Access to services for autistic people across Europe / Siti Nurnadhirah BINTE MOHD IKHSAN in Molecular Autism, 16 (2025)  

Public ISBD [article]  inMolecular Autism > 16 (2025) . - 35 Titre : Access to services for autistic people across Europe Type de document : texte imprimé Auteurs : Siti Nurnadhirah BINTE MOHD IKHSAN, Auteur ; Rosemary HOLT, Auteur ; Joyce MAN, Auteur ; Tracey PARSONS, Auteur ; Rik SCHALBROECK, Auteur ; Amber RUIGROK, Auteur ; Aurélie BARANGER, Auteur ; Carrie ALLISON, Auteur ; Mary DOHERTY, Auteur ; Katrien VAN DEN BOSCH, Auteur ; Jerneja TERÄŒON, Auteur ; Pierre VIOLLAND, Auteur ; Anjuli GHOSH, Auteur ; James CUSACK, Auteur ; Simon BARON-COHEN, Auteur ; Siti Nurnadhirah Secondary BINTE MOHD IKHSAN, Auteur ; Rosemary HOLT, Auteur ; Joyce MAN, Auteur ; Tracey PARSONS, Auteur ; Rik SCHALBROECK, Auteur ; Amber RUIGROK, Auteur ; Aurélie BARANGER, Auteur ; Carrie ALLISON, Auteur ; Mary DOHERTY, Auteur ; Katrien VAN DEN BOSCH, Auteur ; Jerneja TERÄŒON, Auteur ; Pierre VIOLLAND, Auteur ; Anjuli GHOSH, Auteur ; James CUSACK, Auteur ; Simon BARON-COHEN, Auteur Article en page(s) : 35 Langues : Anglais (eng) Mots-clés : Humans  Male  Health Services Accessibility/statistics & numerical data  Female  Adult  Autistic Disorder/therapy/epidemiology/diagnosis  Europe/epidemiology  Adolescent  Middle Aged  Child  Young Adult  Surveys and Questionnaires  United Kingdom  Autism  Europe  Policy  Service access  Service barriers  Services  Survey  conducted in accordance with the principles outlined in the Declaration of  Helsinki. All participants gave written informed consent in the ACCESS-EU study,  which was approved by the Cambridge Psychology Research Ethics Committee  (reference number PRE.2019.088). As this research involved an online survey, it  adhered to ethical standards for informed consent, participant confidentiality,  and data protection. All participants were provided with a clear informed consent  form and assured that their participation was voluntary, anonymous, and  confidential. Consent for publication: Not applicable. Competing interests: Simon  Baron-Cohen is the previous Editor-in-Chief of Molecular Autism. Index. décimale : PER Périodiques Résumé : BACKGROUND: Autistic communities in Europe continue to face difficulties accessing services despite increasing rates of autism diagnosis in recent years. METHODS: To investigate autistic people's access to services in Europe and reasons for unsuccessful access, we conducted the ACCESS-EU survey comprising of 2322 formally diagnosed autistic people and family carers living within the European Union (EU) and the United Kingdom (UK). The survey also examined age group (adult vs. child) and gender (male vs. female) differences in results. RESULTS: Overall, autistic people reported access to therapy (33.38%), mental health (29.89%), educational (27.05%), medical (34.28%), financial (26.66%), needs assessment (14.90%), information/referral (14.73%), social care (14.43%), employment (7.54%), housing (6.80%), legal (3.96%), helpline (3.40%) and other services (0.26%), and most (≥ 57.61%) had waited up to 6 months from referral to access most services. Several respondents were also unable to access therapeutic (13.53%), mental health (11.90%), autism diagnostic (5.92%), needs assessment (8.32%), financial (9.62%), educational (8.10%), social care (7.39%), information/referral (6.14%), medical (7.28%), housing (5.92%), employment (5.43%), legal (3.42%), and helpline services (2.34%). Reasons cited by respondents for their unsuccessful service access included service unavailability (23.08%), service unsuitability or participant ineligibility (20.04%), long waitlists (17.42%), service unaffordability (11.80%), and rejection from service due to autism diagnosis (9.87%), along with other reasons not listed in the survey (18.42%). Significant age group and gender differences were observed for successful access to services, waiting time, unsuccessful access and reasons for unsuccessful access. Among the five most represented countries in the survey-the UK (33.33%), Spain (14.04%), Poland (13.87%), France (11.07%) and Germany (6.03%)-overall service access was most inconsistent in Poland and the UK, highest in Germany and Spain but poorest in France. LIMITATIONS: Issues related to survey presentation such as the languages in which the survey was conducted and the phrasing of some questions should be considered, as well as issues regarding subjectivity and ambiguity of data analysis such as translation of non-English responses into English. CONCLUSIONS: Our findings suggest that service access among autistic people in Europe is inconsistent. Significant improvement to current policies is required to enhance access to services across Europe. En ligne : https://dx.doi.org/10.1186/s13229-025-00664-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=569 [article] Access to services for autistic people across Europe [texte imprimé] / Siti Nurnadhirah BINTE MOHD IKHSAN, Auteur ; Rosemary HOLT, Auteur ; Joyce MAN, Auteur ; Tracey PARSONS, Auteur ; Rik SCHALBROECK, Auteur ; Amber RUIGROK, Auteur ; Aurélie BARANGER, Auteur ; Carrie ALLISON, Auteur ; Mary DOHERTY, Auteur ; Katrien VAN DEN BOSCH, Auteur ; Jerneja TERÄŒON, Auteur ; Pierre VIOLLAND, Auteur ; Anjuli GHOSH, Auteur ; James CUSACK, Auteur ; Simon BARON-COHEN, Auteur ; Siti Nurnadhirah Secondary BINTE MOHD IKHSAN, Auteur ; Rosemary HOLT, Auteur ; Joyce MAN, Auteur ; Tracey PARSONS, Auteur ; Rik SCHALBROECK, Auteur ; Amber RUIGROK, Auteur ; Aurélie BARANGER, Auteur ; Carrie ALLISON, Auteur ; Mary DOHERTY, Auteur ; Katrien VAN DEN BOSCH, Auteur ; Jerneja TERÄŒON, Auteur ; Pierre VIOLLAND, Auteur ; Anjuli GHOSH, Auteur ; James CUSACK, Auteur ; Simon BARON-COHEN, Auteur . - 35. Langues : Anglais (eng) in Molecular Autism > 16 (2025) . - 35 Mots-clés : Humans  Male  Health Services Accessibility/statistics & numerical data  Female  Adult  Autistic Disorder/therapy/epidemiology/diagnosis  Europe/epidemiology  Adolescent  Middle Aged  Child  Young Adult  Surveys and Questionnaires  United Kingdom  Autism  Europe  Policy  Service access  Service barriers  Services  Survey  conducted in accordance with the principles outlined in the Declaration of  Helsinki. All participants gave written informed consent in the ACCESS-EU study,  which was approved by the Cambridge Psychology Research Ethics Committee  (reference number PRE.2019.088). As this research involved an online survey, it  adhered to ethical standards for informed consent, participant confidentiality,  and data protection. All participants were provided with a clear informed consent  form and assured that their participation was voluntary, anonymous, and  confidential. Consent for publication: Not applicable. Competing interests: Simon  Baron-Cohen is the previous Editor-in-Chief of Molecular Autism. Index. décimale : PER Périodiques Résumé : BACKGROUND: Autistic communities in Europe continue to face difficulties accessing services despite increasing rates of autism diagnosis in recent years. METHODS: To investigate autistic people's access to services in Europe and reasons for unsuccessful access, we conducted the ACCESS-EU survey comprising of 2322 formally diagnosed autistic people and family carers living within the European Union (EU) and the United Kingdom (UK). The survey also examined age group (adult vs. child) and gender (male vs. female) differences in results. RESULTS: Overall, autistic people reported access to therapy (33.38%), mental health (29.89%), educational (27.05%), medical (34.28%), financial (26.66%), needs assessment (14.90%), information/referral (14.73%), social care (14.43%), employment (7.54%), housing (6.80%), legal (3.96%), helpline (3.40%) and other services (0.26%), and most (≥ 57.61%) had waited up to 6 months from referral to access most services. Several respondents were also unable to access therapeutic (13.53%), mental health (11.90%), autism diagnostic (5.92%), needs assessment (8.32%), financial (9.62%), educational (8.10%), social care (7.39%), information/referral (6.14%), medical (7.28%), housing (5.92%), employment (5.43%), legal (3.42%), and helpline services (2.34%). Reasons cited by respondents for their unsuccessful service access included service unavailability (23.08%), service unsuitability or participant ineligibility (20.04%), long waitlists (17.42%), service unaffordability (11.80%), and rejection from service due to autism diagnosis (9.87%), along with other reasons not listed in the survey (18.42%). Significant age group and gender differences were observed for successful access to services, waiting time, unsuccessful access and reasons for unsuccessful access. Among the five most represented countries in the survey-the UK (33.33%), Spain (14.04%), Poland (13.87%), France (11.07%) and Germany (6.03%)-overall service access was most inconsistent in Poland and the UK, highest in Germany and Spain but poorest in France. LIMITATIONS: Issues related to survey presentation such as the languages in which the survey was conducted and the phrasing of some questions should be considered, as well as issues regarding subjectivity and ambiguity of data analysis such as translation of non-English responses into English. CONCLUSIONS: Our findings suggest that service access among autistic people in Europe is inconsistent. Significant improvement to current policies is required to enhance access to services across Europe. En ligne : https://dx.doi.org/10.1186/s13229-025-00664-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=569

