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Auteur Carolyn DIGUISEPPI
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Documents disponibles écrits par cet auteur (4)
Faire une suggestion Affiner la rechercheLongitudinal Examination of Wandering in Children and Adolescents With Autism / Lisa D. WIGGINS in Autism, 30-8 (August 2026)
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[article]
Titre : Longitudinal Examination of Wandering in Children and Adolescents With Autism Type de document : texte imprimé Auteurs : Lisa D. WIGGINS, Auteur ; Carolyn DIGUISEPPI, Auteur ; Katherine OVERWYK, Auteur ; Patrick POWELL, Auteur ; Angela THOMPSON-PAUL, Auteur ; Eric MOODY, Auteur ; Cy NADLER, Auteur ; Nuri REYES, Auteur ; Sarah TINKER, Auteur Article en page(s) : p.2107-2116 Langues : Anglais (eng) Mots-clés : autism prevention safety wandering Index. décimale : PER Périodiques Résumé : Wandering – or leaving a supervised space and/or care of a responsible person – disproportionately affects children with autism and can lead to serious injury. We describe parent-reported wandering in children with autism in early childhood and adolescence and characterize wandering in adolescence. Of 258 teens with autism enrolled in the Study to Explore Early Development, caregivers reported that 45% never wandered, 41% wandered only in early childhood, and 14% wandered at least once in adolescence (including 9% that wandered at both time points). Childhood externalizing behavior problems were positively associated with wandering only in early childhood and at least once in adolescence compared to never wandered (both p < .01). Adolescents who wandered most often left public places (58.3%). To address wandering, caregivers most often added home locks/alarms (30.6%) and least often placed a tracking device (8.3%) on the adolescent. In conclusion, wandering is less common among adolescents than young children with autism but still presents opportunities for intervention. These findings can help partners communicate that childhood externalizing behavior problems are associated with wandering regardless of age and promote awareness of and access to interventions that can improve health and safety.Lay Abstract Wandering occurs when a child leaves a safe space. Children with autism wander more than other children. This can lead to serious injury. We describe wandering in children and adolescents with autism. In total, 258 teens with autism were included in the analysis. Caregivers reported that 45% never wandered, 41% wandered only in early childhood, and 14% wandered at least once in adolescence (including 9% that wandered at both time points). Children with behaviors like hyperactivity were more likely to wander in both early childhood and adolescence. Adolescents who wandered most often left public places (58.3%). To address wandering, caregivers most often added home locks/alarms (30.6%) and least often placed a tracking device (8.3%) on the adolescent. In sum, wandering is less common among adolescents than young children with autism. However, we can still help families with adolescents with autism who wander. One way to help these families is to educate people that behavior problems like hyperactivity are associated with wandering regardless of age. Another way to help these families is to increase ways to address wandering away from the home to keep adolescents with autism safe. En ligne : https://dx.doi.org/10.1177/13623613261459642 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=590
in Autism > 30-8 (August 2026) . - p.2107-2116[article] Longitudinal Examination of Wandering in Children and Adolescents With Autism [texte imprimé] / Lisa D. WIGGINS, Auteur ; Carolyn DIGUISEPPI, Auteur ; Katherine OVERWYK, Auteur ; Patrick POWELL, Auteur ; Angela THOMPSON-PAUL, Auteur ; Eric MOODY, Auteur ; Cy NADLER, Auteur ; Nuri REYES, Auteur ; Sarah TINKER, Auteur . - p.2107-2116.
