Parent and health care provider perspectives related to disclosure of autism spectrum disorder in pediatric emergency departments / Barbara MUSKAT in Autism, 20-8 (November 2016)  

Public ISBD [article]  inAutism > 20-8 (November 2016) . - p.986-994 Titre : Parent and health care provider perspectives related to disclosure of autism spectrum disorder in pediatric emergency departments Type de document : Texte imprimé et/ou numérique Auteurs : Barbara MUSKAT, Auteur ; Andrea GREENBLATT, Auteur ; David B NICHOLAS, Auteur ; Savithiri RATNAPALAN, Auteur ; Justine COHEN-SILVER, Auteur ; Amanda S NEWTON, Auteur ; William R. CRAIG, Auteur ; Christopher KILMER, Auteur ; Lonnie ZWAIGENBAUM, Auteur Article en page(s) : p.986-994 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  disclosure  emergency department  pediatrics Index. décimale : PER Périodiques Résumé : Children and youth with autism spectrum disorder presenting in emergency departments face potential cognitive, sensory, and behavioral challenges, and it is crucial for providers to be aware of their unique needs. However, disclosure of a child’s autism spectrum disorder can be complex for parental caregivers and is not well understood. This qualitative study utilized a grounded theory approach and analyzed data from 28 parents and 16 health care providers related to autism spectrum disorder disclosure within two Canadian pediatric emergency departments. Study results indicated that participants identified benefits and risks of disclosure. Encouraging understanding, expediting service, and preparing health care providers for working with children with autism spectrum disorder were identified as benefits of disclosure. Risks related to disclosure included potential negative attributions toward the children and parental discomfort in disclosing a diagnosis in front of the children. Parents discussed the health care encounters they experienced following disclosure and provided recommendations for improving the disclosure process in the emergency department. It is recommended that future research explore the experiences of parents who choose not to disclose their child’s autism spectrum disorder. Greater awareness of the disclosure experience and the development of resources and tools to support communication between parents and health care providers are also recommended. En ligne : http://dx.doi.org/10.1177/1362361315621520 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=294 [article] Parent and health care provider perspectives related to disclosure of autism spectrum disorder in pediatric emergency departments [Texte imprimé et/ou numérique] / Barbara MUSKAT, Auteur ; Andrea GREENBLATT, Auteur ; David B NICHOLAS, Auteur ; Savithiri RATNAPALAN, Auteur ; Justine COHEN-SILVER, Auteur ; Amanda S NEWTON, Auteur ; William R. CRAIG, Auteur ; Christopher KILMER, Auteur ; Lonnie ZWAIGENBAUM, Auteur . - p.986-994. Langues : Anglais (eng) in Autism > 20-8 (November 2016) . - p.986-994 Mots-clés : autism spectrum disorder  disclosure  emergency department  pediatrics Index. décimale : PER Périodiques Résumé : Children and youth with autism spectrum disorder presenting in emergency departments face potential cognitive, sensory, and behavioral challenges, and it is crucial for providers to be aware of their unique needs. However, disclosure of a child’s autism spectrum disorder can be complex for parental caregivers and is not well understood. This qualitative study utilized a grounded theory approach and analyzed data from 28 parents and 16 health care providers related to autism spectrum disorder disclosure within two Canadian pediatric emergency departments. Study results indicated that participants identified benefits and risks of disclosure. Encouraging understanding, expediting service, and preparing health care providers for working with children with autism spectrum disorder were identified as benefits of disclosure. Risks related to disclosure included potential negative attributions toward the children and parental discomfort in disclosing a diagnosis in front of the children. Parents discussed the health care encounters they experienced following disclosure and provided recommendations for improving the disclosure process in the emergency department. It is recommended that future research explore the experiences of parents who choose not to disclose their child’s autism spectrum disorder. Greater awareness of the disclosure experience and the development of resources and tools to support communication between parents and health care providers are also recommended. En ligne : http://dx.doi.org/10.1177/1362361315621520 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=294

Perspectives of Health Care Providers Regarding Emergency Department Care of Children and Youth with Autism Spectrum Disorder / Lonnie ZWAIGENBAUM in Journal of Autism and Developmental Disorders, 46-5 (May 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-5 (May 2016) . - p.1725-1736 Titre : Perspectives of Health Care Providers Regarding Emergency Department Care of Children and Youth with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Lonnie ZWAIGENBAUM, Auteur ; David B NICHOLAS, Auteur ; Barbara MUSKAT, Auteur ; Christopher KILMER, Auteur ; Amanda S. NEWTON, Auteur ; William R. CRAIG, Auteur ; Savithiri RATNAPALAN, Auteur ; Justine COHEN-SILVER, Auteur ; Andrea GREENBLATT, Auteur ; Wendy ROBERTS, Auteur ; Raphael SHARON, Auteur Article en page(s) : p.1725-1736 Langues : Anglais (eng) Mots-clés : Autism  Emergency care  Health care provider  Pediatrics  Grounded theory Index. décimale : PER Périodiques Résumé : This study aimed to characterize the perspectives of health professionals who care for children with autism spectrum disorder (ASD) in the emergency department (ED) and to determine what strategies could optimize care. Ten physicians and twelve nurses were interviewed individually. Questions related to experiences, processes, clinical decision-making and outcomes of children with ASD recently seen in the ED. Interviews were audio recorded, transcribed, and analyzed using a qualitative framework. Participants identified factors that facilitated effective care, including communication strategies, parental involvement and teamwork. Barriers identified included child characteristics, the ED environment, and competing demands. Recommendations included additional staff training and stakeholder engagement. However, making accommodations was often described as being at odds with how the ED functioned, with implications for future service planning. En ligne : http://dx.doi.org/10.1007/s10803-016-2703-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288 [article] Perspectives of Health Care Providers Regarding Emergency Department Care of Children and Youth with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Lonnie ZWAIGENBAUM, Auteur ; David B NICHOLAS, Auteur ; Barbara MUSKAT, Auteur ; Christopher KILMER, Auteur ; Amanda S. NEWTON, Auteur ; William R. CRAIG, Auteur ; Savithiri RATNAPALAN, Auteur ; Justine COHEN-SILVER, Auteur ; Andrea GREENBLATT, Auteur ; Wendy ROBERTS, Auteur ; Raphael SHARON, Auteur . - p.1725-1736. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-5 (May 2016) . - p.1725-1736 Mots-clés : Autism  Emergency care  Health care provider  Pediatrics  Grounded theory Index. décimale : PER Périodiques Résumé : This study aimed to characterize the perspectives of health professionals who care for children with autism spectrum disorder (ASD) in the emergency department (ED) and to determine what strategies could optimize care. Ten physicians and twelve nurses were interviewed individually. Questions related to experiences, processes, clinical decision-making and outcomes of children with ASD recently seen in the ED. Interviews were audio recorded, transcribed, and analyzed using a qualitative framework. Participants identified factors that facilitated effective care, including communication strategies, parental involvement and teamwork. Barriers identified included child characteristics, the ED environment, and competing demands. Recommendations included additional staff training and stakeholder engagement. However, making accommodations was often described as being at odds with how the ED functioned, with implications for future service planning. En ligne : http://dx.doi.org/10.1007/s10803-016-2703-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288

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