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Factors influencing the mental health of autistic children and teenagers: Parents' observations and experiences / Suzanne MUKHERJEE in Autism, 27-8 (November 2023)
[article]
Titre : Factors influencing the mental health of autistic children and teenagers: Parents' observations and experiences Type de document : Texte imprimé et/ou numérique Auteurs : Suzanne MUKHERJEE, Auteur ; Bryony BERESFORD, Auteur Article en page(s) : p.2324-2336 Mots-clés : adolescence autism children mental health parents qualitative research teenagers Index. décimale : PER Périodiques Résumé : The high prevalence of mental health and behaviour problems among autistic children and adults is an issue of concern to the autism community. Many studies have been undertaken to identify the factors that protect against/or increase the risk of such difficulties. However, this research is dominated by quantitative observational studies. In this study, we sought to investigate the same issue using a qualitative research approach, positioning parents as experts and eliciting their theories as to what influenced their child?s mental health from diagnosis to the late teenage years. In-depth interviews were undertaken with 33 parents (30 mothers, 3 fathers) of 31 autistic teenagers (21 males, 10 females) aged between 15 and 19?years (median 17?years) purposively sampled from an existing cohort (QUEST). Parents believed a wide range of child-centred, developmental and socio-environmental factors had played a role in their child?s mental health, alongside life events involving loss and separation. A number of these factors have received little or no research attention to date (e.g. aspects of the school environment). The findings have important implications, highlighting factors that should be given priority in future research, as well as interventions needed to support the mental health of autistic teenagers.Lay abstractAutistic people are more likely to experience mental health difficulties compared to neurotypical people. It is very important that we understand what increases the risk for mental health difficulties, and what helps to protect against them. So far, research on this for children and young people has only investigated a small number of factors and these have been chosen by researchers and clinicians. This study took a different approach in which parents' expertise in their children was recognised. Parents were asked to tell the story of their autistic teenagers' mental health from diagnosis in early childhood through to the present, and to explain the 'theories' they developed about what affected their child?s mental health - positively and negatively - and how. Parents believed a wide range of factors played a role. These include: (1) aspects of their child (e.g. their autistic traits, intelligence); (2) aspects of their surroundings (e.g. the efforts parents make to prevent and respond to their child?s difficulties, features of the school they attend, availability of social activities); (3) changes their child experienced growing up (e.g. puberty, awareness of being autistic); and (4) life events involving loss and separation. Many of the factors parents identified as important have received little or no research attention to date. The findings suggest issues that should be considered in future research and reveal ways that support for parents and autistic children and teenagers can be improved. En ligne : http://dx.doi.org/10.1177/13623613231158959 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=513
in Autism > 27-8 (November 2023) . - p.2324-2336[article] Factors influencing the mental health of autistic children and teenagers: Parents' observations and experiences [Texte imprimé et/ou numérique] / Suzanne MUKHERJEE, Auteur ; Bryony BERESFORD, Auteur . - p.2324-2336.
in Autism > 27-8 (November 2023) . - p.2324-2336
Mots-clés : adolescence autism children mental health parents qualitative research teenagers Index. décimale : PER Périodiques Résumé : The high prevalence of mental health and behaviour problems among autistic children and adults is an issue of concern to the autism community. Many studies have been undertaken to identify the factors that protect against/or increase the risk of such difficulties. However, this research is dominated by quantitative observational studies. In this study, we sought to investigate the same issue using a qualitative research approach, positioning parents as experts and eliciting their theories as to what influenced their child?s mental health from diagnosis to the late teenage years. In-depth interviews were undertaken with 33 parents (30 mothers, 3 fathers) of 31 autistic teenagers (21 males, 10 females) aged between 15 and 19?years (median 17?years) purposively sampled from an existing cohort (QUEST). Parents believed a wide range of child-centred, developmental and