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Mortality and cause of death of Australians on the autism spectrum / Y. I. J. HWANG in Autism Research, 12-5 (May 2019)
[article]
Titre : Mortality and cause of death of Australians on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Y. I. J. HWANG, Auteur ; P. SRASUEBKUL, Auteur ; K. R. FOLEY, Auteur ; S. ARNOLD, Auteur ; J. N. TROLLOR, Auteur Article en page(s) : p.806-815 Langues : Anglais (eng) Mots-clés : autism cause of death intellectual disability linked data mortality Index. décimale : PER Périodiques Résumé : Focused investigations regarding mortality rates, risk factors, and cause of death in autistic populations remain scarce. The present study used large linked datasets spanning 2001-2015 to report the rates and risk factors for mortality and cause of death in individuals on the autism spectrum (n = 35,929 age range 5-64) with and without concurrent intellectual disability (ID) in New South Wales, Australia. Mortality rates for those on the autism spectrum were 2.06 times that of the general population. Concurrent ID, epilepsy, mental health conditions, and chronic physical health conditions were associated with a higher risk of death for those on the spectrum, whereas demographic variables such as gender and socioeconomic status were not. A differing profile of top causes of death was found for autistic individuals relative to the general population, with "nervous system and sense disorders" and "injury and poisoning" being the top-ranked causes for those on the spectrum. The findings alert the need for health promotion and management of concurrent physical and mental health conditions for those on the autism spectrum. There is also a need for better identification, diagnosis, and documentation of older adults on the autism spectrum. Autism Research 2019, 12: 806-815. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Rates of death are higher for autistic individuals compared to the general population. There is higher risk of death for autistic individuals who have additional mental and physical health conditions. The leading causes of death for autistic individuals with and without ID are "nervous system and sense disorders", which includes epilepsy and "injury and poisoning", respectively. To minimize risk of death, it is important to manage the mental and physical health individuals on the autism spectrum and to better understand the circumstances surrounding preventable deaths for this population. En ligne : http://dx.doi.org/10.1002/aur.2086 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=397
in Autism Research > 12-5 (May 2019) . - p.806-815[article] Mortality and cause of death of Australians on the autism spectrum [Texte imprimé et/ou numérique] / Y. I. J. HWANG, Auteur ; P. SRASUEBKUL, Auteur ; K. R. FOLEY, Auteur ; S. ARNOLD, Auteur ; J. N. TROLLOR, Auteur . - p.806-815.
Langues : Anglais (eng)
in Autism Research > 12-5 (May 2019) . - p.806-815
Mots-clés : autism cause of death intellectual disability linked data mortality Index. décimale : PER Périodiques Résumé : Focused investigations regarding mortality rates, risk factors, and cause of death in autistic populations remain scarce. The present study used large linked datasets spanning 2001-2015 to report the rates and risk factors for mortality and cause of death in individuals on the autism spectrum (n = 35,929 age range 5-64) with and without concurrent intellectual disability (ID) in New South Wales, Australia. Mortality rates for those on the autism spectrum were 2.06 times that of the general population. Concurrent ID, epilepsy, mental health conditions, and chronic physical health conditions were associated with a higher risk of death for those on the spectrum, whereas demographic variables such as gender and socioeconomic status were not. A differing profile of top causes of death was found for autistic individuals relative to the general population, with "nervous system and sense disorders" and "injury and poisoning" being the top-ranked causes for those on the spectrum. The findings alert the need for health promotion and management of concurrent physical and mental health conditions for those on the autism spectrum. There is also a need for better identification, diagnosis, and documentation of older adults on the autism spectrum. Autism Research 2019, 12: 806-815. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Rates of death are higher for autistic individuals compared to the general population. There is higher risk of death for autistic individuals who have additional mental and physical health conditions. The leading causes of death for autistic individuals with and without ID are "nervous system and sense disorders", which includes epilepsy and "injury and poisoning", respectively. To minimize risk of death, it is important to manage the mental and physical health individuals on the autism spectrum and to better understand the circumstances surrounding preventable deaths for this population. En ligne : http://dx.doi.org/10.1002/aur.2086 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=397 Mortality in 787,666 school pupils with and without autism: A cohort study / Gillian S. SMITH in Autism, 25-1 (January 2021)
[article]
