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Faire une suggestionFrustration in healthcare: Sex differences in parental perceptions of medical visits for autistic children / Tyler C. MCFAYDEN ; Jessica E. GOLDBLUM ; Stephanie BRISTOL ; Clare HARROP in Research in Autism, 124 (June 2025)
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Titre : Frustration in healthcare: Sex differences in parental perceptions of medical visits for autistic children Type de document : texte imprimé Auteurs : Tyler C. MCFAYDEN, Auteur ; Jessica E. GOLDBLUM, Auteur ; Stephanie BRISTOL, Auteur ; Clare HARROP, Auteur Article en page(s) : 202576 Langues : Anglais (eng) Mots-clés : Autism Females Frustration Sex differences Healthcare Access to care Index. décimale : PER Périodiques Résumé : Background Historical conceptualization of autism as male-dominant has contributed to sex disparities in accessing diagnosis and intervention services for autistic females (McDonnell et al., 2021). These disparities can have a profound impact on parental stress and child outcomes. However, little work has evaluated sex disparities in accessing healthcare. Accordingly, this study sought to evaluate sex differences in frustration accessing healthcare for parents of autistic youth. Method Utilizing the National Survey on Children s Health (NSCH) data spanning 2016-2022, this study analyzed a nationally representative sample (N = 7740, Mage=10.61, 21.4 % female) to determine sex differences in risk of frustration with healthcare services. Ten domains of frustration were evaluated using relative risk ratios comparing parents of autistic females to parents of autistic males. Risk ratios > 1.0 indicated an increase in risk among females, whereas a risk ratio < 1.0 indicated a decrease in risk for females. Results Compared to parents of autistic males, parents of autistic females were more likely to endorse frustration in 5 out of 10 domains, including feeling listened to by providers, providers spending enough time with them, feeling like a partner in their child?s health-decision making, feeling like the provider was sensitive to their cultural considerations, and having been provided with relevant information. Discussion Parents of autistic females were at an elevated risk of experiencing frustration compared to parents of autistic males. Elevated frustration experienced by parents of autistic females has implications for the continued access to healthcare for autistic females across their lifespan. En ligne : https://doi.org/10.1016/j.reia.2025.202576 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556
in Research in Autism > 124 (June 2025) . - 202576[article] Frustration in healthcare: Sex differences in parental perceptions of medical visits for autistic children [texte imprimé] / Tyler C. MCFAYDEN, Auteur ; Jessica E. GOLDBLUM, Auteur ; Stephanie BRISTOL, Auteur ; Clare HARROP, Auteur . - 202576.
Langues : Anglais (eng)
in Research in Autism > 124 (June 2025) . - 202576
Mots-clés : Autism Females Frustration Sex differences Healthcare Access to care Index. décimale : PER Périodiques Résumé : Background Historical conceptualization of autism as male-dominant has contributed to sex disparities in accessing diagnosis and intervention services for autistic females (McDonnell et al., 2021). These disparities can have a profound impact on parental stress and child outcomes. However, little work has evaluated sex disparities in accessing healthcare. Accordingly, this study sought to evaluate sex differences in frustration accessing healthcare for parents of autistic youth. Method Utilizing the National Survey on Children s Health (NSCH) data spanning 2016-2022, this study analyzed a nationally representative sample (N = 7740, Mage=10.61, 21.4 % female) to determine sex differences in risk of frustration with healthcare services. Ten domains of frustration were evaluated using relative risk ratios comparing parents of autistic females to parents of autistic males. Risk ratios > 1.0 indicated an increase in risk among females, whereas a risk ratio < 1.0 indicated a decrease in risk for females. Results Compared to parents of autistic males, parents of autistic females were more likely to endorse frustration in 5 out of 10 