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Policy and Practice Barriers to Early Identification of Autism Spectrum Disorder in the California Early Intervention System / M. E. WILLIAMS in Journal of Autism and Developmental Disorders, 51-10 (October 2021)
[article]
Titre : Policy and Practice Barriers to Early Identification of Autism Spectrum Disorder in the California Early Intervention System Type de document : Texte imprimé et/ou numérique Auteurs : M. E. WILLIAMS, Auteur ; E. K. HARLEY, Auteur ; I. QUEBLES, Auteur ; M. K. POULSEN, Auteur Article en page(s) : p.3423-3431 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis California Child Child, Preschool Early Intervention, Educational Humans Mass Screening Policy Autism spectrum disorder Early identification Early intervention Index. décimale : PER Périodiques Résumé : Autism spectrum disorder can be reliably diagnosed prior to age 2, and early, intensive intervention has been found to improve long-term outcomes. Nonetheless, most children with ASD do not receive a diagnosis until after age 3, with even later diagnoses for children from non-white ethnic groups. This study conducted telephone surveys with California Part C early intervention managers regarding policies and practices for early identification and intervention for ASD. Findings indicated that 85% of agencies conduct screening for ASD, but only 39% conduct ASD diagnostic assessments prior to age 3. Recommendations for policy changes to align Part C practices with best practice guidelines are provided. En ligne : http://dx.doi.org/10.1007/s10803-020-04807-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3423-3431[article] Policy and Practice Barriers to Early Identification of Autism Spectrum Disorder in the California Early Intervention System [Texte imprimé et/ou numérique] / M. E. WILLIAMS, Auteur ; E. K. HARLEY, Auteur ; I. QUEBLES, Auteur ; M. K. POULSEN, Auteur . - p.3423-3431.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3423-3431
Mots-clés : Autism Spectrum Disorder/diagnosis California Child Child, Preschool Early Intervention, Educational Humans Mass Screening Policy Autism spectrum disorder Early identification Early intervention Index. décimale : PER Périodiques Résumé : Autism spectrum disorder can be reliably diagnosed prior to age 2, and early, intensive intervention has been found to improve long-term outcomes. Nonetheless, most children with ASD do not receive a diagnosis until after age 3, with even later diagnoses for children from non-white ethnic groups. This study conducted telephone surveys with California Part C early intervention managers regarding policies and practices for early identification and intervention for ASD. Findings indicated that 85% of agencies conduct screening for ASD, but only 39% conduct ASD diagnostic assessments prior to age 3. Recommendations for policy changes to align Part C practices with best practice guidelines are provided. En ligne : http://dx.doi.org/10.1007/s10803-020-04807-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 Annual Research Review: Resilience and child well-being – public policy implications / Alastair AGER in Journal of Child Psychology and Psychiatry, 54-4 (April 2013)
[article]
Titre : Annual Research Review: Resilience and child well-being – public policy implications Type de document : Texte imprimé et/ou numérique Auteurs : Alastair AGER, Auteur Article en page(s) : p.488-500 Mots-clés : Resilience recommendations policy (complex adaptive) systems knowledge transfer Index. décimale : PER Périodiques Résumé : Background: There has been an 8-fold increase in use of the term resilience within scientific and scholar literature over the last twenty years. The arena of public policy has also seen increasing use made of the concept, both with respect to child well-being and development and wider issues. Method: A focal sample of literature comprising 108 papers addressing public policy implications of work on child resilience was identified by a structured bibliographic search. Results: This literature suggests that current work: is characterized by a breadth of sectoral engagement across the fields of education, social work, and health; demonstrates diversity with regard to the systemic levels – individual (biological and psychological), communal (including systems of faith and cultural identity), institutional and societal – with which it engages; but is based more upon conceptual rather than empirical analysis. Major themes of policy recommendation target strengthened family dynamics, increased capacity for counseling and mental health services, supportive school environments, development of community programs, promotion of socioeconomic improvement and adoption of a more comprehensive conception of resilience. Evaluations of resiliency-informed policy initiatives are limited in number, with greatest rigor in design associated with more discrete programmatic interventions. Conclusion: A number of strategies to strengthen research-policy linkages are identified. These include greater commitment to operationalize indicators of resilience at all levels of analysis; more coherent engagement with the policy making process through explicit knowledge translation initiatives; and developing complex adaptive systems models amenable to exploring policy scenarios. En ligne : http://dx.doi.org/10.1111/jcpp.12030 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=194
in Journal of Child Psychology and Psychiatry > 54-4 (April 2013) . - p.488-500[article] Annual Research Review: Resilience and child well-being – public policy implications [Texte imprimé et/ou numérique] / Alastair AGER, Auteur . - p.488-500.