socio-environmental factors had played a role in their child?s mental health, alongside life events involving loss and separation. A number of these factors have received little or no research attention to date (e.g. aspects of the school environment). The findings have important implications, highlighting factors that should be given priority in future research, as well as interventions needed to support the mental health of autistic teenagers.Lay abstractAutistic people are more likely to experience mental health difficulties compared to neurotypical people. It is very important that we understand what increases the risk for mental health difficulties, and what helps to protect against them. So far, research on this for children and young people has only investigated a small number of factors and these have been chosen by researchers and clinicians. This study took a different approach in which parents' expertise in their children was recognised. Parents were asked to tell the story of their autistic teenagers' mental health from diagnosis in early childhood through to the present, and to explain the 'theories' they developed about what affected their child?s mental health - positively and negatively - and how. Parents believed a wide range of factors played a role. These include: (1) aspects of their child (e.g. their autistic traits, intelligence); (2) aspects of their surroundings (e.g. the efforts parents make to prevent and respond to their child?s difficulties, features of the school they attend, availability of social activities); (3) changes their child experienced growing up (e.g. puberty, awareness of being autistic); and (4) life events involving loss and separation. Many of the factors parents identified as important have received little or no research attention to date. The findings suggest issues that should be considered in future research and reveal ways that support for parents and autistic children and teenagers can be improved. En ligne : http://dx.doi.org/10.1177/13623613231158959 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=513 Sleep and daytime functioning in autistic teenagers: A psychological network approach / I. M. G. SCHOUWENAARS in Research in Autism Spectrum Disorders, 112 (April 2024)
[article]
Titre : Sleep and daytime functioning in autistic teenagers: A psychological network approach Type de document : Texte imprimé et/ou numérique Auteurs : I. M. G. SCHOUWENAARS, Auteur ; M. J. C. M. MAGNÉE, Auteur ; H. M. GEURTS, Auteur ; C. A. M. VAN BENNEKOM, Auteur ; S. PILLEN, Auteur ; L. J. WALDORP, Auteur ; T. F. BLANKEN, Auteur ; J. P. TEUNISSE, Auteur Article en page(s) : p.102332 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Sleep Teenagers Daytime functioning Network approach Index. décimale : PER Périodiques Résumé : Background Although sleep problems in autistic teenagers are associated with impaired daytime functioning, it remains unclear how sleep and daytime functioning are related. Method We used a network approach to disentangle patterns between sleep, sleep hygiene, and daytime functioning. Over a three-week period, 31 autistic teenagers answered daily questions about sleep and daytime functioning. Sleep tracker data were collected from 14 of the teenagers. We preregistered the analysis plan for this study at AsPredicted (#34594; https://aspredicted.org/blind.php?x = 3c4t65). Results Perceived sleep quality seemed to be the most important sleep variable in relation to daytime functioning (self/parent/teacher reports). We also found that sleep onset latency, total sleep time, and wake time after sleep onset were related to daytime functioning, but mostly indirectly through perceived sleep quality. Conclusion These findings are important for developing sleep interventions because perceived sleep quality would be a logical target for increasing the likelihood of actually improving daytime functioning. En ligne : https://doi.org/10.1016/j.rasd.2024.102332 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523
in Research in Autism Spectrum Disorders > 112 (April 2024) . - p.102332[article] Sleep and daytime functioning in autistic teenagers: A psychological network approach [Texte imprimé et/ou numérique] / I. M. G. SCHOUWENAARS, Auteur ; M. J. C. M. MAGNÉE, Auteur ; H. M. GEURTS, Auteur ; C. A. M. VAN BENNEKOM, Auteur ; S. PILLEN, Auteur ; L. J. WALDORP, Auteur ; T. F. BLANKEN, Auteur ; J. P. TEUNISSE, Auteur . - p.102332.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 112 (April 2024) . - p.102332
