61 recherche sur le mot-clé 'Qualitative'

Exploring potential sources of childhood trauma: A qualitative study with autistic adults and caregivers / Connor M. KERNS in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.1987-1998 Titre : Exploring potential sources of childhood trauma: A qualitative study with autistic adults and caregivers Type de document : Texte imprimé et/ou numérique Auteurs : Connor M. KERNS, Auteur ; Stephen LANKENAU, Auteur ; Paul T. SHATTUCK, Auteur ; Diana L. ROBINS, Auteur ; Craig J. NEWSCHAFFER, Auteur ; Steven J. BERKOWITZ, Auteur Article en page(s) : p.1987-1998 Langues : Anglais (eng) Mots-clés : Adult  Child  Humans  Autistic Disorder/psychology  Caregivers/psychology  Adverse Childhood Experiences  Autism Spectrum Disorder/psychology  Qualitative Research  autism  childhood  qualitative  traumatic events Index. décimale : PER Périodiques Résumé : The stressors autistic individuals encounter and experience as traumatic may vary from those not on the spectrum and typically measured. We conducted in-depth interviews with autistic adults and caregivers of children and adults on the spectrum to identify potential sources of trauma for autistic individuals and evaluate the ability of a standard trauma measure to capture those experiences. Fourteen autistic adults and 15 caregivers with varied backgrounds, clinical profiles, and histories of adversity were interviewed. Participants also completed standard measures of autism, traumatic exposures, and stress. Interviews were analyzed to record both traditional sources of trauma, for comparison with the standard measure, and distinct sources, described as traumatic only in the narratives of participants. Participants described varied experiences as traumatic. Whereas some reflected traditional traumas (e.g. maltreatment) and forms of social marginalization, others reflected conflicts between autistic characteristics and the environment (e.g. sensory trauma). All adults and most caregivers described sources of trauma in interviews not reported on the standard measure. Results have implications for assessing traumatic events in autism and for understanding their contribution to the mental health of this group. En ligne : http://dx.doi.org/10.1177/13623613211070637 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Exploring potential sources of childhood trauma: A qualitative study with autistic adults and caregivers [Texte imprimé et/ou numérique] / Connor M. KERNS, Auteur ; Stephen LANKENAU, Auteur ; Paul T. SHATTUCK, Auteur ; Diana L. ROBINS, Auteur ; Craig J. NEWSCHAFFER, Auteur ; Steven J. BERKOWITZ, Auteur . - p.1987-1998. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.1987-1998 Mots-clés : Adult  Child  Humans  Autistic Disorder/psychology  Caregivers/psychology  Adverse Childhood Experiences  Autism Spectrum Disorder/psychology  Qualitative Research  autism  childhood  qualitative  traumatic events Index. décimale : PER Périodiques Résumé : The stressors autistic individuals encounter and experience as traumatic may vary from those not on the spectrum and typically measured. We conducted in-depth interviews with autistic adults and caregivers of children and adults on the spectrum to identify potential sources of trauma for autistic individuals and evaluate the ability of a standard trauma measure to capture those experiences. Fourteen autistic adults and 15 caregivers with varied backgrounds, clinical profiles, and histories of adversity were interviewed. Participants also completed standard measures of autism, traumatic exposures, and stress. Interviews were analyzed to record both traditional sources of trauma, for comparison with the standard measure, and distinct sources, described as traumatic only in the narratives of participants. Participants described varied experiences as traumatic. Whereas some reflected traditional traumas (e.g. maltreatment) and forms of social marginalization, others reflected conflicts between autistic characteristics and the environment (e.g. sensory trauma). All adults and most caregivers described sources of trauma in interviews not reported on the standard measure. Results have implications for assessing traumatic events in autism and for understanding their contribution to the mental health of this group. En ligne : http://dx.doi.org/10.1177/13623613211070637 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

"Bigger lows, but higher highs": A qualitative exploration of the similarities and differences in quality of life of middle-aged and older autistic and non-autistic adults / David HERSHMAN ; Rebecca A. CHARLTON ; Francesca HAPPE ; Gavin R. STEWART in Research in Autism, 123 (May 2025)  