ADHD and autism symptoms in youth: a network analysis / L. C. FARHAT in Journal of Child Psychology and Psychiatry, 63-2 (February 2022)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 63-2 (February 2022) . - p.143-151 Titre : ADHD and autism symptoms in youth: a network analysis Type de document : texte imprimé Auteurs : L. C. FARHAT, Auteur ; Helena BRENTANI, Auteur ; V. H. C. DE TOLEDO, Auteur ; E. SHEPHARD, Auteur ; P. MATTOS, Auteur ; Simon BARON-COHEN, Auteur ; A. THAPAR, Auteur ; E. CASELLA, Auteur ; Guilherme V. POLANCZYK, Auteur Article en page(s) : p.143-151 Langues : Anglais (eng) Mots-clés : Attention-deficit hyperactivity disorder  autism spectrum disorder  comorbidity  network analysis  neurodevelopmental Index. décimale : PER Périodiques Résumé : BACKGROUND: Previous research investigating the overlap between attention-deficit/hyperactivity disorder (ADHD) and autism spectrum disorder (henceforth, autism) symptoms in population samples have relied on latent variable modeling in which averaged scores representing dimensions were derived from observed symptoms. There are no studies evaluating how ADHD and autism symptoms interact at the level of individual symptom items. METHODS: We aimed to address this gap by performing a network analysis on data from a school survey of children aged 6-17 years old (N = 7,405). ADHD and autism symptoms were measured via parent-report on the Swanson, Nolan, Pelham-IV questionnaire and the Childhood Autism Spectrum test, respectively. RESULTS: A relatively low interconnectivity between ADHD and autism symptoms was found with only 10.06% of possible connections (edges) between one ADHD and one autism symptoms different than zero. Associations between ADHD and autism symptoms were significantly weaker than those between two symptoms pertaining to the same construct. Select ADHD symptoms, particularly those presenting in social contexts (e.g. 'talks excessively', 'does not wait turn'), showed moderate-to-strong associations with autism symptoms, but some were considered redundant to autism symptoms. CONCLUSIONS: The present findings indicate that individual ADHD and autism symptoms are largely segregated in accordance with diagnostic boundaries corresponding to these conditions in children and adolescents from the community. These findings could improve our clinical conceptualization of ADHD and autism and guide advancements in diagnosis and treatment. En ligne : http://dx.doi.org/10.1111/jcpp.13436 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=457 [article] ADHD and autism symptoms in youth: a network analysis [texte imprimé] / L. C. FARHAT, Auteur ; Helena BRENTANI, Auteur ; V. H. C. DE TOLEDO, Auteur ; E. SHEPHARD, Auteur ; P. MATTOS, Auteur ; Simon BARON-COHEN, Auteur ; A. THAPAR, Auteur ; E. CASELLA, Auteur ; Guilherme V. POLANCZYK, Auteur . - p.143-151. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 63-2 (February 2022) . - p.143-151 Mots-clés : Attention-deficit hyperactivity disorder  autism spectrum disorder  comorbidity  network analysis  neurodevelopmental Index. décimale : PER Périodiques Résumé : BACKGROUND: Previous research investigating the overlap between attention-deficit/hyperactivity disorder (ADHD) and autism spectrum disorder (henceforth, autism) symptoms in population samples have relied on latent variable modeling in which averaged scores representing dimensions were derived from observed symptoms. There are no studies evaluating how ADHD and autism symptoms interact at the level of individual symptom items. METHODS: We aimed to address this gap by performing a network analysis on data from a school survey of children aged 6-17 years old (N = 7,405). ADHD and autism symptoms were measured via parent-report on the Swanson, Nolan, Pelham-IV questionnaire and the Childhood Autism Spectrum test, respectively. RESULTS: A relatively low interconnectivity between ADHD and autism symptoms was found with only 10.06% of possible connections (edges) between one ADHD and one autism symptoms different than zero. Associations between ADHD and autism symptoms were significantly weaker than those between two symptoms pertaining to the same construct. Select ADHD symptoms, particularly those presenting in social contexts (e.g. 'talks excessively', 'does not wait turn'), showed moderate-to-strong associations with autism symptoms, but some were considered redundant to autism symptoms. CONCLUSIONS: The present findings indicate that individual ADHD and autism symptoms are largely segregated in accordance with diagnostic boundaries corresponding to these conditions in children and adolescents from the community. These findings could improve our clinical conceptualization of ADHD and autism and guide advancements in diagnosis and treatment. En ligne : http://dx.doi.org/10.1111/jcpp.13436 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=457

