[article] 
inAutism > 20-3 (April 2016) . - p.353-363

Titre :	Is there concordance in attitudes and beliefs between parents and scientists about autism spectrum disorder?
Type de document :	Texte imprimé et/ou numérique
Auteurs :	Ruth L FISCHBACH, Auteur ; Mark J HARRIS, Auteur ; Michelle S. BALLAN, Auteur ; Gerald D FISCHBACH, Auteur ; Bruce G LINK, Auteur
Article en page(s) :	p.353-363
Langues :	Anglais (eng)
Mots-clés :	autism spectrum disorder  concordance  communication  genetic testing  incidental findings  stigma  vaccines
Index. décimale :	PER Périodiques
Résumé :	There is no reported investigation comparing concordance in attitudes and beliefs about autism spectrum disorder between parents of children with autism spectrum disorder and scientists who research autism spectrum disorder. To investigate the level of concordance between these groups on causes of autism, priorities of research, perceived stigma, and disclosure of genetic test results, telephone interviews were conducted. Parents (n?=?502) were recruited from the Simons Simplex Collection, and research scientists (n?=?60) were recruited from investigators funded by the Simons Foundation. Response rates were notable (parents 91%, scientists 80%). Parents and scientists differed significantly regarding beliefs of the likely major cause of autism (p?=?0.007) and priorities for further research (p?
En ligne :	http://dx.doi.org/10.1177/1362361315585310
Permalink :	https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=285

[article] Is there concordance in attitudes and beliefs between parents and scientists about autism spectrum disorder? [Texte imprimé et/ou numérique] / Ruth L FISCHBACH, Auteur ; Mark J HARRIS, Auteur ; Michelle S. BALLAN, Auteur ; Gerald D FISCHBACH, Auteur ; Bruce G LINK, Auteur . - p.353-363.
Langues : Anglais (eng)
in Autism > 20-3 (April 2016) . - p.353-363

Mots-clés :	autism spectrum disorder  concordance  communication  genetic testing  incidental findings  stigma  vaccines
Index. décimale :	PER Périodiques
Résumé :	There is no reported investigation comparing concordance in attitudes and beliefs about autism spectrum disorder between parents of children with autism spectrum disorder and scientists who research autism spectrum disorder. To investigate the level of concordance between these groups on causes of autism, priorities of research, perceived stigma, and disclosure of genetic test results, telephone interviews were conducted. Parents (n?=?502) were recruited from the Simons Simplex Collection, and research scientists (n?=?60) were recruited from investigators funded by the Simons Foundation. Response rates were notable (parents 91%, scientists 80%). Parents and scientists differed significantly regarding beliefs of the likely major cause of autism (p?=?0.007) and priorities for further research (p?
En ligne :	http://dx.doi.org/10.1177/1362361315585310
Permalink :	https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=285