55 recherche sur le mot-clé 'Qualitative'

Exploring potential sources of childhood trauma: A qualitative study with autistic adults and caregivers / Connor M. KERNS in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.1987-1998 Titre : Exploring potential sources of childhood trauma: A qualitative study with autistic adults and caregivers Type de document : Texte imprimé et/ou numérique Auteurs : Connor M. KERNS, Auteur ; Stephen LANKENAU, Auteur ; Paul T. SHATTUCK, Auteur ; Diana L. ROBINS, Auteur ; Craig J. NEWSCHAFFER, Auteur ; Steven J. BERKOWITZ, Auteur Article en page(s) : p.1987-1998 Langues : Anglais (eng) Mots-clés : Adult  Child  Humans  Autistic Disorder/psychology  Caregivers/psychology  Adverse Childhood Experiences  Autism Spectrum Disorder/psychology  Qualitative Research  autism  childhood  qualitative  traumatic events Index. décimale : PER Périodiques Résumé : The stressors autistic individuals encounter and experience as traumatic may vary from those not on the spectrum and typically measured. We conducted in-depth interviews with autistic adults and caregivers of children and adults on the spectrum to identify potential sources of trauma for autistic individuals and evaluate the ability of a standard trauma measure to capture those experiences. Fourteen autistic adults and 15 caregivers with varied backgrounds, clinical profiles, and histories of adversity were interviewed. Participants also completed standard measures of autism, traumatic exposures, and stress. Interviews were analyzed to record both traditional sources of trauma, for comparison with the standard measure, and distinct sources, described as traumatic only in the narratives of participants. Participants described varied experiences as traumatic. Whereas some reflected traditional traumas (e.g. maltreatment) and forms of social marginalization, others reflected conflicts between autistic characteristics and the environment (e.g. sensory trauma). All adults and most caregivers described sources of trauma in interviews not reported on the standard measure. Results have implications for assessing traumatic events in autism and for understanding their contribution to the mental health of this group. En ligne : http://dx.doi.org/10.1177/13623613211070637 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Exploring potential sources of childhood trauma: A qualitative study with autistic adults and caregivers [Texte imprimé et/ou numérique] / Connor M. KERNS, Auteur ; Stephen LANKENAU, Auteur ; Paul T. SHATTUCK, Auteur ; Diana L. ROBINS, Auteur ; Craig J. NEWSCHAFFER, Auteur ; Steven J. BERKOWITZ, Auteur . - p.1987-1998. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.1987-1998 Mots-clés : Adult  Child  Humans  Autistic Disorder/psychology  Caregivers/psychology  Adverse Childhood Experiences  Autism Spectrum Disorder/psychology  Qualitative Research  autism  childhood  qualitative  traumatic events Index. décimale : PER Périodiques Résumé : The stressors autistic individuals encounter and experience as traumatic may vary from those not on the spectrum and typically measured. We conducted in-depth interviews with autistic adults and caregivers of children and adults on the spectrum to identify potential sources of trauma for autistic individuals and evaluate the ability of a standard trauma measure to capture those experiences. Fourteen autistic adults and 15 caregivers with varied backgrounds, clinical profiles, and histories of adversity were interviewed. Participants also completed standard measures of autism, traumatic exposures, and stress. Interviews were analyzed to record both traditional sources of trauma, for comparison with the standard measure, and distinct sources, described as traumatic only in the narratives of participants. Participants described varied experiences as traumatic. Whereas some reflected traditional traumas (e.g. maltreatment) and forms of social marginalization, others reflected conflicts between autistic characteristics and the environment (e.g. sensory trauma). All adults and most caregivers described sources of trauma in interviews not reported on the standard measure. Results have implications for assessing traumatic events in autism and for understanding their contribution to the mental health of this group. En ligne : http://dx.doi.org/10.1177/13623613211070637 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Comparing the autism service needs and priorities of Indigenous and newcomer families in Canada: Qualitative insights / Janet MCLAUGHLIN ; Margaret SCHNEIDER ; Grant BRUNO in Research in Autism Spectrum Disorders, 111 (March 2024)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 111 (March 2024) . - p.102314 Titre : Comparing the autism service needs and priorities of Indigenous and newcomer families in Canada: Qualitative insights Type de document : Texte imprimé et/ou numérique Auteurs : Janet MCLAUGHLIN, Auteur ; Margaret SCHNEIDER, Auteur ; Grant BRUNO, Auteur Article en page(s) : p.102314 Mots-clés : Autism  Qualitative  Indigenous peoples  Newcomers  Services Index. décimale : PER Périodiques Résumé : Background Indigenous Peoples and newcomers are two of the largest and fastest growing populations in Canada (Statistics Canada, 2022; Zimonjic, 2022). Yet despite this, little is known about their experiences navigating and accessing autism services for their children. Method To address this gap, the current study sought to explore the autism service needs and priorities of Indigenous and newcomer families in Canada. A total of 19 participants (9 Indigenous and 10 newcomer caregivers) were selected using purposive sampling to participate in a semi-structured interview. Results The findings revealed that Indigenous families prioritized the need for services in rural and remote areas, tailored information to their needs, and support preserving their cultural heritage. On the other hand, newcomer families emphasized the importance of peer support, quality standards for services and therapies, and support during transition periods. Similarities across both groups indicated the need for addressing the lengthy waitlists for services, which have also been reported in the general population in Canada, having services and professionals place a greater emphasis on the child?s strengths, and culturally safe services and practice. Conclusion The present findings have important implications for the design and implementation of services and supports which reflect the needs and priorities of underserved communities. En ligne : https://doi.org/10.1016/j.rasd.2023.102314 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=521 [article] Comparing the autism service needs and priorities of Indigenous and newcomer families in Canada: Qualitative insights [Texte imprimé et/ou numérique] / Janet MCLAUGHLIN, Auteur ; Margaret SCHNEIDER, Auteur ; Grant BRUNO, Auteur . - p.102314. in Research in Autism Spectrum Disorders > 111 (March 2024) . - p.102314 Mots-clés : Autism  Qualitative  Indigenous peoples  Newcomers  Services Index. décimale : PER Périodiques Résumé : Background Indigenous Peoples and newcomers are two of the largest and fastest growing populations in Canada (Statistics Canada, 2022; Zimonjic, 2022). Yet despite this, little is known about their experiences navigating and accessing autism services for their children. Method To address this gap, the current study sought to explore the autism service needs and priorities of Indigenous and newcomer families in Canada. A total of 19 participants (9 Indigenous and 10 newcomer caregivers) were selected using purposive sampling to participate in a semi-structured interview. Results The findings revealed that Indigenous families prioritized the need for services in rural and remote areas, tailored information to their needs, and support preserving their cultural heritage. On the other hand, newcomer families emphasized the importance of peer support, quality standards for services and therapies, and support during transition periods. Similarities across both groups indicated the need for addressing the lengthy waitlists for services, which have also been reported in the general population in Canada, having services and professionals place a greater emphasis on the child?s strengths, and culturally safe services and practice. Conclusion The present findings have important implications for the design and implementation of services and supports which reflect the needs and priorities of underserved communities. En ligne : https://doi.org/10.1016/j.rasd.2023.102314 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=521

