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Family Impact During the Time Between Autism Screening and Definitive Diagnosis / Emily J. HICKEY in Journal of Autism and Developmental Disorders, 52-11 (November 2022)
[article]
Titre : Family Impact During the Time Between Autism Screening and Definitive Diagnosis Type de document : Texte imprimé et/ou numérique Auteurs : Emily J. HICKEY, Auteur ; Emily FEINBERG, Auteur ; Jocelyn KUHN, Auteur ; Howard J. CABRAL, Auteur ; Sarabeth BRODER-FINGERT, Auteur Article en page(s) : p.4908-4920 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis/epidemiology Autistic Disorder Child Child Behavior Family Humans Parents Autism Spectrum Disorder Autism risk Child functioning Developmental disability Difficult child behavior Family impact Index. décimale : PER Périodiques Résumé : Over the past 10Â years, identification of Autism Spectrum Disorder (ASD) risk has dramatically increased due to the wide-spread implementation of screening programs; yet, there is limited understanding about parent perceptions and experiences during the time period when risk is identified, but prior to receiving a formal diagnosis-a period that can last months to years given the long wait-lists for formal ASD evaluations. The current study aimed to examine parent perceptions of family impact (i.e., the impact their child's behaviors have on the family) between the time of risk-identification and formal diagnosis among 277 children identified as at-risk for ASD through screening positive in primary care. We aimed to compare family impact among those whose child met diagnostic criteria for ASD and those who did not. Parents of children who received a non-ASD diagnosis reported a higher baseline level of family impact (F[1, 274]=5.82, p=.017); however, perceived difficult child behavior was a stronger predictor of family impact (t[6]=13.11, p < .001) than later diagnostic group (t[6]=-Â 2.10, p=.037), and child functioning did not predict family impact (t[6]=-0.31, p=.76). These results suggest that in this population, perceived difficult child behavior is a stronger predictor of family impact than later diagnostic category and should be considered an important factor in family support. En ligne : http://dx.doi.org/10.1007/s10803-021-05354-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489
in Journal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.4908-4920[article] Family Impact During the Time Between Autism Screening and Definitive Diagnosis [Texte imprimé et/ou numérique] / Emily J. HICKEY, Auteur ; Emily FEINBERG, Auteur ; Jocelyn KUHN, Auteur ; Howard J. CABRAL, Auteur ; Sarabeth BRODER-FINGERT, Auteur . - p.4908-4920.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.4908-4920
Mots-clés : Autism Spectrum Disorder/diagnosis/epidemiology Autistic Disorder Child Child Behavior Family Humans Parents Autism Spectrum Disorder Autism risk Child functioning Developmental disability Difficult child behavior Family impact Index. décimale : PER Périodiques Résumé : Over the past 10Â years, identification of Autism Spectrum Disorder (ASD) risk has dramatically increased due to the wide-spread implementation of screening programs; yet, there is limited understanding about parent perceptions and experiences during the time period when risk is identified, but prior to receiving a formal diagnosis-a period that can last months to years given the long wait-lists for formal ASD evaluations. The current study aimed to examine parent perceptions of family impact (i.e., the impact their child's behaviors have on the family) between the time of risk-identification and formal diagnosis among 277 children identified as at-risk for ASD through screening positive in primary care. We aimed to compare family impact among those whose child met diagnostic criteria for ASD and those who did not. Parents of children who received a non-ASD diagnosis reported a higher baseline level of family impact (F[1, 274]=5.82, p=.017); however, perceived difficult child behavior was a stronger predictor of family impact (t[6]=13.11, p < .001) than later diagnostic group (t[6]=-Â 2.10, p=.037), and child functioning did not predict family impact (t[6]=-0.31, p=.76). These results suggest that in this population, perceived difficult child behavior is a stronger predictor of family impact than later diagnostic category and should be considered an important factor in family support. En ligne : http://dx.doi.org/10.1007/s10803-021-05354-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions / Rini VOHRA in Autism, 18-7 (October 2014)
[article]
Titre : Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions Type de document : Texte imprimé et/ou numérique Auteurs : Rini VOHRA, Auteur ; Suresh MADHAVAN, Auteur ; Usha SAMBAMOORTHI, Auteur ; Claire ST PETER, Auteur Article en page(s) : p.815-826 Langues : Anglais (eng) Mots-clés : Access to services autism autism spectrum disorder health care burden of autism developmental disabilities family impact mental health condition quality of care Index. décimale : PER Périodiques Résumé : This cross-sectional study examined perceived access to services, quality of care, and family impact reported by caregivers of children aged 3–17 years with autism spectrum disorders, as compared to caregivers of children with other developmental disabilities and other mental health conditions. The 2009–2010 National Survey of Children with Special Health Care Needs was utilized to examine the association between child’s special needs condition and three outcomes (N = 18,136): access to services (difficulty using services, difficulty getting referrals, lack of source of care, and inadequate insurance