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Adapting and pre-testing the World Health Organization's Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia / B. TEKOLA in Autism, 24-1 (January 2020)
[article]
Titre : Adapting and pre-testing the World Health Organization's Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia Type de document : Texte imprimé et/ou numérique Auteurs : B. TEKOLA, Auteur ; F. GIRMA, Auteur ; M. KINFE, Auteur ; R. ABDURAHMAN, Auteur ; M. TESFAYE, Auteur ; Z. YENUS, Auteur ; E. SALOMONE, Auteur ; L. PACIONE, Auteur ; A. FEKADU, Auteur ; C. SERVILI, Auteur ; C. HANLON, Auteur ; R. A. HOEKSTRA, Auteur Article en page(s) : p.51-63 Langues : Anglais (eng) Mots-clés : Ethiopia caregivers developmental delay developmental disorders parent-mediated parenting skills programme qualitative Index. décimale : PER Périodiques Résumé : The World Health Organization's Caregiver Skills Training programme for children with developmental disorders or delays teaches caregivers strategies to help them support their child's development. Ethiopia has a severe lack of services for children with developmental disorders or delays. This study explored the perspectives of Ethiopian caregivers, professionals and other stakeholders to inform adaptation and implementation of the World Health Organization's Caregiver Skills Training in Ethiopia. Data collection included (1) a consultation and review, comprising stakeholder meetings, review of draft Caregiver Skills Training materials and feedback from Ethiopian Master Trainees and (2) a pre-pilot including quantitative feasibility and acceptability measures and qualitative interviews with caregivers (n = 9) and programme facilitators/observers (n = 5). The consultation participants indicated that the Caregiver Skills Training addresses an urgent need and is relevant to the Ethiopian context. Several adaptations were proposed, including more emphasis on psycho-education, stigma, parental feelings of guilt and expectations of a cure. The adapted Caregiver Skills Training was pre-piloted with excellent participation (100%) and retention (90%) rates. Four themes were developed from the qualitative data: (1) Programme acceptability and relevance, (2) Perceived programme benefits, (3) Challenges and barriers and (4) Suggestions for improvement. The World Health Organization's Caregiver Skills Training addresses a local need and, with careful adaptations, is feasible and acceptable to be implemented in Ethiopia. These findings may have relevance to low-resource settings worldwide. En ligne : http://dx.doi.org/10.1177/1362361319848532 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414
in Autism > 24-1 (January 2020) . - p.51-63[article] Adapting and pre-testing the World Health Organization's Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia [Texte imprimé et/ou numérique] / B. TEKOLA, Auteur ; F. GIRMA, Auteur ; M. KINFE, Auteur ; R. ABDURAHMAN, Auteur ; M. TESFAYE, Auteur ; Z. YENUS, Auteur ; E. SALOMONE, Auteur ; L. PACIONE, Auteur ; A. FEKADU, Auteur ; C. SERVILI, Auteur ; C. HANLON, Auteur ; R. A. HOEKSTRA, Auteur . - p.51-63.
Langues : Anglais (eng)
in Autism > 24-1 (January 2020) . - p.51-63
Mots-clés : Ethiopia caregivers developmental delay developmental disorders parent-mediated parenting skills programme qualitative Index. décimale : PER Périodiques Résumé : The World Health Organization's Caregiver Skills Training programme for children with developmental disorders or delays teaches caregivers strategies to help them support their child's development. Ethiopia has a severe lack of services for children with developmental disorders or delays. This study explored the perspectives of Ethiopian caregivers, professionals and other stakeholders to inform adaptation and implementation of the World Health Organization's Caregiver Skills Training in Ethiopia. Data collection included (1) a consultation and review, comprising stakeholder meetings, review of draft Caregiver Skills Training materials and feedback from Ethiopian Master Trainees and (2) a pre-pilot including quantitative feasibility and acceptability measures and qualitative interviews with caregivers (n = 9) and programme facilitators/observers (n = 5). The consultation participants indicated that the Caregiver Skills Training addresses an urgent need and is relevant to the Ethiopian context. Several adaptations were proposed, including more emphasis on psycho-education, stigma, parental feelings of guilt and expectations of a cure. The adapted Caregiver Skills Training was pre-piloted with excellent participation (100%) and retention (90%) rates. Four themes were developed from the qualitative data: (1) Programme acceptability and relevance, (2) Perceived programme benefits, (3) Challenges and barriers and (4) Suggestions for improvement. The World Health Organization's Caregiver Skills Training addresses a local need and, with careful adaptations, is feasible and acceptable to be implemented in Ethiopia. These findings may have relevance to low-resource settings worldwide. En ligne : http://dx.doi.org/10.1177/1362361319848532 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 Acceptability and feasibility of the World Health Organization's Caregiver Skills Training implemented in the Italian National Health System / Erica SALOMONE in Autism, 26-4 (May 2022)
