Centre d'Information et de documentation du CRA Rhône-Alpes
CRA
Informations pratiques
-
Adresse
Centre d'information et de documentation
du CRA Rhône-Alpes
Centre Hospitalier le Vinatier
bât 211
95, Bd Pinel
69678 Bron CedexHoraires
Lundi au Vendredi
9h00-12h00 13h30-16h00Contact
Tél: +33(0)4 37 91 54 65
Mail
Fax: +33(0)4 37 91 54 37
-
Résultat de la recherche
7 recherche sur le mot-clé 'unmet needs'
Affiner la recherche Générer le flux rss de la recherche
Partager le résultat de cette recherche Faire une suggestion
Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware / S. SRINIVASAN in Autism Research, 14-8 (August 2021)
[article]
Titre : Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware Type de document : Texte imprimé et/ou numérique Auteurs : S. SRINIVASAN, Auteur ; A. EKBLADH, Auteur ; B. FREEDMAN, Auteur ; Anjana N. BHAT, Auteur Article en page(s) : p.1736-1758 Langues : Anglais (eng) Mots-clés : Activities of Daily Living Adolescent Autism Spectrum Disorder/therapy Caregivers Child Counseling Delaware Health Services Accessibility Health Services Needs and Demand Humans Needs Assessment Autism Spectrum Disorder caregivers children and youth family support healthcare needs assessment unmet needs declare. Index. décimale : PER Périodiques Résumé : The study aimed to collect data from families of children and youth with Autism Spectrum Disorder (ASD) in the state of Delaware, USA to understand their ongoing needs and challenges in accessing child healthcare and family support services. We analyzed responses from 263 caregivers of children and youth with ASD from 3 to 24?years using a statewide needs assessment survey. Over 50% caregivers indicated having unmet needs relative to both child/youth healthcare services and family support services. Between 24 and 38% caregivers expressed unmet needs for healthcare services such as social skills training, speech-language therapy, behavioral intervention, and occupational therapy for their child and 20-24% expressed needs for family support services such as respite care, parent/sibling support groups, counseling, and babysitting support. Additionally, number of prior early interventions received, limitations in accessing healthcare services, and unmet needs for family support services significantly predicted child/youth unmet healthcare needs. Greater ASD severity and difficulties accessing child/youth healthcare services predicted participant's functional dependence on caregivers for activities of daily living. Together, these findings call for designing holistic, family-centered interventions that address needs of both children and youth with ASD and their families. LAY SUMMARY: A statewide needs assessment survey of caregivers of children and youth with ASD revealed that 50% responders had unmet needs relative to both child/youth healthcare services and family support services. Number of prior services received, limitations in accessing healthcare, and unmet needs for family support are linked to child/youth unmet healthcare needs. Severity of autism and difficulties accessing child/youth healthcare are associated with participant's functional dependence. Together, these findings call for placing the family at the heart of the service system in ASD. En ligne : http://dx.doi.org/10.1002/aur.2514 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449
in Autism Research > 14-8 (August 2021) . - p.1736-1758[article] Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware [Texte imprimé et/ou numérique] / S. SRINIVASAN, Auteur ; A. EKBLADH, Auteur ; B. FREEDMAN, Auteur ; Anjana N. BHAT, Auteur . - p.1736-1758.