Public ISBD [article]  inResearch in Autism > 123 (May 2025) . - 202533 Titre : "Bigger lows, but higher highs": A qualitative exploration of the similarities and differences in quality of life of middle-aged and older autistic and non-autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : David HERSHMAN, Auteur ; Rebecca A. CHARLTON, Auteur ; Francesca HAPPE, Auteur ; Gavin R. STEWART, Auteur Article en page(s) : 202533 Langues : Anglais (eng) Mots-clés : Autism  Quality of life  Midlife  Older age  Qualitative Index. décimale : PER Périodiques Résumé : Background Autistic adults often report lower subjective quality of life (QoL) than non-autistic adults. Despite older age also often being associated with lower QoL, little is known about the first-hand experiences of, and influences on, QoL for middle-aged and older autistic adults compared with their non-autistic peers. Method Thirty-three participants (autistic n = 15, non-autistic n = 18) aged 50-89 years completed semi-structured interviewed that explored their QoL. Responses were thematically analysed, and themes were compared to identify similarities and differences between groups. Results Both autistic and non-autistic groups reported similar QoL experiences, but with subtle differences. Social support from family and friends was important for both groups. Both noted shrinking social networks with age, but the non-autistic group was often less satisfied with their social lives. Concerns about health and sleep changes were common, but autistic participants often mentioned persistent mental health issues affecting their wellbeing. Autistic individuals also highlighted sensory sensitivities and difficulties with change. Receiving their autism diagnosis was significant for autistic participants, aiding self-acceptance. Acceptance of age-related changes was common in both groups, but the autistic group was more willing to seek support, while the non-autistic group often saw asking for help as losing their independence. Conclusions These findings highlight similarities and differences in aspects relevant to QoL for middle-aged and older autistic and non-autistic adults. While many similarities were found, the autistic group reported subtle differences in their experiences. Experiences such as social connectedness and coping with change could be targeted to improve the QoL of ageing autistic adults. En ligne : https://doi.org/10.1016/j.reia.2025.202533 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555 [article] "Bigger lows, but higher highs": A qualitative exploration of the similarities and differences in quality of life of middle-aged and older autistic and non-autistic adults [Texte imprimé et/ou numérique] / David HERSHMAN, Auteur ; Rebecca A. CHARLTON, Auteur ; Francesca HAPPE, Auteur ; Gavin R. STEWART, Auteur . - 202533. Langues : Anglais (eng) in Research in Autism > 123 (May 2025) . - 202533 Mots-clés : Autism  Quality of life  Midlife  Older age  Qualitative Index. décimale : PER Périodiques Résumé : Background Autistic adults often report lower subjective quality of life (QoL) than non-autistic adults. Despite older age also often being associated with lower QoL, little is known about the first-hand experiences of, and influences on, QoL for middle-aged and older autistic adults compared with their non-autistic peers. Method Thirty-three participants (autistic n = 15, non-autistic n = 18) aged 50-89 years completed semi-structured interviewed that explored their QoL. Responses were thematically analysed, and themes were compared to identify similarities and differences between groups. Results Both autistic and non-autistic groups reported similar QoL experiences, but with subtle differences. Social support from family and friends was important for both groups. Both noted shrinking social networks with age, but the non-autistic group was often less satisfied with their social lives. Concerns about health and sleep changes were common, but autistic participants often mentioned persistent mental health issues affecting their wellbeing. Autistic individuals also highlighted sensory sensitivities and difficulties with change. Receiving their autism diagnosis was significant for autistic participants, aiding self-acceptance. Acceptance of age-related changes was common in both groups, but the autistic group was more willing to seek support, while the non-autistic group often saw asking for help as losing their independence. Conclusions These findings highlight similarities and differences in aspects relevant to QoL for middle-aged and older autistic and non-autistic adults. While many similarities were found, the autistic group reported subtle differences in their experiences. Experiences such as social connectedness and coping with change could be targeted to improve the QoL of ageing autistic adults. En ligne : https://doi.org/10.1016/j.reia.2025.202533 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555