coverage), quality of care (lack of care coordination, lack of shared decision making, and no routine screening), and family impact (financial, employment, and time-related burden). Multivariate logistic regressions were performed to compare caregivers of children with autism spectrum disorders to caregivers of children with developmental disabilities (cerebral palsy, Down syndrome, developmental delay, or intellectual disability), mental health conditions (attention deficit hyperactivity disorder, anxiety, behavioral/conduct problems, or depression), or both developmental disabilities and mental health conditions. Caregivers of children with autism spectrum disorders were significantly more likely to report difficulty using services, lack of source of care, inadequate insurance coverage, lack of shared decision making and care coordination, and adverse family impact as compared to caregivers of children with developmental disabilities, mental health conditions, or both. En ligne : http://dx.doi.org/10.1177/1362361313512902 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241
in Autism > 18-7 (October 2014) . - p.815-826[article] Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions [Texte imprimé et/ou numérique] / Rini VOHRA, Auteur ; Suresh MADHAVAN, Auteur ; Usha SAMBAMOORTHI, Auteur ; Claire ST PETER, Auteur . - p.815-826.
Langues : Anglais (eng)
in Autism > 18-7 (October 2014) . - p.815-826
Mots-clés : Access to services autism autism spectrum disorder health care burden of autism developmental disabilities family impact mental health condition quality of care Index. décimale : PER Périodiques Résumé : This cross-sectional study examined perceived access to services, quality of care, and family impact reported by caregivers of children aged 3–17 years with autism spectrum disorders, as compared to caregivers of children with other developmental disabilities and other mental health conditions. The 2009–2010 National Survey of Children with Special Health Care Needs was utilized to examine the association between child’s special needs condition and three outcomes (N = 18,136): access to services (difficulty using services, difficulty getting referrals, lack of source of care, and inadequate insurance coverage), quality of care (lack of care coordination, lack of shared decision making, and no routine screening), and family impact (financial, employment, and time-related burden). Multivariate logistic regressions were performed to compare caregivers of children with autism spectrum disorders to caregivers of children with developmental disabilities (cerebral palsy, Down syndrome, developmental delay, or intellectual disability), mental health conditions (attention deficit hyperactivity disorder, anxiety, behavioral/conduct problems, or depression), or both developmental disabilities and mental health conditions. Caregivers of children with autism spectrum disorders were significantly more likely to report difficulty using services, lack of source of care, inadequate insurance coverage, lack of shared decision making and care coordination, and adverse family impact as compared to caregivers of children with developmental disabilities, mental health conditions, or both. En ligne : http://dx.doi.org/10.1177/1362361313512902 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241 Longitudinal study of perceived negative impact in African American and Caucasian mothers of children with autism spectrum disorder / Themba CARR in Autism, 17-4 (July 2013)
[article]
Titre : Longitudinal study of perceived negative impact in African American and Caucasian mothers of children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Themba CARR, Auteur ; Catherine LORD, Auteur Article en page(s) : p.405-417 Langues : Anglais (eng) Mots-clés : perceived negative impact family impact African American adolescence socioeconomic status Index. décimale : PER Périodiques Résumé : The purpose of this study was to examine the stability of mothers’ perceptions of the negative impact of having a child with ASD in a sample of African American and Caucasian families as their children transitioned to early adolescence. Participants were mothers and children participating in an ongoing longitudinal study of children referred for diagnosis of ASD at age two. Analyses included data from two time points, when child participants were approximately 9 and 14 years old. Linear mixed model analyses were used to examine the relationship between the primary outcome variable, mothers’ perceived negative impact across time, and hypothesized predictors. Negative impact increased significantly from late childhood to into adolescence. However, African American mothers with lower education reported significantly lower levels of perceived negative impact at both time points. Findings show that for some families, the transition to adolescence is a period in which mothers experience increased amounts of negative impact and highlight the importance of examining the influence of socioeconomic variables. Furthermore, data suggest that there may be cultural differences mediating the relationship between maternal education, ethnicity, and perceived negative impact. Implications for the importance of including families from varying levels of socioeconomic status in ASD research are discussed. En ligne : http://dx.doi.org/10.1177/1362361311435155 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=206
in Autism > 17-4 (July 2013) . - p.405-417[article] Longitudinal study of perceived negative impact in African American and Caucasian mothers of children with autism spectrum disorder [Texte imprimé et/ou numérique] / Themba CARR, Auteur ; Catherine LORD, Auteur . - p.405-417.
