Implementation of a Practice Development Model to Reduce the Wait for Autism Spectrum Diagnosis in Adults / Marion RUTHERFORD in Journal of Autism and Developmental Disorders, 48-8 (August 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-8 (August 2018) . - p.2677-2691 Titre : Implementation of a Practice Development Model to Reduce the Wait for Autism Spectrum Diagnosis in Adults Type de document : texte imprimé Auteurs : Marion RUTHERFORD, Auteur ; Kirsty FORSYTH, Auteur ; Karen MCKENZIE, Auteur ; Iain MCCLURE, Auteur ; Aja Louise MURRAY, Auteur ; Deborah MCCARTNEY, Auteur ; Linda IRVINE, Auteur ; Anne O'HARE, Auteur Article en page(s) : p.2677-2691 Langues : Anglais (eng) Mots-clés : Asd  Adults  Diagnostic assessment  Reducing wait times  Service improvement Index. décimale : PER Périodiques Résumé : This study examined waiting times for diagnostic assessment of Autism Spectrum Disorder in 11 adult services, prior to and following the implementation of a 12 month change program. Methods to support change are reported and a multi-level modelling approach determined the effect of the change program on overall wait times. Results were statistically significant (b = - 0.25, t(136) = - 2.88, p = 0.005). The average time individuals waited for diagnosis across all services reduced from 149.4 days prior to the change program and 119.5 days after it, with an average reduction of 29.9 days overall. This innovative intervention provides a promising framework for service improvement to reduce the wait for diagnostic assessment of ASD in adults across the range of spectrum presentations. En ligne : http://dx.doi.org/10.1007/s10803-018-3501-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367 [article] Implementation of a Practice Development Model to Reduce the Wait for Autism Spectrum Diagnosis in Adults [texte imprimé] / Marion RUTHERFORD, Auteur ; Kirsty FORSYTH, Auteur ; Karen MCKENZIE, Auteur ; Iain MCCLURE, Auteur ; Aja Louise MURRAY, Auteur ; Deborah MCCARTNEY, Auteur ; Linda IRVINE, Auteur ; Anne O'HARE, Auteur . - p.2677-2691. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-8 (August 2018) . - p.2677-2691 Mots-clés : Asd  Adults  Diagnostic assessment  Reducing wait times  Service improvement Index. décimale : PER Périodiques Résumé : This study examined waiting times for diagnostic assessment of Autism Spectrum Disorder in 11 adult services, prior to and following the implementation of a 12 month change program. Methods to support change are reported and a multi-level modelling approach determined the effect of the change program on overall wait times. Results were statistically significant (b = - 0.25, t(136) = - 2.88, p = 0.005). The average time individuals waited for diagnosis across all services reduced from 149.4 days prior to the change program and 119.5 days after it, with an average reduction of 29.9 days overall. This innovative intervention provides a promising framework for service improvement to reduce the wait for diagnostic assessment of ASD in adults across the range of spectrum presentations. En ligne : http://dx.doi.org/10.1007/s10803-018-3501-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367

The relation between practice that is consistent with NICE guideline 142 recommendations and waiting times within Autism Spectrum Disorder diagnostic services / Karen MCKENZIE in Research in Autism Spectrum Disorders, 26 (June 2016)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 26 (June 2016) . - p.10-15 Titre : The relation between practice that is consistent with NICE guideline 142 recommendations and waiting times within Autism Spectrum Disorder diagnostic services Type de document : texte imprimé Auteurs : Karen MCKENZIE, Auteur ; Marion RUTHERFORD, Auteur ; Kirsty FORSYTH, Auteur ; Anne O'HARE, Auteur ; Iain MCCLURE, Auteur ; Aja Louise MURRAY, Auteur ; Linda IRVINE, Auteur Article en page(s) : p.10-15 Langues : Anglais (eng) Mots-clés : Clinical guidelines  Wait times  Diagnosis  Autism Spectrum Disorder  NICE Index. décimale : PER Périodiques Résumé : AbstractBackground This study explores the extent to which recommendations from the National Institute of Health and Care Excellence (NICE) 142 guidelines, section 9.2 (relating to identification, assessment and diagnosis) reflected existing routine clinical practice in Autism Spectrum Disorder (ASD) diagnosing services in Scotland; and whether there was a significant relation between routine practice which more closely reflected these recommendations and waiting times. Method A cross-sectional, retrospective case note analysis of recently diagnosed adults, in eight ASD services across Scotland. Results The study found that the existing practice of the participating services was consistent with 14 (maximum number) of the included recommendations in at least half of cases analysed (range 37–70 cases) and was not related to increased total waiting time for diagnosis. Conclusion The results, based only on the included recommendations, suggest that the section 9.2 recommendations can be integrated into clinical practice in Scotland with relative ease and that it is unlikely to have a negative impact on waiting times. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.03.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=285 [article] The relation between practice that is consistent with NICE guideline 142 recommendations and waiting times within Autism Spectrum Disorder diagnostic services [texte imprimé] / Karen MCKENZIE, Auteur ; Marion RUTHERFORD, Auteur ; Kirsty FORSYTH, Auteur ; Anne O'HARE, Auteur ; Iain MCCLURE, Auteur ; Aja Louise MURRAY, Auteur ; Linda IRVINE, Auteur . - p.10-15. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 26 (June 2016) . - p.10-15 Mots-clés : Clinical guidelines  Wait times  Diagnosis  Autism Spectrum Disorder  NICE Index. décimale : PER Périodiques Résumé : AbstractBackground This study explores the extent to which recommendations from the National Institute of Health and Care Excellence (NICE) 142 guidelines, section 9.2 (relating to identification, assessment and diagnosis) reflected existing routine clinical practice in Autism Spectrum Disorder (ASD) diagnosing services in Scotland; and whether there was a significant relation between routine practice which more closely reflected these recommendations and waiting times. Method A cross-sectional, retrospective case note analysis of recently diagnosed adults, in eight ASD services across Scotland. Results The study found that the existing practice of the participating services was consistent with 14 (maximum number) of the included recommendations in at least half of cases analysed (range 37–70 cases) and was not related to increased total waiting time for diagnosis. Conclusion The results, based only on the included recommendations, suggest that the section 9.2 recommendations can be integrated into clinical practice in Scotland with relative ease and that it is unlikely to have a negative impact on waiting times. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.03.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=285

