structure or experience in families with children with autism (Autism spectrum condition) and/or attention deficit hyperactivity disorder, despite eating behaviour differences in these populations. This study sought to compare children s eating behaviours and caregivers' mealtime experiences between families with neurotypical children and those with Autism spectrum condition, attention deficit hyperactivity disorder and dual diagnosis (Autism spectrum condition+attention deficit hyperactivity disorder). Think-Aloud methods established validity for the Children s Eating Behaviour Questionnaire, Meals in our Household and Perceived Stress Scale measures (N = 9), prior to administering these to caregivers of children aged 3-15 (N = 351). Neurodevelopmental condition groups (Autism spectrum condition, n = 80; Attention deficit hyperactivity disorder, n = 88; Autism spectrum condition+attention deficit hyperactivity disorder, n = 65) reported higher food fussiness, emotional undereating, problematic child mealtime behaviours, dietary concerns, caregiver and spousal stress, and less conventionally structured mealtimes than neurotypical families (n = 118). Attention deficit hyperactivity disorder and Autism spectrum condition+attention deficit hyperactivity disorder groups reported higher food responsiveness, problematic behaviour and caregiver stress than the Autism spectrum condition group. Conversely, Autism spectrum condition and Autism spectrum condition+attention deficit hyperactivity disorder groups reported lower food enjoyment and mealtime structure than the attention deficit hyperactivity disorder group. Distinct eating and mealtime patterns in neurodevelopmental condition families may adversely impact family functioning, emphasising the need for bio-psychosocial approaches and transdiagnostic mealtime support. Lay abstract Children with neurodevelopmental conditions like autism and attention deficit hyperactivity disorder may experience eating difficulties and related health issues later in life. Sharing family meals can help prevent these issues developing, but most studies have looked at families with neurotypical children. Our goal was to learn more about how families of children with autism, attention deficit hyperactivity disorder and both conditions (autism+attention deficit hyperactivity disorder) experience mealtimes. We developed an online survey asking caregivers about their child?s eating, mealtime experience and if they experienced stress. We tested it with nine caregivers and made improvements based on their feedback before recruiting 351 caregivers to complete the main survey. We found that families of children with neurodevelopmental conditions experienced greater food fussiness, emotional undereating, 'problematic' child mealtime behaviours, dietary concerns, higher stress for caregivers and spouses and less frequent conventionally structured mealtimes compared to those without these conditions. Families of children with attention deficit hyperactivity disorder and autism+attention deficit hyperactivity disorder reported greater appetite, 'problematic' mealtime behaviours and increased stress for caregivers and spouses compared to families of children with autism. Meanwhile, families of children with autism and autism+attention deficit hyperactivity disorder reported less enjoyment of food and less structured mealtimes compared to those with attention deficit hyperactivity disorder. Our findings highlight that families of children with neurodevelopmental conditions, particularly those with autism+attention deficit hyperactivity disorder, have different mealtime experiences and eating behaviours compared to those with neurotypical children. These families may benefit from support at mealtimes. Learning why people o or do not participate in shared family meals will be crucial to developing improved mealtime support in the future. En ligne : https://dx.doi.org/10.1177/13623613241277605 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547

Characterization of Family-Directed Care Coordination and Involvement in Behavioral Treatments in an Autism-Specific Medicaid Waiver / Gregory S. CHASSON in Journal of Autism and Developmental Disorders, 51-2 (February 2021)  

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Development and utility of the Family-Centered Autism Navigation interview / Kris PIZUR-BARNEKOW in Autism, 25-4 (May 2021)  

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Distilling innovative US autism care programs that address widely perceived unmet patient and family needs / Venus WONG in Autism, 26-1 (January 2022)  

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Challenges and contributors to self-efficacy for caregivers of toddlers with autism / Hannah H. SCHERTZ in Autism, 24-5 (July 2020)  

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Characterizing self-reported physical activity before and during a subsequent pregnancy among parents in a familial autism cohort / Megan G. BRAGG in Autism, 29-1 (January 2025)  

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