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What should autism research focus upon? Community views and priorities from the United Kingdom / Elizabeth PELLICANO in Autism, 18-7 (October 2014)
[article]
Titre : What should autism research focus upon? Community views and priorities from the United Kingdom Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth PELLICANO, Auteur ; Adam DINSMORE, Auteur ; Tony CHARMAN, Auteur Article en page(s) : p.756-770 Langues : Anglais (eng) Mots-clés : autism community autism research decision-making priority setting Index. décimale : PER Périodiques Résumé : The rise in the measured prevalence of autism has been accompanied by much new research and research investment internationally. This study sought to establish whether the pattern of current UK autism research funding maps on to the concerns of the autism community. Interviews and focus groups were conducted with autistic adults, family members, practitioners and researchers to identify their priorities for research. We also captured the views of a large number of stakeholders via an online survey. There was a clear disparity between the United Kingdom’s pattern of funding for autism research and the priorities articulated by the majority of participants. There was general consensus that future priorities for autism research should lie in those areas that make a difference to people’s day-to-day lives. There needs to be greater involvement of the autism community both in priority setting and in research more broadly to ensure that resources reach where they are most needed and can make the most impact. En ligne : http://dx.doi.org/10.1177/1362361314529627 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241
in Autism > 18-7 (October 2014) . - p.756-770[article] What should autism research focus upon? Community views and priorities from the United Kingdom [Texte imprimé et/ou numérique] / Elizabeth PELLICANO, Auteur ; Adam DINSMORE, Auteur ; Tony CHARMAN, Auteur . - p.756-770.
Langues : Anglais (eng)
in Autism > 18-7 (October 2014) . - p.756-770
Mots-clés : autism community autism research decision-making priority setting Index. décimale : PER Périodiques Résumé : The rise in the measured prevalence of autism has been accompanied by much new research and research investment internationally. This study sought to establish whether the pattern of current UK autism research funding maps on to the concerns of the autism community. Interviews and focus groups were conducted with autistic adults, family members, practitioners and researchers to identify their priorities for research. We also captured the views of a large number of stakeholders via an online survey. There was a clear disparity between the United Kingdom’s pattern of funding for autism research and the priorities articulated by the majority of participants. There was general consensus that future priorities for autism research should lie in those areas that make a difference to people’s day-to-day lives. There needs to be greater involvement of the autism community both in priority setting and in research more broadly to ensure that resources reach where they are most needed and can make the most impact. En ligne : http://dx.doi.org/10.1177/1362361314529627 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241 "I'm Proud to be a Little Bit Different": The Effects of Autistic Individuals' Perceptions of Autism and Autism Social Identity on Their Collective Self-esteem / Rosalind COOPER in Journal of Autism and Developmental Disorders, 51-2 (February 2021)
[article]
Titre : "I'm Proud to be a Little Bit Different": The Effects of Autistic Individuals' Perceptions of Autism and Autism Social Identity on Their Collective Self-esteem Type de document : Texte imprimé et/ou numérique Auteurs : Rosalind COOPER, Auteur ; Kate COOPER, Auteur ; Ailsa J RUSSELL, Auteur ; Laura G. E. SMITH, Auteur Article en page(s) : p.704-714 Langues : Anglais (eng) Mots-clés : Autism community Autism spectrum disorders Autism strengths Self-esteem Social identity Index. décimale : PER Périodiques Résumé : This study aimed to identify the attributes that autistic people perceive as positively and negatively impacting on their identity and wellbeing. In Study 1, we recruited 140 autistic participants for an online survey. Participants completed autism social identification and collective self-esteem measures and listed attributes they associated with autism. In Study 2, we conducted focus groups with 15 autistic people to explore how positively they perceived the attributes of autism. Participants then discussed the autism attributes in relation to their own experiences and identity. We found a positive relationship between the number of positive attributes participants associated with autism, and their collective self-esteem, to the extent that they identified with other autistic people. En ligne : http://dx.doi.org/10.1007/s10803-020-04575-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=440
in Journal of Autism and Developmental Disorders > 51-2 (February 2021) . - p.704-714[article] "I'm Proud to be a Little Bit Different": The Effects of Autistic Individuals' Perceptions of Autism and Autism Social Identity on Their Collective Self-esteem [Texte imprimé et/ou numérique] / Rosalind COOPER, Auteur ; Kate COOPER, Auteur ; Ailsa J RUSSELL, Auteur ; Laura G. E. SMITH, Auteur . - p.704-714.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-2 (February 2021) . - p.704-714
Mots-clés : Autism community Autism spectrum disorders Autism strengths Self-esteem Social identity Index. décimale : PER Périodiques Résumé : This study aimed to identify the attributes that autistic people perceive as positively and negatively impacting on their identity and wellbeing. In Study 1, we recruited 140 autistic participants for an online survey. Participants completed autism social identification and collective self-esteem measures and listed attributes they associated with autism. In Study 2, we conducted focus groups with 15 autistic people to explore how positively they perceived the attributes of autism. Participants then discussed the autism attributes in relation to their own experiences and identity. We found a positive relationship between the number of positive attributes participants associated with autism, and their collective self-esteem, to the extent that they identified with other autistic people. En ligne : http://dx.doi.org/10.1007/s10803-020-04575-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=440