Langues : Anglais (eng)
in Autism > 30-8 (August 2026) . - p.2107-2116
Mots-clés : autism prevention safety wandering Index. décimale : PER Périodiques Résumé : Wandering – or leaving a supervised space and/or care of a responsible person – disproportionately affects children with autism and can lead to serious injury. We describe parent-reported wandering in children with autism in early childhood and adolescence and characterize wandering in adolescence. Of 258 teens with autism enrolled in the Study to Explore Early Development, caregivers reported that 45% never wandered, 41% wandered only in early childhood, and 14% wandered at least once in adolescence (including 9% that wandered at both time points). Childhood externalizing behavior problems were positively associated with wandering only in early childhood and at least once in adolescence compared to never wandered (both p < .01). Adolescents who wandered most often left public places (58.3%). To address wandering, caregivers most often added home locks/alarms (30.6%) and least often placed a tracking device (8.3%) on the adolescent. In conclusion, wandering is less common among adolescents than young children with autism but still presents opportunities for intervention. These findings can help partners communicate that childhood externalizing behavior problems are associated with wandering regardless of age and promote awareness of and access to interventions that can improve health and safety.Lay Abstract Wandering occurs when a child leaves a safe space. Children with autism wander more than other children. This can lead to serious injury. We describe wandering in children and adolescents with autism. In total, 258 teens with autism were included in the analysis. Caregivers reported that 45% never wandered, 41% wandered only in early childhood, and 14% wandered at least once in adolescence (including 9% that wandered at both time points). Children with behaviors like hyperactivity were more likely to wander in both early childhood and adolescence. Adolescents who wandered most often left public places (58.3%). To address wandering, caregivers most often added home locks/alarms (30.6%) and least often placed a tracking device (8.3%) on the adolescent. In sum, wandering is less common among adolescents than young children with autism. However, we can still help families with adolescents with autism who wander. One way to help these families is to educate people that behavior problems like hyperactivity are associated with wandering regardless of age. Another way to help these families is to increase ways to address wandering away from the home to keep adolescents with autism safe. En ligne : https://dx.doi.org/10.1177/13623613261459642 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=590 Parent and Provider Perspectives on Family Navigation for Early Identification of Children With Autism Spectrum Disorder / Christina CHEUNG in Focus on Autism and Other Developmental Disabilities, 41-1 (March 2026)
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Titre : Parent and Provider Perspectives on Family Navigation for Early Identification of Children With Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Christina CHEUNG, Auteur ; Jacqueline JONES, Auteur ; Kristina HIGHTSHOE, Auteur ; Jeanette CÓRDOVA, Auteur ; Yurico GUTIÉRREZ, Auteur ; Jodi K. DOOLING-LITFIN, Auteur ; Margaret M. TOMCHO, Auteur ; Silvia GUTIERREZ-RAGHUNATH, Auteur ; Cordelia Robinson ROSENBERG, Auteur ; Steven A. ROSENBERG, Auteur ; Carolyn DIGUISEPPI, Auteur Article en page(s) : p.42-53 Langues : Anglais (eng) Mots-clés : patient navigation autism spectrum disorder health services accessibility family support systems early intervention Hispanic and Latino families Spanish speaking Index. décimale : PER Périodiques Résumé : Early intervention (EI) can improve developmental outcomes among children with autism spectrum disorder (ASD), but underdiagnosis and undertreatment are common among low-income families and children of racial/ethnic minorities. The Screening and Linkage to Services for Autism (SaLSA) trial (ClinicalTrials.gov Identifier: NCT02374541) demonstrated that autism family navigation (AFN) improved the likelihood that young children at risk for ASD completed a diagnostic evaluation. In a qualitative descriptive U.S. study, we recruited parent participants, health care and EI providers and staff, and project personnel from the SaLSA trial to participate in semi-structured interviews on acceptability and feasibility of AFN services for families seen in urban safety-net clinical settings (i.e., where care is provided regardless of ability to pay). Iterative theme analysis was performed. A community focus group was conducted for triangulation to improve validity. Results demonstrated four main themes: (1) “It’s all in a name: the risk of engagement”; (2) “Community partnerships require authentic trust”; (3) “System interactions and interrelationships”; and (4) “What is an autism family navigator: family navigation or clinical role?” This study adds perspectives of interested parties of AFN within an urban underserved population. Recommendations for navigation program content and delivery can inform future modifications to AFN programs in the context of the communities they serve. En ligne : https://dx.doi.org/10.1177/10883576251396515 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=579
in Focus on Autism and Other Developmental Disabilities > 41-1 (March 2026) . - p.42-53[article] Parent and Provider Perspectives on Family Navigation for Early Identification of Children With Autism Spectrum Disorder [texte imprimé] / Christina CHEUNG, Auteur ; Jacqueline JONES, Auteur ; Kristina HIGHTSHOE, Auteur ; Jeanette CÓRDOVA, Auteur ; Yurico GUTIÉRREZ, Auteur ; Jodi K. DOOLING-LITFIN, Auteur ; Margaret M. TOMCHO, Auteur ; Silvia GUTIERREZ-RAGHUNATH, Auteur ; Cordelia Robinson ROSENBERG, Auteur ; Steven A. ROSENBERG, Auteur ; Carolyn DIGUISEPPI, Auteur . - p.42-53.