in Journal of Child Psychology and Psychiatry > 54-4 (April 2013) . - p.488-500
Mots-clés : Resilience recommendations policy (complex adaptive) systems knowledge transfer Index. décimale : PER Périodiques Résumé : Background: There has been an 8-fold increase in use of the term resilience within scientific and scholar literature over the last twenty years. The arena of public policy has also seen increasing use made of the concept, both with respect to child well-being and development and wider issues. Method: A focal sample of literature comprising 108 papers addressing public policy implications of work on child resilience was identified by a structured bibliographic search. Results: This literature suggests that current work: is characterized by a breadth of sectoral engagement across the fields of education, social work, and health; demonstrates diversity with regard to the systemic levels – individual (biological and psychological), communal (including systems of faith and cultural identity), institutional and societal – with which it engages; but is based more upon conceptual rather than empirical analysis. Major themes of policy recommendation target strengthened family dynamics, increased capacity for counseling and mental health services, supportive school environments, development of community programs, promotion of socioeconomic improvement and adoption of a more comprehensive conception of resilience. Evaluations of resiliency-informed policy initiatives are limited in number, with greatest rigor in design associated with more discrete programmatic interventions. Conclusion: A number of strategies to strengthen research-policy linkages are identified. These include greater commitment to operationalize indicators of resilience at all levels of analysis; more coherent engagement with the policy making process through explicit knowledge translation initiatives; and developing complex adaptive systems models amenable to exploring policy scenarios. En ligne : http://dx.doi.org/10.1111/jcpp.12030 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=194 Behavior analytic interventions for children with autism: Policy and practice in the United Kingdom and China / Y. LIAO in Autism, 26-1 (January 2022)
[article]
Titre : Behavior analytic interventions for children with autism: Policy and practice in the United Kingdom and China Type de document : Texte imprimé et/ou numérique Auteurs : Y. LIAO, Auteur ; Karola DILLENBURGER, Auteur ; X. HU, Auteur Article en page(s) : p.101-120 Langues : Anglais (eng) Mots-clés : China United Kingdom applied behavior analysis autism spectrum disorders policy Index. décimale : PER Périodiques Résumé : The prevalence of autism is increasing, and the development of these children and the lived experience of their families have become a global concern. Applied behavioral analytic intervention is proved to be effective in improving their cognitive abilities, language skills, and social and emotional skills, but the service delivery between developed and developing countries is different. A qualitative study was conducted to explore personal experiences with actual practice fidelity of behavior analytic services for children with autism in a Western developed country (United Kingdom) and an Eastern developing country (China). The study found: (1) a lack of support for autism and behavioral analytic services in both countries; (2) applied behavioral analytic intervention was not as widely endorsed by healthcare or educational systems in the United Kingdom; Chinese parents faced challenges around inclusive education and accessing high-quality services and there was a social stigma attached to autism; (3) a limited awareness and application of early intensive behavior intervention in both regions; and (4) intervention fidelity with regards to the practice of one particular aspect of behavioral analytic interventions was similar and increased with ongoing training. This study emphasizes the need to support children with autism, and to consider regional adaptations of evidence-based practice of behavior analytic interventions for the affected population. En ligne : http://dx.doi.org/10.1177/13623613211020976 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451
in Autism > 26-1 (January 2022) . - p.101-120[article] Behavior analytic interventions for children with autism: Policy and practice in the United Kingdom and China [Texte imprimé et/ou numérique] / Y. LIAO, Auteur ; Karola DILLENBURGER, Auteur ; X. HU, Auteur . - p.101-120.