'Conflict versus Congruence': A Qualitative Study Exploring the Experience of Gender Dysphoria for Adults with Autism Spectrum Disorder / Rachel S. COLEMAN-SMITH in Journal of Autism and Developmental Disorders, 50-8 (August 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-8 (August 2020) . - p.2643-2657 Titre : 'Conflict versus Congruence': A Qualitative Study Exploring the Experience of Gender Dysphoria for Adults with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Rachel S. COLEMAN-SMITH, Auteur ; Richard SMITH, Auteur ; Elizabeth MILNE, Auteur ; Andrew R. THOMPSON, Auteur Article en page(s) : p.2643-2657 Langues : Anglais (eng) Mots-clés : Autism  Gender dysphoria  Grounded theory  Qualitative Index. décimale : PER Périodiques Résumé : An emergent evidence base indicates a higher prevalence of autism exists amongst people attending gender identity clinics. This qualitative study explored adults' with autism experiences of coming to understand and address their gender dysphoria (GD). Data were collected and analysed using Grounded Theory. Ten adults with autism and GD undertook semi-structured interviews. A tentative theoretical framework of common processes involved in understanding and addressing GD for individuals with autism was developed. The experience is captured in the core category-Conflict versus Congruence. A key finding was the impact of autism as a barrier but sometimes a protective factor in participants' understanding and addressing GD. Participants appeared to achieve greater personal congruence and wellbeing upon transition. Nevertheless, conflicts remained as they navigated the social world with a continuing fear of hostility and sense of difference due to having two stigmatised identities. En ligne : http://dx.doi.org/10.1007/s10803-019-04296-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428 [article] 'Conflict versus Congruence': A Qualitative Study Exploring the Experience of Gender Dysphoria for Adults with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Rachel S. COLEMAN-SMITH, Auteur ; Richard SMITH, Auteur ; Elizabeth MILNE, Auteur ; Andrew R. THOMPSON, Auteur . - p.2643-2657. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-8 (August 2020) . - p.2643-2657 Mots-clés : Autism  Gender dysphoria  Grounded theory  Qualitative Index. décimale : PER Périodiques Résumé : An emergent evidence base indicates a higher prevalence of autism exists amongst people attending gender identity clinics. This qualitative study explored adults' with autism experiences of coming to understand and address their gender dysphoria (GD). Data were collected and analysed using Grounded Theory. Ten adults with autism and GD undertook semi-structured interviews. A tentative theoretical framework of common processes involved in understanding and addressing GD for individuals with autism was developed. The experience is captured in the core category-Conflict versus Congruence. A key finding was the impact of autism as a barrier but sometimes a protective factor in participants' understanding and addressing GD. Participants appeared to achieve greater personal congruence and wellbeing upon transition. Nevertheless, conflicts remained as they navigated the social world with a continuing fear of hostility and sense of difference due to having two stigmatised identities. En ligne : http://dx.doi.org/10.1007/s10803-019-04296-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428

