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Using qualitative methods to guide scale development for anxiety in youth with autism spectrum disorder / Karen E. BEARSS in Autism, 20-6 (August 2016)
[article]
Titre : Using qualitative methods to guide scale development for anxiety in youth with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Karen E. BEARSS, Auteur ; Christopher A TAYLOR, Auteur ; Michael G. AMAN, Auteur ; Robin WHITTEMORE, Auteur ; Luc LECAVALIER, Auteur ; Judith MILLER, Auteur ; Jill PRITCHETT, Auteur ; Bryson GREEN, Auteur ; Lawrence SCAHILL, Auteur Article en page(s) : p.663-672 Langues : Anglais (eng) Mots-clés : anxiety autism spectrum disorder content validity focus group instrument development qualitative methods Index. décimale : PER Périodiques Résumé : Anxiety is common in youth with autism spectrum disorder. Despite this common co-occurrence, studies targeting anxiety in this population are hindered by the under-developed state of measures in youth with autism spectrum disorder. Content validity (the extent to which an instrument measures the domain of interest) and an instrument’s relevance to the patient population are key components of measurement development. This article describes the application of qualitative research methods in the initial development of a parent-rated instrument of anxiety symptoms in youth with autism spectrum disorder. Overall, 48 parents of 45 children (aged 3–17?years) with autism spectrum disorder and at least mild anxiety participated in one of six focus groups at two sites (three groups per site). Systematic coding of the focus group transcripts identified broad themes reflecting the situations and events that trigger anxiety in children with autism spectrum disorder, the behavioral manifestations of anxiety in children with autism spectrum disorder, the parent and the child’s own response to anxiety, and broad behavioral patterns that could be associated with anxiety. From the focus group data, investigators generated 52 candidate items for a parent-rating of anxiety in youth with autism spectrum disorder. This report provides a detailed description of these early steps in developing a patient-oriented outcome measure. En ligne : http://dx.doi.org/10.1177/1362361315601012 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290
in Autism > 20-6 (August 2016) . - p.663-672[article] Using qualitative methods to guide scale development for anxiety in youth with autism spectrum disorder [Texte imprimé et/ou numérique] / Karen E. BEARSS, Auteur ; Christopher A TAYLOR, Auteur ; Michael G. AMAN, Auteur ; Robin WHITTEMORE, Auteur ; Luc LECAVALIER, Auteur ; Judith MILLER, Auteur ; Jill PRITCHETT, Auteur ; Bryson GREEN, Auteur ; Lawrence SCAHILL, Auteur . - p.663-672.
Langues : Anglais (eng)
in Autism > 20-6 (August 2016) . - p.663-672
Mots-clés : anxiety autism spectrum disorder content validity focus group instrument development qualitative methods Index. décimale : PER Périodiques Résumé : Anxiety is common in youth with autism spectrum disorder. Despite this common co-occurrence, studies targeting anxiety in this population are hindered by the under-developed state of measures in youth with autism spectrum disorder. Content validity (the extent to which an instrument measures the domain of interest) and an instrument’s relevance to the patient population are key components of measurement development. This article describes the application of qualitative research methods in the initial development of a parent-rated instrument of anxiety symptoms in youth with autism spectrum disorder. Overall, 48 parents of 45 children (aged 3–17?years) with autism spectrum disorder and at least mild anxiety participated in one of six focus groups at two sites (three groups per site). Systematic coding of the focus group transcripts identified broad themes reflecting the situations and events that trigger anxiety in children with autism spectrum disorder, the behavioral manifestations of anxiety in children with autism spectrum disorder, the parent and the child’s own response to anxiety, and broad behavioral patterns that could be associated with anxiety. From the focus group data, investigators generated 52 candidate items for a parent-rating of anxiety in youth with autism spectrum disorder. This report provides a detailed description of these early steps in developing a patient-oriented outcome measure. En ligne : http://dx.doi.org/10.1177/1362361315601012 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290 Parents’ perceptions of dental care challenges in male children with autism spectrum disorder: An initial qualitative exploration / Leah I. STEIN DUKER in Research in Autism Spectrum Disorders, 39 (July 2017)
[article]
Titre : Parents’ perceptions of dental care challenges in male children with autism spectrum disorder: An initial qualitative exploration Type de document : Texte imprimé et/ou numérique Auteurs : Leah I. STEIN DUKER, Auteur ; Benjamin F. HENWOOD, Auteur ; Ricky N. BLUTHENTHAL, Auteur ; Emma JUHLIN, Auteur ; José C. POLIDO, Auteur ; Sharon A. CERMAK, Auteur Article en page(s) : p.63-72 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Health care Dental care Oral care Oral health Occupational therapy Qualitative methods Index. décimale : PER Périodiques Résumé : AbstractBackground Many children with autism spectrum disorders (ASD) experience barriers to oral care in the dental office setting. The purpose of this study was to provide an increased understanding of these challenges experienced during oral care in the dental office by children with