Centre d'Information et de documentation du CRA Rhône-Alpes
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Integrating autistic perspectives into autism science: A role for autistic autobiographies / Janette DINISHAK in Autism, 27-3 (April 2023)
[article]
Titre : Integrating autistic perspectives into autism science: A role for autistic autobiographies Type de document : Texte imprimé et/ou numérique Auteurs : Janette DINISHAK, Auteur ; Nameera AKHTAR, Auteur Article en page(s) : p.578-587 Langues : Anglais (eng) Mots-clés : autism science reform,autism,autistic perspectives,epistemic justice,first-person accounts Index. décimale : PER Périodiques Résumé : Autism science faces several conceptual and ethical challenges. These include fundamental issues such as how to characterize autism and the fact that research findings and how they are interpreted sometimes contribute to negative perceptions of autistic people. We argue that some of these challenges can be addressed by centering the perspectives of autistic people and focus on one way to accomplish this: having non-autistic researchers critically engage with personal accounts of autistic experience. We discuss some of the advantages and challenges of engaging with these accounts and argue that they can play a role in the reform of autism science.Lay abstractAutism science faces challenges in how to think about autism and what questions to focus on, and sometimes contributes to stigma against autistic people. We examine one way that non-autistic researchers may start to combat these challenges: by reading and reflecting on autistic people?s descriptions of their personal experiences (e.g. autobiographies) of what it is like to be autistic. In this article, we review some of the advantages and challenges of this approach and how it may help combat some of the challenges currently facing autism science by focusing studies on the questions autistic people find most important, counteracting stereotypes, and increasing understanding of autistic experiences. En ligne : https://doi.org/10.1177/13623613221123731 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499
in Autism > 27-3 (April 2023) . - p.578-587[article] Integrating autistic perspectives into autism science: A role for autistic autobiographies [Texte imprimé et/ou numérique] / Janette DINISHAK, Auteur ; Nameera AKHTAR, Auteur . - p.578-587.
Langues : Anglais (eng)
in Autism > 27-3 (April 2023) . - p.578-587
Mots-clés : autism science reform,autism,autistic perspectives,epistemic justice,first-person accounts Index. décimale : PER Périodiques Résumé : Autism science faces several conceptual and ethical challenges. These include fundamental issues such as how to characterize autism and the fact that research findings and how they are interpreted sometimes contribute to negative perceptions of autistic people. We argue that some of these challenges can be addressed by centering the perspectives of autistic people and focus on one way to accomplish this: having non-autistic researchers critically engage with personal accounts of autistic experience. We discuss some of the advantages and challenges of engaging with these accounts and argue that they can play a role in the reform of autism science.Lay abstractAutism science faces challenges in how to think about autism and what questions to focus on, and sometimes contributes to stigma against autistic people. We examine one way that non-autistic researchers may start to combat these challenges: by reading and reflecting on autistic people?s descriptions of their personal experiences (e.g. autobiographies) of what it is like to be autistic. In this article, we review some of the advantages and challenges of this approach and how it may help combat some of the challenges currently facing autism science by focusing studies on the questions autistic people find most important, counteracting stereotypes, and increasing understanding of autistic experiences. En ligne : https://doi.org/10.1177/13623613221123731 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499