Langues : Anglais (eng)
in Autism > 26-1 (January 2022) . - p.101-120
Mots-clés : China United Kingdom applied behavior analysis autism spectrum disorders policy Index. décimale : PER Périodiques Résumé : The prevalence of autism is increasing, and the development of these children and the lived experience of their families have become a global concern. Applied behavioral analytic intervention is proved to be effective in improving their cognitive abilities, language skills, and social and emotional skills, but the service delivery between developed and developing countries is different. A qualitative study was conducted to explore personal experiences with actual practice fidelity of behavior analytic services for children with autism in a Western developed country (United Kingdom) and an Eastern developing country (China). The study found: (1) a lack of support for autism and behavioral analytic services in both countries; (2) applied behavioral analytic intervention was not as widely endorsed by healthcare or educational systems in the United Kingdom; Chinese parents faced challenges around inclusive education and accessing high-quality services and there was a social stigma attached to autism; (3) a limited awareness and application of early intensive behavior intervention in both regions; and (4) intervention fidelity with regards to the practice of one particular aspect of behavioral analytic interventions was similar and increased with ongoing training. This study emphasizes the need to support children with autism, and to consider regional adaptations of evidence-based practice of behavior analytic interventions for the affected population. En ligne : http://dx.doi.org/10.1177/13623613211020976 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 Leveraging science to inform social policy: How Ed Zigler created a movement / Kimber BOGARD in Development and Psychopathology, 33-2 (May 2021)
[article]
Titre : Leveraging science to inform social policy: How Ed Zigler created a movement Type de document : Texte imprimé et/ou numérique Auteurs : Kimber BOGARD, Auteur ; Ruby TAKANISHI, Auteur Année de publication : 2021 Article en page(s) : p.431-440 Langues : Anglais (eng) Mots-clés : Ed Zigler mentorship philanthropy policy science Index. décimale : PER Périodiques Résumé : Ed Zigler believed that developmental science should be applied to policy, programs, and practices to improve the lives of children and families. He shared this belief with others and paved the way for alternative career pathways. This paper describes how Ed influenced others to connect science with program development, evaluation, and policy, and created networks of applied scholars. Ed Zigler's influence is broad and spans beyond academia to influencer organizations. We weave our own professional experiences throughout the paper, which we organized around three lessons we learned from Ed: (a) explore alternative career pathways and build the field; (b) start with the science and think application; (c) apply the knowledge and influence policy. En ligne : http://dx.doi.org/10.1017/s0954579420002126 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444
in Development and Psychopathology > 33-2 (May 2021) . - p.431-440[article] Leveraging science to inform social policy: How Ed Zigler created a movement [Texte imprimé et/ou numérique] / Kimber BOGARD, Auteur ; Ruby TAKANISHI, Auteur . - 2021 . - p.431-440.
Langues : Anglais (eng)
in Development and Psychopathology > 33-2 (May 2021) . - p.431-440
Mots-clés : Ed Zigler mentorship philanthropy policy science Index. décimale : PER Périodiques Résumé : Ed Zigler believed that developmental science should be applied to policy, programs, and practices to improve the lives of children and families. He shared this belief with others and paved the way for alternative career pathways. This paper describes how Ed influenced others to connect science with program development, evaluation, and policy, and created networks of applied scholars. Ed Zigler's influence is broad and spans beyond academia to influencer organizations. We weave our own professional experiences throughout the paper, which we organized around three lessons we learned from Ed: (a) explore alternative career pathways and build the field; (b) start with the science and think application; (c) apply the knowledge and influence policy. En ligne : http://dx.doi.org/10.1017/s0954579420002126 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 Quotas, and Anti-discrimination Policies Relating to Autism in the EU: Scoping Review and Policy Mapping in Germany, France, Netherlands, United Kingdom, Slovakia, Poland, and Romania / Danielle BUNT in Autism Research, 13-8 (August 2020)
[article]