ASD. Method This study was part of a larger mixed methods design and builds on quantitative results from a survey of parents of children with ASD ages 2–18 in which parents reported difficulties with access to care, sensory processing, and uncooperative behaviors. For this study, we conducted two, three hour, focus groups of parents of male children with ASD age 5–18 years in order to explore the survey results in greater depth. Focus group transcripts were analyzed using a template coding approach based on the three domains of office-based oral care challenges identified in the first phase (survey). Results Several related themes emerged including: (1) Access: “Difficult to find the right dentist”, (2) Sensory sensitivities: “All the sensory devices just make him so uncomfortable”, (3) Restraint: “It looked like they were torturing him”, and (4) Drugs: “A mixed bag”. Conclusions The qualitative findings from this study both confirmed our previous survey findings and expanded upon them. These findings can help professionals better understand the challenges experienced by children with ASD and their parents as well as help identify priorities for planning efforts to address the oral health-related needs of this population. En ligne : https://doi.org/10.1016/j.rasd.2017.03.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=308
in Research in Autism Spectrum Disorders > 39 (July 2017) . - p.63-72[article] Parents’ perceptions of dental care challenges in male children with autism spectrum disorder: An initial qualitative exploration [Texte imprimé et/ou numérique] / Leah I. STEIN DUKER, Auteur ; Benjamin F. HENWOOD, Auteur ; Ricky N. BLUTHENTHAL, Auteur ; Emma JUHLIN, Auteur ; José C. POLIDO, Auteur ; Sharon A. CERMAK, Auteur . - p.63-72.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 39 (July 2017) . - p.63-72
Mots-clés : Autism spectrum disorder Health care Dental care Oral care Oral health Occupational therapy Qualitative methods Index. décimale : PER Périodiques Résumé : AbstractBackground Many children with autism spectrum disorders (ASD) experience barriers to oral care in the dental office setting. The purpose of this study was to provide an increased understanding of these challenges experienced during oral care in the dental office by children with ASD. Method This study was part of a larger mixed methods design and builds on quantitative results from a survey of parents of children with ASD ages 2–18 in which parents reported difficulties with access to care, sensory processing, and uncooperative behaviors. For this study, we conducted two, three hour, focus groups of parents of male children with ASD age 5–18 years in order to explore the survey results in greater depth. Focus group transcripts were analyzed using a template coding approach based on the three domains of office-based oral care challenges identified in the first phase (survey). Results Several related themes emerged including: (1) Access: “Difficult to find the right dentist”, (2) Sensory sensitivities: “All the sensory devices just make him so uncomfortable”, (3) Restraint: “It looked like they were torturing him”, and (4) Drugs: “A mixed bag”. Conclusions The qualitative findings from this study both confirmed our previous survey findings and expanded upon them. These findings can help professionals better understand the challenges experienced by children with ASD and their parents as well as help identify priorities for planning efforts to address the oral health-related needs of this population. En ligne : https://doi.org/10.1016/j.rasd.2017.03.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=308 A Qualitative Analysis of the School Experiences of Students With Asperger Syndrome / Mark SCIUTTO in Focus on Autism and Other Developmental Disabilities, 27-3 (September 2012)
[article]
Titre : A Qualitative Analysis of the School Experiences of Students With Asperger Syndrome Type de document : Texte imprimé et/ou numérique Auteurs : Mark SCIUTTO, Auteur ; Sally RICHWINE, Auteur ; Janelle MENTRIKOSKI, Auteur ; Kathryn NIEDZWIECKI, Auteur Année de publication : 2012 Article en page(s) : p.177-188 Langues : Anglais (eng) Mots-clés : Asperger syndrome qualitative methods school experiences Index. décimale : PER Périodiques Résumé : In this study, adults with Asperger syndrome (AS) and caregivers of children with AS provided firsthand accounts of school-related challenges and influential instructional practices. A total of 94 participants (59 parents, 27 adults with AS, and 8 unspecified) completed an online survey containing open-ended questions about their (or their children’s) school-related experiences. Participants identified specific areas of need (e.g., bullying, misunderstood intentions) related to understanding children with AS. In addition, participants described teacher qualities and instructional practices (e.g., strategies for communicating that the child is an asset, methods of structuring the environment for success) that had a positive impact on their (or their children’s) school experiences. Implications for teacher training and school-based interventions are highlighted. En ligne : http://dx.doi.org/10.1177/1088357612450511 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=179
in Focus on Autism and Other Developmental Disabilities > 27-3 (September 2012) . - p.177-188[article] A Qualitative Analysis of the School Experiences of Students With Asperger Syndrome [Texte imprimé et/ou numérique] / Mark SCIUTTO, Auteur ; Sally RICHWINE, Auteur ; Janelle MENTRIKOSKI, Auteur ; Kathryn NIEDZWIECKI, Auteur . - 2012 . - p.177-188.
