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Auteur E. PELLICANO |
Documents disponibles écrits par cet auteur (20)
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'Something needs to change': Mental health experiences of young autistic adults in England / L. CRANE in Autism, 23-2 (February 2019)
[article]
Titre : 'Something needs to change': Mental health experiences of young autistic adults in England Type de document : Texte imprimé et/ou numérique Auteurs : L. CRANE, Auteur ; F. ADAMS, Auteur ; G. HARPER, Auteur ; J. WELCH, Auteur ; E. PELLICANO, Auteur Article en page(s) : p.477-493 Langues : Anglais (eng) Mots-clés : anxiety autism community-based participatory research depression mental health support youth Index. décimale : PER Périodiques Résumé : There is a high incidence and prevalence of mental health problems among young people, with several barriers to help-seeking noted in this group. High rates of mental health problems have also been reported in children and adults on the autism spectrum. Taken together, young autistic people may be a particularly vulnerable group when it comes to mental health. Yet, there has been remarkably little work on the mental health needs and experiences of young autistic adults (16-25 years). Adopting a community-based participatory research (CBPR) approach - in which academic researchers and young autistic adults collaborated in an equitable research partnership - we explored young autistic people's experiences of mental health problems and their perspectives on the support they sought, if any, for these problems. A total of 130 young autistic adults took part in the research: 109 completed an online survey and 21 took part in detailed interviews. The results highlight how young autistic people find it difficult to evaluate their mental health, experience high levels of stigma and often face severe obstacles when trying to access mental health support. The findings also demonstrate how listening to - and learning from - young autistic people is crucial in ensuring that their mental health needs are met. En ligne : http://dx.doi.org/10.1177/1362361318757048 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383
in Autism > 23-2 (February 2019) . - p.477-493[article] 'Something needs to change': Mental health experiences of young autistic adults in England [Texte imprimé et/ou numérique] / L. CRANE, Auteur ; F. ADAMS, Auteur ; G. HARPER, Auteur ; J. WELCH, Auteur ; E. PELLICANO, Auteur . - p.477-493.
Langues : Anglais (eng)
in Autism > 23-2 (February 2019) . - p.477-493
Mots-clés : anxiety autism community-based participatory research depression mental health support youth Index. décimale : PER Périodiques Résumé : There is a high incidence and prevalence of mental health problems among young people, with several barriers to help-seeking noted in this group. High rates of mental health problems have also been reported in children and adults on the autism spectrum. Taken together, young autistic people may be a particularly vulnerable group when it comes to mental health. Yet, there has been remarkably little work on the mental health needs and experiences of young autistic adults (16-25 years). Adopting a community-based participatory research (CBPR) approach - in which academic researchers and young autistic adults collaborated in an equitable research partnership - we explored young autistic people's experiences of mental health problems and their perspectives on the support they sought, if any, for these problems. A total of 130 young autistic adults took part in the research: 109 completed an online survey and 21 took part in detailed interviews. The results highlight how young autistic people find it difficult to evaluate their mental health, experience high levels of stigma and often face severe obstacles when trying to access mental health support. The findings also demonstrate how listening to - and learning from - young autistic people is crucial in ensuring that their mental health needs are met. En ligne : http://dx.doi.org/10.1177/1362361318757048 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383 Susceptibility to Ebbinghaus and Muller-Lyer illusions in autistic children: a comparison of three different methods / C. MANNING in Molecular Autism, 8 (2017)
[article]
Titre : Susceptibility to Ebbinghaus and Muller-Lyer illusions in autistic children: a comparison of three different methods Type de document : Texte imprimé et/ou numérique Auteurs : C. MANNING, Auteur ; M. J. MORGAN, Auteur ; C. T. W. ALLEN, Auteur ; E. PELLICANO, Auteur Article en page(s) : 16p. Langues : Anglais (eng) Mots-clés : Adolescent Autistic Disorder/*psychology Child Female Humans Male Optical Illusions/*physiology Pattern Recognition, Visual Photic Stimulation/*methods Size Perception *Autism *Cognitive bias *Context *Global processing *Perception *Response bias *Vision *Visual illusions Index. décimale : PER Périodiques Résumé : BACKGROUND: Studies reporting altered susceptibility to visual illusions in autistic individuals compared to that typically developing individuals have been taken to reflect differences in perception (e.g. reduced global processing), but could instead reflect differences in higher-level decision-making strategies. METHODS: We measured susceptibility to two contextual illusions (Ebbinghaus, Muller-Lyer) in autistic children aged 6-14 years and typically developing children matched in age and non-verbal ability using three methods. In experiment 1, we used a new two-alternative-forced-choice method with a roving pedestal designed to minimise cognitive biases. Here, children judged which of two comparison stimuli was most similar in size to a reference stimulus. In experiments 2 and 3, we used methods previously used with autistic populations. In experiment 2, children judged whether stimuli were the 'same' or 'different', and in experiment 3, we used a method-of-adjustment task. RESULTS: Across all tasks, autistic children were equally susceptible to the Ebbinghaus illusion as typically developing children. Autistic children showed a heightened susceptibility to the Muller-Lyer illusion, but only in the method-of-adjustment task. This result may reflect differences in decisional criteria. CONCLUSIONS: Our results are inconsistent with theories proposing reduced contextual integration in autism and suggest that previous reports of altered susceptibility to illusions may arise from differences in decision-making, rather than differences in perception per se. Our findings help to elucidate the underlying reasons for atypical responses to perceptual illusions in autism and call for the use of methods that reduce cognitive bias when measuring illusion susceptibility. En ligne : http://dx.doi.org/10.1186/s13229-017-0127-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=330
in Molecular Autism > 8 (2017) . - 16p.[article] Susceptibility to Ebbinghaus and Muller-Lyer illusions in autistic children: a comparison of three different methods [Texte imprimé et/ou numérique] / C. MANNING, Auteur ; M. J. MORGAN, Auteur ; C. T. W. ALLEN, Auteur ; E. PELLICANO, Auteur . - 16p.
Langues : Anglais (eng)
in Molecular Autism > 8 (2017) . - 16p.
Mots-clés : Adolescent Autistic Disorder/*psychology Child Female Humans Male Optical Illusions/*physiology Pattern Recognition, Visual Photic Stimulation/*methods Size Perception *Autism *Cognitive bias *Context *Global processing *Perception *Response bias *Vision *Visual illusions Index. décimale : PER Périodiques Résumé : BACKGROUND: Studies reporting altered susceptibility to visual illusions in autistic individuals compared to that typically developing individuals have been taken to reflect differences in perception (e.g. reduced global processing), but could instead reflect differences in higher-level decision-making strategies. METHODS: We measured susceptibility to two contextual illusions (Ebbinghaus, Muller-Lyer) in autistic children aged 6-14 years and typically developing children matched in age and non-verbal ability using three methods. In experiment 1, we used a new two-alternative-forced-choice method with a roving pedestal designed to minimise cognitive biases. Here, children judged which of two comparison stimuli was most similar in size to a reference stimulus. In experiments 2 and 3, we used methods previously used with autistic populations. In experiment 2, children judged whether stimuli were the 'same' or 'different', and in experiment 3, we used a method-of-adjustment task. RESULTS: Across all tasks, autistic children were equally susceptible to the Ebbinghaus illusion as typically developing children. Autistic children showed a heightened susceptibility to the Muller-Lyer illusion, but only in the method-of-adjustment task. This result may reflect differences in decisional criteria. CONCLUSIONS: Our results are inconsistent with theories proposing reduced contextual integration in autism and suggest that previous reports of altered susceptibility to illusions may arise from differences in decision-making, rather than differences in perception per se. Our findings help to elucidate the underlying reasons for atypical responses to perceptual illusions in autism and call for the use of methods that reduce cognitive bias when measuring illusion susceptibility. En ligne : http://dx.doi.org/10.1186/s13229-017-0127-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=330 'The dots just don't join up': Understanding the support needs of families of children on the autism spectrum / J. GALPIN in Autism, 22-5 (July 2018)
[article]
Titre : 'The dots just don't join up': Understanding the support needs of families of children on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : J. GALPIN, Auteur ; P. BARRATT, Auteur ; E. ASHCROFT, Auteur ; S. GREATHEAD, Auteur ; L. KENNY, Auteur ; E. PELLICANO, Auteur Article en page(s) : p.571-584 Langues : Anglais (eng) Mots-clés : autism education parents participatory research self-efficacy services support wellbeing Index. décimale : PER Périodiques Résumé : Much research has documented the elevated levels of stress experienced by families of autistic children. Yet remarkably little research has examined the types of support that these families perceive to be beneficial to their lives. This study, co-produced by researchers and school-based professionals, sought to establish these families' support needs from their own perspectives. In total, 139 parents of autistic children with additional intellectual disabilities and limited spoken communication, all attending an inner-city London school, participated in an initial survey examining parental wellbeing, self-efficacy and the extent to which they felt supported. Semi-structured interviews were conducted with a subgroup of parents ( n = 17), some of whom reported in the survey that they felt unsupported, in order to gain their in-depth perspectives. The results from both the survey and the interviews suggested that existing support (particularly from formal support services) was not meeting parents' needs, which ultimately made them feel isolated and alienated. Parents who were interviewed called for service provision that adopted a relational, family-centred approach - one that understands the specific needs of the whole family, builds a close working relationship with them and ensures that they are supported at times when the parents and families feel they need it most. En ligne : http://dx.doi.org/10.1177/1362361316687989 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=366
in Autism > 22-5 (July 2018) . - p.571-584[article] 'The dots just don't join up': Understanding the support needs of families of children on the autism spectrum [Texte imprimé et/ou numérique] / J. GALPIN, Auteur ; P. BARRATT, Auteur ; E. ASHCROFT, Auteur ; S. GREATHEAD, Auteur ; L. KENNY, Auteur ; E. PELLICANO, Auteur . - p.571-584.
