Inclusion of Individuals with Autism and Co-Occurring Intellectual Disability or Language Impairment as Research Participants / Katherine E. REUBEN in Journal of Autism and Developmental Disorders, 55-9 (September 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-9 (September 2025) . - p.3410-3415 Titre : Inclusion of Individuals with Autism and Co-Occurring Intellectual Disability or Language Impairment as Research Participants Type de document : Texte imprimé et/ou numérique Auteurs : Katherine E. REUBEN, Auteur ; Jalayne J. ARIAS, Auteur ; Shannon SELF-BROWN, Auteur ; Erin VINOSKI THOMAS, Auteur Article en page(s) : p.3410-3415 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Autistic individuals with higher support needs, including those with co-occurring intellectual disability (ID) and language impairment (LI), are underrepresented in research. Researchers who attempt to include this population face unique challenges regarding participant recruitment, informed consent, accurate measurement, and protecting privacy and confidentiality. This leads to gaps in understanding as well as a lack of evidence-based support for clinical and public health practice. Careful consideration is needed to ensure that autism research is appropriately inclusive and does not unduly burden vulnerable populations. This commentary uses the Kass framework as an example scaffold for navigating complex ethical challenges and improving accessibility and fairness in autism research. It reviews existing literature on the topic, and the resulting recommendations are informed by autistic individuals with substantial support needs. Increased representation of the full autism spectrum in research is necessary to ensure equitable health outcomes for all autistic individuals. Ethical analysis, guidance from autism research organizations, and recommendations from autistic adults can assist with this process. En ligne : https://doi.org/10.1007/s10803-025-06905-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566 [article] Inclusion of Individuals with Autism and Co-Occurring Intellectual Disability or Language Impairment as Research Participants [Texte imprimé et/ou numérique] / Katherine E. REUBEN, Auteur ; Jalayne J. ARIAS, Auteur ; Shannon SELF-BROWN, Auteur ; Erin VINOSKI THOMAS, Auteur . - p.3410-3415. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-9 (September 2025) . - p.3410-3415 Index. décimale : PER Périodiques Résumé : Autistic individuals with higher support needs, including those with co-occurring intellectual disability (ID) and language impairment (LI), are underrepresented in research. Researchers who attempt to include this population face unique challenges regarding participant recruitment, informed consent, accurate measurement, and protecting privacy and confidentiality. This leads to gaps in understanding as well as a lack of evidence-based support for clinical and public health practice. Careful consideration is needed to ensure that autism research is appropriately inclusive and does not unduly burden vulnerable populations. This commentary uses the Kass framework as an example scaffold for navigating complex ethical challenges and improving accessibility and fairness in autism research. It reviews existing literature on the topic, and the resulting recommendations are informed by autistic individuals with substantial support needs. Increased representation of the full autism spectrum in research is necessary to ensure equitable health outcomes for all autistic individuals. Ethical analysis, guidance from autism research organizations, and recommendations from autistic adults can assist with this process. En ligne : https://doi.org/10.1007/s10803-025-06905-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566

The Moderating Effects of Maternal Psychopathology on Children's Adjustment Post-Hurricane Katrina / Annie W. SPELL in Journal of Clinical Child & Adolescent Psychology, 37-3 (July-September 2008)  

Public ISBD [article]  inJournal of Clinical Child & Adolescent Psychology > 37-3 (July-September 2008) . - p.553-563 Titre : The Moderating Effects of Maternal Psychopathology on Children's Adjustment Post-Hurricane Katrina Type de document : Texte imprimé et/ou numérique Auteurs : Annie W. SPELL, Auteur ; Valerie PAASCH, Auteur ; Kara MEYER, Auteur ; Jeannette L. PALCIC, Auteur ; Angie PELLEGRIN, Auteur ; Karen L. DAVIDSON, Auteur ; Shannon SELF-BROWN, Auteur ; Jing WANG, Auteur ; Mary Lou KELLEY, Auteur ; Audrey BAUMEISTER, Auteur Année de publication : 2008 Article en page(s) : p.553-563 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : This study investigated the role of maternal psychopathology in predicting children's psychological distress in a disaster-exposed sample. Participants consisted of 260 children (ages 8-16) recruited from public schools and their mothers. These families were displaced from New Orleans because of Hurricane Katrina in 2005. Assessment took place 3 to 7 months postdisaster. Hierarchical regression analyses revealed that global maternal psychological distress and maternal posttraumatic stress disorder moderated the relation between child hurricane exposure and mother-reported child internalizing and externalizing symptoms. En ligne : http://dx.doi.org/10.1080/1.5374410802148210 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=544 [article] The Moderating Effects of Maternal Psychopathology on Children's Adjustment Post-Hurricane Katrina [Texte imprimé et/ou numérique] / Annie W. SPELL, Auteur ; Valerie PAASCH, Auteur ; Kara MEYER, Auteur ; Jeannette L. PALCIC, Auteur ; Angie PELLEGRIN, Auteur ; Karen L. DAVIDSON, Auteur ; Shannon SELF-BROWN, Auteur ; Jing WANG, Auteur ; Mary Lou KELLEY, Auteur ; Audrey BAUMEISTER, Auteur . - 2008 . - p.553-563. Langues : Anglais (eng) in Journal of Clinical Child & Adolescent Psychology > 37-3 (July-September 2008) . - p.553-563 Index. décimale : PER Périodiques Résumé : This study investigated the role of maternal psychopathology in predicting children's psychological distress in a disaster-exposed sample. Participants consisted of 260 children (ages 8-16) recruited from public schools and their mothers. These families were displaced from New Orleans because of Hurricane Katrina in 2005. Assessment took place 3 to 7 months postdisaster. Hierarchical regression analyses revealed that global maternal psychological distress and maternal posttraumatic stress disorder moderated the relation between child hurricane exposure and mother-reported child internalizing and externalizing symptoms. En ligne : http://dx.doi.org/10.1080/1.5374410802148210 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=544

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