"Don?t Promise Something You can?t Deliver:" Caregivers' Advice for Improving Services to Adolescents and Young Adults with Autism / Kristen A. BERG in Autism Research and Treatment, 2023 (2023)  

Public ISBD [article]  inAutism Research and Treatment > 2023 (2023) Titre : "Don?t Promise Something You can?t Deliver:" Caregivers' Advice for Improving Services to Adolescents and Young Adults with Autism Type de document : Texte imprimé et/ou numérique Auteurs : Kristen A. BERG, Auteur ; Karen J. ISHLER, Auteur ; Sarah LYTLE, Auteur ; Ronna KAPLAN, Auteur ; Fei WANG, Auteur ; Tugba OLGAC, Auteur ; Stacy MINER, Auteur ; Marjorie N. EDGUER, Auteur ; David E. BIEGEL, Auteur Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Approximately 50,000 youths with autism spectrum disorders (ASD) exit U.S. high schools yearly to enter adult systems of care, many of whom remain dependent on family for day-to-day care and service system navigation. As part of a larger study, 174 family caregivers for adolescents or young adults with ASD were asked what advice they would give service providers about how to improve services for youth with ASD. Reflexive thematic analysis identified a framework of five directives: (1) provide a roadmap to services; (2) improve service access; (3) fill gaps to address unmet needs; (4) educate themselves, their families, and society about autism; and (5) operate from a relationship-building paradigm with families. Education, health, and social service providers, as well as policymakers, can use these directives to better assist youth with ASD and their families in the transition to adulthood. En ligne : https://doi.org/10.1155/2023/6597554 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=538 [article] "Don?t Promise Something You can?t Deliver:" Caregivers' Advice for Improving Services to Adolescents and Young Adults with Autism [Texte imprimé et/ou numérique] / Kristen A. BERG, Auteur ; Karen J. ISHLER, Auteur ; Sarah LYTLE, Auteur ; Ronna KAPLAN, Auteur ; Fei WANG, Auteur ; Tugba OLGAC, Auteur ; Stacy MINER, Auteur ; Marjorie N. EDGUER, Auteur ; David E. BIEGEL, Auteur. Langues : Anglais (eng) in Autism Research and Treatment > 2023 (2023) Index. décimale : PER Périodiques Résumé : Approximately 50,000 youths with autism spectrum disorders (ASD) exit U.S. high schools yearly to enter adult systems of care, many of whom remain dependent on family for day-to-day care and service system navigation. As part of a larger study, 174 family caregivers for adolescents or young adults with ASD were asked what advice they would give service providers about how to improve services for youth with ASD. Reflexive thematic analysis identified a framework of five directives: (1) provide a roadmap to services; (2) improve service access; (3) fill gaps to address unmet needs; (4) educate themselves, their families, and society about autism; and (5) operate from a relationship-building paradigm with families. Education, health, and social service providers, as well as policymakers, can use these directives to better assist youth with ASD and their families in the transition to adulthood. En ligne : https://doi.org/10.1155/2023/6597554 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=538

Examination of protective factors that promote prosocial skill development among children exposed to intimate partner violence / Megan R. HOLMES ; Anna E. Bender ; Susan YOON ; Kristen A. BERG ; Janelle Duda-Banwar ; Yafan Chen ; Kylie E. Evans ; Amy Korsch-Williams ; Adam T. Perzynski in Development and Psychopathology, 37-1 (February 2025)  

