Adherence to Behavioral and Medical Treatment Recommendations by Parents of Children with Autism Spectrum Disorders / Timothy R. MOORE in Journal of Autism and Developmental Disorders, 39-8 (August 2009)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 39-8 (August 2009) . - p.1173-1184 Titre : Adherence to Behavioral and Medical Treatment Recommendations by Parents of Children with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Timothy R. MOORE, Auteur ; Frank J. SYMONS, Auteur Année de publication : 2009 Article en page(s) : p.1173-1184 Langues : Anglais (eng) Mots-clés : Adherence Parents Autism-spectrum-disorders Index. décimale : PER Périodiques Résumé : The extent to which parents of children with intellectual or developmental disabilities are adherent to prescribed treatments has not been investigated. In this treatment adherence study, parents (n = 220) of children with autism spectrum disorders were surveyed regarding implementation of recommended treatments to manage problem behavior of their children living at home. Overall adherence to medical treatment recommendations was significantly greater than adherence to behavioral treatment recommendations (p < .002). Of the behavioral treatment recommendations, parents reported greater adherence to reinforcement (81.7%) than punishment (68.9%). Child diagnosis (p < .002) and the diagnosis × marital status interaction (p < .05) were significantly associated with reported adherence to behavioral and medical treatment, respectively. Results are discussed in light of the need to address adherence enhancement and measurement methods. En ligne : http://dx.doi.org/10.1007/s10803-009-0729-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=789 [article] Adherence to Behavioral and Medical Treatment Recommendations by Parents of Children with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Timothy R. MOORE, Auteur ; Frank J. SYMONS, Auteur . - 2009 . - p.1173-1184. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 39-8 (August 2009) . - p.1173-1184 Mots-clés : Adherence Parents Autism-spectrum-disorders Index. décimale : PER Périodiques Résumé : The extent to which parents of children with intellectual or developmental disabilities are adherent to prescribed treatments has not been investigated. In this treatment adherence study, parents (n = 220) of children with autism spectrum disorders were surveyed regarding implementation of recommended treatments to manage problem behavior of their children living at home. Overall adherence to medical treatment recommendations was significantly greater than adherence to behavioral treatment recommendations (p < .002). Of the behavioral treatment recommendations, parents reported greater adherence to reinforcement (81.7%) than punishment (68.9%). Child diagnosis (p < .002) and the diagnosis × marital status interaction (p < .05) were significantly associated with reported adherence to behavioral and medical treatment, respectively. Results are discussed in light of the need to address adherence enhancement and measurement methods. En ligne : http://dx.doi.org/10.1007/s10803-009-0729-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=789

An Introduction to the Problem of Pain in Developmental Disability / Tim F. OBERLANDER

Public ISBD in Pain in Children and Adults with Developmental Disabilities / Tim F. OBERLANDER Titre : An Introduction to the Problem of Pain in Developmental Disability Type de document : Texte imprimé et/ou numérique Auteurs : Tim F. OBERLANDER, Auteur ; Frank J. SYMONS, Auteur Année de publication : 2006 Importance : p.1-4 Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=142 in Pain in Children and Adults with Developmental Disabilities / Tim F. OBERLANDER An Introduction to the Problem of Pain in Developmental Disability [Texte imprimé et/ou numérique] / Tim F. OBERLANDER, Auteur ; Frank J. SYMONS, Auteur . - 2006 . - p.1-4. Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=142

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Brief Report: Avoidance Extinction as Treatment for Compulsive and Ritual Behavior in Autism / Jason J. WOLFF in Journal of Autism and Developmental Disorders, 43-7 (July 2013)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 43-7 (July 2013) . - p.1741-1746 Titre : Brief Report: Avoidance Extinction as Treatment for Compulsive and Ritual Behavior in Autism Type de document : Texte imprimé et/ou numérique Auteurs : Jason J. WOLFF, Auteur ; Susan C. HUPP, Auteur ; Frank J. SYMONS, Auteur Année de publication : 2013 Article en page(s) : p.1741-1746 Langues : Anglais (eng) Mots-clés : Repetitive behavior  Avoidance extinction  Intervention Index. décimale : PER Périodiques Résumé : Treatment options for maladaptive repetitive behaviors associated with autism are limited. This is particularly so for ritual and compulsive forms of repetitive behavior, which commonly interfere with adaptive activities and may cause distress to individuals with autism and their families. The present study assessed an avoidance extinction approach to treatment of frequent, idiosyncratic ritual and compulsive behaviors among a small clinical sample (n = 3) of adults with autism and intellectual disability. Single case experimental design results indicate that intervention achieved extinction for 2 of the 3 participants, with the third showing a marked decrease in target behavior. A distinct extinction pattern consistent with functionally avoidant behavior was noted for the two participants who best responded to treatment. En ligne : http://dx.doi.org/10.1007/s10803-012-1721-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=202 [article] Brief Report: Avoidance Extinction as Treatment for Compulsive and Ritual Behavior in Autism [Texte imprimé et/ou numérique] / Jason J. WOLFF, Auteur ; Susan C. HUPP, Auteur ; Frank J. SYMONS, Auteur . - 2013 . - p.1741-1746. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 43-7 (July 2013) . - p.1741-1746 Mots-clés : Repetitive behavior  Avoidance extinction  Intervention Index. décimale : PER Périodiques Résumé : Treatment options for maladaptive repetitive behaviors associated with autism are limited. This is particularly so for ritual and compulsive forms of repetitive behavior, which commonly interfere with adaptive activities and may cause distress to individuals with autism and their families. The present study assessed an avoidance extinction approach to treatment of frequent, idiosyncratic ritual and compulsive behaviors among a small clinical sample (n = 3) of adults with autism and intellectual disability. Single case experimental design results indicate that intervention achieved extinction for 2 of the 3 participants, with the third showing a marked decrease in target behavior. A distinct extinction pattern consistent with functionally avoidant behavior was noted for the two participants who best responded to treatment. En ligne : http://dx.doi.org/10.1007/s10803-012-1721-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=202