The relationship between waiting times and ‘adherence’ to the Scottish Intercollegiate Guidelines Network 98 guideline in autism spectrum disorder diagnostic services in Scotland / Karen MCKENZIE in Autism, 20-4 (May 2016)  

Public ISBD [article]  inAutism > 20-4 (May 2016) . - p.395-401 Titre : The relationship between waiting times and ‘adherence’ to the Scottish Intercollegiate Guidelines Network 98 guideline in autism spectrum disorder diagnostic services in Scotland Type de document : texte imprimé Auteurs : Karen MCKENZIE, Auteur ; Kirsty FORSYTH, Auteur ; Anne O'HARE, Auteur ; Iain MCCLURE, Auteur ; Marion RUTHERFORD, Auteur ; Aja Louise MURRAY, Auteur ; Linda IRVINE, Auteur Article en page(s) : p.395-401 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  clinical guidelines  diagnosis  Scottish Intercollegiate Guidelines Network  wait times Index. décimale : PER Périodiques Résumé : The aim of this study was to explore the extent to which the Scottish Intercollegiate Guidelines Network 98 guidelines on the assessment and diagnosis of autism spectrum disorder were adhered to in child autism spectrum disorder diagnostic services in Scotland and whether there was a significant relationship between routine practice which more closely reflected these recommendations (increased adherence) and increased waiting times. Retrospective, cross-sectional case note analysis was applied to data from 80 case notes. Adherence ranged from a possible 0 (no adherence) to 19 (full adherence). Overall, 17/22 of the recommendations were adhered to in over 50 of the 80 cases and in 70 or more cases for 11/22 of the recommendations, with a mean adherence score of 16 (standard deviation = 1.9). No significant correlation was found between adherence and total wait time for untransformed (r = 0.15, p = 0.32) or transformed data (r = 0.12, p = 0.20). The results indicated that the assessment and diagnostic practices were consistent with the relevant Scottish Intercollegiate Guidelines Network 98 guideline recommendations. Increased adherence to the 19 included recommendations was not significantly related to increased total waiting times, indicating that the Scottish Intercollegiate Guidelines Network 98 recommendations have generally been integrated into practice, without a resultant increase in patient waits. En ligne : http://dx.doi.org/10.1177/1362361315586136 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=287 [article] The relationship between waiting times and ‘adherence’ to the Scottish Intercollegiate Guidelines Network 98 guideline in autism spectrum disorder diagnostic services in Scotland [texte imprimé] / Karen MCKENZIE, Auteur ; Kirsty FORSYTH, Auteur ; Anne O'HARE, Auteur ; Iain MCCLURE, Auteur ; Marion RUTHERFORD, Auteur ; Aja Louise MURRAY, Auteur ; Linda IRVINE, Auteur . - p.395-401. Langues : Anglais (eng) in Autism > 20-4 (May 2016) . - p.395-401 Mots-clés : autism spectrum disorder  clinical guidelines  diagnosis  Scottish Intercollegiate Guidelines Network  wait times Index. décimale : PER Périodiques Résumé : The aim of this study was to explore the extent to which the Scottish Intercollegiate Guidelines Network 98 guidelines on the assessment and diagnosis of autism spectrum disorder were adhered to in child autism spectrum disorder diagnostic services in Scotland and whether there was a significant relationship between routine practice which more closely reflected these recommendations (increased adherence) and increased waiting times. Retrospective, cross-sectional case note analysis was applied to data from 80 case notes. Adherence ranged from a possible 0 (no adherence) to 19 (full adherence). Overall, 17/22 of the recommendations were adhered to in over 50 of the 80 cases and in 70 or more cases for 11/22 of the recommendations, with a mean adherence score of 16 (standard deviation = 1.9). No significant correlation was found between adherence and total wait time for untransformed (r = 0.15, p = 0.32) or transformed data (r = 0.12, p = 0.20). The results indicated that the assessment and diagnostic practices were consistent with the relevant Scottish Intercollegiate Guidelines Network 98 guideline recommendations. Increased adherence to the 19 included recommendations was not significantly related to increased total waiting times, indicating that the Scottish Intercollegiate Guidelines Network 98 recommendations have generally been integrated into practice, without a resultant increase in patient waits. En ligne : http://dx.doi.org/10.1177/1362361315586136 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=287

