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Parent reported barriers and facilitators to support services for autistic children in Aotearoa New Zealand / Carla WALLACE-WATKIN in Autism, 27-8 (November 2023)
[article]
Titre : Parent reported barriers and facilitators to support services for autistic children in Aotearoa New Zealand Type de document : Texte imprimé et/ou numérique Auteurs : Carla WALLACE-WATKIN, Auteur ; Jeff SIGAFOOS, Auteur ; Lisa WOODS, Auteur ; Hannah WADDINGTON, Auteur Article en page(s) : p.2542-2554 Mots-clés : barriers facilitators parent perspectives support services New Zealand Index. décimale : PER Périodiques Résumé : We surveyed New Zealand parents of autistic children to identify their perceived barriers and facilitators to accessing support services, including the influence of a family?s level of financial resourcing. A total of 173 completed surveys were analysed. Service pathway factors were the greatest barrier experienced by participants, whereas facilitators related to providers tended to be most helpful. Lower family income was associated with a higher number of reported barriers. Both lower family income and having a child who identified their gender as non-binary were predictive of rating the extent of barriers higher. Parents of younger or of non-speaking autistic children on average reported a greater number of facilitators. Implications of these results for support service delivery and potential areas for future research are discussed.Lay abstractParents might have problems in getting support services for their autistic child due to certain barriers. However, there might also be things that can ease or facilitate parents' access to support services. In this study, New Zealand parents were asked about their experiences in getting support services for their autistic child. We also looked at differences in reported barriers and facilitators based on several demographic factors with a focus on family level of financial resourcing. A total of 173 parents completed a survey. The results suggested that parents experienced several barriers, particularly related to service pathways. Facilitators were also experienced, predominantly related to providers. Financial resourcing predicted the number of parent-reported barriers. Both lower level of family financial resourcing and having a non-binary child predicted parents' rating of the extent of barriers. Child age and level of speech were predictors for reports of experiencing a higher number of facilitators, with parents of younger children or of non-speaking autistic children reporting a greater number of facilitators. We discuss how these results may be useful to support service delivery and identify areas for future research. En ligne : http://dx.doi.org/10.1177/13623613231168240 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=514
in Autism > 27-8 (November 2023) . - p.2542-2554[article] Parent reported barriers and facilitators to support services for autistic children in Aotearoa New Zealand [Texte imprimé et/ou numérique] / Carla WALLACE-WATKIN, Auteur ; Jeff SIGAFOOS, Auteur ; Lisa WOODS, Auteur ; Hannah WADDINGTON, Auteur . - p.2542-2554.
in Autism > 27-8 (November 2023) . - p.2542-2554
Mots-clés : barriers facilitators parent perspectives support services New Zealand Index. décimale : PER Périodiques Résumé : We surveyed New Zealand parents of autistic children to identify their perceived barriers and facilitators to accessing support services, including the influence of a family?s level of financial resourcing. A total of 173 completed surveys were analysed. Service pathway factors were the greatest barrier experienced by participants, whereas facilitators related to providers tended to be most helpful. Lower family income was associated with a higher number of reported barriers. Both lower family income and having a child who identified their gender as non-binary were predictive of rating the extent of barriers higher. Parents of younger or of non-speaking autistic children on average reported a greater number of facilitators. Implications of these results for support service delivery and potential areas for future research are discussed.Lay abstractParents might have problems in getting support services for their autistic child due to certain barriers. However, there might also be things that can ease or facilitate parents' access to support services. In this study, New Zealand parents were asked about their experiences in getting support services for their autistic child. We also looked at differences in reported barriers and facilitators based on several demographic factors with a focus on family level of financial resourcing. A total of 173 parents completed a survey. The results suggested that parents experienced several barriers, particularly related to service pathways. Facilitators were also experienced, predominantly related to providers. Financial resourcing predicted the number of parent-reported barriers. Both lower level of family financial resourcing and having a non-binary child predicted parents' rating of the extent of barriers. Child age and level of speech were predictors for reports of experiencing a higher number of facilitators, with parents of younger children or of non-speaking autistic children reporting a greater number of facilitators. We discuss how these results may be useful to support service delivery and identify areas for future research. En ligne : http://dx.doi.org/10.1177/13623613231168240 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=514 A Study of Asian Children Who are Diagnosed with Autism Spectrum Disorder and Available Support Services in Auckland, New Zealand / Myint HTUT in Journal of Autism and Developmental Disorders, 50-6 (June 2020)
