Making Research Possible: Barriers and Solutions For Those With ASD and ID / Audrey THURM in Journal of Autism and Developmental Disorders, 52-10 (October 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-10 (October 2022) . - p.4646-4650 Titre : Making Research Possible: Barriers and Solutions For Those With ASD and ID Type de document : Texte imprimé et/ou numérique Auteurs : Audrey THURM, Auteur ; Alycia K. HALLADAY, Auteur ; David MANDELL, Auteur ; Melissa MAYE, Auteur ; Sarah ETHRIDGE, Auteur ; Cristan FARMER, Auteur Article en page(s) : p.4646-4650 Langues : Anglais (eng) Mots-clés : Inclusion  Intellectual Disability  Participation  Research Index. décimale : PER Périodiques Résumé : Participation in research can provide direct and indirect benefit to individuals with autism spectrum disorder (ASD), their caregivers, families, and society at large. Unfortunately, individuals with high support needs, including those with intellectual disability, cognitive disability or minimal verbal ability, are often systematically excluded from research on ASD. This limits the ability to generalize discoveries to all people with ASD, and results in a disparity in who benefits from research. This piece outlines the importance and extent of the problem, which is part of a broader lack of inclusivity in ASD research. It also provides examples of studies that have directly addressed issues that arise when conducting inclusive research and makes recommendations for researchers to reduce disparities in research participation. En ligne : http://dx.doi.org/10.1007/s10803-021-05320-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486 [article] Making Research Possible: Barriers and Solutions For Those With ASD and ID [Texte imprimé et/ou numérique] / Audrey THURM, Auteur ; Alycia K. HALLADAY, Auteur ; David MANDELL, Auteur ; Melissa MAYE, Auteur ; Sarah ETHRIDGE, Auteur ; Cristan FARMER, Auteur . - p.4646-4650. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-10 (October 2022) . - p.4646-4650 Mots-clés : Inclusion  Intellectual Disability  Participation  Research Index. décimale : PER Périodiques Résumé : Participation in research can provide direct and indirect benefit to individuals with autism spectrum disorder (ASD), their caregivers, families, and society at large. Unfortunately, individuals with high support needs, including those with intellectual disability, cognitive disability or minimal verbal ability, are often systematically excluded from research on ASD. This limits the ability to generalize discoveries to all people with ASD, and results in a disparity in who benefits from research. This piece outlines the importance and extent of the problem, which is part of a broader lack of inclusivity in ASD research. It also provides examples of studies that have directly addressed issues that arise when conducting inclusive research and makes recommendations for researchers to reduce disparities in research participation. En ligne : http://dx.doi.org/10.1007/s10803-021-05320-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486

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