[article]
| Titre : |
Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom |
| Type de document : |
texte imprimé |
| Auteurs : |
Laura CRANE, Auteur ; James W CHESTER, Auteur ; Lorna GODDARD, Auteur ; Lucy A HENRY, Auteur ; Elisabeth HILL, Auteur |
| Article en page(s) : |
p.153-162 |
| Langues : |
Anglais (eng) |
| Mots-clés : |
autism autism spectrum disorder diagnosis parent satisfaction support survey |
| Index. décimale : |
PER Périodiques |
| Résumé : |
A sample of 1047 parents completed an online survey about their experiences and opinions regarding the process of attaining a diagnosis of autism spectrum disorder for their children. The results revealed that parents usually waited a year from when they first had concerns about their child’s development before they sought professional help. On average, there was a delay of around 3.5 years from the point at which parents first approached a health professional with their concerns to the confirmation of an autism spectrum disorder diagnosis. Just over half of the parents surveyed were dissatisfied with the diagnostic process as a whole. Several factors predicted parents’ overall levels of satisfaction with the diagnostic process, including the time taken to receive a diagnosis, satisfaction with the information provided at diagnosis, the manner of the diagnosing professional, the stress associated with the diagnostic process and satisfaction with post-diagnostic support. Post-diagnosis, the support (if any) that was provided to parents was deemed unsatisfactory, and this was highlighted as an area of particular concern among parents. |
| En ligne : |
http://dx.doi.org/10.1177/1362361315573636 |
| Permalink : |
https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=278 |
in Autism > 20-2 (February 2016) . - p.153-162
[article] Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom [texte imprimé] / Laura CRANE, Auteur ; James W CHESTER, Auteur ; Lorna GODDARD, Auteur ; Lucy A HENRY, Auteur ; Elisabeth HILL, Auteur . - p.153-162. Langues : Anglais ( eng) in Autism > 20-2 (February 2016) . - p.153-162
| Mots-clés : |
autism autism spectrum disorder diagnosis parent satisfaction support survey |
| Index. décimale : |
PER Périodiques |
| Résumé : |
A sample of 1047 parents completed an online survey about their experiences and opinions regarding the process of attaining a diagnosis of autism spectrum disorder for their children. The results revealed that parents usually waited a year from when they first had concerns about their child’s development before they sought professional help. On average, there was a delay of around 3.5 years from the point at which parents first approached a health professional with their concerns to the confirmation of an autism spectrum disorder diagnosis. Just over half of the parents surveyed were dissatisfied with the diagnostic process as a whole. Several factors predicted parents’ overall levels of satisfaction with the diagnostic process, including the time taken to receive a diagnosis, satisfaction with the information provided at diagnosis, the manner of the diagnosing professional, the stress associated with the diagnostic process and satisfaction with post-diagnostic support. Post-diagnosis, the support (if any) that was provided to parents was deemed unsatisfactory, and this was highlighted as an area of particular concern among parents. |
| En ligne : |
http://dx.doi.org/10.1177/1362361315573636 |
| Permalink : |
https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=278 |
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