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Titre : A Study of Asian Children Who are Diagnosed with Autism Spectrum Disorder and Available Support Services in Auckland, New Zealand Type de document : Texte imprimé et/ou numérique Auteurs : Myint HTUT, Auteur ; Elsie HO, Auteur ; Janine WILES, Auteur Article en page(s) : p.1855-1865 Langues : Anglais (eng) Mots-clés : Asian Demographic characteristics Equity Fragmentation Support services Index. décimale : PER Périodiques Résumé : This study reviews the demographic characteristics of Asian children diagnosed with autism spectrum disorder (ASD) in Auckland, New Zealand, the support services they can access, and how more equitable access to health services can be provided. We examined government and non-government support services for Asian children diagnosed with ASD and their families. The findings reflect the complexities of navigating and accessing health, disability, education and social support services. Analysis of Ministry of Health Disability Support Services (DSSs) data suggest that Asians in New Zealand are underrepresented in utilizing DSSs. Drawing on Andersen's health care utilization model, suggestions for more equitable access to health, disability, education and social support include culturally and linguistically appropriate health care and social policies. En ligne : http://dx.doi.org/10.1007/s10803-019-03936-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425
in Journal of Autism and Developmental Disorders > 50-6 (June 2020) . - p.1855-1865[article] A Study of Asian Children Who are Diagnosed with Autism Spectrum Disorder and Available Support Services in Auckland, New Zealand [Texte imprimé et/ou numérique] / Myint HTUT, Auteur ; Elsie HO, Auteur ; Janine WILES, Auteur . - p.1855-1865.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-6 (June 2020) . - p.1855-1865
Mots-clés : Asian Demographic characteristics Equity Fragmentation Support services Index. décimale : PER Périodiques Résumé : This study reviews the demographic characteristics of Asian children diagnosed with autism spectrum disorder (ASD) in Auckland, New Zealand, the support services they can access, and how more equitable access to health services can be provided. We examined government and non-government support services for Asian children diagnosed with ASD and their families. The findings reflect the complexities of navigating and accessing health, disability, education and social support services. Analysis of Ministry of Health Disability Support Services (DSSs) data suggest that Asians in New Zealand are underrepresented in utilizing DSSs. Drawing on Andersen's health care utilization model, suggestions for more equitable access to health, disability, education and social support include culturally and linguistically appropriate health care and social policies. En ligne : http://dx.doi.org/10.1007/s10803-019-03936-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425 “I just don’t fit anywhere”: support experiences and future support needs of individuals with Asperger syndrome in middle adulthood / Gemma Maria GRIFFITH in Autism, 16-5 (September 2012)
[article]
Titre : “I just don’t fit anywhere”: support experiences and future support needs of individuals with Asperger syndrome in middle adulthood Type de document : Texte imprimé et/ou numérique Auteurs : Gemma Maria GRIFFITH, Auteur ; Vasiliki TOTSIKA, Auteur ; Susie NASH, Auteur ; Richard P. HASTINGS, Auteur Article en page(s) : p.532-546 Langues : Anglais (eng) Mots-clés : Asperger syndrome support services qualitative adults Index. décimale : PER Périodiques Résumé : The experiences of individuals in middle adulthood with Asperger syndrome have been the subject of little previous research, especially in terms of their experience of support services. In the present research, 11 adults with Asperger syndrome were interviewed. Interpretative phenomenological analysis (IPA) was used to interpret the interviews. Four themes emerged from the analysis: living with Asperger syndrome; employment issues; experiences with mainstream support; and future steps towards supporting adults with Asperger syndrome. The findings highlighted the anxiety, depression, and communication difficulties that people with Asperger syndrome may experience. Much of the available support is perceived as unsuitable for individuals with Asperger syndrome. All participants wanted to remain as independent as possible, and believed an individualized approach to support would be greatly beneficial. Recommendations are made for future practice to help support adults with Asperger syndrome. En ligne : http://dx.doi.org/10.1177/1362361311405223 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=182
in Autism > 16-5 (September 2012) . - p.532-546[article] “I just don’t fit anywhere”: support experiences and future support needs of individuals with Asperger syndrome in middle adulthood [Texte imprimé et/ou numérique] / Gemma Maria GRIFFITH, Auteur ; Vasiliki TOTSIKA, Auteur ; Susie NASH, Auteur ; Richard P. HASTINGS, Auteur . - p.532-546.
