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Sociodemographic Disparities in Intervention Service Utilization in Families of Children with Autism Spectrum Disorder / Cathina T. NGUYEN in Journal of Autism and Developmental Disorders, 46-12 (December 2016)
[article]
Titre : Sociodemographic Disparities in Intervention Service Utilization in Families of Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Cathina T. NGUYEN, Auteur ; Paula KRAKOWIAK, Auteur ; Robin HANSEN, Auteur ; Irva HERTZ-PICCIOTTO, Auteur ; Kathleen ANGKUSTSIRI, Auteur Article en page(s) : p.3729-3738 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Intervention services Utilization Family characteristics Index. décimale : PER Périodiques Résumé : This study investigates whether sociodemographic factors are associated with utilization of intervention services for children with autism spectrum disorder (ASD) enrolled in the Childhood Autism Risks from Genetics and the Environment Study. Maternal ethnicity, insurance status, and education for 696 families of children with ASD were available. Children of Black mothers entered intervention earlier compared to White mothers (2 vs. 2.6 years; p?=?0.001). Having public insurance was associated with receiving <15 h/week of individual services, while having a Bachelor degree was associated with receiving <15 h/week of classroom-based services. These differences suggest that SES may be a factor in utilization of services. Efforts should be made to ensure that interventions offered are culturally and linguistically accessible. En ligne : http://dx.doi.org/10.1007/s10803-016-2913-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297
in Journal of Autism and Developmental Disorders > 46-12 (December 2016) . - p.3729-3738[article] Sociodemographic Disparities in Intervention Service Utilization in Families of Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Cathina T. NGUYEN, Auteur ; Paula KRAKOWIAK, Auteur ; Robin HANSEN, Auteur ; Irva HERTZ-PICCIOTTO, Auteur ; Kathleen ANGKUSTSIRI, Auteur . - p.3729-3738.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 46-12 (December 2016) . - p.3729-3738
Mots-clés : Autism spectrum disorder Intervention services Utilization Family characteristics Index. décimale : PER Périodiques Résumé : This study investigates whether sociodemographic factors are associated with utilization of intervention services for children with autism spectrum disorder (ASD) enrolled in the Childhood Autism Risks from Genetics and the Environment Study. Maternal ethnicity, insurance status, and education for 696 families of children with ASD were available. Children of Black mothers entered intervention earlier compared to White mothers (2 vs. 2.6 years; p?=?0.001). Having public insurance was associated with receiving <15 h/week of individual services, while having a Bachelor degree was associated with receiving <15 h/week of classroom-based services. These differences suggest that SES may be a factor in utilization of services. Efforts should be made to ensure that interventions offered are culturally and linguistically accessible. En ligne : http://dx.doi.org/10.1007/s10803-016-2913-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297 Emergency department use among young adult Medicare beneficiaries with autism and intellectual disabilities / Teal W. BENEVIDES in Research in Autism Spectrum Disorders, 70 (February 2020)
[article]
Titre : Emergency department use among young adult Medicare beneficiaries with autism and intellectual disabilities Type de document : Texte imprimé et/ou numérique Auteurs : Teal W. BENEVIDES, Auteur ; Henry J. CARRETTA, Auteur ; Katelyn Y. GRAVES, Auteur ; Veronica SIKKA, Auteur Article en page(s) : p.101470 Langues : Anglais (eng) Mots-clés : Emergency department Utilization Autism spectrum disorder Medicare Young adult Intellectual disability Health services Index. décimale : PER Périodiques Résumé : Background Individuals on the autism spectrum are at greater risk for a variety of co-occurring psychiatric and medical conditions, which could result in greater emergency department (ED) use. We aimed to identify rates of ED utilization among transition-age young adults with autism and examine predictors of utilization in a U.S. national data source. Methods We conducted a retrospective analysis of Centers for Medicare and Medicaid 2010 Limited Data Set claims from Inpatient and Outpatient files. Medicare beneficiaries aged 18–25 years from three groups were included: autism spectrum disorder (ASD) and no intellectual disability (ID), ASD and ID, and ID-only. Primary outcomes were annual ED visit counts and dichotomous presence of ED visit in claim year. Results Between 43–54% of adults with ASD had an ED visit in the past claim year. Significant predictors of greater ED utilization among adults with ASD included: intellectual disability (IRR=1.19, 95%CI:1.09–1.30), psychiatric utilization in the claim year (IRR=1.42, 95%CI:1.28–1.57), and greater comorbidities as assessed with ACG® risk score (IRR=1.18, 95%CI:1.15–1.20). Minority status was associated with less ED utilization among adults with ASD (IRR=0.86, 95%CI:0.78–0.94). Adults with ASD had significantly fewer annual ED visits than adults with ID-only after controlling for other variables. Conclusions Prevention efforts to reduce ED utilization, especially for those with ID and ASD with co-occurring psychiatric conditions, is warranted. Primary care providers and case managers should develop care plans to reduce the likelihood for emergency psychiatric utilization and ensure alternative care pathways. ED clinicians may require additional training to address the needs of this population when they present to the ED in crisis. En ligne : https://doi.org/10.1016/j.rasd.2019.101470 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414
in Research in Autism Spectrum Disorders > 70 (February 2020) . - p.101470[article] Emergency department use among young adult Medicare beneficiaries with autism and intellectual disabilities [Texte imprimé et/ou numérique] / Teal W. BENEVIDES, Auteur ; Henry J. CARRETTA, Auteur ; Katelyn Y. GRAVES, Auteur ; Veronica SIKKA, Auteur . - p.101470.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 70 (February 2020) . - p.101470
Mots-clés : Emergency department Utilization Autism spectrum disorder Medicare Young adult Intellectual disability Health services Index. décimale : PER Périodiques Résumé : Background Individuals on the autism spectrum are at greater risk for a variety of co-occurring psychiatric and medical conditions, which could result in greater emergency department (ED) use. We aimed to identify rates of ED utilization among transition-age young adults with autism and examine predictors of utilization in a U.S. national data source. Methods We conducted a retrospective analysis of Centers for Medicare and Medicaid 2010 Limited Data Set claims from Inpatient and Outpatient files. Medicare beneficiaries aged 18–25 years from three groups were included: autism spectrum disorder (ASD) and no intellectual disability (ID), ASD and ID, and ID-only. Primary outcomes were annual ED visit counts and dichotomous presence of ED visit in claim year. Results Between 43–54% of adults with ASD had an ED visit in the past claim year. Significant predictors of greater ED utilization among adults with ASD included: intellectual disability (IRR=1.19, 95%CI:1.09–1.30), psychiatric utilization in the claim year (IRR=1.42, 95%CI:1.28–1.57), and greater comorbidities as assessed with ACG® risk score (IRR=1.18, 95%CI:1.15–1.20). Minority status was associated with less ED utilization among adults with ASD (IRR=0.86, 95%CI:0.78–0.94). Adults with ASD had significantly fewer annual ED visits than adults with ID-only after controlling for other variables. Conclusions Prevention efforts to reduce ED utilization, especially for those with ID and ASD with co-occurring psychiatric conditions, is warranted. Primary care providers and case managers should develop care plans to reduce the likelihood for emergency psychiatric utilization and ensure alternative care pathways. ED clinicians may require additional training to address the needs of this population when they present to the ED in crisis. En ligne : https://doi.org/10.1016/j.rasd.2019.101470 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 Genetic Testing Experiences Among Parents of Children with Autism Spectrum Disorder in the United States / S. ZHAO in Journal of Autism and Developmental Disorders, 49-12 (December 2019)
[article]
Titre : Genetic Testing Experiences Among Parents of Children with Autism Spectrum Disorder in the United States Type de document : Texte imprimé et/ou numérique Auteurs : S. ZHAO, Auteur ; W. J. CHEN, Auteur ; S. U. DHAR, Auteur ; T. N. EBLE, Auteur ; O. M. KWOK, Auteur ; L. S. CHEN, Auteur Article en page(s) : p.4821-4833 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Experience Genetic testing Parents Utilization Index. décimale : PER Périodiques Résumé : This study examined the experiences of Autism Spectrum Disorder (ASD) genetic testing among parents of children with ASD. A nationwide sample of 552 parents of children with ASD completed an online survey. Nearly one-quarter (22.5%) of the parents reported that their affected children had undergone ASD genetic testing. The testing utilization was associated with awareness of ASD genetic testing and whether information was received from healthcare providers. Among parents whose children with ASD were tested, 37.6% had negative experiences, which mainly due to lack of perceived testing benefits to their affected children and unpleasant testing experiences with healthcare providers. To provide better healthcare services, it is critical to ensure parents understand the purposes, benefits, and results of ASD genetic testing. En ligne : http://dx.doi.org/10.1007/s10803-019-04200-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=411