Issues in Pain Assessment for Adults with Severe to Profound Mental Retardation: From Research to Practice / James W. BODFISH

Public ISBD in Pain in Children and Adults with Developmental Disabilities / Tim F. OBERLANDER Titre : Issues in Pain Assessment for Adults with Severe to Profound Mental Retardation: From Research to Practice Type de document : Texte imprimé et/ou numérique Auteurs : James W. BODFISH, Auteur ; Vickie N. HARPER, Auteur ; Jennifer M. DEACON, Auteur ; Joseph R. DEACON, Auteur ; Frank J. SYMONS, Auteur Année de publication : 2006 Importance : p.173-192 Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=142 in Pain in Children and Adults with Developmental Disabilities / Tim F. OBERLANDER Issues in Pain Assessment for Adults with Severe to Profound Mental Retardation: From Research to Practice [Texte imprimé et/ou numérique] / James W. BODFISH, Auteur ; Vickie N. HARPER, Auteur ; Jennifer M. DEACON, Auteur ; Joseph R. DEACON, Auteur ; Frank J. SYMONS, Auteur . - 2006 . - p.173-192. Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=142

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Making needle procedures comfortable for autistic children: Caregiver perspectives / Olivia DOBSON in Research in Autism Spectrum Disorders, 107 (September 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 107 (September 2023) . - p.102208 Titre : Making needle procedures comfortable for autistic children: Caregiver perspectives Type de document : Texte imprimé et/ou numérique Auteurs : Olivia DOBSON, Auteur ; Frank J. SYMONS, Auteur ; C. Meghan MCMURTRY, Auteur Article en page(s) : p.102208 Langues : Anglais (eng) Mots-clés : Autism  Needles  Needle fear  Pain  Pain management  Vaccination Index. décimale : PER Périodiques Résumé : Background Autistic children are at greater risk for having difficulty undergoing needle procedures and poor management of their needle pain and fear. While there are general clinical practice guidelines (CPGs) available for managing pediatric needle pain and fear, it is unclear whether these strategies are appropriate for autistic children and their caregivers. Method The objective of this study was to explore caregiver perspectives on what is needed for needle procedures to be comfortable and CPGs to be appropriate for them and their autistic child. Twenty Canadian caregivers of autistic children were interviewed, including open-ended questions and ratings of how helpful CPG strategies would be for autistic children. Results Using reflexive thematic analysis, four themes were identified: 1) autistic children?s sense of autonomy is important; 2) external factors impact autistic children?s comfort (e.g., environment, familiarity, healthcare providers); 3) caregivers play a key role by preparing themselves and others before needle procedures and 4) it is essential to tailor CPG strategies to children?s needs. Conclusions Findings indicate that a child and family-centered approach is imperative to making needle procedures comfortable for autistic children. Practical recommendations for healthcare providers and caregivers are provided. En ligne : https://doi.org/10.1016/j.rasd.2023.102208 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=512 [article] Making needle procedures comfortable for autistic children: Caregiver perspectives [Texte imprimé et/ou numérique] / Olivia DOBSON, Auteur ; Frank J. SYMONS, Auteur ; C. Meghan MCMURTRY, Auteur . - p.102208. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 107 (September 2023) . - p.102208 Mots-clés : Autism  Needles  Needle fear  Pain  Pain management  Vaccination Index. décimale : PER Périodiques Résumé : Background Autistic children are at greater risk for having difficulty undergoing needle procedures and poor management of their needle pain and fear. While there are general clinical practice guidelines (CPGs) available for managing pediatric needle pain and fear, it is unclear whether these strategies are appropriate for autistic children and their caregivers. Method The objective of this study was to explore caregiver perspectives on what is needed for needle procedures to be comfortable and CPGs to be appropriate for them and their autistic child. Twenty Canadian caregivers of autistic children were interviewed, including open-ended questions and ratings of how helpful CPG strategies would be for autistic children. Results Using reflexive thematic analysis, four themes were identified: 1) autistic children?s sense of autonomy is important; 2) external factors impact autistic children?s comfort (e.g., environment, familiarity, healthcare providers); 3) caregivers play a key role by preparing themselves and others before needle procedures and 4) it is essential to tailor CPG strategies to children?s needs. Conclusions Findings indicate that a child and family-centered approach is imperative to making needle procedures comfortable for autistic children. Practical recommendations for healthcare providers and caregivers are provided. En ligne : https://doi.org/10.1016/j.rasd.2023.102208 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=512

Pain in Children and Adults with Developmental Disabilities / Tim F. OBERLANDER

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Proopiomelanocortin (POMC) sequencing and developmental delay: Preliminary evidence for a SNP in the 3’ UTR region of the POMC gene—Possible relevance for biological risk and self-injurious behavior / John A. DAMEROW in Development and Psychopathology, 31-2 (May 2019)  

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Translational Research Perspectives and Priorities / Frank J. SYMONS

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