An Exact Mind / Peter MYERS

Public ISBD Titre : An Exact Mind : An Artist with Asperger Syndrome Type de document : texte imprimé Auteurs : Peter MYERS, Auteur ; Sally WHEELWRIGHT, Auteur ; Simon BARON-COHEN, Auteur Editeur : Londres [Angleterre] : Jessica Kingsley Publishers Année de publication : 2004 Importance : 79 p. Présentation : ill. Format : 30cm x 24cm x 0,5cm ISBN/ISSN/EAN : 978-1-84310-032-4 Langues : Anglais (eng) Index. décimale : ART-A ART-A - Artistes Autistes Résumé : Peter Myers's intricate and ornately patterned drawings are brought together for the first time in this volume, which is the fascinating result of the collaboration of an artist and two scientists. The beautiful, complex images (included in full-page colour as well as black and white reproductions) serve as a rare window into the precision and creativity of the Asperger mind at work. Peter Myers was diagnosed with Asperger Syndrome in 1996 and his work reflects his stunning ability to plan and to organize visual information, and to embed illusions within his pictures. In explanatory text alongside the pictures, psychologists Simon Baron-Cohen and Sally Wheelright discuss the work's deep psychological significance, demonstrating in accessible language their ground-breaking systemizing theory of how the autistic mind processes information. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=385 An Exact Mind : An Artist with Asperger Syndrome [texte imprimé] / Peter MYERS, Auteur ; Sally WHEELWRIGHT, Auteur ; Simon BARON-COHEN, Auteur . - Londres [Angleterre] : Jessica Kingsley Publishers, 2004 . - 79 p. : ill. ; 30cm x 24cm x 0,5cm. ISBN : 978-1-84310-032-4 Langues : Anglais (eng) Index. décimale : ART-A ART-A - Artistes Autistes Résumé : Peter Myers's intricate and ornately patterned drawings are brought together for the first time in this volume, which is the fascinating result of the collaboration of an artist and two scientists. The beautiful, complex images (included in full-page colour as well as black and white reproductions) serve as a rare window into the precision and creativity of the Asperger mind at work. Peter Myers was diagnosed with Asperger Syndrome in 1996 and his work reflects his stunning ability to plan and to organize visual information, and to embed illusions within his pictures. In explanatory text alongside the pictures, psychologists Simon Baron-Cohen and Sally Wheelright discuss the work's deep psychological significance, demonstrating in accessible language their ground-breaking systemizing theory of how the autistic mind processes information. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=385

