Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort / L. Casey WHITE in Journal of Autism and Developmental Disorders, 51-10 (October 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3766-3773 Titre : Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort Type de document : texte imprimé Auteurs : L. Casey WHITE, Auteur ; J. Kiely LAW, Auteur ; Amy M. DANIELS, Auteur ; Jaimie TORONEY, Auteur ; Brianna VERNOIA, Auteur ; Sabrina XIAO, Auteur ; Pamela FELICIANO, Auteur ; Wendy K. CHUNG, Auteur Article en page(s) : p.3766-3773 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder  Covid-19  Caregivers  Child  Humans  SARS-CoV-2  United States  Autism spectrum disorder  Services  Stress  Telehealth Index. décimale : PER Périodiques Résumé : The impact of the 2019 coronavirus pandemic (COVID-19) in the United States is unprecedented, with unknown implications for the autism community. We surveyed 3502 parents/caregivers of individuals with an autism spectrum disorder (ASD) enrolled in Simons Powering Autism Research for Knowledge (SPARK) and found that most individuals with ASD experienced significant, ongoing disruptions to therapies. While some services were adapted to telehealth format, most participants were not receiving such services at follow-up, and those who were reported minimal benefit. Children under age five had the most severely disrupted services and lowest reported benefit of telehealth adaptation. Caregivers also reported worsening ASD symptoms and moderate family distress. Strategies to support the ASD community should be immediately developed and implemented. En ligne : http://dx.doi.org/10.1007/s10803-020-04816-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 [article] Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort [texte imprimé] / L. Casey WHITE, Auteur ; J. Kiely LAW, Auteur ; Amy M. DANIELS, Auteur ; Jaimie TORONEY, Auteur ; Brianna VERNOIA, Auteur ; Sabrina XIAO, Auteur ; Pamela FELICIANO, Auteur ; Wendy K. CHUNG, Auteur . - p.3766-3773. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3766-3773 Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder  Covid-19  Caregivers  Child  Humans  SARS-CoV-2  United States  Autism spectrum disorder  Services  Stress  Telehealth Index. décimale : PER Périodiques Résumé : The impact of the 2019 coronavirus pandemic (COVID-19) in the United States is unprecedented, with unknown implications for the autism community. We surveyed 3502 parents/caregivers of individuals with an autism spectrum disorder (ASD) enrolled in Simons Powering Autism Research for Knowledge (SPARK) and found that most individuals with ASD experienced significant, ongoing disruptions to therapies. While some services were adapted to telehealth format, most participants were not receiving such services at follow-up, and those who were reported minimal benefit. Children under age five had the most severely disrupted services and lowest reported benefit of telehealth adaptation. Caregivers also reported worsening ASD symptoms and moderate family distress. Strategies to support the ASD community should be immediately developed and implemented. En ligne : http://dx.doi.org/10.1007/s10803-020-04816-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453