Mots-clés : Autism spectrum disorder Sleep Teenagers Daytime functioning Network approach Index. décimale : PER Périodiques Résumé : Background Although sleep problems in autistic teenagers are associated with impaired daytime functioning, it remains unclear how sleep and daytime functioning are related. Method We used a network approach to disentangle patterns between sleep, sleep hygiene, and daytime functioning. Over a three-week period, 31 autistic teenagers answered daily questions about sleep and daytime functioning. Sleep tracker data were collected from 14 of the teenagers. We preregistered the analysis plan for this study at AsPredicted (#34594; https://aspredicted.org/blind.php?x = 3c4t65). Results Perceived sleep quality seemed to be the most important sleep variable in relation to daytime functioning (self/parent/teacher reports). We also found that sleep onset latency, total sleep time, and wake time after sleep onset were related to daytime functioning, but mostly indirectly through perceived sleep quality. Conclusion These findings are important for developing sleep interventions because perceived sleep quality would be a logical target for increasing the likelihood of actually improving daytime functioning. En ligne : https://doi.org/10.1016/j.rasd.2024.102332 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523 Increased Prevalence of Unusual Sensory Behaviors in Infants at Risk for, and Teens with, Autism Spectrum Disorder / H. M. VAN ETTEN in Journal of Autism and Developmental Disorders, 47-11 (November 2017)
[article]
Titre : Increased Prevalence of Unusual Sensory Behaviors in Infants at Risk for, and Teens with, Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : H. M. VAN ETTEN, Auteur ; M. KAUR, Auteur ; S. M. SRINIVASAN, Auteur ; S. J. COHEN, Auteur ; Anjana N. BHAT, Auteur ; K. R. DOBKINS, Auteur Article en page(s) : p.3431-3445 Langues : Anglais (eng) Mots-clés : Asd High-risk siblings Sensory atypicalities Sensory processing Sensory profile Teenagers Index. décimale : PER Périodiques Résumé : The current study investigated the prevalence and pattern of unusual sensory behaviors (USBs) in teens with Autism Spectrum Disorder (ASD) and infants (3-36 months) at risk for ASD. From two different sites (UCSD and UConn), caregivers of infants at high (n = 32) and low risk (n = 33) for ASD, and teenagers with (n = 12) and without ASD (n = 11), completed age-appropriate Sensory Profile questionnaires (Infant/Toddler Sensory Profile; Dunn 2002; Adolescent/Adult Sensory Profile; Brown and Dunn 2002). The results show that high-risk infants and teenagers with ASD exhibit higher-than-typical prevalence of USBs. Results of our distribution analyses investigating the direction of sensory atypicalities (greater-than-typical vs. less-than-typical) revealed a fair degree of consistency amongst teens, however, USB patterns were more varied in high-risk infants. En ligne : http://dx.doi.org/10.1007/s10803-017-3227-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=324
in Journal of Autism and Developmental Disorders > 47-11 (November 2017) . - p.3431-3445[article] Increased Prevalence of Unusual Sensory Behaviors in Infants at Risk for, and Teens with, Autism Spectrum Disorder [Texte imprimé et/ou numérique] / H. M. VAN ETTEN, Auteur ; M. KAUR, Auteur ; S. M. SRINIVASAN, Auteur ; S. J. COHEN, Auteur ; Anjana N. BHAT, Auteur ; K. R. DOBKINS, Auteur . - p.3431-3445.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-11 (November 2017) . - p.3431-3445
Mots-clés : Asd High-risk siblings Sensory atypicalities Sensory processing Sensory profile Teenagers Index. décimale : PER Périodiques Résumé : The current study investigated the prevalence and pattern of unusual sensory behaviors (USBs) in teens with Autism Spectrum Disorder (ASD) and infants (3-36 months) at risk for ASD. From two different sites (UCSD and UConn), caregivers of infants at high (n = 32) and low risk (n = 33) for ASD, and teenagers with (n = 12) and without ASD (n = 11), completed age-appropriate Sensory Profile questionnaires (Infant/Toddler Sensory Profile; Dunn 2002; Adolescent/Adult Sensory Profile; Brown and Dunn 2002). The results show that high-risk infants and teenagers with ASD exhibit higher-than-typical prevalence of USBs. Results of our distribution analyses investigating the direction of sensory atypicalities (greater-than-typical vs. less-than-typical) revealed a fair degree of consistency amongst teens, however, USB patterns were more varied in high-risk infants. En ligne : http://dx.doi.org/10.1007/s10803-017-3227-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=324 What time do you plan to sleep tonight? An intense longitudinal study of adolescent daily sleep self-regulation via planning and its associations with sleep opportunity / Svetlana MASKEVICH in Journal of Child Psychology and Psychiatry, 63-8 (August 2022)
[article]