Langues : Anglais (eng)
in Autism > 16-5 (September 2012) . - p.532-546
Mots-clés : Asperger syndrome support services qualitative adults Index. décimale : PER Périodiques Résumé : The experiences of individuals in middle adulthood with Asperger syndrome have been the subject of little previous research, especially in terms of their experience of support services. In the present research, 11 adults with Asperger syndrome were interviewed. Interpretative phenomenological analysis (IPA) was used to interpret the interviews. Four themes emerged from the analysis: living with Asperger syndrome; employment issues; experiences with mainstream support; and future steps towards supporting adults with Asperger syndrome. The findings highlighted the anxiety, depression, and communication difficulties that people with Asperger syndrome may experience. Much of the available support is perceived as unsuitable for individuals with Asperger syndrome. All participants wanted to remain as independent as possible, and believed an individualized approach to support would be greatly beneficial. Recommendations are made for future practice to help support adults with Asperger syndrome. En ligne : http://dx.doi.org/10.1177/1362361311405223 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=182 'At the End of the Day, It's Love': An Exploration of Relationships in Neurodiverse Couples / R. SMITH in Journal of Autism and Developmental Disorders, 51-9 (September 2021)
[article]
Titre : 'At the End of the Day, It's Love': An Exploration of Relationships in Neurodiverse Couples Type de document : Texte imprimé et/ou numérique Auteurs : R. SMITH, Auteur ; J. NETTO, Auteur ; N. C. GRIBBLE, Auteur ; M. FALKMER, Auteur Article en page(s) : p.3311-3321 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis Humans Interpersonal Relations Love Sexual Behavior Sexual Partners Autism Intimate relationships Neurotypical Partners Relationships Support services Index. décimale : PER Périodiques Résumé : Most autistic people report challenges in initiating and developing intimate, long-term relationships. We used a phenomenological approach to interview thirteen people who were in a neurodiverse intimate relationship (where one partner had a diagnosis of autism) in order to explore the challenges and facilitators both neurotypical and autistic partners experienced. Analysis revealed that ND relationships progressed along similar pathways as non-ND relationships. Facilitators included the strength-based roles that each partner took on and the genuine support and care for each other. Challenges were reported in communication, difficulties reading and interpreting emotions, and idiosyncratic characteristics of the autistic partner. Strategies that both partners used to cope with these challenges and their perspectives of relationship-support services are also presented. En ligne : http://dx.doi.org/10.1007/s10803-020-04790-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3311-3321[article] 'At the End of the Day, It's Love': An Exploration of Relationships in Neurodiverse Couples [Texte imprimé et/ou numérique] / R. SMITH, Auteur ; J. NETTO, Auteur ; N. C. GRIBBLE, Auteur ; M. FALKMER, Auteur . - p.3311-3321.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3311-3321
Mots-clés : Autism Spectrum Disorder/diagnosis Humans Interpersonal Relations Love Sexual Behavior Sexual Partners Autism Intimate relationships Neurotypical Partners Relationships Support services Index. décimale : PER Périodiques Résumé : Most autistic people report challenges in initiating and developing intimate, long-term relationships. We used a phenomenological approach to interview thirteen people who were in a neurodiverse intimate relationship (where one partner had a diagnosis of autism) in order to explore the challenges and facilitators both neurotypical and autistic partners experienced. Analysis revealed that ND relationships progressed along similar pathways as non-ND relationships. Facilitators included the strength-based roles that each partner took on and the genuine support and care for each other. Challenges were reported in communication, difficulties reading and interpreting emotions, and idiosyncratic characteristics of the autistic partner. Strategies that both partners used to cope with these challenges and their perspectives of relationship-support services are also presented. En ligne : http://dx.doi.org/10.1007/s10803-020-04790-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 Family-focused autism spectrum disorder research: A review of the utility of family systems approaches / Elizabeth K. CRIDLAND in Autism, 18-3 (April 2014)