Langues : Anglais (eng)
in Focus on Autism and Other Developmental Disabilities > 41-1 (March 2026) . - p.42-53
Mots-clés : patient navigation autism spectrum disorder health services accessibility family support systems early intervention Hispanic and Latino families Spanish speaking Index. décimale : PER Périodiques Résumé : Early intervention (EI) can improve developmental outcomes among children with autism spectrum disorder (ASD), but underdiagnosis and undertreatment are common among low-income families and children of racial/ethnic minorities. The Screening and Linkage to Services for Autism (SaLSA) trial (ClinicalTrials.gov Identifier: NCT02374541) demonstrated that autism family navigation (AFN) improved the likelihood that young children at risk for ASD completed a diagnostic evaluation. In a qualitative descriptive U.S. study, we recruited parent participants, health care and EI providers and staff, and project personnel from the SaLSA trial to participate in semi-structured interviews on acceptability and feasibility of AFN services for families seen in urban safety-net clinical settings (i.e., where care is provided regardless of ability to pay). Iterative theme analysis was performed. A community focus group was conducted for triangulation to improve validity. Results demonstrated four main themes: (1) “It’s all in a name: the risk of engagement”; (2) “Community partnerships require authentic trust”; (3) “System interactions and interrelationships”; and (4) “What is an autism family navigator: family navigation or clinical role?” This study adds perspectives of interested parties of AFN within an urban underserved population. Recommendations for navigation program content and delivery can inform future modifications to AFN programs in the context of the communities they serve. En ligne : https://dx.doi.org/10.1177/10883576251396515 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=579 Proximity of Maternal Time of Immigration to Child's Birth Is Associated With Autism Spectrum Disorder With Early Learning Delay Among Immigrant Populations in the United States: Findings From the Study to Explore Early Development / Kaylynn AIONA in Autism Research, 18-12 (December 2025)
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Titre : Proximity of Maternal Time of Immigration to Child's Birth Is Associated With Autism Spectrum Disorder With Early Learning Delay Among Immigrant Populations in the United States: Findings From the Study to Explore Early Development Type de document : texte imprimé Auteurs : Kaylynn AIONA, Auteur ; Tessa CRUME, Auteur ; Nuri REYES, Auteur ; Sarah J. SCHMIEGE, Auteur ; Janine YOUNG, Auteur ; Brady HOLST, Auteur ; Maureen S. DURKIN, Auteur ; Melissa MAGALLANES, Auteur ; Carolyn DIGUISEPPI, Auteur Article en page(s) : p.2419-2430 Langues : Anglais (eng) Mots-clés : autism spectrum disorder early learning delay health disparities immigrant intellectual disability migrant Index. décimale : PER Périodiques Résumé : ABSTRACT Our objective was to examine the relationship between the timing of parental US immigration and autism spectrum disorder (ASD) without early learning delay (ELD), ASD with ELD, and ELD alone among US-born children. We analyzed data from a multi-site case?control study that recruited children aged 2?5?years with ASD or non-ASD developmental disorders and same-age population controls. Parental demographics were collected from caregivers at study enrollment. Mullen Scales of Early Learning ≤?70 was used to define ELD. Among children with a non-US-born parent (N?=?1048), we used multinomial logistic regression to examine time from parental immigration to the child's birth in relation to ASD alone, ASD with ELD (ASD?+?ELD), and ELD alone compared to population controls. Having a non-US-born mother (regardless of the father's birthplace) versus a non-US-born father only was evaluated as a potential effect modifier. Among those with a non-US-born mother, closer proximity of maternal time of immigration to the child's birth is associated with increased odds for ASD?