Listening to 'voiceless' subjects: gathering feedback to a sensory story from participants with profound intellectual and multiple disabilities / Joanna GRACE in Good Autism Practice - GAP, 23-2 (October 2022)

Public ISBD [article]  inGood Autism Practice - GAP > 23-2 (October 2022) . - p.5-12 Titre : Listening to 'voiceless' subjects: gathering feedback to a sensory story from participants with profound intellectual and multiple disabilities Type de document : Texte imprimé et/ou numérique Auteurs : Joanna GRACE, Auteur ; Sarah BELL, Auteur Article en page(s) : p.5-12 Langues : Anglais (eng) Résumé : In this paper, the authors make the point that the views of those with profound and multiple disabilities are often gained by proxy from parents or professionals and rarely from the people themselves. This is largely down to the fact that methods have not been developed to understand the communication of those who do not use conventional and standard forms of communication. In this paper, the authors describe part of a larger project where a sensory story was developed about a kayaking trip to give those who are unable to experience this a feeling of how it might be for them. People who knew the participants well were asked to fill in a Listening Sheet to give data on how the person usually expressed themselves and then the participants were filmed experiencing the story. They argue that this type of work will lead to an expansion of ideas on how to gain the voice of people with Profound and Multiple Learning Disabilities (PMLD) which will greatly enhance research and practice. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Listening to 'voiceless' subjects: gathering feedback to a sensory story from participants with profound intellectual and multiple disabilities [Texte imprimé et/ou numérique] / Joanna GRACE, Auteur ; Sarah BELL, Auteur . - p.5-12. Langues : Anglais (eng) in Good Autism Practice - GAP > 23-2 (October 2022) . - p.5-12 Résumé : In this paper, the authors make the point that the views of those with profound and multiple disabilities are often gained by proxy from parents or professionals and rarely from the people themselves. This is largely down to the fact that methods have not been developed to understand the communication of those who do not use conventional and standard forms of communication. In this paper, the authors describe part of a larger project where a sensory story was developed about a kayaking trip to give those who are unable to experience this a feeling of how it might be for them. People who knew the participants well were asked to fill in a Listening Sheet to give data on how the person usually expressed themselves and then the participants were filmed experiencing the story. They argue that this type of work will lead to an expansion of ideas on how to gain the voice of people with Profound and Multiple Learning Disabilities (PMLD) which will greatly enhance research and practice. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

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