[article]
| Titre : |
From the side lines but in the trenches: the views of a parent group on Autism Care Pathways |
| Type de document : |
Texte imprimé et/ou numérique |
| Auteurs : |
William FARR, Auteur ; Anna WALKER, Auteur ; Nicola KING, Auteur ; Seema ISLAM, Auteur ; Zamir AKHTAR, Auteur ; Sophie MCGREVEY, Auteur |
| Article en page(s) : |
p.27-31 |
| Langues : |
Anglais (eng) |
| Résumé : |
The authors describe this paper as an opinion piece in that it presents the views of five parents who were part of a parent group which convened monthly between November 2019 and July 2022 to discuss their experiences of Autism Care Pathways. This was part of a larger project on Autism Care Pathways funded by NHS England called A Realist Evaluation of Autism Service Delivery (RE-ASceD). The parents discussed their views on how current pathways need to be enhanced. The diversity of the autism population is acknowledged and professionals and services need to reflect this. Areas for improvement are suggested which include better coordination between health, social care and education, greater knowledge of autism among front line professionals, improved communication with families in terms of support offered after diagnosis, and less dependence on voluntary groups and charities for this support. The use of online methods to obtain and give information developed during the pandemic is suggested as a cost-effective means of communication during the diagnostic process and beyond. The point is made though, that access for families who lack resources or from other cultures needs attention to ensure their children have an equitable service. |
| Permalink : |
https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 |
in Good Autism Practice - GAP > 23-2 (October 2022) . - p.27-31
[article] From the side lines but in the trenches: the views of a parent group on Autism Care Pathways [Texte imprimé et/ou numérique] / William FARR, Auteur ; Anna WALKER, Auteur ; Nicola KING, Auteur ; Seema ISLAM, Auteur ; Zamir AKHTAR, Auteur ; Sophie MCGREVEY, Auteur . - p.27-31. Langues : Anglais ( eng) in Good Autism Practice - GAP > 23-2 (October 2022) . - p.27-31
| Résumé : |
The authors describe this paper as an opinion piece in that it presents the views of five parents who were part of a parent group which convened monthly between November 2019 and July 2022 to discuss their experiences of Autism Care Pathways. This was part of a larger project on Autism Care Pathways funded by NHS England called A Realist Evaluation of Autism Service Delivery (RE-ASceD). The parents discussed their views on how current pathways need to be enhanced. The diversity of the autism population is acknowledged and professionals and services need to reflect this. Areas for improvement are suggested which include better coordination between health, social care and education, greater knowledge of autism among front line professionals, improved communication with families in terms of support offered after diagnosis, and less dependence on voluntary groups and charities for this support. The use of online methods to obtain and give information developed during the pandemic is suggested as a cost-effective means of communication during the diagnostic process and beyond. The point is made though, that access for families who lack resources or from other cultures needs attention to ensure their children have an equitable service. |
| Permalink : |
https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 |
|
From the side lines but in the trenches: the views of a parent group on Autism Care Pathways in Good Autism Practice - GAP, 23-2 (October 2022)