in Journal of Autism and Developmental Disorders > 49-12 (December 2019) . - p.4821-4833[article] Genetic Testing Experiences Among Parents of Children with Autism Spectrum Disorder in the United States [Texte imprimé et/ou numérique] / S. ZHAO, Auteur ; W. J. CHEN, Auteur ; S. U. DHAR, Auteur ; T. N. EBLE, Auteur ; O. M. KWOK, Auteur ; L. S. CHEN, Auteur . - p.4821-4833.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-12 (December 2019) . - p.4821-4833
Mots-clés : Autism spectrum disorder Experience Genetic testing Parents Utilization Index. décimale : PER Périodiques Résumé : This study examined the experiences of Autism Spectrum Disorder (ASD) genetic testing among parents of children with ASD. A nationwide sample of 552 parents of children with ASD completed an online survey. Nearly one-quarter (22.5%) of the parents reported that their affected children had undergone ASD genetic testing. The testing utilization was associated with awareness of ASD genetic testing and whether information was received from healthcare providers. Among parents whose children with ASD were tested, 37.6% had negative experiences, which mainly due to lack of perceived testing benefits to their affected children and unpleasant testing experiences with healthcare providers. To provide better healthcare services, it is critical to ensure parents understand the purposes, benefits, and results of ASD genetic testing. En ligne : http://dx.doi.org/10.1007/s10803-019-04200-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=411 Age-Related Variation in Health Service Use and Associated Expenditures Among Children with Autism / Zuleyha CIDAV in Journal of Autism and Developmental Disorders, 43-4 (April 2013)
[article]
Titre : Age-Related Variation in Health Service Use and Associated Expenditures Among Children with Autism Type de document : Texte imprimé et/ou numérique Auteurs : Zuleyha CIDAV, Auteur ; Lindsay LAWER, Auteur ; Steven C. MARCUS, Auteur ; David S. MANDELL, Auteur Article en page(s) : p.924-931 Langues : Anglais (eng) Mots-clés : Autism Economics Cost Expenditures Utilization Medicaid Age variation Index. décimale : PER Périodiques Résumé : This study examined differences by age in service use and associated expenditures during 2005 for Medicaid-enrolled children with autism spectrum disorders. Aging was associated with significantly higher use and costs for restrictive, institution-based care and lower use and costs for community-based therapeutic services. Total expenditures increased by 5 % with each year of age; by 23 % between 3–5 and 6–11 year olds, 23 % between 6–11 and 12–16, and 14 % between 12–16 and 17–20 year olds. Use of and expenditures for long-term care, psychiatric medications, case management, medication management, day treatment/partial hospitalization, and respite services increased with age; use of and expenditures for occupational/physical therapy, speech therapy, mental health services, diagnostic/assessment services, and family therapy declined. En ligne : http://dx.doi.org/10.1007/s10803-012-1637-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=194
in Journal of Autism and Developmental Disorders > 43-4 (April 2013) . - p.924-931[article] Age-Related Variation in Health Service Use and Associated Expenditures Among Children with Autism [Texte imprimé et/ou numérique] / Zuleyha CIDAV, Auteur ; Lindsay LAWER, Auteur ; Steven C. MARCUS, Auteur ; David S. MANDELL, Auteur . - p.924-931.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 43-4 (April 2013) . - p.924-931
Mots-clés : Autism Economics Cost Expenditures Utilization Medicaid Age variation Index. décimale : PER Périodiques Résumé : This study examined differences by age in service use and associated expenditures during 2005 for Medicaid-enrolled children with autism spectrum disorders. Aging was associated with significantly higher use and costs for restrictive, institution-based care and lower use and costs for community-based therapeutic services. Total expenditures increased by 5 % with each year of age; by 23 % between 3–5 and 6–11 year olds, 23 % between 6–11 and 12–16, and 14 % between 12–16 and 17–20 year olds. Use of and expenditures for long-term care, psychiatric medications, case management, medication management, day treatment/partial hospitalization, and respite services increased with age; use of and expenditures for occupational/physical therapy, speech therapy, mental health services, diagnostic/assessment services, and family therapy declined. En ligne : http://dx.doi.org/10.1007/s10803-012-1637-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=194 Changes in spending and service use after a state autism insurance mandate / B. SALONER in Autism, 23-1 (January 2019)