Public ISBD [article]  inDevelopment and Psychopathology > 37-1 (February 2025) . - p.490-503 Titre : Examination of protective factors that promote prosocial skill development among children exposed to intimate partner violence : Development and Psychopathology Type de document : Texte imprimé et/ou numérique Auteurs : Megan R. HOLMES, Auteur ; Anna E. Bender, Auteur ; Susan YOON, Auteur ; Kristen A. BERG, Auteur ; Janelle Duda-Banwar, Auteur ; Yafan Chen, Auteur ; Kylie E. Evans, Auteur ; Amy Korsch-Williams, Auteur ; Adam T. Perzynski, Auteur Article en page(s) : p.490-503 Langues : Anglais (eng) Mots-clés : Child maltreatment  intimate partner violence  longitudinal  prosocial skill development Index. décimale : PER Périodiques Résumé : This retrospective cohort study examined prosocial skills development in child welfare-involved children, how intimate partner violence (IPV) exposure explained heterogeneity in children?s trajectories of prosocial skill development, and the degree to which protective factors across children?s ecologies promoted prosocial skill development. Data were from 1,678 children from the National Survey of Child and Adolescent Well-being I, collected between 1999 and 2007. Cohort-sequential growth mixture models were estimated to identify patterns of prosocial skill development between the ages of 3 to 10 years. Four diverse pathways were identified, including two groups that started high (high subtle-decreasing; high decreasing-to-increasing) and two groups that started low (low stable; low increasing-to-decreasing). Children with prior history of child welfare involvement, preschool-age IPV exposure, school-age IPV exposure, or family income below the federal poverty level had higher odds of being in the high decreasing-to-increasing group compared with the high subtle-decreasing group. Children with a mother with greater than high school education or higher maternal responsiveness had higher odds of being in the low increasing-to-decreasing group compared with the low stable group. The importance of maternal responsiveness in fostering prosocial skill development underlines the need for further assessment and intervention. Recommendations for clinical assessment and parenting programs are provided. En ligne : https://dx.doi.org/10.1017/S0954579424000087 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546 [article] Examination of protective factors that promote prosocial skill development among children exposed to intimate partner violence : Development and Psychopathology [Texte imprimé et/ou numérique] / Megan R. HOLMES, Auteur ; Anna E. Bender, Auteur ; Susan YOON, Auteur ; Kristen A. BERG, Auteur ; Janelle Duda-Banwar, Auteur ; Yafan Chen, Auteur ; Kylie E. Evans, Auteur ; Amy Korsch-Williams, Auteur ; Adam T. Perzynski, Auteur . - p.490-503. Langues : Anglais (eng) in Development and Psychopathology > 37-1 (February 2025) . - p.490-503 Mots-clés : Child maltreatment  intimate partner violence  longitudinal  prosocial skill development Index. décimale : PER Périodiques Résumé : This retrospective cohort study examined prosocial skills development in child welfare-involved children, how intimate partner violence (IPV) exposure explained heterogeneity in children?s trajectories of prosocial skill development, and the degree to which protective factors across children?s ecologies promoted prosocial skill development. Data were from 1,678 children from the National Survey of Child and Adolescent Well-being I, collected between 1999 and 2007. Cohort-sequential growth mixture models were estimated to identify patterns of prosocial skill development between the ages of 3 to 10 years. Four diverse pathways were identified, including two groups that started high (high subtle-decreasing; high decreasing-to-increasing) and two groups that started low (low stable; low increasing-to-decreasing). Children with prior history of child welfare involvement, preschool-age IPV exposure, school-age IPV exposure, or family income below the federal poverty level had higher odds of being in the high decreasing-to-increasing group compared with the high subtle-decreasing group. Children with a mother with greater than high school education or higher maternal responsiveness had higher odds of being in the low increasing-to-decreasing group compared with the low stable group. The importance of maternal responsiveness in fostering prosocial skill development underlines the need for further assessment and intervention. Recommendations for clinical assessment and parenting programs are provided. En ligne : https://dx.doi.org/10.1017/S0954579424000087 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546