Langues : Anglais (eng)
in Focus on Autism and Other Developmental Disabilities > 27-3 (September 2012) . - p.177-188
Mots-clés : Asperger syndrome qualitative methods school experiences Index. décimale : PER Périodiques Résumé : In this study, adults with Asperger syndrome (AS) and caregivers of children with AS provided firsthand accounts of school-related challenges and influential instructional practices. A total of 94 participants (59 parents, 27 adults with AS, and 8 unspecified) completed an online survey containing open-ended questions about their (or their children’s) school-related experiences. Participants identified specific areas of need (e.g., bullying, misunderstood intentions) related to understanding children with AS. In addition, participants described teacher qualities and instructional practices (e.g., strategies for communicating that the child is an asset, methods of structuring the environment for success) that had a positive impact on their (or their children’s) school experiences. Implications for teacher training and school-based interventions are highlighted. En ligne : http://dx.doi.org/10.1177/1088357612450511 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=179 Using qualitative content analysis to understand the active ingredients of a parent-mediated naturalistic developmental behavioral intervention / K. M. FROST in Autism, 25-7 (October 2021)
[article]
Titre : Using qualitative content analysis to understand the active ingredients of a parent-mediated naturalistic developmental behavioral intervention Type de document : Texte imprimé et/ou numérique Auteurs : K. M. FROST, Auteur ; K. RUSSELL, Auteur ; Brooke R. INGERSOLL, Auteur Article en page(s) : p.1935-1945 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy Behavior Therapy Caregivers Child Child Development Disorders, Pervasive Humans Parents active ingredients autism early intervention qualitative methods Index. décimale : PER Périodiques Résumé : Although naturalistic developmental behavioral interventions are supported by research for supporting the development of children on the autism spectrum, how they work is not well understood. This study reviewed parent reflection comments in a systematic way to better how one such treatment worked, when delivered by caregivers. Caregivers completed weekly written reflection responses as they learned how to use the treatment techniques. We studied these responses to understand caregiver perspectives on how their children responded to the techniques. The responses were then compared to a theory of how the treatment works. Many responses were consistent with the treatment theory; however, others were not. We found that individual techniques were associated with different child responses, suggesting that general measures of social communication may not measure these specific short-term changes. Our findings point to specific behaviors that may be useful to measure in future research, or useful as indicators of treatment response in clinical practice settings. Overall, qualitative methods may be useful for understanding complex treatment processes. En ligne : http://dx.doi.org/10.1177/13623613211003747 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451
in Autism > 25-7 (October 2021) . - p.1935-1945[article] Using qualitative content analysis to understand the active ingredients of a parent-mediated naturalistic developmental behavioral intervention [Texte imprimé et/ou numérique] / K. M. FROST, Auteur ; K. RUSSELL, Auteur ; Brooke R. INGERSOLL, Auteur . - p.1935-1945.
