Exploring the relationship between COVID-19 and autistic adults' community participation: Findings from a two-timepoint longitudinal study / Mark S. SALZER ; Alec BECKER ; David J. VANNESS ; Brian K. LEE ; Dylan COOPER ; Jonas VENTIMIGLIA ; Lindsay L. SHEA in Research in Autism Spectrum Disorders, 109 (November 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 109 (November 2023) . - 102278 Titre : Exploring the relationship between COVID-19 and autistic adults' community participation: Findings from a two-timepoint longitudinal study Type de document : Texte imprimé et/ou numérique Auteurs : Mark S. SALZER, Auteur ; Alec BECKER, Auteur ; David J. VANNESS, Auteur ; Brian K. LEE, Auteur ; Dylan COOPER, Auteur ; Jonas VENTIMIGLIA, Auteur ; Lindsay L. SHEA, Auteur Article en page(s) : 102278 Langues : Anglais (eng) Mots-clés : Autism  COVID-19  Community participation  Autistic adults Index. décimale : PER Périodiques Résumé : Background The COVID-19 pandemic has resulted in a continuum of changes in communities that have impacted the lives and health of millions of autistic people. Method To identify community participation changes during COVID-19, we conducted a two-timepoint (2018 and 2022) longitudinal quantitative study involving 116 autistic adults in Pennsylvania to investigate the impact of the pandemic on their community participation. Community participation was measured by the Temple University Community Participation Measure, and the impact of the pandemic was measured by a series of factors related to the COVID-19 pandemic (e.g., healthcare access, transportation, safety, etc.). Results Results of paired sample t-tests did not show changes in participants' total days of participation over the last 30 days, the total number of activities, or percentages of all activities participants considered important and participated in (i.e., breadth ratio) between the timepoints. However, the percentage of activities that were important to participants and in which they reported engaging as much as they wanted to (i.e., sufficiency ratio) reduced significantly. When examining participation outcomes and COVID-19 impact, we found that multiple participation outcomes (i.e., number of activities, breadth ratio, and sufficiency ratio) were negatively associated with the COVID-19 impact. Conclusion Results suggest that the COVID-19 impacts on autistic adults are variable, with those reporting a more significant impact also reporting a significantly lower level of participation. These findings emphasize the importance of individualized planning to support autistic adults to maintain or regain participation in their preferred activities during the pandemic and beyond. En ligne : https://doi.org/10.1016/j.rasd.2023.102278 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517 [article] Exploring the relationship between COVID-19 and autistic adults' community participation: Findings from a two-timepoint longitudinal study [Texte imprimé et/ou numérique] / Mark S. SALZER, Auteur ; Alec BECKER, Auteur ; David J. VANNESS, Auteur ; Brian K. LEE, Auteur ; Dylan COOPER, Auteur ; Jonas VENTIMIGLIA, Auteur ; Lindsay L. SHEA, Auteur . - 102278. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 109 (November 2023) . - 102278 Mots-clés : Autism  COVID-19  Community participation  Autistic adults Index. décimale : PER Périodiques Résumé : Background The COVID-19 pandemic has resulted in a continuum of changes in communities that have impacted the lives and health of millions of autistic people. Method To identify community participation changes during COVID-19, we conducted a two-timepoint (2018 and 2022) longitudinal quantitative study involving 116 autistic adults in Pennsylvania to investigate the impact of the pandemic on their community participation. Community participation was measured by the Temple University Community Participation Measure, and the impact of the pandemic was measured by a series of factors related to the COVID-19 pandemic (e.g., healthcare access, transportation, safety, etc.). Results Results of paired sample t-tests did not show changes in participants' total days of participation over the last 30 days, the total number of activities, or percentages of all activities participants considered important and participated in (i.e., breadth ratio) between the timepoints. However, the percentage of activities that were important to participants and in which they reported engaging as much as they wanted to (i.e., sufficiency ratio) reduced significantly. When examining participation outcomes and COVID-19 impact, we found that multiple participation outcomes (i.e., number of activities, breadth ratio, and sufficiency ratio) were negatively associated with the COVID-19 impact. Conclusion Results suggest that the COVID-19 impacts on autistic adults are variable, with those reporting a more significant impact also reporting a significantly lower level of participation. These findings emphasize the importance of individualized planning to support autistic adults to maintain or regain participation in their preferred activities during the pandemic and beyond. En ligne : https://doi.org/10.1016/j.rasd.2023.102278 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517

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