Cultural and Linguistic Adaptation of an Autism Parent Mediated Intervention for Spanish Speaking Latinos / Ana C. RAMIREZ in Journal of Autism and Developmental Disorders, 56-12 (December 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-12 (December 2026) . - p.4892-4905 Titre : Cultural and Linguistic Adaptation of an Autism Parent Mediated Intervention for Spanish Speaking Latinos Type de document : texte imprimé Auteurs : Ana C. RAMIREZ, Auteur ; Maria C. MONTENEGRO, Auteur ; Bianca T. VILLALOBOS, Auteur ; Nazaret Fresno CAÑADA, Auteur ; Gabriel Gonzalez NUÑEZ, Auteur ; Rocio CALDERON, Auteur ; Susana Perez KANTOR, Auteur ; Miriam MARES, Auteur ; Miriam ORTIZ, Auteur ; Geohanna NOEL, Auteur ; Cecilia MONTIEL-NAVA, Auteur Article en page(s) : p.4892-4905 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The Caregiver Skills Training (CST) was developed by the World Health Organization (WHO) to improve access to evidence-based services for children with developmental concerns from low-income backgrounds. While the CST program has undergone four significant revisions to increase feasibility of implementation and has been adapted and implemented in more than 30 countries, currently the Spanish version is outdated and has never been implemented in the U.S. This study aimed to culturally and linguistically adapt the Spanish-version of the CST for a predominantly Spanish-speaking Latino-populated region in the United States. The present study followed a community based participatory research (CBPR) approach and used a phenomenological framework to evaluate the content and cultural appropriateness of the Spanish translation of the CST. Focus groups were conducted with Spanish-speaking and bilingual parents of children with an autism spectrum disorder (ASD) diagnosis to inform potential modifications needed to establish a culturally responsive and linguistically appropriate curriculum. Findings yielded linguistic and environmental adaptations to the program, particularly related to autism labels and common values of Latino culture, such as personalismo. Results also indicated that the overall content of the program was acceptable for the Spanish speaking Latino community. This study highlights the critical role of community engagement. By actively involving stakeholders in the adaptation process, the CST is tailored to reflect the unique cultural values, language preferences, and lived experiences of the community. In doing so, it ensures that the program truly meets their needs, improving efficacy, and reducing attrition. En ligne : https://doi.org/10.1007/s10803-025-06921-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=595 [article] Cultural and Linguistic Adaptation of an Autism Parent Mediated Intervention for Spanish Speaking Latinos [texte imprimé] / Ana C. RAMIREZ, Auteur ; Maria C. MONTENEGRO, Auteur ; Bianca T. VILLALOBOS, Auteur ; Nazaret Fresno CAÑADA, Auteur ; Gabriel Gonzalez NUÑEZ, Auteur ; Rocio CALDERON, Auteur ; Susana Perez KANTOR, Auteur ; Miriam MARES, Auteur ; Miriam ORTIZ, Auteur ; Geohanna NOEL, Auteur ; Cecilia MONTIEL-NAVA, Auteur . - p.4892-4905. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-12 (December 2026) . - p.4892-4905 Index. décimale : PER Périodiques Résumé : The Caregiver Skills Training (CST) was developed by the World Health Organization (WHO) to improve access to evidence-based services for children with developmental concerns from low-income backgrounds. While the CST program has undergone four significant revisions to increase feasibility of implementation and has been adapted and implemented in more than 30 countries, currently the Spanish version is outdated and has never been implemented in the U.S. This study aimed to culturally and linguistically adapt the Spanish-version of the CST for a predominantly Spanish-speaking Latino-populated region in the United States. The present study followed a community based participatory research (CBPR) approach and used a phenomenological framework to evaluate the content and cultural appropriateness of the Spanish translation of the CST. Focus groups were conducted with Spanish-speaking and bilingual parents of children with an autism spectrum disorder (ASD) diagnosis to inform potential modifications needed to establish a culturally responsive and linguistically appropriate curriculum. Findings yielded linguistic and environmental adaptations to the program, particularly related to autism labels and common values of Latino culture, such as personalismo. Results also indicated that the overall content of the program was acceptable for the Spanish speaking Latino community. This study highlights the critical role of community engagement. By actively involving stakeholders in the adaptation process, the CST is tailored to reflect the unique cultural values, language preferences, and lived experiences of the community. In doing so, it ensures that the program truly meets their needs, improving efficacy, and reducing attrition. En ligne : https://doi.org/10.1007/s10803-025-06921-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=595

