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Myths about autism: An exploratory study using focus groups / R. P. JOHN in Autism, 22-7 (October 2018)
[article]
Titre : Myths about autism: An exploratory study using focus groups Type de document : Texte imprimé et/ou numérique Auteurs : R. P. JOHN, Auteur ; F. J. KNOTT, Auteur ; K. N. HARVEY, Auteur Article en page(s) : p.845-854 Langues : Anglais (eng) Mots-clés : autism beliefs focus group myths public attitudes Index. décimale : PER Périodiques Résumé : Individuals with autism are often stigmatised and isolated by their typically developing peers according to parental, teacher and self-reports. While quantitative studies often report negative attitudes towards individuals with autism, it is still unclear how understandings of autism influence attitudes. In this exploratory study, misconceptions or myths about autism, that is, the cognitive component of attitudes, were examined using focus groups. Purposive sampling was used to recruit undergraduate and postgraduate students, and adults with and without experience of autism, to one of the five focus groups (n = 37). Content analysis was used to identify emergent themes. The data identified seven commonly held beliefs about individuals with autism. The first four were related to social interaction, such as that people with autism do not like to be touched. The fifth reflected the view that all individuals with autism have a special talent, and the final two concerned beliefs that people with autism are dangerous. The findings from this study demonstrate that people with varying experience or knowledge of autism often hold inaccurate beliefs about autism. These findings improve our understandings of lay beliefs about autism and will aid the development and implementation of interventions designed to improve lay knowledge of autism. En ligne : http://dx.doi.org/10.1177/1362361317714990 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370
in Autism > 22-7 (October 2018) . - p.845-854[article] Myths about autism: An exploratory study using focus groups [Texte imprimé et/ou numérique] / R. P. JOHN, Auteur ; F. J. KNOTT, Auteur ; K. N. HARVEY, Auteur . - p.845-854.
Langues : Anglais (eng)
in Autism > 22-7 (October 2018) . - p.845-854
Mots-clés : autism beliefs focus group myths public attitudes Index. décimale : PER Périodiques Résumé : Individuals with autism are often stigmatised and isolated by their typically developing peers according to parental, teacher and self-reports. While quantitative studies often report negative attitudes towards individuals with autism, it is still unclear how understandings of autism influence attitudes. In this exploratory study, misconceptions or myths about autism, that is, the cognitive component of attitudes, were examined using focus groups. Purposive sampling was used to recruit undergraduate and postgraduate students, and adults with and without experience of autism, to one of the five focus groups (n = 37). Content analysis was used to identify emergent themes. The data identified seven commonly held beliefs about individuals with autism. The first four were related to social interaction, such as that people with autism do not like to be touched. The fifth reflected the view that all individuals with autism have a special talent, and the final two concerned beliefs that people with autism are dangerous. The findings from this study demonstrate that people with varying experience or knowledge of autism often hold inaccurate beliefs about autism. These findings improve our understandings of lay beliefs about autism and will aid the development and implementation of interventions designed to improve lay knowledge of autism. En ligne : http://dx.doi.org/10.1177/1362361317714990 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 Challenges of Females with Autism: A Parental Perspective / M. MADEMTZI in Journal of Autism and Developmental Disorders, 48-4 (April 2018)
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Titre : Challenges of Females with Autism: A Parental Perspective Type de document : Texte imprimé et/ou numérique Auteurs : M. MADEMTZI, Auteur ; P. SINGH, Auteur ; F. SHIC, Auteur ; K. KOENIG, Auteur Article en page(s) : p.1301-1310 Langues : Anglais (eng) Mots-clés : Autism Autism Spectrum Disorders Females Focus group Girls Parents Index. décimale : PER Périodiques Résumé : Most studies investigating the experiences and needs of individuals with ASD have largely focused on males. Hence, this study investigates parents' perspectives on the challenges that their daughters with ASD face. In total, 40 parents of 40 females with autism (age range = 4-29 years; mean = 15.9) participated in the study. Five separate, 2-h long focus groups were conducted, with 7-10 participants in each group. Field notes were analyzed using thematic analysis. Some of the issues parents discussed were similar to those experienced by males with ASD, such as challenges in social interactions. However, other issues discussed were of particular relevance to girls with ASD, including difficulties socializing with other girls, sex-specific puberty issues, barriers in accessing intervention and sexual vulnerability. En ligne : http://dx.doi.org/10.1007/s10803-017-3341-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=352