domains, including feeling listened to by providers, providers spending enough time with them, feeling like a partner in their child?s health-decision making, feeling like the provider was sensitive to their cultural considerations, and having been provided with relevant information. Discussion Parents of autistic females were at an elevated risk of experiencing frustration compared to parents of autistic males. Elevated frustration experienced by parents of autistic females has implications for the continued access to healthcare for autistic females across their lifespan. En ligne : https://doi.org/10.1016/j.reia.2025.202576 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 Behavioural and physiological response to frustration in autistic youth: associations with irritability / Virginia CARTER LENO in Journal of Neurodevelopmental Disorders, 13 (2021)
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Titre : Behavioural and physiological response to frustration in autistic youth: associations with irritability Type de document : texte imprimé Auteurs : Virginia CARTER LENO, Auteur ; Georgia FORTH, Auteur ; Susie CHANDLER, Auteur ; Philippa WHITE, Auteur ; Isabel YORKE, Auteur ; Tony CHARMAN, Auteur ; Andrew PICKLES, Auteur ; Emily SIMONOFF, Auteur Langues : Anglais (eng) Mots-clés : Adolescent Autistic Disorder Frustration Humans Irritable Mood Longitudinal Studies Autism spectrum disorders Heart rate Irritability Physiology Index. décimale : PER Périodiques Résumé : BACKGROUND: Irritability is a common and impairing occurrence in autistic youth, yet the underlying mechanisms are not well-known. In typically developing populations, differences in frustration response have been suggested as important driver of the behavioural symptoms of irritability. Research exploring the role of frustration response as a risk factor for irritability in autistic populations is limited and often uses parent report or observer ratings; objective measures of frustration response appropriate for use in autistic populations are required to advance the field. METHODS: In the current study, fifty-two autistic adolescents aged 13-17 years from a population-based longitudinal study completed an experimental task designed to induce frustration through exposure to periods of unexpected delay. Behavioural (number of button presses) and physiological (heart rate; HR) metrics were collected during delay periods. Irritability was measured using the parent-rated Affective Reactivity Index (ARI). Analyses used mixed-level models to test whether irritability was associated with different slopes of behavioural and physiological response to experimentally induced frustration during the task. Age and baseline HR (for the physiological data only) were included as covariates. RESULTS: Analyses showed a marginal association between irritability and the slope of behavioural response (incident rate ratio (IRR) =.98, p=.06), and a significant association with the slope of physiological response (b=-.10, p=.04); higher levels of irritability were associated with a dampened behavioural and physiological response, as indicated by flatter slopes of change over the course of the task. The pattern of results largely remained in sensitivity analyses, although the association with physiological response became non-significant when adjusting for IQ, autism symptom severity, and medication use (b=-.10, p=.10). CONCLUSIONS: Results suggest that the current experimental task may be a useful objective measure of frustration response for use with autistic populations, and that a non-adaptive response to frustration may be one biological mechanism underpinning irritability in autistic youth. This may represent an important target for future intervention studies. En ligne : https://dx.doi.org/10.1186/s11689-021-09374-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=574
in Journal of Neurodevelopmental Disorders > 13 (2021)[article] Behavioural and physiological response to frustration in autistic youth: associations with irritability [texte imprimé] / Virginia CARTER LENO, Auteur ; Georgia FORTH, Auteur ; Susie CHANDLER, Auteur ; Philippa WHITE, Auteur ; Isabel YORKE, Auteur ; Tony CHARMAN, Auteur ; Andrew PICKLES, Auteur ; Emily SIMONOFF, Auteur.
