Lessons learned: Engaging culturally diverse families in neurodevelopmental disorders intervention research / Allison B. RATTO in Autism, 21-5 (July 2017)  

Public ISBD [article]  inAutism > 21-5 (July 2017) . - p.622-634 Titre : Lessons learned: Engaging culturally diverse families in neurodevelopmental disorders intervention research Type de document : Texte imprimé et/ou numérique Auteurs : Allison B. RATTO, Auteur ; Bruno J. ANTHONY, Auteur ; Cara PUGLIESE, Auteur ; Rocio MENDEZ, Auteur ; Jonathan SAFER-LICHTENSTEIN, Auteur ; Katerina M. DUDLEY, Auteur ; Nicole F. KAHN, Auteur ; Lauren KENWORTHY, Auteur ; Matthew BIEL, Auteur ; Jillian L. MARTUCCI, Auteur ; Laura G. ANTHONY, Auteur Article en page(s) : p.622-634 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Low-income and ethnic minority families continue to face critical disparities in access to diagnostic and treatment services for neurodevelopmental conditions, such as autism spectrum disorder and attention deficit hyperactivity disorder. Despite the growing cultural diversity of the United States, ethnic minority children and families continue to be substantially underrepresented across research on neurodevelopmental disorders, and there is a particularly concerning lack of research on the treatment of these conditions in low-income and ethnic minority communities. Of note, there are currently no published studies on adapting autism spectrum disorder treatment for low-income Latino communities and relatively few studies documenting adapted treatments for children with attention deficit hyperactivity disorder in these communities. This article describes methodological considerations and adaptations made to research procedures using a Diffusion of Innovation framework in order to effectively recruit and engage low-income, ethnic minority, particularly Latino, families of children with neurodevelopmental disorders, in a comparative effectiveness trial of two school-based interventions for executive dysfunction. En ligne : http://dx.doi.org/10.1177/1362361316650394 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310 [article] Lessons learned: Engaging culturally diverse families in neurodevelopmental disorders intervention research [Texte imprimé et/ou numérique] / Allison B. RATTO, Auteur ; Bruno J. ANTHONY, Auteur ; Cara PUGLIESE, Auteur ; Rocio MENDEZ, Auteur ; Jonathan SAFER-LICHTENSTEIN, Auteur ; Katerina M. DUDLEY, Auteur ; Nicole F. KAHN, Auteur ; Lauren KENWORTHY, Auteur ; Matthew BIEL, Auteur ; Jillian L. MARTUCCI, Auteur ; Laura G. ANTHONY, Auteur . - p.622-634. Langues : Anglais (eng) in Autism > 21-5 (July 2017) . - p.622-634 Index. décimale : PER Périodiques Résumé : Low-income and ethnic minority families continue to face critical disparities in access to diagnostic and treatment services for neurodevelopmental conditions, such as autism spectrum disorder and attention deficit hyperactivity disorder. Despite the growing cultural diversity of the United States, ethnic minority children and families continue to be substantially underrepresented across research on neurodevelopmental disorders, and there is a particularly concerning lack of research on the treatment of these conditions in low-income and ethnic minority communities. Of note, there are currently no published studies on adapting autism spectrum disorder treatment for low-income Latino communities and relatively few studies documenting adapted treatments for children with attention deficit hyperactivity disorder in these communities. This article describes methodological considerations and adaptations made to research procedures using a Diffusion of Innovation framework in order to effectively recruit and engage low-income, ethnic minority, particularly Latino, families of children with neurodevelopmental disorders, in a comparative effectiveness trial of two school-based interventions for executive dysfunction. En ligne : http://dx.doi.org/10.1177/1362361316650394 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310

A review of cultural adaptations of screening tools for autism spectrum disorders / Sandra SOTO in Autism, 19-6 (August 2015)  

Public ISBD [article]  inAutism > 19-6 (August 2015) . - p.646-661 Titre : A review of cultural adaptations of screening tools for autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Sandra SOTO, Auteur ; Keri LINAS, Auteur ; Diane JACOBSTEIN, Auteur ; Matthew BIEL, Auteur ; Talia MIGDAL, Auteur ; Bruno J. ANTHONY, Auteur Article en page(s) : p.646-661 Langues : Anglais (eng) Mots-clés : autism  cultural adaptation  screening tools Index. décimale : PER Périodiques Résumé : Screening children to determine risk for Autism Spectrum Disorders has become more common, although some question the advisability of such a strategy. The purpose of this systematic review is to identify autism screening tools that have been adapted for use in cultures different from that in which they were developed, evaluate the cultural adaptation process, report on the psychometric properties of the adapted instruments, and describe the implications for further research and clinical practice. A total of 21 articles met criteria for inclusion, reporting on the cultural adaptation of autism screening in 19 countries and in 10 languages. The cultural adaptation process was not always clearly outlined and often did not include the recommended guidelines. Cultural/linguistic modifications to the translated tools tended to increase with the rigor of the adaptation process. Differences between the psychometric properties of the original and adapted versions were common, indicating the need to obtain normative data on populations to increase the utility of the translated tool. En ligne : http://dx.doi.org/10.1177/1362361314541012 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=262 [article] A review of cultural adaptations of screening tools for autism spectrum disorders [Texte imprimé et/ou numérique] / Sandra SOTO, Auteur ; Keri LINAS, Auteur ; Diane JACOBSTEIN, Auteur ; Matthew BIEL, Auteur ; Talia MIGDAL, Auteur ; Bruno J. ANTHONY, Auteur . - p.646-661. Langues : Anglais (eng) in Autism > 19-6 (August 2015) . - p.646-661 Mots-clés : autism  cultural adaptation  screening tools Index. décimale : PER Périodiques Résumé : Screening children to determine risk for Autism Spectrum Disorders has become more common, although some question the advisability of such a strategy. The purpose of this systematic review is to identify autism screening tools that have been adapted for use in cultures different from that in which they were developed, evaluate the cultural adaptation process, report on the psychometric properties of the adapted instruments, and describe the implications for further research and clinical practice. A total of 21 articles met criteria for inclusion, reporting on the cultural adaptation of autism screening in 19 countries and in 10 languages. The cultural adaptation process was not always clearly outlined and often did not include the recommended guidelines. Cultural/linguistic modifications to the translated tools tended to increase with the rigor of the adaptation process. Differences between the psychometric properties of the original and adapted versions were common, indicating the need to obtain normative data on populations to increase the utility of the translated tool. En ligne : http://dx.doi.org/10.1177/1362361314541012 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=262

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