Langues : Anglais (eng)
in Autism Research > 14-8 (August 2021) . - p.1736-1758
Mots-clés : Activities of Daily Living Adolescent Autism Spectrum Disorder/therapy Caregivers Child Counseling Delaware Health Services Accessibility Health Services Needs and Demand Humans Needs Assessment Autism Spectrum Disorder caregivers children and youth family support healthcare needs assessment unmet needs declare. Index. décimale : PER Périodiques Résumé : The study aimed to collect data from families of children and youth with Autism Spectrum Disorder (ASD) in the state of Delaware, USA to understand their ongoing needs and challenges in accessing child healthcare and family support services. We analyzed responses from 263 caregivers of children and youth with ASD from 3 to 24?years using a statewide needs assessment survey. Over 50% caregivers indicated having unmet needs relative to both child/youth healthcare services and family support services. Between 24 and 38% caregivers expressed unmet needs for healthcare services such as social skills training, speech-language therapy, behavioral intervention, and occupational therapy for their child and 20-24% expressed needs for family support services such as respite care, parent/sibling support groups, counseling, and babysitting support. Additionally, number of prior early interventions received, limitations in accessing healthcare services, and unmet needs for family support services significantly predicted child/youth unmet healthcare needs. Greater ASD severity and difficulties accessing child/youth healthcare services predicted participant's functional dependence on caregivers for activities of daily living. Together, these findings call for designing holistic, family-centered interventions that address needs of both children and youth with ASD and their families. LAY SUMMARY: A statewide needs assessment survey of caregivers of children and youth with ASD revealed that 50% responders had unmet needs relative to both child/youth healthcare services and family support services. Number of prior services received, limitations in accessing healthcare, and unmet needs for family support are linked to child/youth unmet healthcare needs. Severity of autism and difficulties accessing child/youth healthcare are associated with participant's functional dependence. Together, these findings call for placing the family at the heart of the service system in ASD. En ligne : http://dx.doi.org/10.1002/aur.2514 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449 Quality versus quantity: The role of socioeconomic status on parent-reported service knowledge, service use, unmet service needs, and barriers to service use / Katherine E. PICKARD in Autism, 20-1 (January 2016)
[article]
Titre : Quality versus quantity: The role of socioeconomic status on parent-reported service knowledge, service use, unmet service needs, and barriers to service use Type de document : Texte imprimé et/ou numérique Auteurs : Katherine E. PICKARD, Auteur ; Brooke R. INGERSOLL, Auteur Article en page(s) : p.106-115 Langues : Anglais (eng) Mots-clés : autism spectrum disorder barriers disparities service access unmet needs Index. décimale : PER Périodiques Résumé : Research within the autism spectrum disorder field has emphasized the role of socioeconomic status in shaping parents’ ability to access services for their child with autism spectrum disorder. However, research has yet to explore the possible mechanisms underlying this relationship. This study sought to address this research gap by examining the following questions: (1) Does parents’ service knowledge mediate the relationship between parent socioeconomic status and parents’ autism spectrum disorder service use? (2) What are parents’ reported service needs and service barriers, and do these needs vary across higher and lower socioeconomic status groups? Quantitative results from 244 parents of a child with autism spectrum disorder indicate that parents’ autism spectrum disorder service knowledge partially mediates the relationship between parent socioeconomic status and parents’ autism spectrum disorder service use. Qualitative findings helped to clarify this relationship by suggesting that both high and low socioeconomic status parents are aware of their child’s basic autism spectrum disorder needs. However, low socioeconomic status parents more often report needing more information about services and more in-home services and emphasize that a number of structural barriers impede their ability to meet their child’s autism spectrum disorder needs. On the other hand, high socioeconomic status parents more often report a need for “higher quality services,” possibly reflecting their better recognition of best practice guidelines. These results highlight the need for a multi-pronged approach to tackling unmet service needs within the autism spectrum disorder field. En ligne : http://dx.doi.org/10.1177/1362361315569745 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=277
in Autism > 20-1 (January 2016) . - p.106-115[article] Quality versus quantity: The role of socioeconomic status on parent-reported service knowledge, service use, unmet service needs, and barriers to service use [Texte imprimé et/ou numérique] / Katherine E. PICKARD, Auteur ; Brooke R. INGERSOLL, Auteur . - p.106-115.
Langues : Anglais (eng)
in Autism > 20-1 (January 2016) . - p.106-115