Brief report: Measures of effectiveness for single-question sleep problem screeners in children with autism spectrum disorder / Alison R. MARVIN in Research in Autism Spectrum Disorders, 80 (February 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 80 (February 2021) . - p.101699 Titre : Brief report: Measures of effectiveness for single-question sleep problem screeners in children with autism spectrum disorder Type de document : texte imprimé Auteurs : Alison R. MARVIN, Auteur ; Daniel L. COURY, Auteur ; Beth A. MALOW, Auteur ; J. Kiely LAW, Auteur ; Amanda E. BENNETT, Auteur Article en page(s) : p.101699 Langues : Anglais (eng) Mots-clés : Autism  Sleep  Composite Sleep Disturbance Index  Screening  Primary care  Psychometrics Index. décimale : PER Périodiques Résumé : Background Although screening for sleep problems in children with ASD is recommended, primary care providers generally ask parents a single, high-level screening question about their child’s sleep. Can this capture whether a child has severe sleep problems? Method Parents of children with ASD ages 3–17 years recruited from a validated and verified US-based autism research registry completed an online survey on co-occurring conditions, including “degree of sleep problems”. The Composite Sleep Disturbance Index (CSDI) and its question on “parent satisfaction with current sleep pattern” were also incorporated. Results 610 parent/child dyads were analyzed. 377 (62%) children had severe sleep problems per CSDI; 215 (57%) were parent-rated with Moderate/Severe sleep problems. 219 (93%) of 233 children without a severe sleep problem on CSDI were parent-rated as having None/Mild sleep problems. 94% with Moderate/Severe sleep problems per parents had severe sleep problems per CSDI. However, 15% of those whose parents rated as None had a severe sleep problem. 200 (33%) children had a Mild sleep problem rating; of these, 134 (67%) had CSDI severe sleep problem and 66 (33%) did not. Conclusions A single question about sleep was good at classifying severe vs. non-severe sleep problems in children with ASD, especially with extreme responses. However, a single question was poor at classifying intermediate/non-extreme responses, and a significant number of children with severe sleep problems were missed. Screening with a short, validated questionnaire or asking more probing questions would assist in diagnosing most children with sleep problems. Parents may benefit from sleep education. En ligne : https://doi.org/10.1016/j.rasd.2020.101699 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=438 [article] Brief report: Measures of effectiveness for single-question sleep problem screeners in children with autism spectrum disorder [texte imprimé] / Alison R. MARVIN, Auteur ; Daniel L. COURY, Auteur ; Beth A. MALOW, Auteur ; J. Kiely LAW, Auteur ; Amanda E. BENNETT, Auteur . - p.101699. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 80 (February 2021) . - p.101699 Mots-clés : Autism  Sleep  Composite Sleep Disturbance Index  Screening  Primary care  Psychometrics Index. décimale : PER Périodiques Résumé : Background Although screening for sleep problems in children with ASD is recommended, primary care providers generally ask parents a single, high-level screening question about their child’s sleep. Can this capture whether a child has severe sleep problems? Method Parents of children with ASD ages 3–17 years recruited from a validated and verified US-based autism research registry completed an online survey on co-occurring conditions, including “degree of sleep problems”. The Composite Sleep Disturbance Index (CSDI) and its question on “parent satisfaction with current sleep pattern” were also incorporated. Results 610 parent/child dyads were analyzed. 377 (62%) children had severe sleep problems per CSDI; 215 (57%) were parent-rated with Moderate/Severe sleep problems. 219 (93%) of 233 children without a severe sleep problem on CSDI were parent-rated as having None/Mild sleep problems. 94% with Moderate/Severe sleep problems per parents had severe sleep problems per CSDI. However, 15% of those whose parents rated as None had a severe sleep problem. 200 (33%) children had a Mild sleep problem rating; of these, 134 (67%) had CSDI severe sleep problem and 66 (33%) did not. Conclusions A single question about sleep was good at classifying severe vs. non-severe sleep problems in children with ASD, especially with extreme responses. However, a single question was poor at classifying intermediate/non-extreme responses, and a significant number of children with severe sleep problems were missed. Screening with a short, validated questionnaire or asking more probing questions would assist in diagnosing most children with sleep problems. Parents may benefit from sleep education. En ligne : https://doi.org/10.1016/j.rasd.2020.101699 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=438