Langues : Anglais (eng)
in Journal of Neurodevelopmental Disorders > 13 (2021)
Mots-clés : Adolescent Autistic Disorder Frustration Humans Irritable Mood Longitudinal Studies Autism spectrum disorders Heart rate Irritability Physiology Index. décimale : PER Périodiques Résumé : BACKGROUND: Irritability is a common and impairing occurrence in autistic youth, yet the underlying mechanisms are not well-known. In typically developing populations, differences in frustration response have been suggested as important driver of the behavioural symptoms of irritability. Research exploring the role of frustration response as a risk factor for irritability in autistic populations is limited and often uses parent report or observer ratings; objective measures of frustration response appropriate for use in autistic populations are required to advance the field. METHODS: In the current study, fifty-two autistic adolescents aged 13-17 years from a population-based longitudinal study completed an experimental task designed to induce frustration through exposure to periods of unexpected delay. Behavioural (number of button presses) and physiological (heart rate; HR) metrics were collected during delay periods. Irritability was measured using the parent-rated Affective Reactivity Index (ARI). Analyses used mixed-level models to test whether irritability was associated with different slopes of behavioural and physiological response to experimentally induced frustration during the task. Age and baseline HR (for the physiological data only) were included as covariates. RESULTS: Analyses showed a marginal association between irritability and the slope of behavioural response (incident rate ratio (IRR) =.98, p=.06), and a significant association with the slope of physiological response (b=-.10, p=.04); higher levels of irritability were associated with a dampened behavioural and physiological response, as indicated by flatter slopes of change over the course of the task. The pattern of results largely remained in sensitivity analyses, although the association with physiological response became non-significant when adjusting for IQ, autism symptom severity, and medication use (b=-.10, p=.10). CONCLUSIONS: Results suggest that the current experimental task may be a useful objective measure of frustration response for use with autistic populations, and that a non-adaptive response to frustration may be one biological mechanism underpinning irritability in autistic youth. This may represent an important target for future intervention studies. En ligne : https://dx.doi.org/10.1186/s11689-021-09374-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=574
Titre : Mieux gérer sa colère et sa frustration : Programme Multi-Propulsions. Volet Enfants Type de document : texte imprimé Auteurs : Line MASSE, Auteur ; Claudia VERRET, Auteur ; Fabienne BOUDREAULT, Auteur ; Martine VERREAULT, Auteur ; Manon LEVESQUE, Collaborateur ; Catherine LANARIS, Collaborateur Editeur : Montréal (Québec) [Canada] : Chenelière Education Année de publication : 2012 Importance : 197 p. Présentation : ill Format : 21cm x 27,5cm x 1,6cm ISBN/ISSN/EAN : 978-2-7650-3931-0 Note générale : Bibliogr. Langues : Français (fre) Mots-clés : frustration Index. décimale : PAR-C PAR-C - Gestion de la Colère - Frustration Résumé : Quand la frustration ou la colère s’emparent d’un enfant présentant un trouble de l’attention ou un trouble du comportement, celui-ci est démuni et pose parfois des gestes malheureux qu’il regrette aussitôt. Que faire en pareille situation Comment réagir? Comment prévenir de tels débordements de colère? Le programme élaboré par Line Massé, Claudia Verret et Fabienne Boudreault apporte des réponses concrètes à ces questions. Avec les outils et les activités qu’elles proposent, l’intervenant qui travaille dans le milieu scolaire, communautaire ou dans le réseau de la santé peut aider l’enfant à déployer des stratégies qui lui permettront de faire face à sa colère et de l’exprimer de façon constructive.
En plus du guide destiné à l’animateur, l’ouvrage comprend 15 activités de 60 minutes. Une activité préliminaire permet également de présenter le programme à chaque enfant dans le cadre d’une rencontre individuelle. Pour compléter le tout, les auteures proposent une riche variété de documents reproductibles nécessaires à l’animation et à la mise en œuvre du programme. [Résumé d'Auteur/Editeur]Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=286 Mieux gérer sa colère et sa frustration : Programme Multi-Propulsions. Volet Enfants [texte imprimé] / Line MASSE, Auteur ; Claudia VERRET, Auteur ; Fabienne BOUDREAULT, Auteur ; Martine VERREAULT, Auteur ; Manon LEVESQUE, Collaborateur ; Catherine LANARIS, Collaborateur . - Montréal (Québec) [Canada] : Chenelière Education, 2012 . - 197 p. : ill ; 21cm x 27,5cm x 1,6cm.
