Use of a Best Practice Alert (BPA) to Increase Diversity Within a US-Based Autism Research Cohort / Gabrielle F. DUHON in Journal of Autism and Developmental Disorders, 53-1 (January 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-1 (January 2023) . - p.370-377 Titre : Use of a Best Practice Alert (BPA) to Increase Diversity Within a US-Based Autism Research Cohort Type de document : Texte imprimé et/ou numérique Auteurs : Gabrielle F. DUHON, Auteur ; Andrea R. SIMON, Auteur ; Danica L. LIMON, Auteur ; Kelli L. AHMED, Auteur ; Gabriela MARZANO, Auteur ; Robin P. GOIN-KOCHEL, Auteur Article en page(s) : p.370-377 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : We evaluated the success of a best practice alert (BPA) in recruiting underrepresented families into an autism spectrum disorder research cohort by comparing BPA-response outcomes (Interested, Declined, Enrolled, Dismissed) in pediatric primary care practices (TCPs) serving diverse communities with those of subspecialty clinics. Compared to subspecialty clinics, TCPs had higher proportions of Interested responses for patients with private insurance (60.9% vs. 46.2%), Dismissed responses for patients with public insurance (30.1% vs. 20.0%), and Interested responses for non-white patients (47.7% vs. 33.3%). A targeted BPA can help researchers access more diverse groups and improve equitable representation. However, select groups more often had their alert dismissed, suggesting possible selection bias among some pediatricians regarding who should receive information about study opportunities. En ligne : https://doi.org/10.1007/s10803-021-05407-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Use of a Best Practice Alert (BPA) to Increase Diversity Within a US-Based Autism Research Cohort [Texte imprimé et/ou numérique] / Gabrielle F. DUHON, Auteur ; Andrea R. SIMON, Auteur ; Danica L. LIMON, Auteur ; Kelli L. AHMED, Auteur ; Gabriela MARZANO, Auteur ; Robin P. GOIN-KOCHEL, Auteur . - p.370-377. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-1 (January 2023) . - p.370-377 Index. décimale : PER Périodiques Résumé : We evaluated the success of a best practice alert (BPA) in recruiting underrepresented families into an autism spectrum disorder research cohort by comparing BPA-response outcomes (Interested, Declined, Enrolled, Dismissed) in pediatric primary care practices (TCPs) serving diverse communities with those of subspecialty clinics. Compared to subspecialty clinics, TCPs had higher proportions of Interested responses for patients with private insurance (60.9% vs. 46.2%), Dismissed responses for patients with public insurance (30.1% vs. 20.0%), and Interested responses for non-white patients (47.7% vs. 33.3%). A targeted BPA can help researchers access more diverse groups and improve equitable representation. However, select groups more often had their alert dismissed, suggesting possible selection bias among some pediatricians regarding who should receive information about study opportunities. En ligne : https://doi.org/10.1007/s10803-021-05407-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Utilization of a Best Practice Alert (BPA) at Point-of-Care for Recruitment into a US-Based Autism Research Study / Andrea R. SIMON in Journal of Autism and Developmental Disorders, 53-1 (January 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-1 (January 2023) . - p.359-369 Titre : Utilization of a Best Practice Alert (BPA) at Point-of-Care for Recruitment into a US-Based Autism Research Study Type de document : Texte imprimé et/ou numérique Auteurs : Andrea R. SIMON, Auteur ; Kelli L. AHMED, Auteur ; Danica L. LIMON, Auteur ; Gabrielle F. DUHON, Auteur ; Gabriela MARZANO, Auteur ; Robin P. GOIN-KOCHEL, Auteur Article en page(s) : p.359-369 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Provider referral is one of the most influential factors in research recruitment. To ease referral burden on providers, we adapted the Best Practice Alert (BPA) in the EPIC Electronic Health Record and assessed its utility in recruiting pediatric patients with autism spectrum disorder for the national SPARK study. During a year-long surveillance, 1203 (64.0%) patients were Interested in SPARK and 223 enrolled. Another 754 participants not recruited via the BPA also enrolled; 35.5% of these participants completed their participation compared to 58.3% of BPA-referred participants. Results suggest that (a) a BPA can successfully engage providers in the study-referral process and (b) families who learn about research through their providers may be more engaged and effectively retained. En ligne : https://doi.org/10.1007/s10803-022-05444-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Utilization of a Best Practice Alert (BPA) at Point-of-Care for Recruitment into a US-Based Autism Research Study [Texte imprimé et/ou numérique] / Andrea R. SIMON, Auteur ; Kelli L. AHMED, Auteur ; Danica L. LIMON, Auteur ; Gabrielle F. DUHON, Auteur ; Gabriela MARZANO, Auteur ; Robin P. GOIN-KOCHEL, Auteur . - p.359-369. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-1 (January 2023) . - p.359-369 Index. décimale : PER Périodiques Résumé : Provider referral is one of the most influential factors in research recruitment. To ease referral burden on providers, we adapted the Best Practice Alert (BPA) in the EPIC Electronic Health Record and assessed its utility in recruiting pediatric patients with autism spectrum disorder for the national SPARK study. During a year-long surveillance, 1203 (64.0%) patients were Interested in SPARK and 223 enrolled. Another 754 participants not recruited via the BPA also enrolled; 35.5% of these participants completed their participation compared to 58.3% of BPA-referred participants. Results suggest that (a) a BPA can successfully engage providers in the study-referral process and (b) families who learn about research through their providers may be more engaged and effectively retained. En ligne : https://doi.org/10.1007/s10803-022-05444-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

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