[article]
Titre : Changes in spending and service use after a state autism insurance mandate Type de document : Texte imprimé et/ou numérique Auteurs : B. SALONER, Auteur ; C. L. BARRY, Auteur Article en page(s) : p.167-174 Langues : Anglais (eng) Mots-clés : access to care health insurance insurance mandate out-of-pocket spending utilization spectrum disorder children impact costs Psychology Index. décimale : PER Périodiques Résumé : Almost all states have insurance coverage mandates for childhood autism spectrum disorder treatment, yet little is known about how mandates affect spending and service use. We evaluated a 2011 Kansas law mandating comprehensive coverage of autism spectrum disorder treatments in the State Employee Health Plan. Data were extracted from the Kansas All-Payer Claims Database from 2009 to 2013 for enrollees of State Employee Health Plan and private health plans. The sample included children aged 0-18 years with >2 claims with an autism spectrum disorder diagnosis insured through State Employee Health Plan or a comparison group enrolled through private health plans. We estimated differences-in-differences regression models to compare trends among State Employee Health Plan to privately insured children. Average annual total spending on autism spectrum disorder services increased by US$912 (95% confidence interval: US$331-US$1492) and average annual out-of-pocket spending on autism spectrum disorder services increased by US$138 (95% confidence interval: US$53-US$223) among diagnosed children in the State Employee Health Plan relative to the comparison group following the mandate, representing 92% and 75% increases over baseline total and out-of-pocket autism spectrum disorder spending, respectively. Average annual quantity of outpatient autism spectrum disorder services increased by 15.0 services (95% confidence interval: 8.4-21.6) among children in the State Employee Health Plan, more than doubling the baseline average. Implementation of a comprehensive autism spectrum disorder mandate in the Kansas State Employee Health Plan was associated with substantial increases in service use and spending for autism spectrum disorder treatment among autism spectrum disorder-diagnosed children. En ligne : http://dx.doi.org/10.1177/1362361317728205 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379
in Autism > 23-1 (January 2019) . - p.167-174[article] Changes in spending and service use after a state autism insurance mandate [Texte imprimé et/ou numérique] / B. SALONER, Auteur ; C. L. BARRY, Auteur . - p.167-174.
Langues : Anglais (eng)
in Autism > 23-1 (January 2019) . - p.167-174
Mots-clés : access to care health insurance insurance mandate out-of-pocket spending utilization spectrum disorder children impact costs Psychology Index. décimale : PER Périodiques Résumé : Almost all states have insurance coverage mandates for childhood autism spectrum disorder treatment, yet little is known about how mandates affect spending and service use. We evaluated a 2011 Kansas law mandating comprehensive coverage of autism spectrum disorder treatments in the State Employee Health Plan. Data were extracted from the Kansas All-Payer Claims Database from 2009 to 2013 for enrollees of State Employee Health Plan and private health plans. The sample included children aged 0-18 years with >2 claims with an autism spectrum disorder diagnosis insured through State Employee Health Plan or a comparison group enrolled through private health plans. We estimated differences-in-differences regression models to compare trends among State Employee Health Plan to privately insured children. Average annual total spending on autism spectrum disorder services increased by US$912 (95% confidence interval: US$331-US$1492) and average annual out-of-pocket spending on autism spectrum disorder services increased by US$138 (95% confidence interval: US$53-US$223) among diagnosed children in the State Employee Health Plan relative to the comparison group following the mandate, representing 92% and 75% increases over baseline total and out-of-pocket autism spectrum disorder spending, respectively. Average annual quantity of outpatient autism spectrum disorder services increased by 15.0 services (95% confidence interval: 8.4-21.6) among children in the State Employee Health Plan, more than doubling the baseline average. Implementation of a comprehensive autism spectrum disorder mandate in the Kansas State Employee Health Plan was associated with substantial increases in service use and spending for autism spectrum disorder treatment among autism spectrum disorder-diagnosed children. En ligne : http://dx.doi.org/10.1177/1362361317728205 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379