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Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project / Teal W. BENEVIDES in Autism, 24-4 (May 2020)
[article]
Titre : Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project Type de document : Texte imprimé et/ou numérique Auteurs : Teal W. BENEVIDES, Auteur ; Stephen M. SHORE, Auteur ; Kate PALMER, Auteur ; Patricia DUNCAN, Auteur ; Alex PLANK, Auteur ; May-Lynn ANDRESEN, Auteur ; Reid CAPLAN, Auteur ; Barb COOK, Auteur ; Dena GASSNER, Auteur ; Becca Lory HECTOR, Auteur ; Lisa MORGAN, Auteur ; Lindsey NEBEKER, Auteur ; Yenn PURKIS, Auteur ; Brigid RANKOWSKI, Auteur ; Karl WITTIG, Auteur ; Steven S. COUGHLIN, Auteur Article en page(s) : p.822-833 Langues : Anglais (eng) Mots-clés : autism autistic mental health mental health outcomes participatory action research priorities stakeholder Index. décimale : PER Périodiques Résumé : Autistic adults commonly experience mental health conditions. However, research rarely involves autistic adults in deciding priorities for research on mental healthcare approaches that might work for them. The purpose of this article is to describe a stakeholder-driven project that involved autistic adults in co-leading and designing research about priorities to address mental health needs. Through a large online survey, two large meetings, and three face-to-face focus group discussions involving over 350 stakeholders, we identified five priorities for mental health research desired by autistic adults. These priorities and preferred outcomes should be used to guide research and practice for autistic adults. En ligne : http://dx.doi.org/10.1177/1362361320908410 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425
in Autism > 24-4 (May 2020) . - p.822-833[article] Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project [Texte imprimé et/ou numérique] / Teal W. BENEVIDES, Auteur ; Stephen M. SHORE, Auteur ; Kate PALMER, Auteur ; Patricia DUNCAN, Auteur ; Alex PLANK, Auteur ; May-Lynn ANDRESEN, Auteur ; Reid CAPLAN, Auteur ; Barb COOK, Auteur ; Dena GASSNER, Auteur ; Becca Lory HECTOR, Auteur ; Lisa MORGAN, Auteur ; Lindsey NEBEKER, Auteur ; Yenn PURKIS, Auteur ; Brigid RANKOWSKI, Auteur ; Karl WITTIG, Auteur ; Steven S. COUGHLIN, Auteur . - p.822-833.
Langues : Anglais (eng)
in Autism > 24-4 (May 2020) . - p.822-833
Mots-clés : autism autistic mental health mental health outcomes participatory action research priorities stakeholder Index. décimale : PER Périodiques Résumé : Autistic adults commonly experience mental health conditions. However, research rarely involves autistic adults in deciding priorities for research on mental healthcare approaches that might work for them. The purpose of this article is to describe a stakeholder-driven project that involved autistic adults in co-leading and designing research about priorities to address mental health needs. Through a large online survey, two large meetings, and three face-to-face focus group discussions involving over 350 stakeholders, we identified five priorities for mental health research desired by autistic adults. These priorities and preferred outcomes should be used to guide research and practice for autistic adults. En ligne : http://dx.doi.org/10.1177/1362361320908410 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425 Research priorities of the autism community: A systematic review of key stakeholder perspectives / Laura ROCHE in Autism, 25-2 (February 2021)
[article]
Titre : Research priorities of the autism community: A systematic review of key stakeholder perspectives Type de document : Texte imprimé et/ou numérique Auteurs : Laura ROCHE, Auteur ; Dawn ADAMS, Auteur ; Megan L. E. CLARK, Auteur Article en page(s) : p.336-348 Langues : Anglais (eng) Mots-clés : autism community future research priorities priority setting Index. décimale : PER Périodiques Résumé : It has become very important in autism research to ask the autistic community about what kinds of research they think should be done in order to improve the lives of people with autism. Many studies have reported on research goals from people within the autism community, such as parents of people on the autism spectrum, and practitioners and clinicians who support people on the autism spectrum. So far, the research goals from all of these studies have not been considered together, which is important so that all autism research can be working towards the same goals. We reviewed seven studies that looked at the priorities for autism research from key people within the autism community. Each of the reviewed studies are described according to (a) the types of people involved in the study, (b) the way the research goals from each group of people were identified, (c) the country where they were from and (d) the most common research goals from across all of the studies. Within these seven studies, research that will lead to real-world changes in the daily lives of the autism community and a greater focus on skill training for people with autism across their lives were found to be very important. From this review, we found that it is also very important to include a range of different people from the autism community when deciding what autism research goals should be focused on so that future research can be more helpful for the autism community. En ligne : http://dx.doi.org/10.1177/1362361320967790 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=441
in Autism > 25-2 (February 2021) . - p.336-348[article] Research priorities of the autism community: A systematic review of key stakeholder perspectives [Texte imprimé et/ou numérique] / Laura ROCHE, Auteur ; Dawn ADAMS, Auteur ; Megan L. E. CLARK, Auteur . - p.336-348.