[article]
Titre : Family-focused autism spectrum disorder research: A review of the utility of family systems approaches Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth K. CRIDLAND, Auteur ; Sandra C. JONES, Auteur ; Christopher A. MAGEE, Auteur ; Peter CAPUTI, Auteur Article en page(s) : p.213-222 Langues : Anglais (eng) Mots-clés : ambiguous loss autism spectrum disorders dyad family functioning family systems holistic approaches resilience subsystem support services stress traumatic growth Index. décimale : PER Périodiques Résumé : A family member with an autism spectrum disorder presents pervasive and bidirectional influences on the entire family system, suggesting a need for family-focused autism spectrum disorder research. While there has been increasing interest in this research area, family-focused autism spectrum disorder research can still be considered relatively recent, and there are limitations to the existing literature. The purpose of this article is to provide theoretical and methodological directions for future family-focused autism spectrum disorder research. In particular, this article proposes Family Systems approaches as a common theoretical framework for future family-focused autism spectrum disorder research by considering theoretical concepts such as Boundaries, Ambiguous Loss, Resilience and Traumatic Growth. We discuss reasons why these concepts are important to researching families living with autism spectrum disorder and provide recommendations for future research. The potential for research grounded in Family Systems approaches to influence clinical support services is also discussed. En ligne : http://dx.doi.org/10.1177/1362361312472261 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=229
in Autism > 18-3 (April 2014) . - p.213-222[article] Family-focused autism spectrum disorder research: A review of the utility of family systems approaches [Texte imprimé et/ou numérique] / Elizabeth K. CRIDLAND, Auteur ; Sandra C. JONES, Auteur ; Christopher A. MAGEE, Auteur ; Peter CAPUTI, Auteur . - p.213-222.
Langues : Anglais (eng)
in Autism > 18-3 (April 2014) . - p.213-222
Mots-clés : ambiguous loss autism spectrum disorders dyad family functioning family systems holistic approaches resilience subsystem support services stress traumatic growth Index. décimale : PER Périodiques Résumé : A family member with an autism spectrum disorder presents pervasive and bidirectional influences on the entire family system, suggesting a need for family-focused autism spectrum disorder research. While there has been increasing interest in this research area, family-focused autism spectrum disorder research can still be considered relatively recent, and there are limitations to the existing literature. The purpose of this article is to provide theoretical and methodological directions for future family-focused autism spectrum disorder research. In particular, this article proposes Family Systems approaches as a common theoretical framework for future family-focused autism spectrum disorder research by considering theoretical concepts such as Boundaries, Ambiguous Loss, Resilience and Traumatic Growth. We discuss reasons why these concepts are important to researching families living with autism spectrum disorder and provide recommendations for future research. The potential for research grounded in Family Systems approaches to influence clinical support services is also discussed. En ligne : http://dx.doi.org/10.1177/1362361312472261 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=229