Correction: The Autism Impact Measure (AIM): Meaningful Change Thresholds and Core Symptom Changes Over One Year from an Online Survey in the U.S / Mariabeth SILKEY in Journal of Autism and Developmental Disorders, 53-3 (March 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-3 (March 2023) . - p.1298-1298 Titre : Correction: The Autism Impact Measure (AIM): Meaningful Change Thresholds and Core Symptom Changes Over One Year from an Online Survey in the U.S Type de document : texte imprimé Auteurs : Mariabeth SILKEY, Auteur ; Gonzalo DURÁN-PACHECO, Auteur ; Michelle JOHNSON, Auteur ; Chuang LIU, Auteur ; Susanne CLINCH, Auteur ; J. Kiely LAW, Auteur ; Georg LOSS, Auteur Article en page(s) : p.1298-1298 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-022-05700-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 [article] Correction: The Autism Impact Measure (AIM): Meaningful Change Thresholds and Core Symptom Changes Over One Year from an Online Survey in the U.S [texte imprimé] / Mariabeth SILKEY, Auteur ; Gonzalo DURÁN-PACHECO, Auteur ; Michelle JOHNSON, Auteur ; Chuang LIU, Auteur ; Susanne CLINCH, Auteur ; J. Kiely LAW, Auteur ; Georg LOSS, Auteur . - p.1298-1298. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-3 (March 2023) . - p.1298-1298 Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-022-05700-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500

Correction to: Psychometric Validation of the Autism Impact Measure (AIM) / Richard HOUGHTON in Journal of Autism and Developmental Disorders, 49-6 (June 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-6 (June 2019) . - p.2571 Titre : Correction to: Psychometric Validation of the Autism Impact Measure (AIM) Type de document : texte imprimé Auteurs : Richard HOUGHTON, Auteur ; Brigitta MONZ, Auteur ; J. Kiely LAW, Auteur ; Georg LOSS, Auteur ; Stephanie LE SCOUILLER, Auteur ; Frank DE VRIES, Auteur ; Tom WILLGOSS, Auteur Article en page(s) : p.2571 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The article Psychometric Validation of the Autism Impact Measure (AIM), written by Richard Houghton, Brigitta Monz, Kiely Law, Georg Loss, Stephanie Le Scouiller, Frank de Vries and Tom Willgoss was originally published electronically on the publisher's internet portal (currently SpringerLink) on 09 April 2019 without open access.With the author(s)' decision to opt for Open Choice the copyright of the article changed on May 2019 to (c) The Author(s) 2019 and the article is forthwith distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits use, duplication, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license and indicate if changes were made. En ligne : https://dx.doi.org/10.1007/s10803-019-04076-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400 [article] Correction to: Psychometric Validation of the Autism Impact Measure (AIM) [texte imprimé] / Richard HOUGHTON, Auteur ; Brigitta MONZ, Auteur ; J. Kiely LAW, Auteur ; Georg LOSS, Auteur ; Stephanie LE SCOUILLER, Auteur ; Frank DE VRIES, Auteur ; Tom WILLGOSS, Auteur . - p.2571. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-6 (June 2019) . - p.2571 Index. décimale : PER Périodiques Résumé : The article Psychometric Validation of the Autism Impact Measure (AIM), written by Richard Houghton, Brigitta Monz, Kiely Law, Georg Loss, Stephanie Le Scouiller, Frank de Vries and Tom Willgoss was originally published electronically on the publisher's internet portal (currently SpringerLink) on 09 April 2019 without open access.With the author(s)' decision to opt for Open Choice the copyright of the article changed on May 2019 to (c) The Author(s) 2019 and the article is forthwith distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits use, duplication, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license and indicate if changes were made. En ligne : https://dx.doi.org/10.1007/s10803-019-04076-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400

Early Pandemic Experiences of Autistic Adults: Predictors of Psychological Distress / Vanessa H. BAL in Autism Research, 14-6 (June 2021)  

