Exploring Family Experiences With Section 504 Plans for Their Autistic Children / RaeAnne LINDSAY in Journal of Autism and Developmental Disorders, 56-10 (October 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-10 (October 2026) . - p. 3866-3877 Titre : Exploring Family Experiences With Section 504 Plans for Their Autistic Children Type de document : texte imprimé Auteurs : RaeAnne LINDSAY, Auteur ; Bhabika JOSHI, Auteur ; Nehal ABAZA, Auteur ; Bridget C. SMITH, Auteur ; Saury RAMOS-TORRES, Auteur ; Rion HUMPHRIES, Auteur ; Sarah DEMISSIE, Auteur ; Ana Lucia HINCAPIE, Auteur ; Isabelle BURAKOV, Auteur ; Brittney GOSCICKI, Auteur ; Meghan M. BURKE, Auteur Article en page(s) : p. 3866-3877 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Although access to inclusive education should be available for all students with disabilities, the extant literature has focused mainly on access to Individualized Education Programs (IEPs) without addressing access to Sect. 504 of the American Rehabilitation Act. Over 1.38 million students are served by Sect. 504 in public schools, yet little is known about their experiences. Specifically, little is known about the experiences of families of autistic students with Sect. 504; given the heterogeneity of autism, it is likely that many autistic students qualify for Sect. 504 (and not IEPs). The purpose of the study was to explore the experiences of families of children with autism with access to Sect. 504 in school settings. Altogether, 23 families participated in individual interviews about their initial experiences accessing Sect. 504, their input into the Sect. 504 plan, and the implementation of the Sect. 504 plan. Some families reported positive experiences with Sect. 504. When positive experiences occurred, it was largely due to having supportive school professionals. Unfortunately, most participants reported negative experiences with access to Sect. 504 including the school being unwilling to provide accommodations. Implications for future research include the need to develop and test interventions to improve supports under Sect. 504. En ligne : https://doi.org/10.1007/s10803-025-06856-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=593 [article] Exploring Family Experiences With Section 504 Plans for Their Autistic Children [texte imprimé] / RaeAnne LINDSAY, Auteur ; Bhabika JOSHI, Auteur ; Nehal ABAZA, Auteur ; Bridget C. SMITH, Auteur ; Saury RAMOS-TORRES, Auteur ; Rion HUMPHRIES, Auteur ; Sarah DEMISSIE, Auteur ; Ana Lucia HINCAPIE, Auteur ; Isabelle BURAKOV, Auteur ; Brittney GOSCICKI, Auteur ; Meghan M. BURKE, Auteur . - p. 3866-3877. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-10 (October 2026) . - p. 3866-3877 Index. décimale : PER Périodiques Résumé : Although access to inclusive education should be available for all students with disabilities, the extant literature has focused mainly on access to Individualized Education Programs (IEPs) without addressing access to Sect. 504 of the American Rehabilitation Act. Over 1.38 million students are served by Sect. 504 in public schools, yet little is known about their experiences. Specifically, little is known about the experiences of families of autistic students with Sect. 504; given the heterogeneity of autism, it is likely that many autistic students qualify for Sect. 504 (and not IEPs). The purpose of the study was to explore the experiences of families of children with autism with access to Sect. 504 in school settings. Altogether, 23 families participated in individual interviews about their initial experiences accessing Sect. 504, their input into the Sect. 504 plan, and the implementation of the Sect. 504 plan. Some families reported positive experiences with Sect. 504. When positive experiences occurred, it was largely due to having supportive school professionals. Unfortunately, most participants reported negative experiences with access to Sect. 504 including the school being unwilling to provide accommodations. Implications for future research include the need to develop and test interventions to improve supports under Sect. 504. En ligne : https://doi.org/10.1007/s10803-025-06856-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=593

From awareness to action: Facilitators and advocacy in healthcare by autistic adults / RaeAnne LINDSAY ; Sarah DEMISSIE ; Isabelle BURAKOV ; Saury RAMOS-TORRES ; Meghan M. BURKE in Autism, 29-10 (October 2025)  

