[article] 
inResearch in Autism Spectrum Disorders > 112 (April 2024) . - p.102338

Titre :	"I?m not mad, bad, and dangerous ? simply wired differently": Exploring factors contributing to good quality of life with autistic women
Type de document :	Texte imprimé et/ou numérique
Auteurs :	Arianna PARICOS, Auteur ; Alexandra STURROCK, Auteur ; Katherine TWOMEY, Auteur ; Kathy LEADBITTER, Auteur
Article en page(s) :	p.102338
Langues :	Anglais (eng)
Mots-clés :	Autism  Quality of life  Qualitative  Women  Neurodiversity
Index. décimale :	PER Périodiques
Résumé :	Background There is increasing recognition of under-representation of autistic women in the academic literature and the impact of this on understanding, diagnosis, and support. Previous research has suggested that autistic women have poorer quality of life (QoL) than the general population. However, these findings have been established through use of QoL measures based on non-autistic norms and priorities. Methods This qualitative study used bottom-up, reflexive thematic analysis methods to explore how ten autistic women defined good QoL, and the factors identified as key to achieving this, using individual semi-structured interviews. Results Findings indicate four main themes that represent routes to good QoL: positive sense of self; feeling supported; autonomy; inclusion. Participants noted that being autistic itself was not a determinant of reduced QoL. Instead, participants' QoL was underpinned by the extent to which participants understood themselves, others understood and accommodated their needs, and the person-environment fit. Conclusions The findings of this study align with a positive approach to neurological difference and have implications for diagnosis, post-diagnostic support and applications of current QoL measures for autistic women.
En ligne :	https://doi.org/10.1016/j.rasd.2024.102338
Permalink :	https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524

[article] "I?m not mad, bad, and dangerous ? simply wired differently": Exploring factors contributing to good quality of life with autistic women [Texte imprimé et/ou numérique] / Arianna PARICOS, Auteur ; Alexandra STURROCK, Auteur ; Katherine TWOMEY, Auteur ; Kathy LEADBITTER, Auteur . - p.102338.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 112 (April 2024) . - p.102338

Mots-clés :	Autism  Quality of life  Qualitative  Women  Neurodiversity
Index. décimale :	PER Périodiques
Résumé :	Background There is increasing recognition of under-representation of autistic women in the academic literature and the impact of this on understanding, diagnosis, and support. Previous research has suggested that autistic women have poorer quality of life (QoL) than the general population. However, these findings have been established through use of QoL measures based on non-autistic norms and priorities. Methods This qualitative study used bottom-up, reflexive thematic analysis methods to explore how ten autistic women defined good QoL, and the factors identified as key to achieving this, using individual semi-structured interviews. Results Findings indicate four main themes that represent routes to good QoL: positive sense of self; feeling supported; autonomy; inclusion. Participants noted that being autistic itself was not a determinant of reduced QoL. Instead, participants' QoL was underpinned by the extent to which participants understood themselves, others understood and accommodated their needs, and the person-environment fit. Conclusions The findings of this study align with a positive approach to neurological difference and have implications for diagnosis, post-diagnostic support and applications of current QoL measures for autistic women.
En ligne :	https://doi.org/10.1016/j.rasd.2024.102338
Permalink :	https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524