Langues : Anglais (eng)
in Autism > 25-7 (October 2021) . - p.1935-1945
Mots-clés : Autism Spectrum Disorder/therapy Behavior Therapy Caregivers Child Child Development Disorders, Pervasive Humans Parents active ingredients autism early intervention qualitative methods Index. décimale : PER Périodiques Résumé : Although naturalistic developmental behavioral interventions are supported by research for supporting the development of children on the autism spectrum, how they work is not well understood. This study reviewed parent reflection comments in a systematic way to better how one such treatment worked, when delivered by caregivers. Caregivers completed weekly written reflection responses as they learned how to use the treatment techniques. We studied these responses to understand caregiver perspectives on how their children responded to the techniques. The responses were then compared to a theory of how the treatment works. Many responses were consistent with the treatment theory; however, others were not. We found that individual techniques were associated with different child responses, suggesting that general measures of social communication may not measure these specific short-term changes. Our findings point to specific behaviors that may be useful to measure in future research, or useful as indicators of treatment response in clinical practice settings. Overall, qualitative methods may be useful for understanding complex treatment processes. En ligne : http://dx.doi.org/10.1177/13623613211003747 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 Using qualitative content analysis to understand the active ingredients of a parent-mediated naturalistic developmental behavioral intervention / Kyle M. FROST in Autism, 26-7 (October 2022)
[article]
Titre : Using qualitative content analysis to understand the active ingredients of a parent-mediated naturalistic developmental behavioral intervention Type de document : Texte imprimé et/ou numérique Auteurs : Kyle M. FROST, Auteur ; Kaylin RUSSELL, Auteur ; Brooke R. INGERSOLL, Auteur Article en page(s) : p.1935-1945 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy Behavior Therapy Caregivers Child Child Development Disorders, Pervasive Humans Parents active ingredients autism early intervention qualitative methods Index. décimale : PER Périodiques Résumé : Although naturalistic developmental behavioral interventions are supported by research for supporting the development of children on the autism spectrum, how they work is not well understood. This study reviewed parent reflection comments in a systematic way to better how one such treatment worked, when delivered by caregivers. Caregivers completed weekly written reflection responses as they learned how to use the treatment techniques. We studied these responses to understand caregiver perspectives on how their children responded to the techniques. The responses were then compared to a theory of how the treatment works. Many responses were consistent with the treatment theory; however, others were not. We found that individual techniques were associated with different child responses, suggesting that general measures of social communication may not measure these specific short-term changes. Our findings point to specific behaviors that may be useful to measure in future research, or useful as indicators of treatment response in clinical practice settings. Overall, qualitative methods may be useful for understanding complex treatment processes. En ligne : http://dx.doi.org/10.1177/13623613211003747 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484
in Autism > 26-7 (October 2022) . - p.1935-1945[article] Using qualitative content analysis to understand the active ingredients of a parent-mediated naturalistic developmental behavioral intervention [Texte imprimé et/ou numérique] / Kyle M. FROST, Auteur ; Kaylin RUSSELL, Auteur ; Brooke R. INGERSOLL, Auteur . - p.1935-1945.
Langues : Anglais (eng)
in Autism > 26-7 (October 2022) . - p.1935-1945
Mots-clés : Autism Spectrum Disorder/therapy Behavior Therapy Caregivers Child Child Development Disorders, Pervasive Humans Parents active ingredients autism early intervention qualitative methods Index. décimale : PER Périodiques Résumé : Although naturalistic developmental behavioral interventions are supported by research for supporting the development of children on the autism spectrum, how they work is not well understood. This study reviewed parent reflection comments in a systematic way to better how one such treatment worked, when delivered by caregivers. Caregivers completed weekly written reflection responses as they learned how to use the treatment techniques. We studied these responses to understand caregiver perspectives on how their children responded to the techniques. The responses were then compared to a theory of how the treatment works. Many responses were consistent with the treatment theory; however, others were not. We found that individual techniques were associated with different child responses, suggesting that general measures of social communication may not measure these specific short-term changes. Our findings point to specific behaviors that may be useful to measure in future research, or useful as indicators of treatment response in clinical practice settings. Overall, qualitative methods may be useful for understanding complex treatment processes. En ligne : http://dx.doi.org/10.1177/13623613211003747 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 The importance of context in early autism intervention: A qualitative South African study / J. GULER in Autism, 22-8 (November 2018)
PermalinkAnnual Research Review: Immersive virtual reality and digital applied gaming interventions for the treatment of mental health problems in children and young people: the need for rigorous treatment development and clinical evaluation / Brynjar HALLDORSSON in Journal of Child Psychology and Psychiatry, 62-5 (May 2021)
Permalink"I'm able to function better when I know there's a beginning and an end time": Autistic adolescents' experiences of lockdowns during the COVID-19 pandemic / Laura KELLY ; Sue MESA in Autism & Developmental Language Impairments, 8 (January-December 2023)
PermalinkA Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives / M. PETRUCCELLI in Journal of Autism and Developmental Disorders, 52-2 (February 2022)
Permalink"I wouldn't know where to start": Perspectives from clinicians, agency leaders, and autistic adults on improving community mental health services for autistic adults / Brenna B MADDOX in Autism, 24-4 (May 2020)
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