Titre : Mortality in 787,666 school pupils with and without autism: A cohort study Type de document : Texte imprimé et/ou numérique Auteurs : Gillian S. SMITH, Auteur ; Michael FLEMING, Auteur ; Deborah KINNEAR, Auteur ; Angela HENDERSON, Auteur ; Jill P PELL, Auteur ; Craig MELVILLE, Auteur ; Sally-Ann COOPER, Auteur Article en page(s) : p.300-304 Langues : Anglais (eng) Mots-clés : adolescents autism spectrum disorders death mortality prevalence risk factor epidemiology school-age children Index. décimale : PER Périodiques Résumé : There are few studies on the deaths of children and young people with autism; some studies on children and adults combined suggest that those with autism may have higher death rates than other people. More children are diagnosed with autism than in the past, suggesting that there are now more children with milder autism who have the diagnosis than in the past, so studies in the past might not apply to the current generation of children and young people diagnosed with autism. We examined the rates of death in children and young people in Scotland using recorded information in Scotland's annual pupil census, linked to the National Records of Scotland deaths register, between 2008 and 2015. In total, 9754 (1.2%) out of 787,666 pupils had autism. Six pupils with autism died in the study period, compared with 458 other pupils. This was equivalent to 16 per 100,000 for pupils with autism and 13 per 100,000 pupils without autism; hence, the rate of death was very similar. In the pupils with autism, the most common causes of death were diseases of the nervous system, whereas they were from external causes in the comparison pupils. The autism group had some deaths due to epilepsy which might have been prevented by good quality care. We cautiously conclude that the death rate in the current generation of children and young adults with autism is no higher than for other children, but that even in this high-income country, some deaths could be prevented by high quality care. En ligne : http://dx.doi.org/10.1177/1362361320944037 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=437
in Autism > 25-1 (January 2021) . - p.300-304[article] Mortality in 787,666 school pupils with and without autism: A cohort study [Texte imprimé et/ou numérique] / Gillian S. SMITH, Auteur ; Michael FLEMING, Auteur ; Deborah KINNEAR, Auteur ; Angela HENDERSON, Auteur ; Jill P PELL, Auteur ; Craig MELVILLE, Auteur ; Sally-Ann COOPER, Auteur . - p.300-304.
Langues : Anglais (eng)
in Autism > 25-1 (January 2021) . - p.300-304
Mots-clés : adolescents autism spectrum disorders death mortality prevalence risk factor epidemiology school-age children Index. décimale : PER Périodiques Résumé : There are few studies on the deaths of children and young people with autism; some studies on children and adults combined suggest that those with autism may have higher death rates than other people. More children are diagnosed with autism than in the past, suggesting that there are now more children with milder autism who have the diagnosis than in the past, so studies in the past might not apply to the current generation of children and young people diagnosed with autism. We examined the rates of death in children and young people in Scotland using recorded information in Scotland's annual pupil census, linked to the National Records of Scotland deaths register, between 2008 and 2015. In total, 9754 (1.2%) out of 787,666 pupils had autism. Six pupils with autism died in the study period, compared with 458 other pupils. This was equivalent to 16 per 100,000 for pupils with autism and 13 per 100,000 pupils without autism; hence, the rate of death was very similar. In the pupils with autism, the most common causes of death were diseases of the nervous system, whereas they were from external causes in the comparison pupils. The autism group had some deaths due to epilepsy which might have been prevented by good quality care. We cautiously conclude that the death rate in the current generation of children and young adults with autism is no higher than for other children, but that even in this high-income country, some deaths could be prevented by high quality care. En ligne : http://dx.doi.org/10.1177/1362361320944037 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=437 Mortality in individuals with autism spectrum disorder: Predictors over a 20-year period / Leann S. DAWALT in Autism, 23-7 (October 2019)
[article]
Titre : Mortality in individuals with autism spectrum disorder: Predictors over a 20-year period Type de document : Texte imprimé et/ou numérique Auteurs : Leann S. DAWALT, Auteur ; J. HONG, Auteur ; J. S. GREENBERG, Auteur ; M. R. MAILICK, Auteur Article en page(s) : p.1732-1739 Langues : Anglais (eng) Mots-clés : adulthood autism spectrum disorders health mortality Index. décimale : PER Périodiques Résumé : Research has shown that individuals with autism spectrum disorder have higher rates of health problems throughout childhood, adolescence, and adulthood, and that this may result in elevated risk of early mortality. This study reported the rate, timing, and causes of death in a large community-based cohort of adolescents and adults with autism spectrum disorder (n = 406) over a 20-year period (1998-2018) and identified predictors of mortality. Over this period, 6.4% of individuals died at an average age of 39 years. Causes of death included chronic conditions (such as cancer and heart disease), accidents (such as choking on food and accidental poisoning), and health complications due to medication side effects. Even after controlling for age and health status, significant predictors of mortality were early childhood levels of impairments in social reciprocity and high levels of functional impairments at the start of the study period. The results suggest the importance of social engagement and functional self-sufficiency across the life course, as well as adequate access to health care for individuals with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361319827412 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=406
in Autism > 23-7 (October 2019) . - p.1732-1739[article] Mortality in individuals with autism spectrum disorder: Predictors over a 20-year period [Texte imprimé et/ou numérique] / Leann S. DAWALT, Auteur ; J. HONG, Auteur ; J. S. GREENBERG, Auteur ; M. R. MAILICK, Auteur . - p.1732-1739.