Exemplaires(1)

Code-barres	Cote	Support	Localisation	Section	Disponibilité
DOC0000209	ART-A MYE	Livre	Centre d'Information et de Documentation du CRA Rhône-Alpes	ART - Autisme et art - Autisme en images	Disponible

Les abonnés qui ont emprunté ce document ont également emprunté :

The Asperger Couple's Workbook	ASTON, Maxine
La douance et la double exceptionnalité chez l'enfant et l'adolescent	CARON, Marie-Josée
Everyday Heaven	WILLIAMS, Donna
Je suis né un jour bleu	TAMMET, Daniel
Aspergirls	SIMONE, Rudy
L'Asperger au féminin	SIMONE, Rudy

An investigation of the diet, exercise, sleep, BMI, and health outcomes of autistic adults / E. WEIR in Molecular Autism, 12 (2021)  

Public ISBD [article]  inMolecular Autism > 12 (2021) . - 31 p. Titre : An investigation of the diet, exercise, sleep, BMI, and health outcomes of autistic adults Type de document : texte imprimé Auteurs : E. WEIR, Auteur ; Carrie ALLISON, Auteur ; K. K. ONG, Auteur ; Simon BARON-COHEN, Auteur Article en page(s) : 31 p. Langues : Anglais (eng) Mots-clés : Adult outcomes  Comorbidities  Exercise  Healthcare  Nutrition  Physical health  Sleep Index. décimale : PER Périodiques Résumé : BACKGROUND: Studies of autistic children suggest that restricted eating, reduced physical activity, and sleep disorders are common; however, no studies attempt to broadly describe the diet, exercise, and sleep patterns of autistic adults or consider relationships between lifestyle behaviors and the widely reported increased risks of obesity and chronic conditions. To address this, the authors developed the largest study of lifestyle patterns of autistic adults and assessed their relationships to body mass index, health outcomes, and family history. METHODS: We administered an anonymized, online survey to n = 2386 adults (n = 1183 autistic) aged 16-90 years of age. We employed Fisher's exact tests and binomial logistic regression to describe diet, exercise, and sleep patterns; mediation of seizure disorders on sleep; body mass index (BMI); relationships of lifestyle factors to BMI, cardiovascular conditions, and diabetic conditions; and sex differences among autistic adults. RESULTS: Autistic adults, and particularly autistic females, exhibit unhealthy diet, exercise, and sleep patterns; they are also more likely to be underweight or obese. Limited sleep duration and high rates of sleep disturbances cannot be accounted for by epilepsy or seizure disorders. Lifestyle factors are positively related to higher risk of cardiovascular conditions among autistic males, even more than family history. LIMITATIONS: Our sample may not be representative of all autistic and non-autistic people, as it primarily comprised individuals who are white, female, have a high school education or higher, and reside in the UK. Our sampling methods may also exclude some individuals on the autism spectrum, and particularly those with moderate to severe intellectual disability. This is a cross-sectional sample that can test for relationships between factors (e.g., lifestyle factors and health outcomes) but cannot assess the direction of these relationships. CONCLUSIONS: Autistic adults are less likely to meet minimal health recommendations for diet, exercise, and sleep-and these unhealthy behaviors may relate to excess risk of cardiovascular conditions. Although the present study can only provide preliminary, correlational evidence, our findings suggest that diet, exercise, and sleep should be considered and further investigated as key targets for reducing the now widely reported and dramatically increased risks of health comorbidity and premature death among autistic individuals compared to others. Physicians