Public ISBD [article]  inAutism Research > 14-6 (June 2021) . - p.1209-1219 Titre : Early Pandemic Experiences of Autistic Adults: Predictors of Psychological Distress Type de document : texte imprimé Auteurs : Vanessa H. BAL, Auteur ; Ellen WILKINSON, Auteur ; L. Casey WHITE, Auteur ; J. Kiely LAW, Auteur ; Pamela FELICIANO, Auteur ; Wendy K. CHUNG, Auteur Article en page(s) : p.1209-1219 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Autistic Disorder/psychology  COVID-19/epidemiology  Female  Health Surveys  Hope  Humans  Internet  Male  Pandemics  Psychological Distress  Risk Assessment  Stress, Psychological/psychology  Young Adult  COVID-19 pandemic  adults  co-morbid conditions  gender/female ASD  hope  loneliness  funding from Novartis, Roche, Pfizer, Biogen, Ipsen, LAM Therapeutics, Astellas,  Bridgebio and Quadrant Biosciences and has served on the Scientific Advisory Boards  for Sage Therapeutics, Roche, Celgene, Aeovian, Regenxbio and Takeda. Robin Kochel  has a contract with Yamo Pharmaceuticals, Inc., to consult on the design of clinical  trials for individuals with ASD. Suma Jacobs has been an investigator in multisite  treatment trials by Roche and served on an autism advisory board for Roche. Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic has disrupted lives around the world. Autistic adults are at higher risk for co-occurring medical and psychiatric conditions and may be more prone to difficulties adapting to pandemic-related changes and social distancing mandates and coping with ongoing uncertainties. On the other hand, the pandemic may lead to greater understanding and acceptance of accommodations in the broader community that may facilitate supports for autistic adults beyond the pandemic. To learn more about their early pandemic experiences, online surveys were sent to independent adults enrolled in the Simons Powering Autism Research Knowledge (SPARK). The first survey was open from March 30 to April 19, 2020; a follow-up survey sent to original responders was open from May 27 to June 6, yielding 396 participants with data for both surveys. We found that adults who were female, younger, had prior diagnoses of a mental health condition, personal COVID-19 experience (i.e., knowing someone who had symptoms or tested positive) or less frequent hope for the future reported the greatest negative impacts. Decrease in feelings of hopefulness over time predicted greater psychological distress at T2, accounting for T1 impact and distress levels and increases in total COVID-19 impact. Less perceived benefit of online services also predicted later distress. Although there tends to be a focus on coping with negative effects of the pandemic, mental health providers may consider approaches that focus on positives, such as fostering hope and understanding factors that facilitate benefit from online services. LAY SUMMARY: Autistic adults may be at risk for psychological distress during the COVID-19 pandemic. The current study suggests that autistic adults who were younger, female, had a mental health diagnosis before the pandemic and knew someone who showed symptoms or tested positive for COVID-19 reported more areas negatively impacted by COVID-19 and greater difficulty coping with those effects. Decreases in hope over time were associated with greater psychological distress. Less perceived benefit from online services also predicted distress 2 months later. These results suggest important areas to further explore as we develop supports for autistic adults during the pandemic. En ligne : http://dx.doi.org/10.1002/aur.2480 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449 [article] Early Pandemic Experiences of Autistic Adults: Predictors of Psychological Distress [texte imprimé] / Vanessa H. BAL, Auteur ; Ellen WILKINSON, Auteur ; L. Casey WHITE, Auteur ; J. Kiely LAW, Auteur ; Pamela FELICIANO, Auteur ; Wendy K. CHUNG, Auteur . - p.1209-1219. Langues : Anglais (eng) in Autism Research > 14-6 (June 2021) . - p.1209-1219 Mots-clés : Adolescent  Adult  Autistic Disorder/psychology  COVID-19/epidemiology  Female  Health Surveys  Hope  Humans  Internet  Male  Pandemics  Psychological Distress  Risk Assessment  Stress, Psychological/psychology  Young Adult  COVID-19 pandemic  adults  co-morbid conditions  gender/female ASD  hope  loneliness  funding from Novartis, Roche, Pfizer, Biogen, Ipsen, LAM Therapeutics, Astellas,  Bridgebio and Quadrant Biosciences and has served on the Scientific Advisory Boards  for Sage Therapeutics, Roche, Celgene, Aeovian, Regenxbio and Takeda. Robin Kochel  has a contract with Yamo Pharmaceuticals, Inc., to consult on the design of clinical  trials for individuals with ASD. Suma Jacobs has been an investigator in multisite  treatment trials by Roche and served on an autism advisory board for Roche. Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic has disrupted lives around the world. Autistic adults are at higher risk for co-occurring medical and psychiatric conditions and may be more prone to difficulties adapting to pandemic-related changes and social distancing mandates and coping with ongoing uncertainties. On the other hand, the pandemic may lead to greater understanding and acceptance of accommodations in the broader community that may facilitate supports for autistic adults beyond the pandemic. To learn more about their early pandemic experiences, online surveys were sent to independent adults enrolled in the Simons Powering Autism Research Knowledge (SPARK). The first survey was open from March 30 to April 19, 2020; a follow-up survey sent to original responders was open from May 27 to June 6, yielding 396 participants with data for both surveys. We found that adults who were female, younger, had prior diagnoses of a mental health condition, personal COVID-19 experience (i.e., knowing someone who had symptoms or tested positive) or less frequent hope for the future reported the greatest negative impacts. Decrease in feelings of hopefulness over time predicted greater psychological distress at T2, accounting for T1 impact and distress levels and increases in total COVID-19 impact. Less perceived benefit of online services also predicted later distress. Although there tends to be a focus on coping with negative effects of the pandemic, mental health providers may consider approaches that focus on positives, such as fostering hope and understanding factors that facilitate benefit from online services. LAY SUMMARY: Autistic adults may be at risk for psychological distress during the COVID-19 pandemic. The current study suggests that autistic adults who were younger, female, had a mental health diagnosis before the pandemic and knew someone who showed symptoms or tested positive for COVID-19 reported more areas negatively impacted by COVID-19 and greater difficulty coping with those effects. Decreases in hope over time were associated with greater psychological distress. Less perceived benefit from online services also predicted distress 2 months later. These results suggest important areas to further explore as we develop supports for autistic adults during the pandemic. En ligne : http://dx.doi.org/10.1002/aur.2480 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449