in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1301-1310[article] Challenges of Females with Autism: A Parental Perspective [Texte imprimé et/ou numérique] / M. MADEMTZI, Auteur ; P. SINGH, Auteur ; F. SHIC, Auteur ; K. KOENIG, Auteur . - p.1301-1310.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1301-1310
Mots-clés : Autism Autism Spectrum Disorders Females Focus group Girls Parents Index. décimale : PER Périodiques Résumé : Most studies investigating the experiences and needs of individuals with ASD have largely focused on males. Hence, this study investigates parents' perspectives on the challenges that their daughters with ASD face. In total, 40 parents of 40 females with autism (age range = 4-29 years; mean = 15.9) participated in the study. Five separate, 2-h long focus groups were conducted, with 7-10 participants in each group. Field notes were analyzed using thematic analysis. Some of the issues parents discussed were similar to those experienced by males with ASD, such as challenges in social interactions. However, other issues discussed were of particular relevance to girls with ASD, including difficulties socializing with other girls, sex-specific puberty issues, barriers in accessing intervention and sexual vulnerability. En ligne : http://dx.doi.org/10.1007/s10803-017-3341-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=352 Using qualitative methods to guide scale development for anxiety in youth with autism spectrum disorder / Karen E. BEARSS in Autism, 20-6 (August 2016)
[article]
Titre : Using qualitative methods to guide scale development for anxiety in youth with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Karen E. BEARSS, Auteur ; Christopher A TAYLOR, Auteur ; Michael G. AMAN, Auteur ; Robin WHITTEMORE, Auteur ; Luc LECAVALIER, Auteur ; Judith MILLER, Auteur ; Jill PRITCHETT, Auteur ; Bryson GREEN, Auteur ; Lawrence SCAHILL, Auteur Article en page(s) : p.663-672 Langues : Anglais (eng) Mots-clés : anxiety autism spectrum disorder content validity focus group instrument development qualitative methods Index. décimale : PER Périodiques Résumé : Anxiety is common in youth with autism spectrum disorder. Despite this common co-occurrence, studies targeting anxiety in this population are hindered by the under-developed state of measures in youth with autism spectrum disorder. Content validity (the extent to which an instrument measures the domain of interest) and an instrument’s relevance to the patient population are key components of measurement development. This article describes the application of qualitative research methods in the initial development of a parent-rated instrument of anxiety symptoms in youth with autism spectrum disorder. Overall, 48 parents of 45 children (aged 3–17?years) with autism spectrum disorder and at least mild anxiety participated in one of six focus groups at two sites (three groups per site). Systematic coding of the focus group transcripts identified broad themes reflecting the situations and events that trigger anxiety in children with autism spectrum disorder, the behavioral manifestations of anxiety in children with autism spectrum disorder, the parent and the child’s own response to anxiety, and broad behavioral patterns that could be associated with anxiety. From the focus group data, investigators generated 52 candidate items for a parent-rating of anxiety in youth with autism spectrum disorder. This report provides a detailed description of these early steps in developing a patient-oriented outcome measure. En ligne : http://dx.doi.org/10.1177/1362361315601012 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290
in Autism > 20-6 (August 2016) . - p.663-672[article] Using qualitative methods to guide scale development for anxiety in youth with autism spectrum disorder [Texte imprimé et/ou numérique] / Karen E. BEARSS, Auteur ; Christopher A TAYLOR, Auteur ; Michael G. AMAN, Auteur ; Robin WHITTEMORE, Auteur ; Luc LECAVALIER, Auteur ; Judith MILLER, Auteur ; Jill PRITCHETT, Auteur ; Bryson GREEN, Auteur ; Lawrence SCAHILL, Auteur . - p.663-672.