Why are they waiting? Exploring professional perspectives and developing solutions to delayed diagnosis of autism spectrum disorder in adults and children / Marion RUTHERFORD in Research in Autism Spectrum Disorders, 31 (November 2016)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 31 (November 2016) . - p.53-65 Titre : Why are they waiting? Exploring professional perspectives and developing solutions to delayed diagnosis of autism spectrum disorder in adults and children Type de document : texte imprimé Auteurs : Marion RUTHERFORD, Auteur ; Karen MCKENZIE, Auteur ; Kirsty FORSYTH, Auteur ; Deborah MCCARTNEY, Auteur ; Anne O'HARE, Auteur ; Iain MCCLURE, Auteur ; Linda IRVINE, Auteur Article en page(s) : p.53-65 Langues : Anglais (eng) Mots-clés : Focus groups  Autism spectrum disorder  Diagnostic assessment  Wait times Index. décimale : PER Périodiques Résumé : AbstractBackground This paper reports on the development of child and adult Action Plans for Autism Spectrum Disorder to address the problem of delayed diagnosis and lengthy waiting times. Evidence used in the development of action plans was gathered from a sequential mixed methods study to further understand the reasons for the long waiting time and potential solutions. This is the first published investigation, from the perspective of diagnosing professional teams, of the reasons for delays, which also generates solutions. Methods Ninety five clinicians from 8 child and 8 adult services attended 16 focus groups to explore clinicians’ views on a) reducing the wait for diagnosis and b) providing a good quality diagnostic process with good adherence to clinical guidelines. During focus groups, quantitative data were fed back, used to frame discussions and facilitate solution focused action planning with each service. Sixteen local action plans were synthesised to create an ASD Action Plan for children and an ASD Action Plan for adults. Results Key solutions are proposed to support the reduction of the wait for diagnostic assessment, through reducing non-attendance rates, reducing inappropriate referrals, developing efficient working and communication and improving the effectiveness of care pathways. These are presented in actions plans for use by clinical teams. Conclusion The first step in addressing the clinical challenge of increased wait for diagnostic assessment of ASD is understanding the complex and multi-factorial reasons for delays. The action plans developed here through systematic enquiry and synthesis may provide clinical diagnostic teams with evidence based guidance on common challenges and solutions to guide future quality improvement programmes. Future research to evaluate whether using Action Plans leads to a reduction in waiting times would be of value. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.06.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=295 [article] Why are they waiting? Exploring professional perspectives and developing solutions to delayed diagnosis of autism spectrum disorder in adults and children [texte imprimé] / Marion RUTHERFORD, Auteur ; Karen MCKENZIE, Auteur ; Kirsty FORSYTH, Auteur ; Deborah MCCARTNEY, Auteur ; Anne O'HARE, Auteur ; Iain MCCLURE, Auteur ; Linda IRVINE, Auteur . - p.53-65. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 31 (November 2016) . - p.53-65 Mots-clés : Focus groups  Autism spectrum disorder  Diagnostic assessment  Wait times Index. décimale : PER Périodiques Résumé : AbstractBackground This paper reports on the development of child and adult Action Plans for Autism Spectrum Disorder to address the problem of delayed diagnosis and lengthy waiting times. Evidence used in the development of action plans was gathered from a sequential mixed methods study to further understand the reasons for the long waiting time and potential solutions. This is the first published investigation, from the perspective of diagnosing professional teams, of the reasons for delays, which also generates solutions. Methods Ninety five clinicians from 8 child and 8 adult services attended 16 focus groups to explore clinicians’ views on a) reducing the wait for diagnosis and b) providing a good quality diagnostic process with good adherence to clinical guidelines. During focus groups, quantitative data were fed back, used to frame discussions and facilitate solution focused action planning with each service. Sixteen local action plans were synthesised to create an ASD Action Plan for children and an ASD Action Plan for adults. Results Key solutions are proposed to support the reduction of the wait for diagnostic assessment, through reducing non-attendance rates, reducing inappropriate referrals, developing efficient working and communication and improving the effectiveness of care pathways. These are presented in actions plans for use by clinical teams. Conclusion The first step in addressing the clinical challenge of increased wait for diagnostic assessment of ASD is understanding the complex and multi-factorial reasons for delays. The action plans developed here through systematic enquiry and synthesis may provide clinical diagnostic teams with evidence based guidance on common challenges and solutions to guide future quality improvement programmes. Future research to evaluate whether using Action Plans leads to a reduction in waiting times would be of value. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.06.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=295

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