Comparing the autism service needs and priorities of Indigenous and newcomer families in Canada: Qualitative insights / Janet MCLAUGHLIN ; Margaret SCHNEIDER ; Grant BRUNO in Research in Autism Spectrum Disorders, 111 (March 2024)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 111 (March 2024) . - p.102314 Titre : Comparing the autism service needs and priorities of Indigenous and newcomer families in Canada: Qualitative insights Type de document : Texte imprimé et/ou numérique Auteurs : Janet MCLAUGHLIN, Auteur ; Margaret SCHNEIDER, Auteur ; Grant BRUNO, Auteur Article en page(s) : p.102314 Mots-clés : Autism  Qualitative  Indigenous peoples  Newcomers  Services Index. décimale : PER Périodiques Résumé : Background Indigenous Peoples and newcomers are two of the largest and fastest growing populations in Canada (Statistics Canada, 2022; Zimonjic, 2022). Yet despite this, little is known about their experiences navigating and accessing autism services for their children. Method To address this gap, the current study sought to explore the autism service needs and priorities of Indigenous and newcomer families in Canada. A total of 19 participants (9 Indigenous and 10 newcomer caregivers) were selected using purposive sampling to participate in a semi-structured interview. Results The findings revealed that Indigenous families prioritized the need for services in rural and remote areas, tailored information to their needs, and support preserving their cultural heritage. On the other hand, newcomer families emphasized the importance of peer support, quality standards for services and therapies, and support during transition periods. Similarities across both groups indicated the need for addressing the lengthy waitlists for services, which have also been reported in the general population in Canada, having services and professionals place a greater emphasis on the child?s strengths, and culturally safe services and practice. Conclusion The present findings have important implications for the design and implementation of services and supports which reflect the needs and priorities of underserved communities. En ligne : https://doi.org/10.1016/j.rasd.2023.102314 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=521 [article] Comparing the autism service needs and priorities of Indigenous and newcomer families in Canada: Qualitative insights [Texte imprimé et/ou numérique] / Janet MCLAUGHLIN, Auteur ; Margaret SCHNEIDER, Auteur ; Grant BRUNO, Auteur . - p.102314. in Research in Autism Spectrum Disorders > 111 (March 2024) . - p.102314 Mots-clés : Autism  Qualitative  Indigenous peoples  Newcomers  Services Index. décimale : PER Périodiques Résumé : Background Indigenous Peoples and newcomers are two of the largest and fastest growing populations in Canada (Statistics Canada, 2022; Zimonjic, 2022). Yet despite this, little is known about their experiences navigating and accessing autism services for their children. Method To address this gap, the current study sought to explore the autism service needs and priorities of Indigenous and newcomer families in Canada. A total of 19 participants (9 Indigenous and 10 newcomer caregivers) were selected using purposive sampling to participate in a semi-structured interview. Results The findings revealed that Indigenous families prioritized the need for services in rural and remote areas, tailored information to their needs, and support preserving their cultural heritage. On the other hand, newcomer families emphasized the importance of peer support, quality standards for services and therapies, and support during transition periods. Similarities across both groups indicated the need for addressing the lengthy waitlists for services, which have also been reported in the general population in Canada, having services and professionals place a greater emphasis on the child?s strengths, and culturally safe services and practice. Conclusion The present findings have important implications for the design and implementation of services and supports which reflect the needs and priorities of underserved communities. En ligne : https://doi.org/10.1016/j.rasd.2023.102314 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=521