[article]
Titre : Acceptability and feasibility of the World Health Organization's Caregiver Skills Training implemented in the Italian National Health System Type de document : Texte imprimé et/ou numérique Auteurs : Erica SALOMONE, Auteur ; Camilla FERRANTE, Auteur ; Arianna SALANDIN, Auteur ; Federica FERRARA, Auteur ; Elisabetta TORCHIO, Auteur ; Giulia FOLETTI, Auteur ; Sabrina GHERSI, Auteur ; CST Italy TEAM, Auteur ; WHO CST TEAM, Auteur ; Laura PACIONE, Auteur ; Chiara SERVILI, Auteur Article en page(s) : p.859-874 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Caregivers/education Child Family Feasibility Studies Humans World Health Organization World Health Organization Caregiver Skills Training autism spectrum disorders family functioning and support interventions ? psychosocial/behavioural neurodevelopmental disorders parent-mediated parenting skills programme pre-school children qualitative research Index. décimale : PER Périodiques Résumé : Across the globe, children with neurodevelopmental disorders, including autism, have limited access to care through public services. To improve access to care the World Health Organization developed a novel, open-access programme: the Caregiver Skills Training programme. The Caregiver Skills Training consists of nine group sessions and three individual home visits, focused on training the caregiver on how to use everyday play and home routines as opportunities for learning and development. We implemented Caregiver Skills Training in public child neuropsychiatry services in Italy and examined with questionnaires and focus groups how feasible it was to deliver the programme in public health settings and how acceptable and relevant it was for caregiver users. We found that the Caregiver Skills Training was largely considered acceptable and relevant for families and feasible to deliver. We discuss potential solutions to address the specific implementation challenges that were identified, such as strategies to improve training of interventionists and overcome barriers to caregiver participation. En ligne : https://dx.doi.org/10.1177/13623613211035228 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473
in Autism > 26-4 (May 2022) . - p.859-874[article] Acceptability and feasibility of the World Health Organization's Caregiver Skills Training implemented in the Italian National Health System [Texte imprimé et/ou numérique] / Erica SALOMONE, Auteur ; Camilla FERRANTE, Auteur ; Arianna SALANDIN, Auteur ; Federica FERRARA, Auteur ; Elisabetta TORCHIO, Auteur ; Giulia FOLETTI, Auteur ; Sabrina GHERSI, Auteur ; CST Italy TEAM, Auteur ; WHO CST TEAM, Auteur ; Laura PACIONE, Auteur ; Chiara SERVILI, Auteur . - p.859-874.
Langues : Anglais (eng)
in Autism > 26-4 (May 2022) . - p.859-874
Mots-clés : Autism Spectrum Disorder Caregivers/education Child Family Feasibility Studies Humans World Health Organization World Health Organization Caregiver Skills Training autism spectrum disorders family functioning and support interventions ? psychosocial/behavioural neurodevelopmental disorders parent-mediated parenting skills programme pre-school children qualitative research Index. décimale : PER Périodiques Résumé : Across the globe, children with neurodevelopmental disorders, including autism, have limited access to care through public services. To improve access to care the World Health Organization developed a novel, open-access programme: the Caregiver Skills Training programme. The Caregiver Skills Training consists of nine group sessions and three individual home visits, focused on training the caregiver on how to use everyday play and home routines as opportunities for learning and development. We implemented Caregiver Skills Training in public child neuropsychiatry services in Italy and examined with questionnaires and focus groups how feasible it was to deliver the programme in public health settings and how acceptable and relevant it was for caregiver users. We found that the Caregiver Skills Training was largely considered acceptable and relevant for families and feasible to deliver. We discuss potential solutions to address the specific implementation challenges that were identified, such as strategies to improve training of interventionists and overcome barriers to caregiver participation. En ligne : https://dx.doi.org/10.1177/13623613211035228 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473