[article] 
inResearch in Autism Spectrum Disorders > 77 (September 2020) . - 101598

Titre :	Helpful or harmful? A scoping review of perceptions and outcomes of autism diagnostic disclosure to others
Type de document :	Texte imprimé et/ou numérique
Auteurs :	Sandra THOMPSON-HODGETTS, Auteur ; Chantal LABONTE, Auteur ; Rinita MAZUMDER, Auteur ; Shanon PHELAN, Auteur
Article en page(s) :	101598
Langues :	Anglais (eng)
Mots-clés :	Autism  Diagnostic disclosure  Scoping review  Stigma
Index. décimale :	PER Périodiques
Résumé :	Background Deciding to disclose a diagnosis of autism to others can be a major decision for people with autism and their families. This scoping review summarizes existing literature related to perceptions and outcomes of disclosing an autism diagnosis to others (e.g., teachers, peers, employers). Methods We conducted a scoping review of scientific literature using Arksey and O’Malley’s (2005) methodological framework. Relevant English language databases and reference lists were searched using terms related to autism, disclosure, and perspective (e.g., attitude, accept*). Studies that focused on disclosure to the person with autism and/or their parents were excluded. Results A total of 37 articles met inclusion criteria, including 14 that presented the perspective of people with ASD, four that presented the perspective of parents/family members, and 20 that presented the perspective of others. Our findings highlight disconnect in perspectives between others (primarily evaluated through vignettes) and persons with autism (primarily elicited through qualitative interviews). Others perceive that disclosure has positive effects on social acceptance and perceptions of disability for people with autism, especially when explanatory information about autism was provided with the autism label. Adolescents and adults with autism indicated reluctance to disclose their diagnosis due to perceived negative outcomes and stigma. Existing research also reflected an assumption that diagnosis should be disclosed. Conclusions: Professionals and the general public should be aware of their assumptions related to autism and disclosure. More research on the processes and outcomes of diagnostic disclosure in autism, across the lifespan and in real life social contexts, is warranted.
En ligne :	https://doi.org/10.1016/j.rasd.2020.101598
Permalink :	https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432

[article] Helpful or harmful? A scoping review of perceptions and outcomes of autism diagnostic disclosure to others [Texte imprimé et/ou numérique] / Sandra THOMPSON-HODGETTS, Auteur ; Chantal LABONTE, Auteur ; Rinita MAZUMDER, Auteur ; Shanon PHELAN, Auteur . - 101598.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 77 (September 2020) . - 101598

Mots-clés :	Autism  Diagnostic disclosure  Scoping review  Stigma
Index. décimale :	PER Périodiques
Résumé :	Background Deciding to disclose a diagnosis of autism to others can be a major decision for people with autism and their families. This scoping review summarizes existing literature related to perceptions and outcomes of disclosing an autism diagnosis to others (e.g., teachers, peers, employers). Methods We conducted a scoping review of scientific literature using Arksey and O’Malley’s (2005) methodological framework. Relevant English language databases and reference lists were searched using terms related to autism, disclosure, and perspective (e.g., attitude, accept*). Studies that focused on disclosure to the person with autism and/or their parents were excluded. Results A total of 37 articles met inclusion criteria, including 14 that presented the perspective of people with ASD, four that presented the perspective of parents/family members, and 20 that presented the perspective of others. Our findings highlight disconnect in perspectives between others (primarily evaluated through vignettes) and persons with autism (primarily elicited through qualitative interviews). Others perceive that disclosure has positive effects on social acceptance and perceptions of disability for people with autism, especially when explanatory information about autism was provided with the autism label. Adolescents and adults with autism indicated reluctance to disclose their diagnosis due to perceived negative outcomes and stigma. Existing research also reflected an assumption that diagnosis should be disclosed. Conclusions: Professionals and the general public should be aware of their assumptions related to autism and disclosure. More research on the processes and outcomes of diagnostic disclosure in autism, across the lifespan and in real life social contexts, is warranted.
En ligne :	https://doi.org/10.1016/j.rasd.2020.101598
Permalink :	https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432