Titre : What time do you plan to sleep tonight? An intense longitudinal study of adolescent daily sleep self-regulation via planning and its associations with sleep opportunity Type de document : Texte imprimé et/ou numérique Auteurs : Svetlana MASKEVICH, Auteur ; Lin SHEN, Auteur ; Sean P. A. DRUMMOND, Auteur ; Bei BEI, Auteur Article en page(s) : p.900-911 Langues : Anglais (eng) Mots-clés : Actigraphy Adolescent Female Humans Longitudinal Studies Male Schools Self-Control Sleep/physiology Adolescents planning sleep restriction sleep self-regulation teenagers unconstrained sleep Index. décimale : PER Périodiques Résumé : BACKGROUND: Most adolescents are sleep deprived on school days, yet how they self-regulate their sleep-wake behaviours is poorly understood. Using ecological momentary assessment, this intense longitudinal study explored patterns of adolescents' daily bedtime and risetime planning and execution, and whether these behaviours predicted sleep opportunity. METHODS: Every afternoon, for 2 school weeks and the subsequent 2 vacation weeks, 205 (54.1% female, 64.4% non-White) adolescents from year 10 to 12 (MÂ+SD(age) =16.9Â+0.9) reported their plans for bedtime (BT) that evening, and for risetimes (RT) the following day. Actual daily sleep was measured via actigraphy and sleep diary. RESULTS: Some adolescents never planned bedtime (school 19.5%, non-school 53.2%) or risetime (school 1.5%, non-school 24.4%). More adolescents planned consistently (â¥75% of days) on school (BT=29.9%, RT=61.3%) compared to non-school nights (BT=3.5%, RT=2.5%). On average, adolescents went to bed later than planned, with longer delays on non-school (71min) compared to school nights (46min). Of those who executed their plans within 15min, more did it consistently (â¥75% of days) on school (BT=40.9%, RT=67.7%) than on non-school nights/days (BT=29.7%, RT=58.6%). Mixed effects models utilizing daily data, controlling for sex, race, and study day, showed that bedtime planning predicted longer time in bed (TIB; p<.01) on school and shorter TIB on non-school nights (p<.01); and greater delay in actual (compared to planned) BT predicted shorter TIB (p<.001). CONCLUSIONS: Adolescents may require support during the transition from parent-controlled to autonomous sleep self-regulation. Bedtime planning on school nights and going to bed as planned are two modifiable sleep regulatory behaviours that are protective and potential therapeutic targets for increasing sleep opportunity in adolescents. En ligne : http://dx.doi.org/10.1111/jcpp.13540 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486
in Journal of Child Psychology and Psychiatry > 63-8 (August 2022) . - p.900-911[article] What time do you plan to sleep tonight? An intense longitudinal study of adolescent daily sleep self-regulation via planning and its associations with sleep opportunity [Texte imprimé et/ou numérique] / Svetlana MASKEVICH, Auteur ; Lin SHEN, Auteur ; Sean P. A. DRUMMOND, Auteur ; Bei BEI, Auteur . - p.900-911.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 63-8 (August 2022) . - p.900-911
Mots-clés : Actigraphy Adolescent Female Humans Longitudinal Studies Male Schools Self-Control Sleep/physiology Adolescents planning sleep restriction sleep self-regulation teenagers unconstrained sleep Index. décimale : PER Périodiques Résumé : BACKGROUND: Most adolescents are sleep deprived on school days, yet how they self-regulate their sleep-wake behaviours is poorly understood. Using ecological momentary assessment, this intense longitudinal study explored patterns of adolescents' daily bedtime and risetime planning and execution, and whether these behaviours predicted sleep opportunity. METHODS: Every afternoon, for 2 school weeks and the subsequent 2 vacation weeks, 205 (54.1% female, 64.4% non-White) adolescents from year 10 to 12 (MÂ+SD(age) =16.9Â+0.9) reported their plans for bedtime (BT) that evening, and for risetimes (RT) the following day. Actual daily sleep was measured via actigraphy and sleep diary. RESULTS: Some adolescents never planned bedtime (school 19.5%, non-school 53.2%) or risetime (school 1.5%, non-school 24.4%). More adolescents planned consistently (â¥75% of days) on school (BT=29.9%, RT=61.3%) compared to non-school nights (BT=3.5%, RT=2.5%). On average, adolescents went to bed later than planned, with longer delays on non-school (71min) compared to school nights (46min). Of those who executed their plans within 15min, more did it consistently (â¥75% of days) on school (BT=40.9%, RT=67.7%) than on non-school nights/days (BT=29.7%, RT=58.6%). Mixed effects models utilizing daily data, controlling for sex, race, and study day, showed that bedtime planning predicted longer time in bed (TIB; p<.01) on school and shorter TIB on non-school nights (p<.01); and greater delay in actual (compared to planned) BT predicted shorter TIB (p<.001). CONCLUSIONS: Adolescents may require support during the transition from parent-controlled to autonomous sleep self-regulation. Bedtime planning on school nights and going to bed as planned are two modifiable sleep regulatory behaviours that are protective and potential therapeutic targets for increasing sleep opportunity in adolescents. En ligne : http://dx.doi.org/10.1111/jcpp.13540 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486