+?ELD and ELD alone. There was no significant association between years since US arrival and ASD alone. Among those with a non-US-born father only, we did not observe a significant relationship between time since paternal US arrival and ASD/ELD categories. Our study suggests that time-varying exposures among immigrant mothers may be of importance for the development of ASD?+?ELD and ELD alone in the offspring. These results may inform research into the etiology of ASD and ELD and ways to support immigrant women of childbearing age. En ligne : https://doi.org/10.1002/aur.70133 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=578
in Autism Research > 18-12 (December 2025) . - p.2419-2430[article] Proximity of Maternal Time of Immigration to Child's Birth Is Associated With Autism Spectrum Disorder With Early Learning Delay Among Immigrant Populations in the United States: Findings From the Study to Explore Early Development [texte imprimé] / Kaylynn AIONA, Auteur ; Tessa CRUME, Auteur ; Nuri REYES, Auteur ; Sarah J. SCHMIEGE, Auteur ; Janine YOUNG, Auteur ; Brady HOLST, Auteur ; Maureen S. DURKIN, Auteur ; Melissa MAGALLANES, Auteur ; Carolyn DIGUISEPPI, Auteur . - p.2419-2430.
Langues : Anglais (eng)
in Autism Research > 18-12 (December 2025) . - p.2419-2430
Mots-clés : autism spectrum disorder early learning delay health disparities immigrant intellectual disability migrant Index. décimale : PER Périodiques Résumé : ABSTRACT Our objective was to examine the relationship between the timing of parental US immigration and autism spectrum disorder (ASD) without early learning delay (ELD), ASD with ELD, and ELD alone among US-born children. We analyzed data from a multi-site case?control study that recruited children aged 2?5?years with ASD or non-ASD developmental disorders and same-age population controls. Parental demographics were collected from caregivers at study enrollment. Mullen Scales of Early Learning ≤?70 was used to define ELD. Among children with a non-US-born parent (N?=?1048), we used multinomial logistic regression to examine time from parental immigration to the child's birth in relation to ASD alone, ASD with ELD (ASD?+?ELD), and ELD alone compared to population controls. Having a non-US-born mother (regardless of the father's birthplace) versus a non-US-born father only was evaluated as a potential effect modifier. Among those with a non-US-born mother, closer proximity of maternal time of immigration to the child's birth is associated with increased odds for ASD?+?ELD and ELD alone. There was no significant association between years since US arrival and ASD alone. Among those with a non-US-born father only, we did not observe a significant relationship between time since paternal US arrival and ASD/ELD categories. Our study suggests that time-varying exposures among immigrant mothers may be of importance for the development of ASD?+?ELD and ELD alone in the offspring. These results may inform research into the etiology of ASD and ELD and ways to support immigrant women of childbearing age. En ligne : https://doi.org/10.1002/aur.70133 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=578 Unintentional Drowning Incidents Involving Children with Autism Spectrum Disorder Treated in US Emergency Departments, 2016–2020 / Kristal XIE in Journal of Autism and Developmental Disorders, 56-9 (September 2026)
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Titre : Unintentional Drowning Incidents Involving Children with Autism Spectrum Disorder Treated in US Emergency Departments, 2016–2020 Type de document : texte imprimé Auteurs : Kristal XIE, Auteur ; Ashley BLANCHARD, Auteur ; Stanford CHIHURI, Auteur ; Matthew RUSSELL, Auteur ; Caleb ING, Auteur ; Carolyn DIGUISEPPI, Auteur ; Guohua LI, Auteur Article en page(s) : p.3385-3392 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorder (ASD) are at heightened risk of unintentional drowning. We examined the epidemiological patterns of unintentional drowning