ISBN : 978-2-7650-3931-0
Bibliogr.
Langues : Français (fre)
Mots-clés : frustration Index. décimale : PAR-C PAR-C - Gestion de la Colère - Frustration Résumé : Quand la frustration ou la colère s’emparent d’un enfant présentant un trouble de l’attention ou un trouble du comportement, celui-ci est démuni et pose parfois des gestes malheureux qu’il regrette aussitôt. Que faire en pareille situation Comment réagir? Comment prévenir de tels débordements de colère? Le programme élaboré par Line Massé, Claudia Verret et Fabienne Boudreault apporte des réponses concrètes à ces questions. Avec les outils et les activités qu’elles proposent, l’intervenant qui travaille dans le milieu scolaire, communautaire ou dans le réseau de la santé peut aider l’enfant à déployer des stratégies qui lui permettront de faire face à sa colère et de l’exprimer de façon constructive.
En plus du guide destiné à l’animateur, l’ouvrage comprend 15 activités de 60 minutes. Une activité préliminaire permet également de présenter le programme à chaque enfant dans le cadre d’une rencontre individuelle. Pour compléter le tout, les auteures proposent une riche variété de documents reproductibles nécessaires à l’animation et à la mise en œuvre du programme. [Résumé d'Auteur/Editeur]Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=286 Exemplaires(2)
Code-barres Cote Support Localisation Section Disponibilité DOC0003808 PAR-C MAS Livre Centre d'Information et de Documentation du CRA Rhône-Alpes PAR - Particularités et Fonctionnement Sorti jusqu'au 08/09/2025 DOC0006309 PAR-C MAS Livre Centre d'Information et de Documentation du CRA Rhône-Alpes PAR - Particularités et Fonctionnement Disponible Les abonnés qui ont emprunté ce document ont également emprunté :
Loto des métiers, instituteur et facteur AUTISME ET APPRENTISSAGES Aménager les espaces : gestes clés FAUCON MEJEAN, Claudie Autism and Reading Comprehension: Ready-to-Use Lesson Plans for Teachers PORTER, Joseph La pédagogie Montessori SKJOLD WENNERSTROM, Kristina 250 ateliers autonomes GOULAY, Lucie Au-delà des mots MEILLEUR, Isabelle
Titre : Mieux gérer sa colère et sa frustration : Programme Multi-Propulsions. Volet Enfants. Le cahier du participant Type de document : texte imprimé Auteurs : Line MASSE, Auteur ; Claudia VERRET, Auteur ; Fabienne BOUDREAULT, Auteur ; Martine VERREAULT, Auteur ; Manon LEVESQUE, Collaborateur ; Catherine LANARIS, Collaborateur Editeur : Montréal (Québec) [Canada] : Chenelière Education Année de publication : 2013 Importance : 58 p. Présentation : ill Format : 21,2 cm × 27,5 cm × 0,3 cm ISBN/ISSN/EAN : 978-2-7650-3975-4 Note générale : Bibliogr. Langues : Français (fre) Mots-clés : frustration Index. décimale : PAR-C PAR-C - Gestion de la Colère - Frustration Résumé : Afin de faciliter la reproduction des documents, pour les intervenants qui prévoient réaliser toutes les activités du programme Mieux gérer sa colère et sa frustration, les différents outils et fiches qui s'insèrent dans le journal de bord de l'enfant ont été regroupés dans le présent cahier. [Résumé d'Auteur/Editeur] Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=481 Mieux gérer sa colère et sa frustration : Programme Multi-Propulsions. Volet Enfants. Le cahier du participant [texte imprimé] / Line MASSE, Auteur ; Claudia VERRET, Auteur ; Fabienne BOUDREAULT, Auteur ; Martine VERREAULT, Auteur ; Manon LEVESQUE, Collaborateur ; Catherine LANARIS, Collaborateur . - Montréal (Québec) [Canada] : Chenelière Education, 2013 . - 58 p. : ill ; 21,2 cm × 27,5 cm × 0,3 cm.
