Effects of a parent advocacy intervention on service access for transition-aged autistic youth: a multisite randomized controlled trial / Julie Lounds TAYLOR in Journal of Child Psychology and Psychiatry, 67-2 (February 2026)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 67-2 (February 2026) . - p.212-224 Titre : Effects of a parent advocacy intervention on service access for transition-aged autistic youth: a multisite randomized controlled trial Type de document : texte imprimé Auteurs : Julie Lounds TAYLOR, Auteur ; Leann Smith DAWALT, Auteur ; Meghan M. BURKE, Auteur ; Meng XU, Auteur ; James C. SLAUGHTER, Auteur Article en page(s) : p.212-224 Langues : Anglais (eng) Mots-clés : Autism  services  transition to adulthood  randomized controlled trial Index. décimale : PER Périodiques Résumé : Background Autistic youth in the United States face many challenges accessing services as they transition to adulthood. Improving parents' ability to advocate for services is a promising way to improve service access. The current study tested whether participation in an intervention to improve parents' ability to advocate for adult services (called Advocating for Supports to Improve Service Transitions or ASSIST) led to increased service access for their transition-aged autistic youth. Methods Using a multisite, single-blind parallel-group design, we randomized 185 parents of transition-aged autistic youth to either a treatment condition that received the ASSIST intervention, or a control condition that received comprehensive written information about adult services. Primary outcomes for this report ? number of government programs that fund services and direct services received by the youth ? were collected via parental interview at baseline, six, and 12?months after intervention. Results Primary analyses found no significant treatment effects on service access. Subgroup analyses, however, detected treatment effects for families of youth who had exited high school prior to their families taking ASSIST. Among those families, youth from the treatment group were receiving more government programs that fund services at 6?months after intervention compared with youth from the control group. Conclusions We cannot conclude from our findings that ASSIST improved access to services, though there was some evidence to suggest increased access to government programs that fund services for families of autistic youth who had exited high school. Future research should investigate which families can translate written information about adult services (i.e. the control condition) into improved service access, and which families need more individualized support beyond a group-based class to see improvements in service access. En ligne : https://doi.org/10.1111/jcpp.70036 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=579 [article] Effects of a parent advocacy intervention on service access for transition-aged autistic youth: a multisite randomized controlled trial [texte imprimé] / Julie Lounds TAYLOR, Auteur ; Leann Smith DAWALT, Auteur ; Meghan M. BURKE, Auteur ; Meng XU, Auteur ; James C. SLAUGHTER, Auteur . - p.212-224. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 67-2 (February 2026) . - p.212-224 Mots-clés : Autism  services  transition to adulthood  randomized controlled trial Index. décimale : PER Périodiques Résumé : Background Autistic youth in the United States face many challenges accessing services as they transition to adulthood. Improving parents' ability to advocate for services is a promising way to improve service access. The current study tested whether participation in an intervention to improve parents' ability to advocate for adult services (called Advocating for Supports to Improve Service Transitions or ASSIST) led to increased service access for their transition-aged autistic youth. Methods Using a multisite, single-blind parallel-group design, we randomized 185 parents of transition-aged autistic youth to either a treatment condition that received the ASSIST intervention, or a control condition that received comprehensive written information about adult services. Primary outcomes for this report ? number of government programs that fund services and direct services received by the youth ? were collected via parental interview at baseline, six, and 12?months after intervention. Results Primary analyses found no significant treatment effects on service access. Subgroup analyses, however, detected treatment effects for families of youth who had exited high school prior to their families taking ASSIST. Among those families, youth from the treatment group were receiving more government programs that fund services at 6?months after intervention compared with youth from the control group. Conclusions We cannot conclude from our findings that ASSIST improved access to services, though there was some evidence to suggest increased access to government programs that fund services for families of autistic youth who had exited high school. Future research should investigate which families can translate written information about adult services (i.e. the control condition) into improved service access, and which families need more individualized support beyond a group-based class to see improvements in service access. En ligne : https://doi.org/10.1111/jcpp.70036 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=579