'Conflict versus Congruence': A Qualitative Study Exploring the Experience of Gender Dysphoria for Adults with Autism Spectrum Disorder / Rachel S. COLEMAN-SMITH in Journal of Autism and Developmental Disorders, 50-8 (August 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-8 (August 2020) . - p.2643-2657 Titre : 'Conflict versus Congruence': A Qualitative Study Exploring the Experience of Gender Dysphoria for Adults with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Rachel S. COLEMAN-SMITH, Auteur ; Richard SMITH, Auteur ; Elizabeth MILNE, Auteur ; Andrew R. THOMPSON, Auteur Article en page(s) : p.2643-2657 Langues : Anglais (eng) Mots-clés : Autism  Gender dysphoria  Grounded theory  Qualitative Index. décimale : PER Périodiques Résumé : An emergent evidence base indicates a higher prevalence of autism exists amongst people attending gender identity clinics. This qualitative study explored adults' with autism experiences of coming to understand and address their gender dysphoria (GD). Data were collected and analysed using Grounded Theory. Ten adults with autism and GD undertook semi-structured interviews. A tentative theoretical framework of common processes involved in understanding and addressing GD for individuals with autism was developed. The experience is captured in the core category-Conflict versus Congruence. A key finding was the impact of autism as a barrier but sometimes a protective factor in participants' understanding and addressing GD. Participants appeared to achieve greater personal congruence and wellbeing upon transition. Nevertheless, conflicts remained as they navigated the social world with a continuing fear of hostility and sense of difference due to having two stigmatised identities. En ligne : http://dx.doi.org/10.1007/s10803-019-04296-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428 [article] 'Conflict versus Congruence': A Qualitative Study Exploring the Experience of Gender Dysphoria for Adults with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Rachel S. COLEMAN-SMITH, Auteur ; Richard SMITH, Auteur ; Elizabeth MILNE, Auteur ; Andrew R. THOMPSON, Auteur . - p.2643-2657. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-8 (August 2020) . - p.2643-2657 Mots-clés : Autism  Gender dysphoria  Grounded theory  Qualitative Index. décimale : PER Périodiques Résumé : An emergent evidence base indicates a higher prevalence of autism exists amongst people attending gender identity clinics. This qualitative study explored adults' with autism experiences of coming to understand and address their gender dysphoria (GD). Data were collected and analysed using Grounded Theory. Ten adults with autism and GD undertook semi-structured interviews. A tentative theoretical framework of common processes involved in understanding and addressing GD for individuals with autism was developed. The experience is captured in the core category-Conflict versus Congruence. A key finding was the impact of autism as a barrier but sometimes a protective factor in participants' understanding and addressing GD. Participants appeared to achieve greater personal congruence and wellbeing upon transition. Nevertheless, conflicts remained as they navigated the social world with a continuing fear of hostility and sense of difference due to having two stigmatised identities. En ligne : http://dx.doi.org/10.1007/s10803-019-04296-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428