ISBN : 978-2-7650-3975-4
Bibliogr.
Langues : Français (fre)
Mots-clés : frustration Index. décimale : PAR-C PAR-C - Gestion de la Colère - Frustration Résumé : Afin de faciliter la reproduction des documents, pour les intervenants qui prévoient réaliser toutes les activités du programme Mieux gérer sa colère et sa frustration, les différents outils et fiches qui s'insèrent dans le journal de bord de l'enfant ont été regroupés dans le présent cahier. [Résumé d'Auteur/Editeur] Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=481 Exemplaires(1)
Code-barres Cote Support Localisation Section Disponibilité DOC0006308 PAR-C MAS Livre Centre d'Information et de Documentation du CRA Rhône-Alpes PAR - Particularités et Fonctionnement Sorti jusqu'au 08/09/2025 Les abonnés qui ont emprunté ce document ont également emprunté :
Les émotions KHALIL, Michelle Lili a trop honte DE SAINT-MARS, Dominique NeuroTribes SILBERMAN, Steve Max ne veut pas se laver DE SAINT-MARS, Dominique Les thérapies comportementales et cognitives MONESTES, Jean-Louis Les Troubles du comportement O'REGAN, Fintan Network analysis of ecological momentary assessment identifies frustration as a central node in irritability / Wan-Ling TSENG in Journal of Child Psychology and Psychiatry, 64-8 (August 2023)
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Titre : Network analysis of ecological momentary assessment identifies frustration as a central node in irritability Type de document : texte imprimé Auteurs : Wan-Ling TSENG, Auteur ; Reut NAIM, Auteur ; Amanda CHUE, Auteur ; Shannon SHAUGHNESSY, Auteur ; Jennifer MEIGS, Auteur ; Daniel S. PINE, Auteur ; Ellen LEIBENLUFT, Auteur ; Katharina KIRCANSKI, Auteur ; Melissa A. BROTMAN, Auteur Article en page(s) : p.1212-1221 Langues : Anglais (eng) Mots-clés : Irritability frustration anger mood anxiety ecological momentary assessment network analysis Index. décimale : PER Périodiques Résumé : Background Irritability presents transdiagnostically, commonly occurring with anxiety and other mood symptoms. However, little is known about the temporal and dynamic interplay among irritability-related clinical phenomena. Using a novel network analytic approach with smartphone-based ecological momentary assessment (EMA), we examined how irritability and other anxiety and mood symptoms were connected. Methods Sample included 152 youth ages 8 18 years (M + SD = 12.28 + 2.53; 69.74% male; 65.79% White) across several diagnostic groups enriched for irritability including disruptive mood dysregulation disorder (n = 34), oppositional defiant disorder (n = 9), attention-deficit/hyperactivity disorder (n = 47), anxiety disorder (n = 29), and healthy comparisons (n = 33). Participants completed EMA on irritability-related constructs and other mood and anxiety symptoms three times a day for 7 days. EMA probed symptoms on two timescales: since the last prompt (between-prompt) versus at the time of the prompt (momentary). Irritability was also assessed using parent-, child- and clinician-reports (Affective Reactivity Index; ARI), following EMA. Multilevel vector autoregressive (mlVAR) models estimated a temporal, a contemporaneous within-subject and a between-subject network of symptoms, separately for between-prompt and momentary symptoms. Results For between-prompt symptoms, frustration emerged as the most central node in both within- and between-subject networks and predicted more mood changes at the next timepoint in the temporal network. For momentary symptoms, sadness and anger emerged as the most central node in the within- and between-subject network, respectively. While anger was positively related to sadness within individuals and measurement occasions, anger was more broadly positively related to sadness, mood lability, and worry between/across individuals. Finally, mean levels, not variability, of EMA-indexed irritability were strongly related to ARI scores. Conclusions This study advances current understanding of symptom-level and temporal dynamics of irritability. Results suggest frustration as a potential clinically relevant treatment target. Future experimental work and clinical trials that systematically manipulate irritability-related features (e.g. frustration, unfairness) will elucidate the causal relations among clinical variables. En ligne : https://doi.org/10.1111/jcpp.13794 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=508