Effect of Children?s Autism Spectrum Disorder Severity on Family Strain and Sleep Quality: A Cross-Sectional Online Survey in the U.S / Gonzalo DURÁN-PACHECO in Journal of Autism and Developmental Disorders, 53-5 (May 2023)  

Permalink

Elopement Patterns and Caregiver Strategies / Allan M. ANDERSEN in Journal of Autism and Developmental Disorders, 50-6 (June 2020)  

Permalink

Epilepsy and Autism Severity: A Study of 6,975 Children / Joshua B. EWEN in Autism Research, 12-8 (August 2019)  

Permalink

Factors Affecting Age at Initial Autism Spectrum Disorder Diagnosis in a National Survey / Rebecca E. ROSENBERG in Autism Research and Treatment, (May 2011)  

Permalink

Mood Disorders in Mothers of Children on the Autism Spectrum Are Associated with Higher Functioning Autism / Roma A. VASA in Autism Research and Treatment, (July 2012)  

Permalink

Onset Patterns Prior to 36 Months in Autism Spectrum Disorders / Luther G. KALB in Journal of Autism and Developmental Disorders, 40-11 (November 2010)  

Permalink

Parent Report of Community Psychiatric Comorbid Diagnoses in Autism Spectrum Disorders / Rebecca E. ROSENBERG in Autism Research and Treatment, (June 2011)  

Permalink

Psychological distress among caregivers raising a child with autism spectrum disorder during the COVID-19 pandemic / Luke G. KALB in Autism Research, 14-10 (October 2021)  

Permalink

Psychometric Validation of the Autism Impact Measure (AIM) / Richard HOUGHTON in Journal of Autism and Developmental Disorders, 49-6 (June 2019)  

Permalink

Psychotropic Medication Use Among Children With Autism Spectrum Disorders Enrolled in a National Registry, 2007–2008 / Rebecca E. ROSENBERG in Journal of Autism and Developmental Disorders, 40-3 (March 2010)  

Permalink

---

1 2 (1 - 15 / 24) Par page : 25 50 100 200