'I did what I could to earn some money and be of use': A qualitative exploration of autistic people?s journeys to career success and fulfilment / Jade DAVIES in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.988-1004 Titre : 'I did what I could to earn some money and be of use': A qualitative exploration of autistic people?s journeys to career success and fulfilment Type de document : Texte imprimé et/ou numérique Auteurs : Jade DAVIES, Auteur ; Rachel MELINEK, Auteur ; Adam LIVESEY, Auteur ; Estelle KILLICK, Auteur ; Evelyn SAM, Auteur ; Anna Melissa ROMUALDEZ, Auteur ; Elizabeth PELLICANO, Auteur ; Anna REMINGTON, Auteur Article en page(s) : p.988-1004 Langues : Anglais (eng) Mots-clés : autism  career fulfilment  career progression  career success  employment  qualitative Index. décimale : PER Périodiques Résumé : Employment contributes to well-being, yet many autistic people who want to work face barriers to meaningful employment. Much research focuses solely on employment rates, rather than taking a more holistic view of professional trajectories and occupational experiences. We conducted semi-structured interviews with 18 autistic adults to explore their experiences of, and perspectives on, career success. Our participants highlighted the overarching importance of finding fulfilment in one?s career. Using reflexive thematic analysis, we identified five additional key themes: (1) volatile career journeys, (2) the need for continuing career support, (3) the impact (positive or negative) of social interactions, (4) the important role of organisations and (5) the catastrophic impact of poor experiences. Our findings highlight the importance of tailored, lifelong employment support and inclusive workplaces in enabling autistic people to thrive at work. Enabling autistic career fulfilment requires moving beyond entry-level hiring to foster sustainable, fulfilling employment for all autistic people.Lay abstract Many autistic people want to work but have trouble finding jobs they like and can stick with. Most research tries to help more autistic people get jobs, but does not look at whether those jobs are fulfilling, or how people progress once they start working. We spoke to 18 autistic people about their experiences at work, and their ideas about success at work. Participants said finding fulfilment in their careers was key. We found five common 'themes' across the interviews. First, autistic people?s careers often take unexpected turns. For example, many participants only got diagnosed as adults, which sometimes changed their work plans. Second, autistic people might need ongoing help with their career, including help with finding jobs they would enjoy and be good at, and advice on how to progress in their job. Third, getting along with others at work is really important. Having supportive colleagues helped our participants thrive, but workplace bullying forced some to leave their jobs. Fourth, workplaces need to be welcoming to everybody. Adjustments and understanding managers helped, but many of our participants' workplaces were not inclusive. Finally, bad work experiences can be devastating for mental health and well-being and negative experiences like bullying led some participants to quit working entirely. Our findings show that lifelong support tailored to each person and welcoming workplaces are important for autistic people to thrive at work. It is not enough to just hire autistic people - we need to help them have jobs they like and can stick with long-term. En ligne : https://dx.doi.org/10.1177/13623613241292177 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] 'I did what I could to earn some money and be of use': A qualitative exploration of autistic people?s journeys to career success and fulfilment [Texte imprimé et/ou numérique] / Jade DAVIES, Auteur ; Rachel MELINEK, Auteur ; Adam LIVESEY, Auteur ; Estelle KILLICK, Auteur ; Evelyn SAM, Auteur ; Anna Melissa ROMUALDEZ, Auteur ; Elizabeth PELLICANO, Auteur ; Anna REMINGTON, Auteur . - p.988-1004. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.988-1004 Mots-clés : autism  career fulfilment  career progression  career success  employment  qualitative Index. décimale : PER Périodiques Résumé : Employment contributes to well-being, yet many autistic people who want to work face barriers to meaningful employment. Much research focuses solely on employment rates, rather than taking a more holistic view of professional trajectories and occupational experiences. We conducted semi-structured interviews with 18 autistic adults to explore their experiences of, and perspectives on, career success. Our participants highlighted the overarching importance of finding fulfilment in one?s career. Using reflexive thematic analysis, we identified five additional key themes: (1) volatile career journeys, (2) the need for continuing career support, (3) the impact (positive or negative) of social interactions, (4) the important role of organisations and (5) the catastrophic impact of poor experiences. Our findings highlight the importance of tailored, lifelong employment support and inclusive workplaces in enabling autistic people to thrive at work. Enabling autistic career fulfilment requires moving beyond entry-level hiring to foster sustainable, fulfilling employment for all autistic people.Lay abstract Many autistic people want to work but have trouble finding jobs they like and can stick with. Most research tries to help more autistic people get jobs, but does not look at whether those jobs are fulfilling, or how people progress once they start working. We spoke to 18 autistic people about their experiences at work, and their ideas about success at work. Participants said finding fulfilment in their careers was key. We found five common 'themes' across the interviews. First, autistic people?s careers often take unexpected turns. For example, many participants only got diagnosed as adults, which sometimes changed their work plans. Second, autistic people might need ongoing help with their career, including help with finding jobs they would enjoy and be good at, and advice on how to progress in their job. Third, getting along with others at work is really important. Having supportive colleagues helped our participants thrive, but workplace bullying forced some to leave their jobs. Fourth, workplaces need to be welcoming to everybody. Adjustments and understanding managers helped, but many of our participants' workplaces were not inclusive. Finally, bad work experiences can be devastating for mental health and well-being and negative experiences like bullying led some participants to quit working entirely. Our findings show that lifelong support tailored to each person and welcoming workplaces are important for autistic people to thrive at work. It is not enough to just hire autistic people - we need to help them have jobs they like and can stick with long-term. En ligne : https://dx.doi.org/10.1177/13623613241292177 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

“It was like walking without knowing where I was going”: A Qualitative Study of Autism in a UK Somali Migrant Community / Fiona FOX in Journal of Autism and Developmental Disorders, 47-2 (February 2017)  

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A longitudinal study of the mental health of autistic children and adolescents and their parents during COVID-19: Part 2, qualitative findings / Kathryn ASBURY in Autism, 27-1 (January 2023)  

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Opportunities and Challenges in Developing Technology-Based Social Skills Interventions for Adolescents with Autism Spectrum Disorder: A Qualitative Analysis of Parent Perspectives / Roxanne N. RASHEDI in Journal of Autism and Developmental Disorders, 52-10 (October 2022)  

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Parental concerns of children with ASD by age: A qualitative analysis / Danika PFEIFFER in Research in Autism Spectrum Disorders, 86 (August 2021)  

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Policing Black autistic children: A qualitative approach to understanding Black caregivers' concerns / Ashlee YATES FLANAGAN in Autism, 29-5 (May 2025)  

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