Centre d'Information et de documentation du CRA Rhône-Alpes
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Centre d'information et de documentation
du CRA Rhône-Alpes
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Families Living With Autism Spectrum Disorder: Roles and Responsibilities of Adolescent Sisters / Elizabeth K. CRIDLAND in Focus on Autism and Other Developmental Disabilities, 31-3 (September 2016)
[article]
Titre : Families Living With Autism Spectrum Disorder: Roles and Responsibilities of Adolescent Sisters Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth K. CRIDLAND, Auteur ; Sandra C. JONES, Auteur ; Gerard STOYLES, Auteur ; Peter CAPUTI, Auteur ; Christopher A. MAGEE, Auteur Article en page(s) : p.196-207 Langues : Anglais (eng) Mots-clés : autism spectrum disorders siblings family support systems high school adolescence sister Index. décimale : PER Périodiques Résumé : There is currently a limited understanding of adolescent sibling relationships where Autism Spectrum Disorder (ASD) is present. This research gap remains despite preliminary findings suggesting that neurotypically developing (NTD) siblings undertake extra caregiving responsibilities and experience differential treatment from family members. Using a Family Systems approach, this qualitative study investigated NTD adolescent sisters’ roles and responsibilities for their younger adolescent brother with ASD from the perspectives of 11 family members (including NTD sisters, brothers with ASD, mothers, and fathers). Findings indicate the sisters undertook various caregiving roles and responsibilities, particularly at school, which had both positive and negative influences on the family system. Additionally, sisters perceived they undertook unfair household responsibilities, received reduced parental attention, and desired both distance from and engagement with their families. These perceptions varied amongst other family members. Implications of these findings and strategies for best supporting adolescent NTD siblings are discussed. En ligne : http://dx.doi.org/10.1177/1088357615583466 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=292
in Focus on Autism and Other Developmental Disabilities > 31-3 (September 2016) . - p.196-207[article] Families Living With Autism Spectrum Disorder: Roles and Responsibilities of Adolescent Sisters [Texte imprimé et/ou numérique] / Elizabeth K. CRIDLAND, Auteur ; Sandra C. JONES, Auteur ; Gerard STOYLES, Auteur ; Peter CAPUTI, Auteur ; Christopher A. MAGEE, Auteur . - p.196-207.
Langues : Anglais (eng)
in Focus on Autism and Other Developmental Disabilities > 31-3 (September 2016) . - p.196-207
Mots-clés : autism spectrum disorders siblings family support systems high school adolescence sister Index. décimale : PER Périodiques Résumé : There is currently a limited understanding of adolescent sibling relationships where Autism Spectrum Disorder (ASD) is present. This research gap remains despite preliminary findings suggesting that neurotypically developing (NTD) siblings undertake extra caregiving responsibilities and experience differential treatment from family members. Using a Family Systems approach, this qualitative study investigated NTD adolescent sisters’ roles and responsibilities for their younger adolescent brother with ASD from the perspectives of 11 family members (including NTD sisters, brothers with ASD, mothers, and fathers). Findings indicate the sisters undertook various caregiving roles and responsibilities, particularly at school, which had both positive and negative influences on the family system. Additionally, sisters perceived they undertook unfair household responsibilities, received reduced parental attention, and desired both distance from and engagement with their families. These perceptions varied amongst other family members. Implications of these findings and strategies for best supporting adolescent NTD siblings are discussed. En ligne : http://dx.doi.org/10.1177/1088357615583466 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=292 Parent Perspectives on Psychotropic Medication Use and Interactions With Prescribing Health Care Providers Among Adolescents and Adults With an Autism Spectrum Disorder / Johanna K. LAKE in Focus on Autism and Other Developmental Disabilities, 30-3 (September 2015)
[article]
Titre : Parent Perspectives on Psychotropic Medication Use and Interactions With Prescribing Health Care Providers Among Adolescents and Adults With an Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Johanna K. LAKE, Auteur ; Alexander MILOVANOV, Auteur ; Amanda SAWYER, Auteur ; Yona LUNSKY, Auteur Article en page(s) : p.165-173 Langues : Anglais (eng) Mots-clés : adults adolescents autism spectrum disorder support systems parents medication health care providers Index. décimale : PER Périodiques Résumé : Adolescents and young adults with an autism spectrum disorder (ASD) are often prescribed psychotropic medications to treat mental health and behavioral issues, and parents of these individuals play a crucial role in overseeing this care. Despite this, little is known about parents’ experiences managing and monitoring their child’s medication treatment, or their experience interacting with prescribing health care providers. To learn more about parents’ perspectives on psychotropic medication use in their adolescent or young adult with ASD, a focus group was conducted with seven mothers whose adolescent or adult child with ASD was prescribed one or more psychotropic medications. Results are summarized according to emergent themes including parent perception of child experience with medication, side effects, medication efficacy, medication monitoring, expertise issues, and service issues. Parents also provided medication recommendations, including a desire for health care providers with greater expertise in ASD, information on medication, and tools for medication monitoring. En ligne : http://dx.doi.org/10.1177/1088357614559215 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=266
in Focus on Autism and Other Developmental Disabilities > 30-3 (September 2015) . - p.165-173[article] Parent Perspectives on Psychotropic Medication Use and Interactions With Prescribing Health Care Providers Among Adolescents and Adults With an Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Johanna K. LAKE, Auteur ; Alexander MILOVANOV, Auteur ; Amanda SAWYER, Auteur ; Yona LUNSKY, Auteur . - p.165-173.
Langues : Anglais (eng)
in Focus on Autism and Other Developmental Disabilities > 30-3 (September 2015) . - p.165-173
Mots-clés : adults adolescents autism spectrum disorder support systems parents medication health care providers Index. décimale : PER Périodiques Résumé : Adolescents and young adults with an autism spectrum disorder (ASD) are often prescribed psychotropic medications to treat mental health and behavioral issues, and parents of these individuals play a crucial role in overseeing this care. Despite this, little is known about parents’ experiences managing and monitoring their child’s medication treatment, or their experience interacting with prescribing health care providers. To learn more about parents’ perspectives on psychotropic medication use in their adolescent or young adult with ASD, a focus group was conducted with seven mothers whose adolescent or adult child with ASD was prescribed one or more psychotropic medications. Results are summarized according to emergent themes including parent perception of child experience with medication, side effects, medication efficacy, medication monitoring, expertise issues, and service issues. Parents also provided medication recommendations, including a desire for health care providers with greater expertise in ASD, information on medication, and tools for medication monitoring. En ligne : http://dx.doi.org/10.1177/1088357614559215 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=266