should work cooperatively with patients to provide health education and develop individualized strategies for how to better manage challenges with diet, exercise, and sleep. En ligne : http://dx.doi.org/10.1186/s13229-021-00441-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=459 [article] An investigation of the diet, exercise, sleep, BMI, and health outcomes of autistic adults [texte imprimé] / E. WEIR, Auteur ; Carrie ALLISON, Auteur ; K. K. ONG, Auteur ; Simon BARON-COHEN, Auteur . - 31 p. Langues : Anglais (eng) in Molecular Autism > 12 (2021) . - 31 p. Mots-clés : Adult outcomes  Comorbidities  Exercise  Healthcare  Nutrition  Physical health  Sleep Index. décimale : PER Périodiques Résumé : BACKGROUND: Studies of autistic children suggest that restricted eating, reduced physical activity, and sleep disorders are common; however, no studies attempt to broadly describe the diet, exercise, and sleep patterns of autistic adults or consider relationships between lifestyle behaviors and the widely reported increased risks of obesity and chronic conditions. To address this, the authors developed the largest study of lifestyle patterns of autistic adults and assessed their relationships to body mass index, health outcomes, and family history. METHODS: We administered an anonymized, online survey to n = 2386 adults (n = 1183 autistic) aged 16-90 years of age. We employed Fisher's exact tests and binomial logistic regression to describe diet, exercise, and sleep patterns; mediation of seizure disorders on sleep; body mass index (BMI); relationships of lifestyle factors to BMI, cardiovascular conditions, and diabetic conditions; and sex differences among autistic adults. RESULTS: Autistic adults, and particularly autistic females, exhibit unhealthy diet, exercise, and sleep patterns; they are also more likely to be underweight or obese. Limited sleep duration and high rates of sleep disturbances cannot be accounted for by epilepsy or seizure disorders. Lifestyle factors are positively related to higher risk of cardiovascular conditions among autistic males, even more than family history. LIMITATIONS: Our sample may not be representative of all autistic and non-autistic people, as it primarily comprised individuals who are white, female, have a high school education or higher, and reside in the UK. Our sampling methods may also exclude some individuals on the autism spectrum, and particularly those with moderate to severe intellectual disability. This is a cross-sectional sample that can test for relationships between factors (e.g., lifestyle factors and health outcomes) but cannot assess the direction of these relationships. CONCLUSIONS: Autistic adults are less likely to meet minimal health recommendations for diet, exercise, and sleep-and these unhealthy behaviors may relate to excess risk of cardiovascular conditions. Although the present study can only provide preliminary, correlational evidence, our findings suggest that diet, exercise, and sleep should be considered and further investigated as key targets for reducing the now widely reported and dramatically increased risks of health comorbidity and premature death among autistic individuals compared to others. Physicians should work cooperatively with patients to provide health education and develop individualized strategies for how to better manage challenges with diet, exercise, and sleep. En ligne : http://dx.doi.org/10.1186/s13229-021-00441-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=459

An investigation of the 'female camouflage effect' in autism using a computerized ADOS-2 and a test of sex/gender differences / A. RYNKIEWICZ in Molecular Autism, 7 (2016)  