Langues : Anglais (eng)
in Autism > 22-5 (July 2018) . - p.571-584
Mots-clés : autism education parents participatory research self-efficacy services support wellbeing Index. décimale : PER Périodiques Résumé : Much research has documented the elevated levels of stress experienced by families of autistic children. Yet remarkably little research has examined the types of support that these families perceive to be beneficial to their lives. This study, co-produced by researchers and school-based professionals, sought to establish these families' support needs from their own perspectives. In total, 139 parents of autistic children with additional intellectual disabilities and limited spoken communication, all attending an inner-city London school, participated in an initial survey examining parental wellbeing, self-efficacy and the extent to which they felt supported. Semi-structured interviews were conducted with a subgroup of parents ( n = 17), some of whom reported in the survey that they felt unsupported, in order to gain their in-depth perspectives. The results from both the survey and the interviews suggested that existing support (particularly from formal support services) was not meeting parents' needs, which ultimately made them feel isolated and alienated. Parents who were interviewed called for service provision that adopted a relational, family-centred approach - one that understands the specific needs of the whole family, builds a close working relationship with them and ensures that they are supported at times when the parents and families feel they need it most. En ligne : http://dx.doi.org/10.1177/1362361316687989 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=366 The Estimated Prevalence of Autism in School-Aged Children Living in Rural Nepal Using a Population-Based Screening Tool / M. HEYS in Journal of Autism and Developmental Disorders, 48-10 (October 2018)
[article]
Titre : The Estimated Prevalence of Autism in School-Aged Children Living in Rural Nepal Using a Population-Based Screening Tool Type de document : Texte imprimé et/ou numérique Auteurs : M. HEYS, Auteur ; F. GIBBONS, Auteur ; E. HAWORTH, Auteur ; E. MEDEIROS, Auteur ; K. M. TUMBAHANGPHE, Auteur ; M. WICKENDEN, Auteur ; M. SHRESTHA, Auteur ; A. COSTELLO, Auteur ; D. MANANDHAR, Auteur ; E. PELLICANO, Auteur Article en page(s) : p.3483-3498 Langues : Anglais (eng) Mots-clés : Autism Prevalence Screening Index. décimale : PER Périodiques Résumé : Few data exist on the prevalence of autism in low-income countries. We translated, adapted and tested the acceptability of a Nepali-language version of a screening tool for autism (Autism Quotient-10). Using this tool, we estimated autism prevalence in 4098 rural Nepali children aged 9-13 years. Fourteen children scored > 6 out of 10, indicative of elevated autistic symptomatology, of which 13 also screened positive for disability. If the AQ-10 screening tool is as sensitive and specific in the Nepali population as it is in the UK, this would yield an estimated true prevalence of 3 in 1000 (95% confidence interval 2-5 in 1000). Future research is required to validate this tool through in-depth assessments of high-scoring children. En ligne : http://dx.doi.org/10.1007/s10803-018-3610-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369
in Journal of Autism and Developmental Disorders > 48-10 (October 2018) . - p.3483-3498[article] The Estimated Prevalence of Autism in School-Aged Children Living in Rural Nepal Using a Population-Based Screening Tool [Texte imprimé et/ou numérique] / M. HEYS, Auteur ; F. GIBBONS, Auteur ; E. HAWORTH, Auteur ; E. MEDEIROS, Auteur ; K. M. TUMBAHANGPHE, Auteur ; M. WICKENDEN, Auteur ; M. SHRESTHA, Auteur ; A. COSTELLO, Auteur ; D. MANANDHAR, Auteur ; E. PELLICANO, Auteur . - p.3483-3498.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-10 (October 2018) . - p.3483-3498
Mots-clés : Autism Prevalence Screening Index. décimale : PER Périodiques Résumé : Few data exist on the prevalence of autism in low-income countries. We translated, adapted and tested the acceptability of a Nepali-language version of a screening tool for autism (Autism Quotient-10). Using this tool, we estimated autism prevalence in 4098 rural Nepali children aged 9-13 years. Fourteen children scored > 6 out of 10, indicative of elevated autistic symptomatology, of which 13 also screened positive for disability. If the AQ-10 screening tool is as sensitive and specific in the Nepali population as it is in the UK, this would yield an estimated true prevalence of 3 in 1000 (95% confidence interval 2-5 in 1000). Future research is required to validate this tool through in-depth assessments of high-scoring children. En ligne : http://dx.doi.org/10.1007/s10803-018-3610-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369 Understanding and awareness of autism among Somali parents living in the United Kingdom / A. M. HUSSEIN in Autism, 23-6 (August 2019)