“It was like walking without knowing where I was going”: A Qualitative Study of Autism in a UK Somali Migrant Community / Fiona FOX in Journal of Autism and Developmental Disorders, 47-2 (February 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-2 (February 2017) . - p.305-315 Titre : “It was like walking without knowing where I was going”: A Qualitative Study of Autism in a UK Somali Migrant Community Type de document : Texte imprimé et/ou numérique Auteurs : Fiona FOX, Auteur ; Nura AABE, Auteur ; Katrina TURNER, Auteur ; Sabi REDWOOD, Auteur ; Dheeraj RAI, Auteur Article en page(s) : p.305-315 Langues : Anglais (eng) Mots-clés : Autism  Somali  Migrant  Qualitative  Attitudes  Childhood  Disability  Help-seeking Index. décimale : PER Périodiques Résumé : Increasing recognition of autism in Somali migrant communities means that appropriate support services are needed. Attitudes to autism and barriers related to help-seeking in these communities are poorly understood. We aimed to assess what families affected by autism need, and how health, education and social care services can support them. In partnership with the local Somali community the research team conducted 15 in-depth interviews with parents affected by autism. Two themes are reported; ‘Perceptions of Autism’ and ‘Navigating the System’. Our research shows the importance of understanding cultural views of autism and the need to raise awareness, reduce stigma and provide support to encourage families not to delay seeking help for their children. En ligne : http://dx.doi.org/10.1007/s10803-016-2952-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=303 [article] “It was like walking without knowing where I was going”: A Qualitative Study of Autism in a UK Somali Migrant Community [Texte imprimé et/ou numérique] / Fiona FOX, Auteur ; Nura AABE, Auteur ; Katrina TURNER, Auteur ; Sabi REDWOOD, Auteur ; Dheeraj RAI, Auteur . - p.305-315. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-2 (February 2017) . - p.305-315 Mots-clés : Autism  Somali  Migrant  Qualitative  Attitudes  Childhood  Disability  Help-seeking Index. décimale : PER Périodiques Résumé : Increasing recognition of autism in Somali migrant communities means that appropriate support services are needed. Attitudes to autism and barriers related to help-seeking in these communities are poorly understood. We aimed to assess what families affected by autism need, and how health, education and social care services can support them. In partnership with the local Somali community the research team conducted 15 in-depth interviews with parents affected by autism. Two themes are reported; ‘Perceptions of Autism’ and ‘Navigating the System’. Our research shows the importance of understanding cultural views of autism and the need to raise awareness, reduce stigma and provide support to encourage families not to delay seeking help for their children. En ligne : http://dx.doi.org/10.1007/s10803-016-2952-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=303

