Caring for a Child with Autism Spectrum Disorder and Parents’ Quality of Life: Application of the CarerQol / Renske HOEFMAN in Journal of Autism and Developmental Disorders, 44-8 (August 2014)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 44-8 (August 2014) . - p.1933-1945 Titre : Caring for a Child with Autism Spectrum Disorder and Parents’ Quality of Life: Application of the CarerQol Type de document : Texte imprimé et/ou numérique Auteurs : Renske HOEFMAN, Auteur ; Nalin PAYAKACHAT, Auteur ; Job VAN EXEL, Auteur ; Karen A. KUHLTHAU, Auteur ; Erica KOVACS, Auteur ; Jeffrey PYNE, Auteur ; J. Mick TILFORD, Auteur Article en page(s) : p.1933-1945 Langues : Anglais (eng) Mots-clés : Family caregiving  Subjective burden  Autism spectrum disorders (ASDs)  Quality of life  CarerQol  Construct validation Index. décimale : PER Périodiques Résumé : This study describes the impact of caregiving on parents of children with autism spectrum disorders (ASDs). Secondly, we investigate construct validation of the care-related quality of life instrument (CarerQol) measuring impact of caregiving. Primary caregivers of children with ASDs were included. Many parents experienced considerable problems combining daily activities with care, had financial problems or suffered from depressive mood. Validity tests showed that a higher impact of caring on the CarerQol was positively associated with higher subjective burden and lower family quality of life. Most of the associations between CarerQol scores and background characteristics confirmed previous research. The CarerQol validly measures the impact of caregiving for children with ASDs on caregivers in our sample. The CarerQol may therefore be useful for including parent outcomes in research on ASDs. En ligne : http://dx.doi.org/10.1007/s10803-014-2066-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=236 [article] Caring for a Child with Autism Spectrum Disorder and Parents’ Quality of Life: Application of the CarerQol [Texte imprimé et/ou numérique] / Renske HOEFMAN, Auteur ; Nalin PAYAKACHAT, Auteur ; Job VAN EXEL, Auteur ; Karen A. KUHLTHAU, Auteur ; Erica KOVACS, Auteur ; Jeffrey PYNE, Auteur ; J. Mick TILFORD, Auteur . - p.1933-1945. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 44-8 (August 2014) . - p.1933-1945 Mots-clés : Family caregiving  Subjective burden  Autism spectrum disorders (ASDs)  Quality of life  CarerQol  Construct validation Index. décimale : PER Périodiques Résumé : This study describes the impact of caregiving on parents of children with autism spectrum disorders (ASDs). Secondly, we investigate construct validation of the care-related quality of life instrument (CarerQol) measuring impact of caregiving. Primary caregivers of children with ASDs were included. Many parents experienced considerable problems combining daily activities with care, had financial problems or suffered from depressive mood. Validity tests showed that a higher impact of caring on the CarerQol was positively associated with higher subjective burden and lower family quality of life. Most of the associations between CarerQol scores and background characteristics confirmed previous research. The CarerQol validly measures the impact of caregiving for children with ASDs on caregivers in our sample. The CarerQol may therefore be useful for including parent outcomes in research on ASDs. En ligne : http://dx.doi.org/10.1007/s10803-014-2066-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=236

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