[article]
Titre : Understanding and awareness of autism among Somali parents living in the United Kingdom Type de document : Texte imprimé et/ou numérique Auteurs : A. M. HUSSEIN, Auteur ; E. PELLICANO, Auteur ; L. CRANE, Auteur Article en page(s) : p.1408-1418 Langues : Anglais (eng) Mots-clés : Somali attitudes autism spectrum disorders culture migrant qualitative research Index. décimale : PER Périodiques Résumé : Using vignettes and interviews, this study examined understanding and awareness of autism, and (a)typical development more broadly, among 32 Somali parents living in the United Kingdom. Results demonstrated that parents of both autistic (n = 16) and non-autistic (n = 16) children were just as likely to identify vignettes of typically developing children, yet parents of autistic children appeared more astute to signs of atypical development. Across the whole sample, parents commonly identified and labelled vignettes of autistic children, but experienced more difficulty labelling vignettes that described children with other forms of atypical development, sometimes mislabeling these children as autistic. This suggests that there is a need for greater support in recognising and identifying different types of atypical development in the Somali community (to mitigate the risk that the term 'autism' may take on its own meaning within the Somali community, becoming a euphemism for a range of developmental conditions). Analysis of interview data identified key sociocultural factors that either helped or hindered the inclusion of families with autistic children within the community, including the Somali community's: (1) perceptions of disability, (2) beliefs about the causes of autism in the Western world and (3) strong reliance on religious beliefs in understanding and accepting an autism diagnosis. En ligne : http://dx.doi.org/10.1177/1362361318813996 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403
in Autism > 23-6 (August 2019) . - p.1408-1418[article] Understanding and awareness of autism among Somali parents living in the United Kingdom [Texte imprimé et/ou numérique] / A. M. HUSSEIN, Auteur ; E. PELLICANO, Auteur ; L. CRANE, Auteur . - p.1408-1418.
Langues : Anglais (eng)
in Autism > 23-6 (August 2019) . - p.1408-1418
Mots-clés : Somali attitudes autism spectrum disorders culture migrant qualitative research Index. décimale : PER Périodiques Résumé : Using vignettes and interviews, this study examined understanding and awareness of autism, and (a)typical development more broadly, among 32 Somali parents living in the United Kingdom. Results demonstrated that parents of both autistic (n = 16) and non-autistic (n = 16) children were just as likely to identify vignettes of typically developing children, yet parents of autistic children appeared more astute to signs of atypical development. Across the whole sample, parents commonly identified and labelled vignettes of autistic children, but experienced more difficulty labelling vignettes that described children with other forms of atypical development, sometimes mislabeling these children as autistic. This suggests that there is a need for greater support in recognising and identifying different types of atypical development in the Somali community (to mitigate the risk that the term 'autism' may take on its own meaning within the Somali community, becoming a euphemism for a range of developmental conditions). Analysis of interview data identified key sociocultural factors that either helped or hindered the inclusion of families with autistic children within the community, including the Somali community's: (1) perceptions of disability, (2) beliefs about the causes of autism in the Western world and (3) strong reliance on religious beliefs in understanding and accepting an autism diagnosis. En ligne : http://dx.doi.org/10.1177/1362361318813996 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403