Correlates of self-reported life satisfaction among autistic youth with and without intellectual disability / Leann SMITH DAWALT ; Meghan M BURKE ; Julie Lounds TAYLOR in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1807-1818 Titre : Correlates of self-reported life satisfaction among autistic youth with and without intellectual disability Type de document : Texte imprimé et/ou numérique Auteurs : Leann SMITH DAWALT, Auteur ; Meghan M BURKE, Auteur ; Julie Lounds TAYLOR, Auteur Article en page(s) : p.1807-1818 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  Satisfaction with Life Scale  subjective well-being  transition-aged youth Index. décimale : PER Périodiques Résumé : Compared to their nonautistic peers, lower levels of life satisfaction have been reported by autistic individuals. It is unclear, however, whether autistic individuals with intellectual disability report similar levels of life satisfaction as autistic individuals without intellectual disability or which characteristics are associated with life satisfaction. This study sought to examine differences in levels of self-reported life satisfaction across those with and without intellectual disability and explore correlates of life satisfaction in a sample of 35 autistic youth with intellectual disability and 99 autistic youth without intellectual disability. No difference in self-reported life satisfaction was detected between autistic youth with and without intellectual disability. Greater self-reported life satisfaction was associated with higher self-determination for autistic youth without intellectual disability. For autistic youth with intellectual disability, greater self-reported life satisfaction was related to more frequent social participation, lower parent stress, and fewer unmet service needs. Unmet service needs and parent stress were significantly stronger correlates of life satisfaction for youth with intellectual disability compared to youth without intellectual disability. Although the sample size of autistic youth with intellectual disability was small, these findings suggest the importance of considering heterogeneity among individuals on the autism spectrum when seeking to understand their well-being.Lay abstract Autistic people report lower life satisfaction compared to people without autism. It is unclear whether autistic people with intellectual disability report similar levels of life satisfaction to autistic people without intellectual disability. In this study, we did not find a difference in levels of life satisfaction for autistic youth with intellectual disability compared to autistic youth without intellectual disability. We also identified factors that might promote better life satisfaction. Higher self-determination was related to higher life satisfaction for autistic youth without intellectual disability. For autistic youth with intellectual disability, more frequent social participation, lower parent stress, and fewer unmet service needs were associated with higher life satisfaction. Unmet service needs and parent stress were more strongly related to life satisfaction for youth with intellectual disability compared to youth without intellectual disability. Our findings suggest that taking a more individualized approach to support the well-being of autistic youth is important. En ligne : https://dx.doi.org/10.1177/13623613251327347 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Correlates of self-reported life satisfaction among autistic youth with and without intellectual disability [Texte imprimé et/ou numérique] / Leann SMITH DAWALT, Auteur ; Meghan M BURKE, Auteur ; Julie Lounds TAYLOR, Auteur . - p.1807-1818. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1807-1818 Mots-clés : autism spectrum disorder  Satisfaction with Life Scale  subjective well-being  transition-aged youth Index. décimale : PER Périodiques Résumé : Compared to their nonautistic peers, lower levels of life satisfaction have been reported by autistic individuals. It is unclear, however, whether autistic individuals with intellectual disability report similar levels of life satisfaction as autistic individuals without intellectual disability or which characteristics are associated with life satisfaction. This study sought to examine differences in levels of self-reported life satisfaction across those with and without intellectual disability and explore correlates of life satisfaction in a sample of 35 autistic youth with intellectual disability and 99 autistic youth without intellectual disability. No difference in self-reported life satisfaction was detected between autistic youth with and without intellectual disability. Greater self-reported life satisfaction was associated with higher self-determination for autistic youth without intellectual disability. For autistic youth with intellectual disability, greater self-reported life satisfaction was related to more frequent social participation, lower parent stress, and fewer unmet service needs. Unmet service needs and parent stress were significantly stronger correlates of life satisfaction for youth with intellectual disability compared to youth without intellectual disability. Although the sample size of autistic youth with intellectual disability was small, these findings suggest the importance of considering heterogeneity among individuals on the autism spectrum when seeking to understand their well-being.Lay abstract Autistic people report lower life satisfaction compared to people without autism. It is unclear whether autistic people with intellectual disability report similar levels of life satisfaction to autistic people without intellectual disability. In this study, we did not find a difference in levels of life satisfaction for autistic youth with intellectual disability compared to autistic youth without intellectual disability. We also identified factors that might promote better life satisfaction. Higher self-determination was related to higher life satisfaction for autistic youth without intellectual disability. For autistic youth with intellectual disability, more frequent social participation, lower parent stress, and fewer unmet service needs were associated with higher life satisfaction. Unmet service needs and parent stress were more strongly related to life satisfaction for youth with intellectual disability compared to youth without intellectual disability. Our findings suggest that taking a more individualized approach to support the well-being of autistic youth is important. En ligne : https://dx.doi.org/10.1177/13623613251327347 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Examining the effectiveness, feasibility, and acceptability of an advocacy program for Latinx families of transition-aged autistic youth / Janeth ALEMAN-TOVAR