Parents’ and young adults’ perspectives on transition outcomes for young adults with autism / Collette SOSNOWY in Autism, 22-1 (January 2018)  

Public ISBD [article]  inAutism > 22-1 (January 2018) . - p.29-39 Titre : Parents’ and young adults’ perspectives on transition outcomes for young adults with autism Type de document : Texte imprimé et/ou numérique Auteurs : Collette SOSNOWY, Auteur ; Chloe SILVERMAN, Auteur ; Paul SHATTUCK, Auteur Article en page(s) : p.29-39 Langues : Anglais (eng) Mots-clés : autism,measures,outcomes,parents,quality of life,transition,young adults Index. décimale : PER Périodiques Résumé : Existing research shows that young adults with autism spectrum disorder have poorer outcomes than their peers with other developmental disabilities in the key areas of independent living, postsecondary education, and employment. However, we understand little about how young adults with autism and their families understand and value outcomes and whether these indicators match their goals and aspirations. We interviewed parents (n?=?21) and young adults with autism spectrum disorder (n?=?20) about their experiences with the transition to adulthood to understand what they consider to be desirable outcomes and how they seek to achieve them. Understanding these perspectives will help identify areas of need as well as disconnections between service objectives and the goals of young adults and their families. Participants described outcomes as more complex and nuanced than current conceptions and measures account for. They defined and evaluated outcomes in relation to their or their child’s individual abilities, needs, and desires. These findings provide important insight into challenges to and facilitators of desired outcomes, which has implications for programming, service delivery, and policy. En ligne : https://doi.org/10.1177/1362361317699585 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=335 [article] Parents’ and young adults’ perspectives on transition outcomes for young adults with autism [Texte imprimé et/ou numérique] / Collette SOSNOWY, Auteur ; Chloe SILVERMAN, Auteur ; Paul SHATTUCK, Auteur . - p.29-39. Langues : Anglais (eng) in Autism > 22-1 (January 2018) . - p.29-39 Mots-clés : autism,measures,outcomes,parents,quality of life,transition,young adults Index. décimale : PER Périodiques Résumé : Existing research shows that young adults with autism spectrum disorder have poorer outcomes than their peers with other developmental disabilities in the key areas of independent living, postsecondary education, and employment. However, we understand little about how young adults with autism and their families understand and value outcomes and whether these indicators match their goals and aspirations. We interviewed parents (n?=?21) and young adults with autism spectrum disorder (n?=?20) about their experiences with the transition to adulthood to understand what they consider to be desirable outcomes and how they seek to achieve them. Understanding these perspectives will help identify areas of need as well as disconnections between service objectives and the goals of young adults and their families. Participants described outcomes as more complex and nuanced than current conceptions and measures account for. They defined and evaluated outcomes in relation to their or their child’s individual abilities, needs, and desires. These findings provide important insight into challenges to and facilitators of desired outcomes, which has implications for programming, service delivery, and policy. En ligne : https://doi.org/10.1177/1362361317699585 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=335

Understanding Autism / Chloe SILVERMAN

Public ISBD Titre : Understanding Autism : Parents, Doctors, and the History of a Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Chloe SILVERMAN, Auteur Editeur : Princeton NJ [Etats-Unis] : Princeton University Press Année de publication : 2011 Importance : 340 p. Format : 16cm x 24cm x 3cm ISBN/ISSN/EAN : 978-0-691-15046-8 Note générale : Bibliogr., Index Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Résumé : Autism has attracted a great deal of attention in recent years, thanks to dramatically increasing rates of diagnosis, extensive organizational mobilization, journalistic coverage, biomedical research, and clinical innovation. Understanding Autism, a social history of the expanding diagnostic category of this contested illness, takes a close look at the role of emotion--specifically, of parental love--in the intense and passionate work of biomedical communities investigating autism. Chloe Silverman tracks developments in autism theory and practice over the past half-century and shows how an understanding of autism has been constituted and stabilized through vital efforts of schools, gene banks, professional associations, government committees, parent networks, and treatment conferences. She examines the love and labor of parents, who play a role in developing--in conjunction with medical experts--new forms of treatment and therapy for their children. While biomedical knowledge is dispersed through an emotionally neutral, technical language that separates experts from laypeople, parental advocacy and activism call these distinctions into question. Silverman reveals how parental care has been a constant driver in the volatile field of autism research and treatment, and has served as an inspiration for scientific change. Recognizing the importance of parental knowledge and observations in treating autism, this book reveals that effective responses to the disorder demonstrate the mutual interdependence of love and science. Chloe Silverman is an assistant professor in the Science, Technology, and Society Program at Pennsylvania State University. [Résumé d'Auteur/Editeur] Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=149 Understanding Autism : Parents, Doctors, and the History of a Disorder [Texte imprimé et/ou numérique] / Chloe SILVERMAN, Auteur . - Princeton NJ [Etats-Unis] : Princeton University Press, 2011 . - 340 p. ; 16cm x 24cm x 3cm. ISBN : 978-0-691-15046-8 Bibliogr., Index Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Résumé : Autism has attracted a great deal of attention in recent years, thanks to dramatically increasing rates of diagnosis, extensive organizational mobilization, journalistic coverage, biomedical research, and clinical innovation. Understanding Autism, a social history of the expanding diagnostic category of this contested illness, takes a close look at the role of emotion--specifically, of parental love--in the intense and passionate work of biomedical communities investigating autism. Chloe Silverman tracks developments in autism theory and practice over the past half-century and shows how an understanding of autism has been constituted and stabilized through vital efforts of schools, gene banks, professional associations, government committees, parent networks, and treatment conferences. She examines the love and labor of parents, who play a role in developing--in conjunction with medical experts--new forms of treatment and therapy for their children. While biomedical knowledge is dispersed through an emotionally neutral, technical language that separates experts from laypeople, parental advocacy and activism call these distinctions into question. Silverman reveals how parental care has been a constant driver in the volatile field of autism research and treatment, and has served as an inspiration for scientific change. Recognizing the importance of parental knowledge and observations in treating autism, this book reveals that effective responses to the disorder demonstrate the mutual interdependence of love and science. Chloe Silverman is an assistant professor in the Science, Technology, and Society Program at Pennsylvania State University. [Résumé d'Auteur/Editeur] Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=149

Exemplaires (1)

Code-barres	Cote	Support	Localisation	Section	Disponibilité
DOC0002070	AUT-B SIL	Livre	Centre d'Information et de Documentation du CRA Rhône-Alpes	AUT - L'Autisme	Disponible

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