Langues : Anglais (eng)
in Autism > 23-7 (October 2019) . - p.1732-1739
Mots-clés : adulthood autism spectrum disorders health mortality Index. décimale : PER Périodiques Résumé : Research has shown that individuals with autism spectrum disorder have higher rates of health problems throughout childhood, adolescence, and adulthood, and that this may result in elevated risk of early mortality. This study reported the rate, timing, and causes of death in a large community-based cohort of adolescents and adults with autism spectrum disorder (n = 406) over a 20-year period (1998-2018) and identified predictors of mortality. Over this period, 6.4% of individuals died at an average age of 39 years. Causes of death included chronic conditions (such as cancer and heart disease), accidents (such as choking on food and accidental poisoning), and health complications due to medication side effects. Even after controlling for age and health status, significant predictors of mortality were early childhood levels of impairments in social reciprocity and high levels of functional impairments at the start of the study period. The results suggest the importance of social engagement and functional self-sufficiency across the life course, as well as adequate access to health care for individuals with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361319827412 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=406 Mortality rate and age of death among Medicare-enrolled autistic older adults / Morgan KRANTZ in Research in Autism Spectrum Disorders, 100 (February 2023)
[article]
Titre : Mortality rate and age of death among Medicare-enrolled autistic older adults Type de document : Texte imprimé et/ou numérique Auteurs : Morgan KRANTZ, Auteur ; Djhenne DALMACY, Auteur ; Lauren BISHOP, Auteur ; J. Madison HYER, Auteur ; Brittany N. HAND, Auteur Article en page(s) : 102077 Langues : Anglais (eng) Mots-clés : Autism Older adulthood Survival Mortality Index. décimale : PER Périodiques Résumé : Background An emerging body of evidence suggests that autistic people are at greater risk for mortality than non-autistic people. Yet, relatively little is known about mortality rates among autistic people during older adulthood (i.e., age 65 or older). Methods We examined 5-year mortality among a national US sample of Medicare-enrolled autistic (n = 3308) and non-autistic (n = 33,080) adults aged 65 or older. Results Autistic older adults had 2.87 times greater rate of mortality (95 % CI = 2.61 “3.07) than non-autistic older adults. Among decedents (39.6 % of autistic and 15.1 % of non-autistic older adults), the median age of death was 72 years (IQR = 69 “78) for autistic and 75 years (IQR=70 “83) for non-autistic older adults. Among autistic older adults, those with intellectual disability had 1.57 times greater rate of mortality (95 % CI = 1.41 “1.76) than those without, and males had 1.27 times greater rate of mortality (95 % CI = 1.12 “1.43) than females. Conclusions Many trends regarding mortality observed in younger samples of autistic people were also observed in our study. However, we found only a three-year difference in median age at death between autistic and non-autistic decedents, which is a much smaller disparity than reported in some other studies. This potentially suggests that when autistic people live to the age of 65, they may live to a more similar age as non-autistic peers. En ligne : https://doi.org/10.1016/j.rasd.2022.102077 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491
in Research in Autism Spectrum Disorders > 100 (February 2023) . - 102077[article] Mortality rate and age of death among Medicare-enrolled autistic older adults [Texte imprimé et/ou numérique] / Morgan KRANTZ, Auteur ; Djhenne DALMACY, Auteur ; Lauren BISHOP, Auteur ; J. Madison HYER, Auteur ; Brittany N. HAND, Auteur . - 102077.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 100 (February 2023) . - 102077
Mots-clés : Autism Older adulthood Survival Mortality Index. décimale : PER Périodiques Résumé : Background An emerging body of evidence suggests that autistic people are at greater risk for mortality than non-autistic people. Yet, relatively little is known about mortality rates among autistic people during older adulthood (i.e., age 65 or older). Methods We examined 5-year mortality among a national US sample of Medicare-enrolled autistic (n = 3308) and non-autistic (n = 33,080) adults aged 65 or older. Results Autistic older adults had 2.87 times greater rate of mortality (95 % CI = 2.61 “3.07) than non-autistic older adults. Among decedents (39.6 % of autistic and 15.1 % of non-autistic older adults), the median age of death was 72 years (IQR = 69 “78) for autistic and 75 years (IQR=70 “83) for