The accessibility of online, asynchronous, focus groups with autistic participants / Henna CUNDILL in Good Autism Practice - GAP, 24-1 (May 2023)

Public ISBD [article]  inGood Autism Practice - GAP > 24-1 (May 2023) . - p.66-72 Titre : The accessibility of online, asynchronous, focus groups with autistic participants Type de document : Texte imprimé et/ou numérique Auteurs : Henna CUNDILL, Auteur ; Sarah DOUGLAS, Auteur ; Krysia WALDOCK, Auteur ; Christopher BARBER, Auteur ; Stewart RAPLEY, Auteur Article en page(s) : p.66-72 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Increasingly, researchers are using online surveys and other online methods to obtain data directly from autistic participants. It is therefore important to ensure that what is done takes account of the perspectives of autistic people, particularly those who are similar to the sample selected and to learn from previous participatory research. This paper compares two online, asynchronous focus groups which took place as part of a Participatory Action Research project. The lead researcher, HC worked with three autistic students studying at the Centre for Autism and Theology at Aberdeen University and another autistic student based at the Tizard Centre at the University of Kent (KW). The project was designed collaboratively by this group. The first focus group was a pilot looking at autism and Christian prayer. It was predicted that using an online, text-based, and asynchronous format would reduce barriers to accessibility for autistic participants. However, during and after the pilot, some participants still reported barriers. These included anxiety triggered by uncertainty, social anxiety and executive functioning issues. Having learned from the pilot, the main focus group was designed to address the barriers identified and to build on the positives and six new autistic participants were recruited. Additional steps were taken before, during and after the Focus Group to assist participants with planning and scheduling their engagement, and to reduce social anxiety and uncertainty. The main focus group saw increased levels of participation when compared with the pilot. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=540 [article] The accessibility of online, asynchronous, focus groups with autistic participants [Texte imprimé et/ou numérique] / Henna CUNDILL, Auteur ; Sarah DOUGLAS, Auteur ; Krysia WALDOCK, Auteur ; Christopher BARBER, Auteur ; Stewart RAPLEY, Auteur . - p.66-72. Langues : Anglais (eng) in Good Autism Practice - GAP > 24-1 (May 2023) . - p.66-72 Index. décimale : PER Périodiques Résumé : Increasingly, researchers are using online surveys and other online methods to obtain data directly from autistic participants. It is therefore important to ensure that what is done takes account of the perspectives of autistic people, particularly those who are similar to the sample selected and to learn from previous participatory research. This paper compares two online, asynchronous focus groups which took place as part of a Participatory Action Research project. The lead researcher, HC worked with three autistic students studying at the Centre for Autism and Theology at Aberdeen University and another autistic student based at the Tizard Centre at the University of Kent (KW). The project was designed collaboratively by this group. The first focus group was a pilot looking at autism and Christian prayer. It was predicted that using an online, text-based, and asynchronous format would reduce barriers to accessibility for autistic participants. However, during and after the pilot, some participants still reported barriers. These included anxiety triggered by uncertainty, social anxiety and executive functioning issues. Having learned from the pilot, the main focus group was designed to address the barriers identified and to build on the positives and six new autistic participants were recruited. Additional steps were taken before, during and after the Focus Group to assist participants with planning and scheduling their engagement, and to reduce social anxiety and uncertainty. The main focus group saw increased levels of participation when compared with the pilot. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=540

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