Mots-clés : autism spectrum disorder barriers disparities service access unmet needs Index. décimale : PER Périodiques Résumé : Research within the autism spectrum disorder field has emphasized the role of socioeconomic status in shaping parents’ ability to access services for their child with autism spectrum disorder. However, research has yet to explore the possible mechanisms underlying this relationship. This study sought to address this research gap by examining the following questions: (1) Does parents’ service knowledge mediate the relationship between parent socioeconomic status and parents’ autism spectrum disorder service use? (2) What are parents’ reported service needs and service barriers, and do these needs vary across higher and lower socioeconomic status groups? Quantitative results from 244 parents of a child with autism spectrum disorder indicate that parents’ autism spectrum disorder service knowledge partially mediates the relationship between parent socioeconomic status and parents’ autism spectrum disorder service use. Qualitative findings helped to clarify this relationship by suggesting that both high and low socioeconomic status parents are aware of their child’s basic autism spectrum disorder needs. However, low socioeconomic status parents more often report needing more information about services and more in-home services and emphasize that a number of structural barriers impede their ability to meet their child’s autism spectrum disorder needs. On the other hand, high socioeconomic status parents more often report a need for “higher quality services,” possibly reflecting their better recognition of best practice guidelines. These results highlight the need for a multi-pronged approach to tackling unmet service needs within the autism spectrum disorder field. En ligne : http://dx.doi.org/10.1177/1362361315569745 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=277 Service Use and Unmet Needs Among Adults with Autism Awaiting Home- and Community-Based Medicaid Services / Whitney SCHOTT in Journal of Autism and Developmental Disorders, 51-4 (April 2021)
[article]
Titre : Service Use and Unmet Needs Among Adults with Autism Awaiting Home- and Community-Based Medicaid Services Type de document : Texte imprimé et/ou numérique Auteurs : Whitney SCHOTT, Auteur ; Stacy L. NONNEMACHER, Auteur ; Lindsay SHEA, Auteur Article en page(s) : p.1188-1200 Langues : Anglais (eng) Mots-clés : Adults with autism Medicaid Unmet needs Waiting list Index. décimale : PER Périodiques Résumé : Autistic adults in need of long-term services and supports spend months on waiting lists before receiving such services through Medicaid. Data from a state-wide survey of adults and their caregivers on a waiting list for autism waivers suggest that the majority have unmet needs for functional skills services (63.6%), employment or vocation services (62.1%), and mental and behavioral health services (52.8%). Almost a third require case management services (28.3%). Predictors of greater service need are African American race and the number of physical and behavioral health diagnoses. Predictors of greater service receipt were employment status, housing type, and school enrollment; there was lower service receipt for African American race, Hispanic ethnicity, over age 21 years, and college completion. En ligne : http://dx.doi.org/10.1007/s10803-020-04593-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445
in Journal of Autism and Developmental Disorders > 51-4 (April 2021) . - p.1188-1200[article] Service Use and Unmet Needs Among Adults with Autism Awaiting Home- and Community-Based Medicaid Services [Texte imprimé et/ou numérique] / Whitney SCHOTT, Auteur ; Stacy L. NONNEMACHER, Auteur ; Lindsay SHEA, Auteur . - p.1188-1200.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-4 (April 2021) . - p.1188-1200
Mots-clés : Adults with autism Medicaid Unmet needs Waiting list Index. décimale : PER Périodiques Résumé : Autistic adults in need of long-term services and supports spend months on waiting lists before receiving such services through Medicaid. Data from a state-wide survey of adults and their caregivers on a waiting list for autism waivers suggest that the majority have unmet needs for functional skills services (63.6%), employment or vocation services (62.1%), and mental and behavioral health services (52.8%). Almost a third require case management services (28.3%). Predictors of greater service need are African American race and the number of physical and behavioral health diagnoses. Predictors of greater service receipt were employment status, housing type, and school enrollment; there was lower service receipt for African American race, Hispanic ethnicity, over age 21 years, and college completion. En ligne : http://dx.doi.org/10.1007/s10803-020-04593-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445 Unmet Dental Needs and Barriers to Dental Care Among Children with Autism Spectrum Disorders / Bien LAI in Journal of Autism and Developmental Disorders, 42-7 (July 2012)
[article]
Titre : Unmet Dental Needs and Barriers to Dental Care Among Children with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Bien LAI, Auteur ; Michael MILANO, Auteur ; Michael W. ROBERTS, Auteur ; Stephen R. HOOPER, Auteur Année de publication : 2012 Article en page(s) : p.1294-1303 Langues : Anglais (eng) Mots-clés : Unmet needs Dental Barriers Autism ASD Index. décimale : PER Périodiques Résumé : Mail-in pilot-tested questionnaires were sent to a stratified random sample of 1,500 families from the North Carolina Autism Registry. Multivariate logistic regression analysis was used to determine the significance of unmet dental needs and other predictors. Of 568 surveys returned (Response Rate = 38%), 555 were complete and usable. Sixty-five (12%) children had unmet dental needs. Of 516 children (93%) who had been to a dentist, 11% still reported unmet needs. The main barriers were child’s behavior, cost, and lack of insurance. The significant predictor variables of unmet needs were child’s behavior (p = 0.01), child’s dental health (p < 0.001), and caregiver’s last dental visit greater than 6 months (p = 0.002). Type of ASD did not have an effect on having unmet dental needs. En ligne : http://dx.doi.org/10.1007/s10803-011-1362-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=165