Langues : Anglais (eng)
in Autism > 17-4 (July 2013) . - p.405-417
Mots-clés : perceived negative impact family impact African American adolescence socioeconomic status Index. décimale : PER Périodiques Résumé : The purpose of this study was to examine the stability of mothers’ perceptions of the negative impact of having a child with ASD in a sample of African American and Caucasian families as their children transitioned to early adolescence. Participants were mothers and children participating in an ongoing longitudinal study of children referred for diagnosis of ASD at age two. Analyses included data from two time points, when child participants were approximately 9 and 14 years old. Linear mixed model analyses were used to examine the relationship between the primary outcome variable, mothers’ perceived negative impact across time, and hypothesized predictors. Negative impact increased significantly from late childhood to into adolescence. However, African American mothers with lower education reported significantly lower levels of perceived negative impact at both time points. Findings show that for some families, the transition to adolescence is a period in which mothers experience increased amounts of negative impact and highlight the importance of examining the influence of socioeconomic variables. Furthermore, data suggest that there may be cultural differences mediating the relationship between maternal education, ethnicity, and perceived negative impact. Implications for the importance of including families from varying levels of socioeconomic status in ASD research are discussed. En ligne : http://dx.doi.org/10.1177/1362361311435155 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=206 Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder / E. J. HICKEY in Autism, 25-6 (August 2021)
[article]
Titre : Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : E. J. HICKEY, Auteur ; M. STRANSKY, Auteur ; J. KUHN, Auteur ; J. E. ROSENBERG, Auteur ; H. J. CABRAL, Auteur ; C. WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; E. FEINBERG, Auteur Article en page(s) : p.1694-1708 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological Autism Spectrum Disorder Child Humans Parenting Parents Stress, Psychological autism risk autism spectrum disorders coping developmental disabilities family impact parenting stress trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451
in Autism > 25-6 (August 2021) . - p.1694-1708[article] Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder [Texte imprimé et/ou numérique] / E. J. HICKEY, Auteur ; M. STRANSKY, Auteur ; J. KUHN, Auteur ; J. E. ROSENBERG, Auteur ; H. J. CABRAL, Auteur ; C. WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; E. FEINBERG, Auteur . - p.1694-1708.
Langues : Anglais (eng)
in Autism > 25-6 (August 2021) . - p.1694-1708
Mots-clés : Adaptation, Psychological Autism Spectrum Disorder Child Humans Parenting Parents Stress, Psychological autism risk autism spectrum disorders coping developmental disabilities family impact parenting stress trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder / Emily J. HICKEY in Autism, 26-6 (August 2022)
[article]
Titre : Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Emily J. HICKEY, Auteur ; Michelle STRANSKY, Auteur ; Jocelyn KUHN, Auteur ; Jessica E. ROSENBERG, Auteur ; Howard J. CABRAL, Auteur ; Carol WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Emily FEINBERG, Auteur Article en page(s) : p.1694-1708 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological Autism Spectrum Disorder Child Humans Parenting Parents Stress, Psychological autism risk autism spectrum disorders coping developmental disabilities family impact parenting stress trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484
in Autism > 26-6 (August 2022) . - p.1694-1708[article] Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder [Texte imprimé et/ou numérique] / Emily J. HICKEY, Auteur ; Michelle STRANSKY, Auteur ; Jocelyn KUHN, Auteur ; Jessica E. ROSENBERG, Auteur ; Howard J. CABRAL, Auteur ; Carol WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Emily FEINBERG, Auteur . - p.1694-1708.
Langues : Anglais (eng)
in Autism > 26-6 (August 2022) . - p.1694-1708
Mots-clés : Adaptation, Psychological Autism Spectrum Disorder Child Humans Parenting Parents Stress, Psychological autism risk autism spectrum disorders coping developmental disabilities family impact parenting stress trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484