Titre : Quotas, and Anti-discrimination Policies Relating to Autism in the EU: Scoping Review and Policy Mapping in Germany, France, Netherlands, United Kingdom, Slovakia, Poland, and Romania Type de document : Texte imprimé et/ou numérique Auteurs : Danielle BUNT, Auteur ; Robin VAN KESSEL, Auteur ; Rosa A. HOEKSTRA, Auteur ; Katarzyna CZABANOWSKA, Auteur ; Carol BRAYNE, Auteur ; Simon BARON-COHEN, Auteur ; Andres ROMAN-URRESTARAZU, Auteur Article en page(s) : p.1397-1417 Langues : Anglais (eng) Mots-clés : Eu anti-discrimination autism employment policy Index. décimale : PER Périodiques Résumé : The low employment rates of persons with Autism Spectrum Conditions in the European Union (EU) are partly due to discrimination. Member States have taken different approaches to increase the employment rate in the recent decades, including quota and anti-discrimination legislation, however, the implications for people with autism are unknown. The purpose of this scoping review was to provide a comprehensive overview of the history of these employment policies, from seven EU Member States (Germany, France, the Netherlands, the United Kingdom [prior to exit], Slovakia, Poland, and Romania), exploring the interdependence on international and EU policies, using a path dependency analysis. The results indicate that internationally a shift in focus has taken place in the direction of anti-discrimination law, though employment quotas remained in place in six out of the seven Member States as a means to address employment of people with disability in combination with the new anti-discrimination laws. LAY SUMMARY: Discrimination is partially responsible for the low employment of people with autism. Several approaches have been taken in recent years, such as anti-discrimination laws and setting a mandatory number of people with disabilities that need to be employed. This study finds that, internationally and in the European Union, the focus was initially on the use of quotas and gradually moved to anti-discrimination, with both being used simultaneously. Autism Res 2020, 13: 1397-1417. © 2020 The Authors. Autism Research published by International Society for Autism Research published by Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.2315 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=430
in Autism Research > 13-8 (August 2020) . - p.1397-1417[article] Quotas, and Anti-discrimination Policies Relating to Autism in the EU: Scoping Review and Policy Mapping in Germany, France, Netherlands, United Kingdom, Slovakia, Poland, and Romania [Texte imprimé et/ou numérique] / Danielle BUNT, Auteur ; Robin VAN KESSEL, Auteur ; Rosa A. HOEKSTRA, Auteur ; Katarzyna CZABANOWSKA, Auteur ; Carol BRAYNE, Auteur ; Simon BARON-COHEN, Auteur ; Andres ROMAN-URRESTARAZU, Auteur . - p.1397-1417.
Langues : Anglais (eng)
in Autism Research > 13-8 (August 2020) . - p.1397-1417
Mots-clés : Eu anti-discrimination autism employment policy Index. décimale : PER Périodiques Résumé : The low employment rates of persons with Autism Spectrum Conditions in the European Union (EU) are partly due to discrimination. Member States have taken different approaches to increase the employment rate in the recent decades, including quota and anti-discrimination legislation, however, the implications for people with autism are unknown. The purpose of this scoping review was to provide a comprehensive overview of the history of these employment policies, from seven EU Member States (Germany, France, the Netherlands, the United Kingdom [prior to exit], Slovakia, Poland, and Romania), exploring the interdependence on international and EU policies, using a path dependency analysis. The results indicate that internationally a shift in focus has taken place in the direction of anti-discrimination law, though employment quotas remained in place in six out of the seven Member States as a means to address employment of people with disability in combination with the new anti-discrimination laws. LAY SUMMARY: Discrimination is partially responsible for the low employment of people with autism. Several approaches have been taken in recent years, such as anti-discrimination laws and setting a mandatory number of people with disabilities that need to be employed. This study finds that, internationally and in the European Union, the focus was initially on the use of quotas and gradually moved to anti-discrimination, with both being used simultaneously. Autism Res 2020, 13: 1397-1417. © 2020 The Authors. Autism Research published by International Society for Autism Research published by Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.2315 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=430 Short report: Recommendations for education, clinical practice, research, and policy on promoting well-being in autistic youth and adults through a positive focus on sexuality and gender diversity / Jeroen DEWINTER in Autism, 28-3 (March 2024)
PermalinkAnnual Research Review: Educational neuroscience: progress and prospects / M. S. C. THOMAS in Journal of Child Psychology and Psychiatry, 60-4 (April 2019)
Permalink'It seems like a luxury to be able to offer that': Factors influencing the implementation of annual health checks for autistic people in England / Jade DAVIES in Autism, 28-3 (March 2024)
PermalinkPreventing and improving interactions between autistic individuals and the criminal justice system: A roadmap for research / L. L. SHEA in Autism Research, 14-10 (October 2021)
PermalinkSeeking Team Collaboration, Dialogue and Support: The Perceptions of Multidisciplinary Staff-Members Working in ASD Preschools / Yana SINAI-GAVRILOV in Journal of Autism and Developmental Disorders, 49-11 (November 2019)
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