Public ISBD [article]  inAutism > 29-10 (October 2025) . - p.2513-2523 Titre : From awareness to action: Facilitators and advocacy in healthcare by autistic adults Type de document : texte imprimé Auteurs : RaeAnne LINDSAY, Auteur ; Sarah DEMISSIE, Auteur ; Isabelle BURAKOV, Auteur ; Saury RAMOS-TORRES, Auteur ; Meghan M. BURKE, Auteur Article en page(s) : p.2513-2523 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  facilitators  healthcare  self-advocacy Index. décimale : PER Périodiques Résumé : Autistic adults face various psychological and physical health conditions which often require ongoing medical attention. Despite a greater likelihood of health conditions, autistic adults face many systemic barriers in accessing healthcare services. It is important to identify facilitators to healthcare access and recognize the impact of self-advocacy on these experiences. In this qualitative study, we interviewed 15 autistic participants to understand their experienced and desired facilitators when accessing healthcare services, as well as the role of self-advocacy in accessing these services. Overall, participants agreed that formal and informal supports, provider knowledge about autism, and provider openness to providing accommodations served as facilitators. Participants also shared about their experiences related to self-advocacy and accessing healthcare services such as examples of self-advocacy in healthcare, learning to be a self-advocate, and facilitators of self-advocacy. Implications for research and practice are discussed.Lay abstract Autistic adults often have both mental and physical health needs that require ongoing care. However, they often face obstacles when trying to get healthcare. This study aimed to find out what helps autistic adults get the healthcare they need and how self-advocacy, or speaking up for themselves, plays a role. We talked to 15 autistic individuals about their experiences and what they wished for when accessing healthcare. Participants mentioned that support from others, doctors' knowledge about autism, and doctors being willing to make changes as needed per patient need were helpful. They also shared how self-advocacy impacted their healthcare experiences, including examples of how they advocated for themselves and what helped them do so. The study offers insights that could inform future research and healthcare practices. En ligne : https://dx.doi.org/10.1177/13623613251343350 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=567 [article] From awareness to action: Facilitators and advocacy in healthcare by autistic adults [texte imprimé] / RaeAnne LINDSAY, Auteur ; Sarah DEMISSIE, Auteur ; Isabelle BURAKOV, Auteur ; Saury RAMOS-TORRES, Auteur ; Meghan M. BURKE, Auteur . - p.2513-2523. Langues : Anglais (eng) in Autism > 29-10 (October 2025) . - p.2513-2523 Mots-clés : autism spectrum disorders  facilitators  healthcare  self-advocacy Index. décimale : PER Périodiques Résumé : Autistic adults face various psychological and physical health conditions which often require ongoing medical attention. Despite a greater likelihood of health conditions, autistic adults face many systemic barriers in accessing healthcare services. It is important to identify facilitators to healthcare access and recognize the impact of self-advocacy on these experiences. In this qualitative study, we interviewed 15 autistic participants to understand their experienced and desired facilitators when accessing healthcare services, as well as the role of self-advocacy in accessing these services. Overall, participants agreed that formal and informal supports, provider knowledge about autism, and provider openness to providing accommodations served as facilitators. Participants also shared about their experiences related to self-advocacy and accessing healthcare services such as examples of self-advocacy in healthcare, learning to be a self-advocate, and facilitators of self-advocacy. Implications for research and practice are discussed.Lay abstract Autistic adults often have both mental and physical health needs that require ongoing care. However, they often face obstacles when trying to get healthcare. This study aimed to find out what helps autistic adults get the healthcare they need and how self-advocacy, or speaking up for themselves, plays a role. We talked to 15 autistic individuals about their experiences and what they wished for when accessing healthcare. Participants mentioned that support from others, doctors' knowledge about autism, and doctors being willing to make changes as needed per patient need were helpful. They also shared how self-advocacy impacted their healthcare experiences, including examples of how they advocated for themselves and what helped them do so. The study offers insights that could inform future research and healthcare practices. En ligne : https://dx.doi.org/10.1177/13623613251343350 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=567

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