Autism-related language preferences of English-speaking individuals across the globe: A mixed methods investigation / Lydia HICKMAN ; Joan LEUNG ; Ruth MONK ; Alicia MONTGOMERY ; Hannah HEATH ; Sophie SOWDEN in Autism Research, 16-2 (February 2023)  

Public ISBD [article]  inAutism Research > 16-2 (February 2023) . - p.406-428 Titre : Autism-related language preferences of English-speaking individuals across the globe: A mixed methods investigation Type de document : texte imprimé Auteurs : Lydia HICKMAN, Auteur ; Joan LEUNG, Auteur ; Ruth MONK, Auteur ; Alicia MONTGOMERY, Auteur ; Hannah HEATH, Auteur ; Sophie SOWDEN, Auteur Article en page(s) : p.406-428 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Over the past two decades, there have been increasing discussions around which terms should be used to talk about autism. Whilst these discussions have largely revolved around the suitability of identity-first language and person-first language, more recently this debate has broadened to encompass other autism-related terminology (e.g., 'high-functioning'). To date, academic studies have not investigated the language preferences of autistic individuals outside of the United Kingdom or Australia, nor have they compared levels of endorsement across countries. Hence, the current study adopted a mixed-methods approach, employing both quantitative and qualitative techniques, to explore the linguistic preferences of 654 English-speaking autistic adults across the globe. Despite variation in levels of endorsement between countries, we found that the most popular terms were similar-the terms 'Autism', 'Autistic person', 'Is autistic', 'Neurological/Brain Difference', 'Differences', 'Challenges', 'Difficulties', 'Neurotypical people', and 'Neurotypicals' were consistently favored across countries. Despite relative consensus across groups, both our quantitative and qualitative data demonstrate that there is no universally accepted way to talk about autism. Our thematic analysis revealed the reasons underlying participants' preferences, generating six core themes, and illuminated an important guiding principle-to respect personal preferences. These findings have significant implications for informing practice, research and language policy worldwide. En ligne : https://doi.org/10.1002/aur.2864 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=496 [article] Autism-related language preferences of English-speaking individuals across the globe: A mixed methods investigation [texte imprimé] / Lydia HICKMAN, Auteur ; Joan LEUNG, Auteur ; Ruth MONK, Auteur ; Alicia MONTGOMERY, Auteur ; Hannah HEATH, Auteur ; Sophie SOWDEN, Auteur . - p.406-428. Langues : Anglais (eng) in Autism Research > 16-2 (February 2023) . - p.406-428 Index. décimale : PER Périodiques Résumé : Abstract Over the past two decades, there have been increasing discussions around which terms should be used to talk about autism. Whilst these discussions have largely revolved around the suitability of identity-first language and person-first language, more recently this debate has broadened to encompass other autism-related terminology (e.g., 'high-functioning'). To date, academic studies have not investigated the language preferences of autistic individuals outside of the United Kingdom or Australia, nor have they compared levels of endorsement across countries. Hence, the current study adopted a mixed-methods approach, employing both quantitative and qualitative techniques, to explore the linguistic preferences of 654 English-speaking autistic adults across the globe. Despite variation in levels of endorsement between countries, we found that the most popular terms were similar-the terms 'Autism', 'Autistic person', 'Is autistic', 'Neurological/Brain Difference', 'Differences', 'Challenges', 'Difficulties', 'Neurotypical people', and 'Neurotypicals' were consistently favored across countries. Despite relative consensus across groups, both our quantitative and qualitative data demonstrate that there is no universally accepted way to talk about autism. Our thematic analysis revealed the reasons underlying participants' preferences, generating six core themes, and illuminated an important guiding principle-to respect personal preferences. These findings have significant implications for informing practice, research and language policy worldwide. En ligne : https://doi.org/10.1002/aur.2864 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=496

Experiencing Independence: Perspectives from Autistic Adults / Piyali BHATTACHARYA in Journal of Autism and Developmental Disorders, 56-9 (September 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-9 (September 2026) . - p.3523-3538 Titre : Experiencing Independence: Perspectives from Autistic Adults Type de document : texte imprimé Auteurs : Piyali BHATTACHARYA, Auteur ; Rose J. MATTHEWS, Auteur ; Rae FIELD, Auteur ; Hannah HEATH, Auteur ; Kate A. WOODCOCK, Auteur ; Andrew D. R. SURTEES, Auteur Article en page(s) : p.3523-3538 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Autism diagnostic criteria relate to difficulties in functioning across multiple developmental domains, that often impact on a person’s independence. There are different ways to conceptualise and exercise independence, but no previous studies have questioned how autistic adults do so. This qualitative study aimed to understand how autistic adults define and experience independence. It was designed to further our understanding of how autistic adults account for and use coping strategies to overcome barriers to independent living and navigate their way to their desired level of independence. Twelve semi-structured interviews were conducted with autistic adults living in the United Kingdom. The data were analysed using reflexive thematic analysis. The researchers generated three major themes. The first theme ‘Independence is “not a one-size-fits-all”’ highlights that there is no one definition or concept of independence for autistic people; these are relative and uniquely individual. The second theme ‘“Being autistic has its setbacks” in a neurotypical world’ describes the obstacles encountered by autistic adults seeking independence within a society that favours neurotypical norms. The third theme ‘Finding ways of making it work’ captures strategies autistic adults use in achieving or maintaining independence. The findings from this study provide a foundation for future research exploring domains of independence for autistic adults. The perceived desirability of achieving different degrees of in(ter)dependence and the fluctuating nature of self-sufficiency are explored through lived experience. Increasing understanding of barriers and challenges to independence has the potential to empower autistic adults and improve services and support. En ligne : https://doi.org/10.1007/s10803-025-06812-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=591 [article] Experiencing Independence: Perspectives from Autistic Adults [texte imprimé] / Piyali BHATTACHARYA, Auteur ; Rose J. MATTHEWS, Auteur ; Rae FIELD, Auteur ; Hannah HEATH, Auteur ; Kate A. WOODCOCK, Auteur ; Andrew D. R. SURTEES, Auteur . - p.3523-3538. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-9 (September 2026) . - p.3523-3538 Index. décimale : PER Périodiques Résumé : Autism diagnostic criteria relate to difficulties in functioning across multiple developmental domains, that often impact on a person’s independence. There are different ways to conceptualise and exercise independence, but no previous studies have questioned how autistic adults do so. This qualitative study aimed to understand how autistic adults define and experience independence. It was designed to further our understanding of how autistic adults account for and use coping strategies to overcome barriers to independent living and navigate their way to their desired level of independence. Twelve semi-structured interviews were conducted with autistic adults living in the United Kingdom. The data were analysed using reflexive thematic analysis. The researchers generated three major themes. The first theme ‘Independence is “not a one-size-fits-all”’ highlights that there is no one definition or concept of independence for autistic people; these are relative and uniquely individual. The second theme ‘“Being autistic has its setbacks” in a neurotypical world’ describes the obstacles encountered by autistic adults seeking independence within a society that favours neurotypical norms. The third theme ‘Finding ways of making it work’ captures strategies autistic adults use in achieving or maintaining independence. The findings from this study provide a foundation for future research exploring domains of independence for autistic adults. The perceived desirability of achieving different degrees of in(ter)dependence and the fluctuating nature of self-sufficiency are explored through lived experience. Increasing understanding of barriers and challenges to independence has the potential to empower autistic adults and improve services and support. En ligne : https://doi.org/10.1007/s10803-025-06812-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=591

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