incidents involving children diagnosed with ASD treated in US emergency departments (EDs). Data for this study came from the 2016–2020 Nationwide ED Sample. Children aged 1–19 years diagnosed with ASD and treated in EDs were identified using ICD-10-CM code F84.0. Weighted multivariable logistic regression models were used to estimate the adjusted odds ratio (aOR) and 95% confidence interval (CI) of drowning-related ED visits associated with ASD. During the study period, there were an estimated 21,226 unintentional drowning-related ED visits in children, including 369 in children diagnosed with ASD. Compared to children without ASD, ED visits for unintentional drownings in children with ASD were more likely to have occurred in swimming pools (47.45% vs. 41.21%), natural water (15.55% vs. 8.82%), and bathtubs (8.08% vs. 4.79%). Among children with ASD, unintentional drowning-related ED visits occurred more commonly in children > 10 years (43.20% vs. 18.19%) and were more likely to result in hospital admission (35.14% vs. 22.02%) than among children without ASD. With adjustment for demographic characteristics, ASD was associated with more than a 2-fold increased odds of ED-treated unintentional drowning (aOR = 2.31; 95% CI 1.84, 2.89). Epidemiologic patterns of unintentional drowning are different between children with and without ASD. Targeted interventions designed to increase supervision, provide adaptive swimming lessons, and enhance environmental safety may reduce the risk of unintentional drownings among children diagnosed with ASD. En ligne : https://doi.org/10.1007/s10803-025-06769-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=591
in Journal of Autism and Developmental Disorders > 56-9 (September 2026) . - p.3385-3392[article] Unintentional Drowning Incidents Involving Children with Autism Spectrum Disorder Treated in US Emergency Departments, 2016–2020 [texte imprimé] / Kristal XIE, Auteur ; Ashley BLANCHARD, Auteur ; Stanford CHIHURI, Auteur ; Matthew RUSSELL, Auteur ; Caleb ING, Auteur ; Carolyn DIGUISEPPI, Auteur ; Guohua LI, Auteur . - p.3385-3392.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 56-9 (September 2026) . - p.3385-3392
Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorder (ASD) are at heightened risk of unintentional drowning. We examined the epidemiological patterns of unintentional drowning incidents involving children diagnosed with ASD treated in US emergency departments (EDs). Data for this study came from the 2016–2020 Nationwide ED Sample. Children aged 1–19 years diagnosed with ASD and treated in EDs were identified using ICD-10-CM code F84.0. Weighted multivariable logistic regression models were used to estimate the adjusted odds ratio (aOR) and 95% confidence interval (CI) of drowning-related ED visits associated with ASD. During the study period, there were an estimated 21,226 unintentional drowning-related ED visits in children, including 369 in children diagnosed with ASD. Compared to children without ASD, ED visits for unintentional drownings in children with ASD were more likely to have occurred in swimming pools (47.45% vs. 41.21%), natural water (15.55% vs. 8.82%), and bathtubs (8.08% vs. 4.79%). Among children with ASD, unintentional drowning-related ED visits occurred more commonly in children > 10 years (43.20% vs. 18.19%) and were more likely to result in hospital admission (35.14% vs. 22.02%) than among children without ASD. With adjustment for demographic characteristics, ASD was associated with more than a 2-fold increased odds of ED-treated unintentional drowning (aOR = 2.31; 95% CI 1.84, 2.89). Epidemiologic patterns of unintentional drowning are different between children with and without ASD. Targeted interventions designed to increase supervision, provide adaptive swimming lessons, and enhance environmental safety may reduce the risk of unintentional drownings among children diagnosed with ASD. En ligne : https://doi.org/10.1007/s10803-025-06769-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=591