in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.1005-1018 Titre : Examining the effectiveness, feasibility, and acceptability of an advocacy program for Latinx families of transition-aged autistic youth Type de document : Texte imprimé et/ou numérique Auteurs : Janeth ALEMAN-TOVAR, Auteur ; Meghan M BURKE, Auteur ; Edwin MONÁRREZ, Auteur ; Nicole Espinosa ZALDIVAR, Auteur Article en page(s) : p.1005-1018 Langues : Anglais (eng) Mots-clés : adult disability services  autism  Latinx  parent advocacy  special education Index. décimale : PER Périodiques Résumé : Families of autistic youth often support their children?s transition from adolescence to adulthood. During this time, families learn to navigate the complex shift from school-based to adult disability services. For Latinx (vs non-Latinx White) families of autistic youth, transition is especially difficult because of the systemic barriers (e.g. language) Latinx families face when accessing services. Unfortunately, few interventions aim to improve the transition among Latinx families of autistic transition-aged youth. This study examines the effectiveness, feasibility, and acceptability of the ASISTIR (Apoyando a nueStros hIjo/as con autiSmo obTener servIcios de tRansición; Supporting our Children with Autism to Obtain Transition Services) program, a six-session program for Latinx families of autistic youth, with respect to increasing: school-based transition planning and adult disability services knowledge, empowerment, and advocacy. Twenty-nine participants were included in this single-group, intervention study. After completing the program, participants demonstrated significantly improved: knowledge of school-based transition planning and adult disability services, advocacy, and empowerment. In addition, participants were highly satisfied with the program, based on the formative and summative evaluations and individual interviews. Implications for research and practice are discussed.Lay abstract To support Latinx families of autistic youth navigate school-based transition services and adult disability services, we provided a family advocacy program entitled, ASISTIR (Apoyando a nueStros hIjo/as con autiSmo obTener servIcios de tRansición; Supporting our Children with Autism to Obtain Transition Services). The ASISTIR program consisted of six, two-hour sessions and included the following topics: school-based transition planning, person-centered planning, Supplemental Security Income, Vocational Rehabilitation, and Home and Community-Based Medicaid Waiver. Twenty-nine Latinx family members completed the cohort-based ASISTIR program. After participating family members demonstrated increased knowledge of school-based transition planning and adult disability services. Participants also demonstrated increased empowerment and advocacy. En ligne : https://dx.doi.org/10.1177/13623613241292159 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Examining the effectiveness, feasibility, and acceptability of an advocacy program for Latinx families of transition-aged autistic youth [Texte imprimé et/ou numérique] / Janeth ALEMAN-TOVAR, Auteur ; Meghan M BURKE, Auteur ; Edwin MONÁRREZ, Auteur ; Nicole Espinosa ZALDIVAR, Auteur . - p.1005-1018. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.1005-1018 Mots-clés : adult disability services  autism  Latinx  parent advocacy  special education Index. décimale : PER Périodiques Résumé : Families of autistic youth often support their children?s transition from adolescence to adulthood. During this time, families learn to navigate the complex shift from school-based to adult disability services. For Latinx (vs non-Latinx White) families of autistic youth, transition is especially difficult because of the systemic barriers (e.g. language) Latinx families face when accessing services. Unfortunately, few interventions aim to improve the transition among Latinx families of autistic transition-aged youth. This study examines the effectiveness, feasibility, and acceptability of the ASISTIR (Apoyando a nueStros hIjo/as con autiSmo obTener servIcios de tRansición; Supporting our Children with Autism to Obtain Transition Services) program, a six-session program for Latinx families of autistic youth, with respect to increasing: school-based transition planning and adult disability services knowledge, empowerment, and advocacy. Twenty-nine participants were included in this single-group, intervention study. After completing the program, participants demonstrated significantly improved: knowledge of school-based transition planning and adult disability services, advocacy, and empowerment. In addition, participants were highly satisfied with the program, based on the formative and summative evaluations and individual interviews. Implications for research and practice are discussed.Lay abstract To support Latinx families of autistic youth navigate school-based transition services and adult disability services, we provided a family advocacy program entitled, ASISTIR (Apoyando a nueStros hIjo/as con autiSmo obTener servIcios de tRansición; Supporting our Children with Autism to Obtain Transition Services). The ASISTIR program consisted of six, two-hour sessions and included the following topics: school-based transition planning, person-centered planning, Supplemental Security Income, Vocational Rehabilitation, and Home and Community-Based Medicaid Waiver. Twenty-nine Latinx family members completed the cohort-based ASISTIR program. After participating family members demonstrated increased knowledge of school-based transition planning and adult disability services. Participants also demonstrated increased empowerment and advocacy. En ligne : https://dx.doi.org/10.1177/13623613241292159 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

To better meet the needs of autistic people, we need to rethink how we measure services / Meghan M BURKE in Autism, 27-4 (May 2023)  

Public ISBD [article]  inAutism > 27-4 (May 2023) . - p.873-875 Titre : To better meet the needs of autistic people, we need to rethink how we measure services Type de document : Texte imprimé et/ou numérique Auteurs : Meghan M BURKE, Auteur ; Julie Lounds TAYLOR, Auteur Article en page(s) : p.873-875 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1177/13623613231164495 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499 [article] To better meet the needs of autistic people, we need to rethink how we measure services [Texte imprimé et/ou numérique] / Meghan M BURKE, Auteur ; Julie Lounds TAYLOR, Auteur . - p.873-875. Langues : Anglais (eng) in Autism > 27-4 (May 2023) . - p.873-875 Index. décimale : PER Périodiques En ligne : https://doi.org/10.1177/13623613231164495 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499

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