non-autistic older adults. Among autistic older adults, those with intellectual disability had 1.57 times greater rate of mortality (95 % CI = 1.41 “1.76) than those without, and males had 1.27 times greater rate of mortality (95 % CI = 1.12 “1.43) than females. Conclusions Many trends regarding mortality observed in younger samples of autistic people were also observed in our study. However, we found only a three-year difference in median age at death between autistic and non-autistic decedents, which is a much smaller disparity than reported in some other studies. This potentially suggests that when autistic people live to the age of 65, they may live to a more similar age as non-autistic peers. En ligne : https://doi.org/10.1016/j.rasd.2022.102077 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491 Risk for Premature Mortality and Intentional Self-harm in Autism Spectrum Disorders / E. JOKIRANTA-OLKONIEMI in Journal of Autism and Developmental Disorders, 51-9 (September 2021)
[article]
Titre : Risk for Premature Mortality and Intentional Self-harm in Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : E. JOKIRANTA-OLKONIEMI, Auteur ; D. GYLLENBERG, Auteur ; D. SUCKSDORFF, Auteur ; A. SUOMINEN, Auteur ; K. KRONSTRÖM, Auteur ; R. CHUDAL, Auteur ; A. SOURANDER, Auteur Article en page(s) : p.3098-3108 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/epidemiology Child Humans Mortality, Premature Risk Factors Self-Injurious Behavior/epidemiology Suicide Autism Mortality Natural cause Psychiatric disorders Index. décimale : PER Périodiques Résumé : To examine the risk for premature mortality and intentional self-harm in autism spectrum disorders (ASD). Based on a national birth cohort. Children born in 1987-2005, diagnosed with ASD by 2007 (n?=?4695) were matched with four non-ASD subjects (n?=?18,450) and followed until 2015 for mortality and intentional self-harm. The risk among ASD subjects was elevated only for natural cause of death. The risk for intentional self-harm was increased in the unadjusted analyses, but decreased to non-significant after adjusting for comorbid psychiatric disorders. ASD subjects are at increased risk for premature mortality due to natural causes of death. While ASD subjects die of suicide and present with more self-harm, the association is explained by comorbid psychiatric disorders. En ligne : http://dx.doi.org/10.1007/s10803-020-04768-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3098-3108[article] Risk for Premature Mortality and Intentional Self-harm in Autism Spectrum Disorders [Texte imprimé et/ou numérique] / E. JOKIRANTA-OLKONIEMI, Auteur ; D. GYLLENBERG, Auteur ; D. SUCKSDORFF, Auteur ; A. SUOMINEN, Auteur ; K. KRONSTRÖM, Auteur ; R. CHUDAL, Auteur ; A. SOURANDER, Auteur . - p.3098-3108.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3098-3108
Mots-clés : Adult Autism Spectrum Disorder/epidemiology Child Humans Mortality, Premature Risk Factors Self-Injurious Behavior/epidemiology Suicide Autism Mortality Natural cause Psychiatric disorders Index. décimale : PER Périodiques Résumé : To examine the risk for premature mortality and intentional self-harm in autism spectrum disorders (ASD). Based on a national birth cohort. Children born in 1987-2005, diagnosed with ASD by 2007 (n?=?4695) were matched with four non-ASD subjects (n?=?18,450) and followed until 2015 for mortality and intentional self-harm. The risk among ASD subjects was elevated only for natural cause of death. The risk for intentional self-harm was increased in the unadjusted analyses, but decreased to non-significant after adjusting for comorbid psychiatric disorders. ASD subjects are at increased risk for premature mortality due to natural causes of death. While ASD subjects die of suicide and present with more self-harm, the association is explained by comorbid psychiatric disorders. En ligne : http://dx.doi.org/10.1007/s10803-020-04768-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 All-cause mortality and suicide mortality in autistic individuals: An entire population longitudinal study in Taiwan / Shih-Jen TSAI in Autism, 27-8 (November 2023)
PermalinkExcess Mortality and Causes of Death in Autism Spectrum Disorders: A Follow up of the 1980s Utah/UCLA Autism Epidemiologic Study / Deborah A. BILDER in Journal of Autism and Developmental Disorders, 43-5 (May 2013)
PermalinkElopement Patterns and Caregiver Strategies / Allan M. ANDERSEN in Journal of Autism and Developmental Disorders, 50-6 (June 2020)
PermalinkUsing machine learning to identify patterns of lifetime health problems in decedents with autism spectrum disorder / Lauren BISHOP-FITZPATRICK in Autism Research, 11-8 (August 2018)
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