Langues : Anglais (eng)
in Autism > 20-6 (August 2016) . - p.663-672
Mots-clés : anxiety autism spectrum disorder content validity focus group instrument development qualitative methods Index. décimale : PER Périodiques Résumé : Anxiety is common in youth with autism spectrum disorder. Despite this common co-occurrence, studies targeting anxiety in this population are hindered by the under-developed state of measures in youth with autism spectrum disorder. Content validity (the extent to which an instrument measures the domain of interest) and an instrument’s relevance to the patient population are key components of measurement development. This article describes the application of qualitative research methods in the initial development of a parent-rated instrument of anxiety symptoms in youth with autism spectrum disorder. Overall, 48 parents of 45 children (aged 3–17?years) with autism spectrum disorder and at least mild anxiety participated in one of six focus groups at two sites (three groups per site). Systematic coding of the focus group transcripts identified broad themes reflecting the situations and events that trigger anxiety in children with autism spectrum disorder, the behavioral manifestations of anxiety in children with autism spectrum disorder, the parent and the child’s own response to anxiety, and broad behavioral patterns that could be associated with anxiety. From the focus group data, investigators generated 52 candidate items for a parent-rating of anxiety in youth with autism spectrum disorder. This report provides a detailed description of these early steps in developing a patient-oriented outcome measure. En ligne : http://dx.doi.org/10.1177/1362361315601012 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290 Effectiveness of a SCERTS Model-Based Intervention for Children with Autism Spectrum Disorder (ASD) in Hong Kong: A Pilot Study / L. YU in Journal of Autism and Developmental Disorders, 48-11 (November 2018)
[article]
Titre : Effectiveness of a SCERTS Model-Based Intervention for Children with Autism Spectrum Disorder (ASD) in Hong Kong: A Pilot Study Type de document : Texte imprimé et/ou numérique Auteurs : L. YU, Auteur ; X. ZHU, Auteur Article en page(s) : p.3794-3807 Langues : Anglais (eng) Mots-clés : Chinese children with ASD Evaluation Focus group Quasi-experiment SCERTS model Index. décimale : PER Périodiques Résumé : A SCERTS model-based intervention with different durations (5-month vs. 10-month) was provided to 122 children with autism spectrum disorder (ASD) (age = 53.43 +/- 9.05 months) in Hong Kong. Before and after the intervention, the children were assessed with the Chinese Psychoeducational Profile-Third Edition (CPEP-3) and the Developmental Assessment Chart (DAC). Educators and parents expressed their views toward the intervention in focus groups. Results showed that participating children improved significantly in their social communication and emotional behavior after the intervention, as measured by DAC and CPEP-3. Likewise, educators and parents had positive views toward the intervention and noted the children's improvement. The results suggest that a SCERTS model-based intervention can improve social communication, emotional regulation, and other skills in children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-018-3649-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370
in Journal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3794-3807[article] Effectiveness of a SCERTS Model-Based Intervention for Children with Autism Spectrum Disorder (ASD) in Hong Kong: A Pilot Study [Texte imprimé et/ou numérique] / L. YU, Auteur ; X. ZHU, Auteur . - p.3794-3807.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3794-3807
Mots-clés : Chinese children with ASD Evaluation Focus group Quasi-experiment SCERTS model Index. décimale : PER Périodiques Résumé : A SCERTS model-based intervention with different durations (5-month vs. 10-month) was provided to 122 children with autism spectrum disorder (ASD) (age = 53.43 +/- 9.05 months) in Hong Kong. Before and after the intervention, the children were assessed with the Chinese Psychoeducational Profile-Third Edition (CPEP-3) and the Developmental Assessment Chart (DAC). Educators and parents expressed their views toward the intervention in focus groups. Results showed that participating children improved significantly in their social communication and emotional behavior after the intervention, as measured by DAC and CPEP-3. Likewise, educators and parents had positive views toward the intervention and noted the children's improvement. The results suggest that a SCERTS model-based intervention can improve social communication, emotional regulation, and other skills in children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-018-3649-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 The importance of context in early autism intervention: A qualitative South African study / J. GULER in Autism, 22-8 (November 2018)