Langues : Anglais (eng)
in Autism > 25-2 (February 2021) . - p.336-348
Mots-clés : autism community future research priorities priority setting Index. décimale : PER Périodiques Résumé : It has become very important in autism research to ask the autistic community about what kinds of research they think should be done in order to improve the lives of people with autism. Many studies have reported on research goals from people within the autism community, such as parents of people on the autism spectrum, and practitioners and clinicians who support people on the autism spectrum. So far, the research goals from all of these studies have not been considered together, which is important so that all autism research can be working towards the same goals. We reviewed seven studies that looked at the priorities for autism research from key people within the autism community. Each of the reviewed studies are described according to (a) the types of people involved in the study, (b) the way the research goals from each group of people were identified, (c) the country where they were from and (d) the most common research goals from across all of the studies. Within these seven studies, research that will lead to real-world changes in the daily lives of the autism community and a greater focus on skill training for people with autism across their lives were found to be very important. From this review, we found that it is also very important to include a range of different people from the autism community when deciding what autism research goals should be focused on so that future research can be more helpful for the autism community. En ligne : http://dx.doi.org/10.1177/1362361320967790 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=441 The intervention priorities of parents of children with autism spectrum disorders in Iran / Mehdi GHANADZADE in Research in Autism Spectrum Disorders, 55 (November 2018)
[article]
Titre : The intervention priorities of parents of children with autism spectrum disorders in Iran Type de document : Texte imprimé et/ou numérique Auteurs : Mehdi GHANADZADE, Auteur ; Mitzi WALTZ, Auteur ; Tehnaz RAGI, Auteur Article en page(s) : p.14-24 Langues : Anglais (eng) Mots-clés : Autism Intervention Priorities Parents LMICs Index. décimale : PER Périodiques Résumé : When designing and implementing evidence-based programs for children with an autism spectrum disorder, the intervention priorities of parents are important criteria. Although studies in developed countries have explored parents’ intervention priorities, there is a paucity of this kind of research in developing countries. This research explores the intervention priorities of 207 Iranian parents for their children with autism in Tehran, the capital of Iran. Participants with children between 2 to 21 years of age were asked to rate their intervention priorities from among 10 main categories. In addition, correlations between children’s difficulties and parental intervention priorities were examined. The results indicate that building social communication skills was the highest intervention priority for parents of Iranian children with autism, a contrast to typical current service provision in Iran. The results also substantiated that presence of social communication difficulties and challenging behaviors in children are typically correlated with parents' intervention priorities. En ligne : https://doi.org/10.1016/j.rasd.2018.08.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369
in Research in Autism Spectrum Disorders > 55 (November 2018) . - p.14-24[article] The intervention priorities of parents of children with autism spectrum disorders in Iran [Texte imprimé et/ou numérique] / Mehdi GHANADZADE, Auteur ; Mitzi WALTZ, Auteur ; Tehnaz RAGI, Auteur . - p.14-24.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 55 (November 2018) . - p.14-24
Mots-clés : Autism Intervention Priorities Parents LMICs Index. décimale : PER Périodiques Résumé : When designing and implementing evidence-based programs for children with an autism spectrum disorder, the intervention priorities of parents are important criteria. Although studies in developed countries have explored parents’ intervention priorities, there is a paucity of this kind of research in developing countries. This research explores the intervention priorities of 207 Iranian parents for their children with autism in Tehran, the capital of Iran. Participants with children between 2 to 21 years of age were asked to rate their intervention priorities from among 10 main categories. In addition, correlations between children’s difficulties and parental intervention priorities were examined. The results indicate that building social communication skills was the highest intervention priority for parents of Iranian children with autism, a contrast to typical current service provision in Iran. The results also substantiated that presence of social communication difficulties and challenging behaviors in children are typically correlated with parents' intervention priorities. En ligne : https://doi.org/10.1016/j.rasd.2018.08.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369