Improving parents' ability to advocate for services for youth with autism: A randomized clinical trial / Julie Lounds TAYLOR in Autism Research, 16-10 (October 2023)  

Public ISBD [article]  inAutism Research > 16-10 (October 2023) . - p.1976-1988 Titre : Improving parents' ability to advocate for services for youth with autism: A randomized clinical trial Type de document : texte imprimé Auteurs : Julie Lounds TAYLOR, Auteur ; Leann S. DAWALT, Auteur ; Meghan M. BURKE, Auteur ; James C. SLAUGHTER, Auteur ; Meng XU, Auteur Article en page(s) : p.1976-1988 Index. décimale : PER Périodiques Résumé : Abstract Youth with autism face challenges accessing services as they transition to adulthood. Improving parents' ability to advocate for services on behalf of their youth may be an effective way to improve service access and ultimately transition outcomes in this group. In this study, we tested whether participating in an advocacy intervention improved parents' ability to advocate for services for their transition-aged youth with autism. One hundred and eighty-five parents of youth with autism ages 16-26, recruited across three states in the U.S., were randomized to one of two experimental conditions. The treatment condition received the ASSIST program, a 12-week (24-h) group-based intervention. The control condition received the same written materials as the treatment condition. Primary outcomes for this report-parent advocacy ability-were collected at baseline (prior to randomization) and post-test (immediately after the treatment group finished the 12-week program) by survey. After taking ASSIST, the treatment condition had greater gains than controls in knowledge of adult services (B 1.62, CI 2.33 to 0.90) and perceived advocacy skills (B 0.19, CI 0.33 to 0.04). Participants who had less knowledge, lower perceived advocacy skills, and less active coping styles at baseline had the greatest treatment gains. Findings suggest that ASSIST is effective in improving parent advocacy ability and may be most beneficial for parents who experience greater challenges advocating for their son/daughter with autism. Future research will examine whether gains in parent advocacy ability leads to improvements in service access and post-school outcomes for transition-age youth with autism. En ligne : https://doi.org/10.1002/aur.3001 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=513 [article] Improving parents' ability to advocate for services for youth with autism: A randomized clinical trial [texte imprimé] / Julie Lounds TAYLOR, Auteur ; Leann S. DAWALT, Auteur ; Meghan M. BURKE, Auteur ; James C. SLAUGHTER, Auteur ; Meng XU, Auteur . - p.1976-1988. in Autism Research > 16-10 (October 2023) . - p.1976-1988 Index. décimale : PER Périodiques Résumé : Abstract Youth with autism face challenges accessing services as they transition to adulthood. Improving parents' ability to advocate for services on behalf of their youth may be an effective way to improve service access and ultimately transition outcomes in this group. In this study, we tested whether participating in an advocacy intervention improved parents' ability to advocate for services for their transition-aged youth with autism. One hundred and eighty-five parents of youth with autism ages 16-26, recruited across three states in the U.S., were randomized to one of two experimental conditions. The treatment condition received the ASSIST program, a 12-week (24-h) group-based intervention. The control condition received the same written materials as the treatment condition. Primary outcomes for this report-parent advocacy ability-were collected at baseline (prior to randomization) and post-test (immediately after the treatment group finished the 12-week program) by survey. After taking ASSIST, the treatment condition had greater gains than controls in knowledge of adult services (B 1.62, CI 2.33 to 0.90) and perceived advocacy skills (B 0.19, CI 0.33 to 0.04). Participants who had less knowledge, lower perceived advocacy skills, and less active coping styles at baseline had the greatest treatment gains. Findings suggest that ASSIST is effective in improving parent advocacy ability and may be most beneficial for parents who experience greater challenges advocating for their son/daughter with autism. Future research will examine whether gains in parent advocacy ability leads to improvements in service access and post-school outcomes for transition-age youth with autism. En ligne : https://doi.org/10.1002/aur.3001 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=513

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