"That he won't experience life like he should": Exploring worries of family caregivers of transition-age autistic youth / Grazia DIPIERRO ; Caroline Duke CHAIKIN ; Rita OBEID ; Kristen A. BERG ; Karen J. ISHLER in Research in Autism Spectrum Disorders, 109 (November 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 109 (November 2023) . - 102283 Titre : "That he won't experience life like he should": Exploring worries of family caregivers of transition-age autistic youth Type de document : Texte imprimé et/ou numérique Auteurs : Grazia DIPIERRO, Auteur ; Caroline Duke CHAIKIN, Auteur ; Rita OBEID, Auteur ; Kristen A. BERG, Auteur ; Karen J. ISHLER, Auteur Article en page(s) : 102283 Langues : Anglais (eng) Mots-clés : Family caregivers  Caregiver burden  Worry  Transition to adulthood  Quantitative  Qualitative Index. décimale : PER Périodiques Résumé : Background Caregiver (CG) worry, a dimension of CG burden, has rarely been explored in CGs of transition-aged autistic youth. The present study investigated CG, youth, and service characteristics as potential predictors of CG worry and explored expressed concerns from CGs about their autistic youth and their care. Method Data were drawn from a study of 174 family CGs of transition-age autistic youth (age 16-30 years), living in a midwestern metropolitan area. Using a CG worries scale, CGs rated eight worries (e.g., worry about youth?s safety, etc.) experienced in the past six months. An OLS regression model of CG worry focused on predictors of CG characteristics (age, health, financial burden, involvement in youth?s care), youth characteristics (age, social engagement, adaptive functioning, problematic behavior) and service characteristics (access barriers and engagement in transition planning). CG responses to an open-ended question about their greatest worry regarding the youth and their care were analyzed thematically. Results CGs were mostly middle-aged mothers, caring for predominantly male (71.8%) ASD youth whose average age was 21. Regression models indicated that CG worry was predicted by problematic behaviors and barriers to accessing services. The expressed CG worries were grouped into four themes, including youth reliance on family CGs, possibilities for the youth?s future, youth relationships, and support for youth. Conclusions These findings support the need for improved access to services for transition-aged youth and raise awareness of the need for potential services and interventions to help families manage various worries during this time. En ligne : https://doi.org/10.1016/j.rasd.2023.102283 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=518 [article] "That he won't experience life like he should": Exploring worries of family caregivers of transition-age autistic youth [Texte imprimé et/ou numérique] / Grazia DIPIERRO, Auteur ; Caroline Duke CHAIKIN, Auteur ; Rita OBEID, Auteur ; Kristen A. BERG, Auteur ; Karen J. ISHLER, Auteur . - 102283. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 109 (November 2023) . - 102283 Mots-clés : Family caregivers  Caregiver burden  Worry  Transition to adulthood  Quantitative  Qualitative Index. décimale : PER Périodiques Résumé : Background Caregiver (CG) worry, a dimension of CG burden, has rarely been explored in CGs of transition-aged autistic youth. The present study investigated CG, youth, and service characteristics as potential predictors of CG worry and explored expressed concerns from CGs about their autistic youth and their care. Method Data were drawn from a study of 174 family CGs of transition-age autistic youth (age 16-30 years), living in a midwestern metropolitan area. Using a CG worries scale, CGs rated eight worries (e.g., worry about youth?s safety, etc.) experienced in the past six months. An OLS regression model of CG worry focused on predictors of CG characteristics (age, health, financial burden, involvement in youth?s care), youth characteristics (age, social engagement, adaptive functioning, problematic behavior) and service characteristics (access barriers and engagement in transition planning). CG responses to an open-ended question about their greatest worry regarding the youth and their care were analyzed thematically. Results CGs were mostly middle-aged mothers, caring for predominantly male (71.8%) ASD youth whose average age was 21. Regression models indicated that CG worry was predicted by problematic behaviors and barriers to accessing services. The expressed CG worries were grouped into four themes, including youth reliance on family CGs, possibilities for the youth?s future, youth relationships, and support for youth. Conclusions These findings support the need for improved access to services for transition-aged youth and raise awareness of the need for potential services and interventions to help families manage various worries during this time. En ligne : https://doi.org/10.1016/j.rasd.2023.102283 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=518

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