in Journal of Child Psychology and Psychiatry > 64-8 (August 2023) . - p.1212-1221[article] Network analysis of ecological momentary assessment identifies frustration as a central node in irritability [texte imprimé] / Wan-Ling TSENG, Auteur ; Reut NAIM, Auteur ; Amanda CHUE, Auteur ; Shannon SHAUGHNESSY, Auteur ; Jennifer MEIGS, Auteur ; Daniel S. PINE, Auteur ; Ellen LEIBENLUFT, Auteur ; Katharina KIRCANSKI, Auteur ; Melissa A. BROTMAN, Auteur . - p.1212-1221.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 64-8 (August 2023) . - p.1212-1221
Mots-clés : Irritability frustration anger mood anxiety ecological momentary assessment network analysis Index. décimale : PER Périodiques Résumé : Background Irritability presents transdiagnostically, commonly occurring with anxiety and other mood symptoms. However, little is known about the temporal and dynamic interplay among irritability-related clinical phenomena. Using a novel network analytic approach with smartphone-based ecological momentary assessment (EMA), we examined how irritability and other anxiety and mood symptoms were connected. Methods Sample included 152 youth ages 8 18 years (M + SD = 12.28 + 2.53; 69.74% male; 65.79% White) across several diagnostic groups enriched for irritability including disruptive mood dysregulation disorder (n = 34), oppositional defiant disorder (n = 9), attention-deficit/hyperactivity disorder (n = 47), anxiety disorder (n = 29), and healthy comparisons (n = 33). Participants completed EMA on irritability-related constructs and other mood and anxiety symptoms three times a day for 7 days. EMA probed symptoms on two timescales: since the last prompt (between-prompt) versus at the time of the prompt (momentary). Irritability was also assessed using parent-, child- and clinician-reports (Affective Reactivity Index; ARI), following EMA. Multilevel vector autoregressive (mlVAR) models estimated a temporal, a contemporaneous within-subject and a between-subject network of symptoms, separately for between-prompt and momentary symptoms. Results For between-prompt symptoms, frustration emerged as the most central node in both within- and between-subject networks and predicted more mood changes at the next timepoint in the temporal network. For momentary symptoms, sadness and anger emerged as the most central node in the within- and between-subject network, respectively. While anger was positively related to sadness within individuals and measurement occasions, anger was more broadly positively related to sadness, mood lability, and worry between/across individuals. Finally, mean levels, not variability, of EMA-indexed irritability were strongly related to ARI scores. Conclusions This study advances current understanding of symptom-level and temporal dynamics of irritability. Results suggest frustration as a potential clinically relevant treatment target. Future experimental work and clinical trials that systematically manipulate irritability-related features (e.g. frustration, unfairness) will elucidate the causal relations among clinical variables. En ligne : https://doi.org/10.1111/jcpp.13794 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=508 PermalinkPermalinkAnnual Research Review: What processes are dysregulated among emotionally dysregulated youth? - a systematic review / Joseph C. BLADER in Journal of Child Psychology and Psychiatry, 66-4 (April 2025)
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PermalinkAutism and Reactions to Provocation in a Social and Non-social Context / Lisa WAGELS in Journal of Autism and Developmental Disorders, 50-2 (February 2020)
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PermalinkEmotional decision-making in autism spectrum disorder: the roles of interoception and alexithymia / Punit SHAH in Molecular Autism, 7 (2016)
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