Time to Listen: Engaging Latino Autistic Adults and Parents as Partners in Advancing Autism Research / Cecilia MONTIEL-NAVA in Journal of Autism and Developmental Disorders, 56-11 (November 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-11 (November 2026) . - p.4204-4216 Titre : Time to Listen: Engaging Latino Autistic Adults and Parents as Partners in Advancing Autism Research Type de document : texte imprimé Auteurs : Cecilia MONTIEL-NAVA, Auteur ; Chenoa NAVARRO, Auteur ; Jessica ABOUCHARD, Auteur ; Ana C. RAMIREZ, Auteur ; Victoria VILLAREAL, Auteur ; Rocio CALDERON, Auteur ; Susana Perez KANTOR, Auteur ; Valerie NEELEY, Auteur ; Alberto ALLEGRE, Auteur ; Antonio F. PAGÁN, Auteur ; Maria C. MONTENEGRO, Auteur Article en page(s) : p.4204-4216 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The limited representation of Latino autistic individuals and their families in research studies limits our understanding of how autism presents and is experienced across diverse communities, emphasizing a need for more inclusive research methodologies and participant recruitment strategies. Our project aimed to explore how participatory research methods can be effectively implemented to develop culturally valid measurement tools and research protocols that accurately capture the experiences of bilingual/bicultural Latino autistic individuals and their families. This study used a phenomenological framework design guided by community-based Participatory research and the social model of disability principles. Two trained researchers conducted three focus groups with Latino parents of autistic children (n = 25) and two with Latino autistic adults (n = 8), and data was analyzed utilizing thematic analysis. We used a consultative model in which a community advisory board provided input throughout the project. Effective research engagement in border Latino communities is contingent on three key factors: fostering cultural and linguistic alignment, building and maintaining institutional trust, and thoughtfully incorporating community symbols. Together, these elements highlight a roadmap for researchers to build sustainable partnerships rooted in respect, equity, and cultural competence. Culturally informed research procedures, led by a culturally sensitive team of Latino researchers and Latino autism community members working as equal partners, can enhance engagement and ensure relevant, valid research studies and priorities. Using a CBPR framework and an intersectionality lens advances equitable representation in autism research and promotes culturally informed responses to the needs of diverse autistic communities. En ligne : https://doi.org/10.1007/s10803-025-06868-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=595 [article] Time to Listen: Engaging Latino Autistic Adults and Parents as Partners in Advancing Autism Research [texte imprimé] / Cecilia MONTIEL-NAVA, Auteur ; Chenoa NAVARRO, Auteur ; Jessica ABOUCHARD, Auteur ; Ana C. RAMIREZ, Auteur ; Victoria VILLAREAL, Auteur ; Rocio CALDERON, Auteur ; Susana Perez KANTOR, Auteur ; Valerie NEELEY, Auteur ; Alberto ALLEGRE, Auteur ; Antonio F. PAGÁN, Auteur ; Maria C. MONTENEGRO, Auteur . - p.4204-4216. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-11 (November 2026) . - p.4204-4216 Index. décimale : PER Périodiques Résumé : The limited representation of Latino autistic individuals and their families in research studies limits our understanding of how autism presents and is experienced across diverse communities, emphasizing a need for more inclusive research methodologies and participant recruitment strategies. Our project aimed to explore how participatory research methods can be effectively implemented to develop culturally valid measurement tools and research protocols that accurately capture the experiences of bilingual/bicultural Latino autistic individuals and their families. This study used a phenomenological framework design guided by community-based Participatory research and the social model of disability principles. Two trained researchers conducted three focus groups with Latino parents of autistic children (n = 25) and two with Latino autistic adults (n = 8), and data was analyzed utilizing thematic analysis. We used a consultative model in which a community advisory board provided input throughout the project. Effective research engagement in border Latino communities is contingent on three key factors: fostering cultural and linguistic alignment, building and maintaining institutional trust, and thoughtfully incorporating community symbols. Together, these elements highlight a roadmap for researchers to build sustainable partnerships rooted in respect, equity, and cultural competence. Culturally informed research procedures, led by a culturally sensitive team of Latino researchers and Latino autism community members working as equal partners, can enhance engagement and ensure relevant, valid research studies and priorities. Using a CBPR framework and an intersectionality lens advances equitable representation in autism research and promotes culturally informed responses to the needs of diverse autistic communities. En ligne : https://doi.org/10.1007/s10803-025-06868-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=595

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