Public ISBD [article]  inMolecular Autism > 7 (2016) . - 10p. Titre : An investigation of the 'female camouflage effect' in autism using a computerized ADOS-2 and a test of sex/gender differences Type de document : texte imprimé Auteurs : A. RYNKIEWICZ, Auteur ; B. SCHULLER, Auteur ; E. MARCHI, Auteur ; S. PIANA, Auteur ; A. CAMURRI, Auteur ; A. LASSALLE, Auteur ; Simon BARON-COHEN, Auteur Article en page(s) : 10p. Langues : Anglais (eng) Mots-clés : Asperger Syndrome/diagnosis/psychology  Autistic Disorder/diagnosis/psychology  Child  Child, Preschool  Communication Disorders/diagnosis/etiology  Culture  Diagnosis, Computer-Assisted/methods  Diagnostic Errors  Emotions  Facial Expression  Female  Fixation, Ocular  Gestures  Humans  Male  Parents  Poland  Psychomotor Performance  Severity of Illness Index  Sex Characteristics  Sex Factors  Social Behavior  Software  Stereotyped Behavior  Surveys and Questionnaires  Ados-2  Computer application  Diagnosis  Females with autism Index. décimale : PER Périodiques Résumé : BACKGROUND: Autism spectrum conditions (autism) are diagnosed more frequently in boys than in girls. Females with autism may have been under-identified due to not only a male-biased understanding of autism but also females' camouflaging. The study describes a new technique that allows automated coding of non-verbal mode of communication (gestures) and offers the possibility of objective, evaluation of gestures, independent of human judgment. The EyesWeb software platform and the Kinect sensor during two demonstration activities of ADOS-2 (Autism Diagnostic Observation Schedule, Second Edition) were used. METHODS: The study group consisted of 33 high-functioning Polish girls and boys with formal diagnosis of autism or Asperger syndrome aged 5-10, with fluent speech, IQ average and above and their parents (girls with autism, n = 16; boys with autism, n = 17). All children were assessed during two demonstration activities of Module 3 of ADOS-2, administered in Polish, and coded using Polish codes. Children were also assessed with Polish versions of the Eyes and Faces Tests. Parents provided information on the author-reviewed Polish research translation of SCQ (Social Communication Questionnaire, Current and Lifetime) and Polish version of AQ Child (Autism Spectrum Quotient, Child). RESULTS: Girls with autism tended to use gestures more vividly as compared to boys with autism during two demonstration activities of ADOS-2. Girls with autism made significantly more mistakes than boys with autism on the Faces Test. All children with autism had high scores in AQ Child, which confirmed the presence of autistic traits in this group. The current communication skills of boys with autism reported by parents in SCQ were significantly better than those of girls with autism. However, both girls with autism and boys with autism improved in the social and communication abilities over the lifetime. The number of stereotypic behaviours in boys significantly decreased over life whereas it remained at a comparable level in girls with autism. CONCLUSIONS: High-functioning females with autism might present better on non-verbal (gestures) mode of communication than boys with autism. It may camouflage other diagnostic features. It poses risk of under-diagnosis or not receiving the appropriate diagnosis for this population. Further research is required to examine this phenomenon so appropriate gender revisions to the diagnostic assessments might be implemented. En ligne : http://dx.doi.org/10.1186/s13229-016-0073-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=329 [article] An investigation of the 'female camouflage effect' in autism using a computerized ADOS-2 and a test of sex/gender differences [texte imprimé] / A. RYNKIEWICZ, Auteur ; B. SCHULLER, Auteur ; E. MARCHI, Auteur ; S. PIANA, Auteur ; A. CAMURRI, Auteur ; A. LASSALLE, Auteur ; Simon BARON-COHEN, Auteur . - 10p. Langues : Anglais (eng) in Molecular Autism > 7 (2016) . - 10p. Mots-clés : Asperger Syndrome/diagnosis/psychology  Autistic Disorder/diagnosis/psychology  Child  Child, Preschool  Communication Disorders/diagnosis/etiology  Culture  Diagnosis, Computer-Assisted/methods  Diagnostic Errors  Emotions  Facial Expression  Female  Fixation, Ocular  Gestures  Humans  Male  Parents  Poland  Psychomotor Performance  Severity of Illness Index  Sex Characteristics  Sex Factors  Social Behavior  Software  Stereotyped Behavior  Surveys and Questionnaires  Ados-2  Computer application  Diagnosis  Females with autism Index. décimale : PER Périodiques Résumé : BACKGROUND: Autism spectrum conditions (autism) are diagnosed more frequently in boys than in girls. Females with autism may have been under-identified due to not only a male-biased understanding of autism but also females' camouflaging. The study describes a new technique that allows automated coding of non-verbal mode of communication (gestures) and offers the possibility of objective, evaluation of gestures, independent of human judgment. The EyesWeb software platform and the Kinect sensor during two demonstration activities of ADOS-2 (Autism Diagnostic Observation Schedule, Second Edition) were used. METHODS: The study group consisted of 33 high-functioning Polish girls and boys with formal diagnosis of autism or Asperger syndrome aged 5-10, with fluent speech, IQ average and above and their parents (girls with autism, n = 16; boys with autism, n = 17). All children were assessed during two demonstration activities of Module 3 of ADOS-2, administered in Polish, and coded using Polish codes. Children were also assessed with Polish versions of the Eyes and Faces Tests. Parents provided information on the author-reviewed Polish research translation of SCQ (Social Communication Questionnaire, Current and Lifetime) and Polish version of AQ Child (Autism Spectrum Quotient, Child). RESULTS: Girls with autism tended to use gestures more vividly as compared to boys with autism during two demonstration activities of ADOS-2. Girls with autism made significantly more mistakes than boys with autism on the Faces Test. All children with autism had high scores in AQ Child, which confirmed the presence of autistic traits in this group. The current communication skills of boys with autism reported by parents in SCQ were significantly better than those of girls with autism. However, both girls with autism and boys with autism improved in the social and communication abilities over the lifetime. The number of stereotypic behaviours in boys significantly decreased over life whereas it remained at a comparable level in girls with autism. CONCLUSIONS: High-functioning females with autism might present better on non-verbal (gestures) mode of communication than boys with autism. It may camouflage other diagnostic features. It poses risk of under-diagnosis or not receiving the appropriate diagnosis for this population. Further research is required to examine this phenomenon so appropriate gender revisions to the diagnostic assessments might be implemented. En ligne : http://dx.doi.org/10.1186/s13229-016-0073-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=329