[article]
Titre : The importance of context in early autism intervention: A qualitative South African study Type de document : Texte imprimé et/ou numérique Auteurs : J. GULER, Auteur ; P. J. DE VRIES, Auteur ; N. SERIS, Auteur ; N. SHABALALA, Auteur ; L. FRANZ, Auteur Article en page(s) : p.1005-1017 Langues : Anglais (eng) Mots-clés : South Africa autism spectrum disorder caregivers contextual factors early intervention focus group low- and middle-income country qualitative methods Index. décimale : PER Périodiques Résumé : The majority of individuals with autism spectrum disorder live in low- and middle-income countries and receive little or no services from health or social care systems. The development and validation of autism spectrum disorder interventions has almost exclusively occurred in high-income countries, leaving many unanswered questions regarding what contextual factors would need to be considered to ensure the effectiveness of interventions in low- and middle-income countries. This study qualitatively explored contextual factors relevant to the adaptation of a caregiver-mediated early autism spectrum disorder intervention in a low-resource South African setting. We conducted four focus groups and four in-depth interviews with 28 caregivers of young children with autism spectrum disorder and used thematic analysis to identify key themes. Eight contextual factors including culture, language, location of treatment, cost of treatment, type of service provider, support, parenting practices, and stigma emerged as important. Caregivers reported a preference for an affordable, in-home, individualized early autism spectrum disorder intervention, where they have an active voice in shaping treatment goals. Distrust of community-based health workers and challenges associated with autism spectrum disorder-related stigma were identified. Recommendations that integrate caregiver preferences with the development of a low-cost and scalable caregiver-mediated early autism spectrum disorder intervention are included. En ligne : http://dx.doi.org/10.1177/1362361317716604 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370
in Autism > 22-8 (November 2018) . - p.1005-1017[article] The importance of context in early autism intervention: A qualitative South African study [Texte imprimé et/ou numérique] / J. GULER, Auteur ; P. J. DE VRIES, Auteur ; N. SERIS, Auteur ; N. SHABALALA, Auteur ; L. FRANZ, Auteur . - p.1005-1017.
Langues : Anglais (eng)
in Autism > 22-8 (November 2018) . - p.1005-1017
Mots-clés : South Africa autism spectrum disorder caregivers contextual factors early intervention focus group low- and middle-income country qualitative methods Index. décimale : PER Périodiques Résumé : The majority of individuals with autism spectrum disorder live in low- and middle-income countries and receive little or no services from health or social care systems. The development and validation of autism spectrum disorder interventions has almost exclusively occurred in high-income countries, leaving many unanswered questions regarding what contextual factors would need to be considered to ensure the effectiveness of interventions in low- and middle-income countries. This study qualitatively explored contextual factors relevant to the adaptation of a caregiver-mediated early autism spectrum disorder intervention in a low-resource South African setting. We conducted four focus groups and four in-depth interviews with 28 caregivers of young children with autism spectrum disorder and used thematic analysis to identify key themes. Eight contextual factors including culture, language, location of treatment, cost of treatment, type of service provider, support, parenting practices, and stigma emerged as important. Caregivers reported a preference for an affordable, in-home, individualized early autism spectrum disorder intervention, where they have an active voice in shaping treatment goals. Distrust of community-based health workers and challenges associated with autism spectrum disorder-related stigma were identified. Recommendations that integrate caregiver preferences with the development of a low-cost and scalable caregiver-mediated early autism spectrum disorder intervention are included. En ligne : http://dx.doi.org/10.1177/1362361317716604 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 Understanding parents’ and professionals’ knowledge and awareness of autism in Nepal / Michelle HEYS in Autism, 21-4 (May 2017)
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