A longitudinal study of the mental health of autistic children and adolescents and their parents during COVID-19: Part 2, qualitative findings / Kathryn ASBURY in Autism, 27-1 (January 2023)  

Public ISBD [article]  inAutism > 27-1 (January 2023) . - p.188-199 Titre : A longitudinal study of the mental health of autistic children and adolescents and their parents during COVID-19: Part 2, qualitative findings Type de document : Texte imprimé et/ou numérique Auteurs : Kathryn ASBURY, Auteur ; Umar TOSEEB, Auteur Article en page(s) : p.188-199 Langues : Anglais (eng) Mots-clés : autism  COVID-19  longitudinal  mental health  mixed-methods  qualitative  quantitative  special educational needs Index. décimale : PER Périodiques Résumé : In Part 1 of this UK-based study, across four timepoints between March and October 2020, autistic children and young people showed higher levels of parent-reported depression and anxiety symptoms than those with other special educational needs and disabilities. In this study, we draw on qualitative data from 478 parents/carers of autistic pupils and those with other special educational needs and disabilities to conduct a longitudinal qualitative content analysis examining stability and change in the mental health of these young people, and their parents/carers, during the first 6 months of the COVID-19 pandemic. Worry and psychological distress were dominant categories at all timepoints and we noted that, in line with quantitative findings, worry in autistic pupils stayed stable over time but decreased for those with other special educational needs and disabilities. The third dominant category was wellbeing and we saw evidence that removing demands, especially the demand to attend school, was a driver of wellbeing for a significant minority of pupils, particularly autistic pupils, and their parents/carers. Overall, we observed no differences in mental health experiences between the two groups of parents, also mirroring quantitative findings. Lay abstract We know that autistic children and young people, and their caregivers, are at increased risk of mental ill health. We asked whether the first 6 months of COVID-19 exacerbated that risk, and whether the implications were different for autistic pupils and their caregivers, than for those with other special educational needs and difficulties. In a linked paper, we found that caregivers of autistic pupils reported higher levels of depression and anxiety symptoms in their children than parents of children with other special educational needs and difficulties (Toseeb & Asbury, 2022). For pupils with other special educational needs and difficulties, their parent-reported anxiety symptoms eased over time while remaining high throughout for autistic pupils. There were no differences in mental health and wellbeing between caregivers of autistic pupils and those with other special educational needs and difficulties. Here, we used parents’ written descriptions of their own and their child’s mental health during the first 6 months of COVID-19 to explore these linked findings in greater depth. We identified strong evidence of worry and distress for all, but most prominently autistic children and young people. Our finding that worry and distress declined over time for pupils with other special educational needs and difficulties, but not for autistic pupils, was supported and we observed a few differences between caregivers. We also found evidence of wellbeing throughout the sample, and examples of some (mainly autistic) pupils benefitting from a reduction in demands (e.g. going to school). This has implications for our understanding of the school experience for autistic pupils. Findings suggest that the mental health of autistic children and young people may have been disproportionately affected during the first 6 months of COVID-19 and that careful consideration of optimal support, from both health and education perspectives, is vital. En ligne : http://dx.doi.org/10.1177/13623613221086997 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491 [article] A longitudinal study of the mental health of autistic children and adolescents and their parents during COVID-19: Part 2, qualitative findings [Texte imprimé et/ou numérique] / Kathryn ASBURY, Auteur ; Umar TOSEEB, Auteur . - p.188-199. Langues : Anglais (eng) in Autism > 27-1 (January 2023) . - p.188-199 Mots-clés : autism  COVID-19  longitudinal  mental health  mixed-methods  qualitative  quantitative  special educational needs Index. décimale : PER Périodiques Résumé : In Part 1 of this UK-based study, across four timepoints between March and October 2020, autistic children and young people showed higher levels of parent-reported depression and anxiety symptoms than those with other special educational needs and disabilities. In this study, we draw on qualitative data from 478 parents/carers of autistic pupils and those with other special educational needs and disabilities to conduct a longitudinal qualitative content analysis examining stability and change in the mental health of these young people, and their parents/carers, during the first 6 months of the COVID-19 pandemic. Worry and psychological distress were dominant categories at all timepoints and we noted that, in line with quantitative findings, worry in autistic pupils stayed stable over time but decreased for those with other special educational needs and disabilities. The third dominant category was wellbeing and we saw evidence that removing demands, especially the demand to attend school, was a driver of wellbeing for a significant minority of pupils, particularly autistic pupils, and their parents/carers. Overall, we observed no differences in mental health experiences between the two groups of parents, also mirroring quantitative findings. Lay abstract We know that autistic children and young people, and their caregivers, are at increased risk of mental ill health. We asked whether the first 6 months of COVID-19 exacerbated that risk, and whether the implications were different for autistic pupils and their caregivers, than for those with other special educational needs and difficulties. In a linked paper, we found that caregivers of autistic pupils reported higher levels of depression and anxiety symptoms in their children than parents of children with other special educational needs and difficulties (Toseeb & Asbury, 2022). For pupils with other special educational needs and difficulties, their parent-reported anxiety symptoms eased over time while remaining high throughout for autistic pupils. There were no differences in mental health and wellbeing between caregivers of autistic pupils and those with other special educational needs and difficulties. Here, we used parents’ written descriptions of their own and their child’s mental health during the first 6 months of COVID-19 to explore these linked findings in greater depth. We identified strong evidence of worry and distress for all, but most prominently autistic children and young people. Our finding that worry and distress declined over time for pupils with other special educational needs and difficulties, but not for autistic pupils, was supported and we observed a few differences between caregivers. We also found evidence of wellbeing throughout the sample, and examples of some (mainly autistic) pupils benefitting from a reduction in demands (e.g. going to school). This has implications for our understanding of the school experience for autistic pupils. Findings suggest that the mental health of autistic children and young people may have been disproportionately affected during the first 6 months of COVID-19 and that careful consideration of optimal support, from both health and education perspectives, is vital. En ligne : http://dx.doi.org/10.1177/13623613221086997 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491

Opportunities and Challenges in Developing Technology-Based Social Skills Interventions for Adolescents with Autism Spectrum Disorder: A Qualitative Analysis of Parent Perspectives / Roxanne N. RASHEDI in Journal of Autism and Developmental Disorders, 52-10 (October 2022)  

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Parental concerns of children with ASD by age: A qualitative analysis / Danika PFEIFFER in Research in Autism Spectrum Disorders, 86 (August 2021)  

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A qualitative study of noise sensitivity in adults with autism spectrum disorder / Jason LANDON in Research in Autism Spectrum Disorders, 32 (December 2016)  

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Self-Compassion in Mothers of Children with Autism Spectrum Disorder: A Qualitative Analysis / Gal BOHADANA in Journal of Autism and Developmental Disorders, 51-4 (April 2021)  

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The adult experience of being diagnosed with autism spectrum disorder: A qualitative meta-synthesis / Ingrid KIEHL in Autism, 28-5 (May 2024)  

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