Application of Airy beam light sheet microscopy to examine early neurodevelopmental structures in 3D hiPSC-derived human cortical spheroids / Dwaipayan ADHYA in Molecular Autism, 12 (2021)  

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Apprendre aux enfants autistes à comprendre la pensée des autres / Patricia HOWLIN

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Apprendre aux enfants autistes à comprendre la pensée des autres / Patricia HOWLIN

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Apprendre aux enfants autistes à comprendre la pensée des autres / Patricia HOWLIN

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Apprendre aux enfants autistes à comprendre la pensée des autres / Patricia HOWLIN

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Are Autism Spectrum Conditions More Prevalent in an Information-Technology Region? A School-Based Study of Three Regions in the Netherlands / Martine T. ROELFSEMA in Journal of Autism and Developmental Disorders, 42-5 (May 2012)  

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Are autistic people disadvantaged by the criminal justice system? A case comparison / Rachel SLAVNY-CROSS in Autism, 27-5 (July 2023)  

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Asperger Syndrome / Simon BARON-COHEN

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Assessing Autism in Adults: An Evaluation of the Developmental, Dimensional and Diagnostic Interview-Adult Version (3Di-Adult) / W. MANDY in Journal of Autism and Developmental Disorders, 48-2 (February 2018)  

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Atypical integration of social cues for orienting to gaze direction in adults with autism / Chris ASHWIN in Molecular Autism, (January 2015)  

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