in Journal of Autism and Developmental Disorders > 42-7 (July 2012) . - p.1294-1303[article] Unmet Dental Needs and Barriers to Dental Care Among Children with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Bien LAI, Auteur ; Michael MILANO, Auteur ; Michael W. ROBERTS, Auteur ; Stephen R. HOOPER, Auteur . - 2012 . - p.1294-1303.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 42-7 (July 2012) . - p.1294-1303
Mots-clés : Unmet needs Dental Barriers Autism ASD Index. décimale : PER Périodiques Résumé : Mail-in pilot-tested questionnaires were sent to a stratified random sample of 1,500 families from the North Carolina Autism Registry. Multivariate logistic regression analysis was used to determine the significance of unmet dental needs and other predictors. Of 568 surveys returned (Response Rate = 38%), 555 were complete and usable. Sixty-five (12%) children had unmet dental needs. Of 516 children (93%) who had been to a dentist, 11% still reported unmet needs. The main barriers were child’s behavior, cost, and lack of insurance. The significant predictor variables of unmet needs were child’s behavior (p = 0.01), child’s dental health (p < 0.001), and caregiver’s last dental visit greater than 6 months (p = 0.002). Type of ASD did not have an effect on having unmet dental needs. En ligne : http://dx.doi.org/10.1007/s10803-011-1362-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=165 Profile and predictors of service needs for families of children with autism spectrum disorders / Sandra HODGETTS in Autism, 19-6 (August 2015)
[article]
Titre : Profile and predictors of service needs for families of children with autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Sandra HODGETTS, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; David B NICHOLAS, Auteur Article en page(s) : p.673-683 Langues : Anglais (eng) Mots-clés : autism spectrum disorders family-centered care family functioning and support service systems unmet needs Index. décimale : PER Périodiques Résumé : Purpose: Increasing demand for autism services is straining service systems. Tailoring services to best meet families’ needs could improve their quality of life and decrease burden on the system. We explored overall, best, and worst met service needs, and predictors of those needs, for families of children with autism spectrum disorders.Methods: Parents of 143 children with autism spectrum disorders (2–18 years) completed a survey including demographic and descriptive information, the Family Needs Survey–Revised, and an open-ended question about service needs. Descriptive statistics characterize the sample and determine the degree to which items were identified and met as needs. Predictors of total and unmet needs were modeled with regression or generalized linear model. Qualitative responses were thematically analyzed.Results: The most frequently identified overall and unmet service needs were information on services, family support, and respite care. The funding and quality of professional support available were viewed positively. Decreased child’s age and income and being an older mother predicted more total needs. Having an older child or mother, lower income, and disruptive behaviors predicted more total unmet needs, yet only disruptive behaviors predicted proportional unmet need. Child’s language or intellectual abilities did not predict needs.Conclusion: Findings can help professionals, funders, and policy-makers tailor services to best meet families’ needs. En ligne : http://dx.doi.org/10.1177/1362361314543531 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=262
in Autism > 19-6 (August 2015) . - p.673-683[article] Profile and predictors of service needs for families of children with autism spectrum disorders [Texte imprimé et/ou numérique] / Sandra HODGETTS, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; David B NICHOLAS, Auteur . - p.673-683.
Langues : Anglais (eng)
in Autism > 19-6 (August 2015) . - p.673-683
Mots-clés : autism spectrum disorders family-centered care family functioning and support service systems unmet needs Index. décimale : PER Périodiques Résumé : Purpose: Increasing demand for autism services is straining service systems. Tailoring services to best meet families’ needs could improve their quality of life and decrease burden on the system. We explored overall, best, and worst met service needs, and predictors of those needs, for families of children with autism spectrum disorders.Methods: Parents of 143 children with autism spectrum disorders (2–18 years) completed a survey including demographic and descriptive information, the Family Needs Survey–Revised, and an open-ended question about service needs. Descriptive statistics characterize the sample and determine the degree to which items were identified and met as needs. Predictors of total and unmet needs were modeled with regression or generalized linear model. Qualitative responses were thematically analyzed.Results: The most frequently identified overall and unmet service needs were information on services, family support, and respite care. The funding and quality of professional support available were viewed positively. Decreased child’s age and income and being an older mother predicted more total needs. Having an older child or mother, lower income, and disruptive behaviors predicted more total unmet needs, yet only disruptive behaviors predicted proportional unmet need. Child’s language or intellectual abilities did not predict needs.Conclusion: Findings can help professionals, funders, and policy-makers tailor services to best meet families’ needs. En ligne : http://dx.doi.org/10.1177/1362361314543531 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=262 The Impact of the Medical Home on Access to Care for Children with Autism Spectrum Disorders / Nancy C. CHEAK-ZAMORA in Journal of Autism and Developmental Disorders, 45-3 (March 2015)
PermalinkAnalysis of the SPARK study COVID-19 parent survey: Early impact of the pandemic on access to services, child/parent mental health, and benefits of online services / Anjana N. BHAT in Autism Research, 14-11 (November 2021)
Permalink